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Date: 12.04.2015
From: Clare

Subject: Butterfly rash

Hi everyone,
I just wondered if anyone with RA has ever suffered from this? I've just spent 3 days in hospital on iv antibiotics with suspected nasal celluliis only for them to discharge me saying they think its butterfly rash as it responded too quickly! I now have lots of unanswered questions to which they weren't interested in answering just said talk to my rheumatologist, I always thought this rash was linked to lupus not ra ? Will it come back ? Why am I still on antibiotics & worse off my abatacept if its not infection ? Any advice would be great c x
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Date: 12.04.2015
From: Ella

Subject: Re: Butterfly rash

Hello Clare sorry to hear you have been so unwell. Butterfly rash over the face does sound like Lupus. What was the results of your ANA when your bloods were last tested ? At least it being Monday tomorrow you can give your GP, or even the hospital a ring to try and get some answers.
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Date: 12.04.2015
From: Clare

Subject: Re: Butterfly rash

Hi Ella, they didn't discuss any blood work with me, I guess my fear is after struggling with RA for 8 years they are now throwing a new symptom into the mix. They said sometimes there is crossover with autoimmune disease & I can have this rash with RA rather than having lupus itself. Yes I will call my gp tomorrow see if anything flagged up in my blood work. Clare
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Date: 12.04.2015
From: Ella

Subject: Re: Butterfly rash

If anti nuclear antibody was negative than that would rule out Lupus but it can still be present if you have RA. You could just ring tomorrow and ask what is was. Cant believe they were so dismissive of your queries and concerns , not good at all. Good luck x
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Date: 13.04.2015
From: Ella

Subject: Re: Butterfly rash

Evening Clare , I was wondering if you got the answers from you doctor today ? I know its horrible waiting for diagnosis , I too am in a similar same situation. x
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