Subject: Re: Probiotics
thanks Colin, Acidophilus? what does that do, no Im being lazy, I will look it up sorry. was at rheumy on Tuesday, she squeezed my fingers and hands and asked if it hurt, I said no because it didn't really. She just said well I know and can tell your disease is very very active and the steroids you are taking are masking the pain. My crp at minute is 45 gone up from last month when it was right down to 24. Now if she had asked how I was managing walking because of my ankles that might have been different, but no mention of the pain there. She is going to talk to the head of their team to discuss next step because what I am taking isn't working (only taken them 12 months to suss that out!!!) she is talking of biologics as next step, I think, don't know which one because they never tell you anything until its been decided!! Just hope that I am not put in the same position as others and have to decide which one because they all seem to have good and bad reports. Never mind just another 4 more weeks to wait - again. I was wondering what other tests they do before going onto biologics, I know they test for TB and hepatitis. I maybe should get them done before my next appointment to save time and so I don't have to wait for rheumy to arrange them and then have to wait again for the results, that's all we seem to do isn't it wait and see next time. You mentioned that like myself, you also couldn't get on with injecting yourself mtx, how do you manage to get your biologics done, aren't they all injections? I did ask rheumy about the new antibiotic therapy that's been talked about on here, she just didn't want to know and cut me off mid speech which I thought was a bit rude. She also poo pooed food causing problems and looked at me as if I was daft when I said I wondered if my having root canal surgery had any link to me getting RA - especially now my tooth is dead. Gonna stick to reading on here I get more info.
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