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Date: 26.07.2014
From: Rachel

Subject: RA - throbbing feet

I have RA past 4 years am on methotrexate and plaquenil, I have pain in the balls of my feet and doc says joints in my feet have dropped. I get a constant throbbing sensation in my feet and it's getting worse. Doc says not consistent with RA anyone else get this? Feel like putting my feet in a bucket of ice.
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Date: 27.07.2014
From: Colin W

Subject: Re: RA - throbbing feet

Hi Rachel , pretty much any part of your foot/ankle RA can set up , with what you mentioned its not easy to get the fluid out those joints , rest for few days & then try to walk it off

one thing I found helps with pain & spasms in feet is a V3 Circulation Booster , its a TENS m/c but works very well for those of us with RA
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Date: 27.07.2014
From: Patricia

Subject: Re: RA - throbbing feet

Hi Rachel,

Yes I have pain in the balls of my feet and my joints have dropped too - it was an osteopath that mentioned this to me at the beginning of my illness before I was diagnosed. I too have inflammatory arthritis (I call it that because I don't have the RA factor in my bloods but it is RA all the same I guess!). I beg to differ with your Doc because my feet were one of the first signs of problems along with aching muscles and fatigue. I feel like all the metatarsals are all inflamed and just under the 4th/5th toes all I can feel is bone :-( My feet and ankles feel constantly hot on the inside if that makes sense. You are not alone lol xx
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Date: 27.07.2014
From: Rachel

Subject: Re: RA - throbbing feet

Thanks Colin I will definitely try that! Cheers hope you are not to bad!
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Date: 27.07.2014
From: Rachel

Subject: Re: RA - throbbing feet

Yes that makes perfect sense nice to know I'm not alone! Hope you are not too bad! Cheers Patricia
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Date: 27.07.2014
From: Rachel

Subject: Re: RA - throbbing feet

I'm 40 and was diagnosed at 36 sometimes I feel I'm too young to have this but know its in my genes I stopped coming on this forum cos I felt depressed thinking there was no hope but in the end it really helps x
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Date: 28.07.2014
From: Patricia

Subject: Re: RA - throbbing feet

Awww Rachel my heart goes out to you - it really does. I was 55 by the time I was diagnosed - mild symptoms from the age of 50 - so to get this awful illness when you are so young must be really terrible.

I heard something on the radio the other day which struck home - the lady (an RA sufferer herself from a young age) said that the pain we cope with on a daily basis would be enough to have 'normal' people take sick leave - and she is so right - so I can understand why you would feel depressed - when you are coping with so much pain from day to day. Do you have adequate pain relief?? For me, the medication doesn't take all the pain away but it makes it more bearable.

I don't post very much on the forum but I do read the posts everyday :-) In a way I find it comforting to know there are other people here who feel exactly like I do. I am glad to hear you are getting some help from the forum too because we certainly need support to cope with what has been thrown at us!!

Take gentle care xx
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Date: 28.07.2014
From: Rachel

Subject: Re: RA - throbbing feet

Yes my medication makes it more bearable and I am lucky really compared to some. I don't find the painkillers any good. I manage it through exercise and swim and cycle most days. That is also good for the mind! I have a 5 year old, work full-time and my husband works abroad so I suppose I don't get much time to think about it! Thanks for your post Patricia, means a lot. Take care.
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Date: 28.07.2014
From: Marlene

Subject: Re: RA - throbbing feet

Hi Rachael, just a quick hello. You are a busy lady and may I say well done you. Full time job a 5yr old to take care of and hubby working away from home. What a tough cookie you are.
You probably don't realise how well you cope with it all so it's a big WELL DONE from me.
Take care and take time out for yourself when ever you can X
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Date: 28.07.2014
From: Colin W

Subject: Re: RA - throbbing feet

hi Rachel , there are a few other things you could ask for

to be refered to a Podiatrist to have custom made arch supports & maybe ask your consultant about trying one of the newer biologic drugs , sometimes they need reminding & you have to ask for them , tell them you dont want to have to give up your job because you got RA
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Date: 30.07.2014
From: Eve

Subject: Re: RA - throbbing feet

I was diagnosed in my mid to late 20s and am 36 now.

I find that sometimes you have to be quite assertive and realy ask and push for things to get somewhere, something I'm a bit rubbish at :) I find making a list before I go to appointments is useful as it's so easy to get sidetracked or feel that you don't have the time to ask things you need to.

Sometimes it's easier to give a list to them to read through and go through.

My feet are really suferring, with the RA and I have busitis and edema in them (diagnosed by MRI)and fluid right up to my knees. The heat has been driving them absolutely crazy! I see podiatry and they are good to advise on appropriate footwear and can provide insoles and such.

The main thing is to try and get the RA under control as otherwise you just end up running rings around yourself trying to get a hold on all the havoc it causes.

I've got plantar fasciitis too and a suspected spur on my heel bone. I've recently been having some hydrotherapy (which ia amazing!) and they have helped with exercises for that to stretch my muscles and the plantar fascia.

Physio said one of my arches in one of my feet was collapsing and they referred me to orthotics who said as I don't have flat feet and orthotics can cause more problems for RA he couldn't help.

I have issued with my toenails too from the RA and fluid and had to have both sides of both toenails removed last year but still having issues with others going involuted and ingrown. Think I'm fighting a losing battle with them. Podiatry have been great though.

I think it's easy to maybe damage our feet further as they can be so painful and if you struggle wth mobility you're just trying to concentrate on what you're doing and where you're going rather than concentrating on (or being able to) walking "properly".
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Date: 31.07.2014
From: bsk

Subject: Re: RA - throbbing feet

Hi Rachael, throbbing and pain in the balls of my feet was my first sign of RA. It wasn't picked up and I was told it was Morton's Neuroma. It wasn't. I also quite often get aching, throbbing feet.
Make sure you are wearing really good shoes and ask for a referral to the orthotics department. They will check your feet and advise/fit for shoes.
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Date: 01.08.2014
From: Patricia

Subject: Re: RA - throbbing feet

Yes - exactly the same symptoms here bsk!! I was also told the throbbing and pain in the balls of my feet ( which were also the first sign of my RA although I didn't know it at the time) was Morton's Neuroma...
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Date: 28.08.2014
From: Rachel

Subject: Re: RA - throbbing feet

Cheers Marlene, means a lot. Hope you are well!
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Date: 28.08.2014
From: Rachel

Subject: Re: RA - throbbing feet

That's really helpful, thanks very much Colin. I don't have an appointment now until January but I will definitely be asking to be referred and to try the new drugs. Hope you are well.
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Date: 28.08.2014
From: Rachel

Subject: Re: RA - throbbing feet

Hi Eve
I'm sorry you seem to be suffering so badly. A list is a great idea. I will do that for my next appointment as you do be rushed in and out. I am worried I will damage my feet further so want to sort it out now. Cheers for your post and hope you have more good days than bad!
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Date: 28.08.2014
From: Rachel

Subject: Re: RA - throbbing feet

Thanks bsk, I have orthotics but don't think they work anymore as throbbing has become much worse to the point I can't sleep at night but I think I will call them as maybe my insoles need to be changed.
Cheers for your post!
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