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Subject: Re: Interesting story on RA
Hi Sean :-) Great to read your reply as always. I thought I did my fair share of reading up but you are amazing!! Interesting about he antibody against different proteins - guess this is where leaky gut comes in?? Also, why I started out for a good while as sero negative and over the past year now RA Factor apparently - although it was my medical consultant that told me not my rheumatologist ha. I guess the body starts off trying to fend off the proteins and eventually gets so bombarded it can't do any other but succumb and bam we hurt lol. When I look back I was hurting for many years before the docs eventually picked up on anything and by that time I was in a really bad way. Clint Paddison has done remarkably well and seems to lead a very normal life now but his eating regime is so very strict and wouldn't suit me at all - i felt terrible on a vegan diet. I don't eat meat now but I do eat fish. Have managed to give the milk up for KoKo coconut milk which I like but still haven't managed to give the bread up and I do have a cappuccino on a weekend oops. I am taking tiny steps in the right direction. The diet has been the hardest to master. I am thinking of going for a food intolerance testing and mineral testing to see if that helps. At least it would give me a starting point. Funny you should mention the SCD and GAPS because it looks like my daughter may be diagnosed with Ulcerative Colitis another autoimmune illness. I feel so sad for her. Anyway, reading up these diets seem to be recommended by some. I will have to have a good search. Apparently, fibre is an issue for UC and only soluble fibre is beneficial. Have you heard of the Paleo Mom?? She is AIP. Her name is Sarah Ballantyne. Think Paleo would be my favoured eating plan but without the meat for me. It seems do-able and people seems to get along very well with it. Is this what you follow?? Of course the AIP version is very much stricter so I would have to work up to that ha ha. Maybe this year is the year to crack the diet for me. I also have an elimination diet to follow from a Dr Lobur on Facebook. He is a medical doctor who has just become an integrative doctor. Again, he posts information freely which is very kind I think. I did have a go with the elimination diet and a nutritionist. She visited me once and then did everything by email but I felt she wasn't quite experienced enough to deal with my condition - she was just starting out on her journey. Think I have most of the information I need to do it myself really but think the food allergy testing would be a good move. To be honest I am not sure how these diets works so I will have to look that up :-) I am still on the AP and have now reduced my steroids to 6mg from an original 30mg. A triumph I think ha ha. I so wish I could get off them but maybe I can with the added healing of a good nutritional plan. I also take good quality probiotics because these are essential with AP and leaky gut which we must have to be poorly with autoimmune I think. My rheumatologist doesn't hold much store with diet at all. A lot of doctors don't see that it can help us heal. He really doesn't seem interested BUT he is a great guy and has done his best for me at all times. I think it is up to me to take as much responsibility for my health as I can with his back up. I have been grateful for his care. Of course, diet alone won't always make us better I don't believe - sometimes I do think we need the conventional drugs even if it is just to get us back on our feet to work on our diet - I did anyway. I haven't seen the revised food pyramid - I will have a look at that. You take care Sean and I will be looking out for your next bit of information - and thank you for all you do providing us with all you have learnt. Patricia xx Here is the elimination diet that I got from Dr David Lobur's Facebook page if any one is interested :-) https://www.functionalmedicine.org/files/library/elimination-diet-suite_003.pdf
With love and best wishes to everyone xxxx
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