Subject: Re: Sjorgen's syndrom
I have sicca syndrome with my RA which is pretty much Sjogrens without the antibodies. I ende up getting blurred vision as my eyes were so dry and episcleritis.
Have they prescribed anything for it such as hydroxychloroquine?
I have eyedrops on prescription, originally Celluvisc but now Hyloforte (easier to carry about than lots of individual drops) and I have pilocarpine which has made an amazing difference to my dry mouth and eyes too - more of a specialist prescription that though so ask your rhumatologist. I tried to the pastilles but they didn't help much, the relief was very temporary and difficult if you need to talk when taking them (eg if working on phone).
I also have Lacrilube ointment to use before I go to bed.
One tip though, if you get your eyes tested, make sure they are properly lubricated with drops first. I got really confused with differing prescriptions for my glasses (had to stop contacts as eyes too dry) until one optician said the dryness could cause different results so to make sure I have eyedrops put in every time before I get my eyes tested.
I am currently addicted to fruit iced lollies which help as a quick fix and one of the best things I have found to rehydrate me at the moment, especially in this weather is the orange refresher from Starbucks, pricy but only £2 for a tall one after 2pm with a treat receipt if you buy a drink before 11am I think - I get one with my on the way to work coffee.