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Date: 29.01.2014
From: Willis

Subject: Karen,Helen,Rachael

Evening ladies
How are you?
Keeping well or as best you can be I hope
Thinking of you
Big hugs x
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Date: 30.01.2014
From: karen

Subject: Re: Karen,Helen,Rachael

Morning

Looking forward....not......to work today!

Feeling well apart from stiff neck/shoulders, must pop an iburofen for a busy day!

Hope you are all keeping dry & warm x
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Date: 31.01.2014
From: Rachael

Subject: Re: Karen,Helen,Rachael

Hello.

I've not been good to be honest. My knee was exceptionally painful at the beginning of the week. My hands for the last 2 days feel like glass.

I'm going out for a meal tomorrow and tbh I don't want to go but it's paid for. I'll be using my knork fork for the first time in public.

I'm still to get an appointment to see my GP with regards to my twitching.

Thanks so much for asking after me, it means alot
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Date: 02.02.2014
From: helen

Subject: Re: Karen,Helen,Rachael

Hello Willis Karen Rachel. Not been on here for a few days. Had horrid week again. Back drs with tears , tired , pain anyway iv been given a different sleeping tablet as other just wasn't working so now on temazepam and yeah two nights sleep didn't take last night as daughter went out so had Ella and was worried I would not wake for her. Dr thinks pain is from arthritis as steroids have finished. Also a fibro flare as everything ached like flu and sweating and then freezing. Anyway iv had a good talk to myself and start moving myself this week. We shall see!! On fourth week on leflumemide Sicky feeling gone but sat on loo. Second blood test and bp check this WK hope things are behaving themselves as this is the third drug for arthritis.
Hope you are all OK and have had a good weekend.
Weather has been wet wet and more wet down here in Devon. I can cope with the cold and wind but rain isn't good as walk slow get soaking before you get anywhere.
Take care all SPK in week.
Helen. Xx
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Date: 04.02.2014
From: Willis

Subject: Re: Karen,Helen,Rachael

Evening girls
Sorry to hear you are all suffering so much. If I never knew the true meaning of the word frustration, I sure as heck do now!
I'm having a nice wee flare so ibuprofen till I get to docs
I hope you get some respite from the pain soon
I'm trying to imagine nice sunny beaches with hot sun on me, then I remember it's a hot water bottle :) well I can dream
Sending lots of hugs x
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Date: 07.02.2014
From: karen

Subject: Re: Karen,Helen,Rachael

Hi all

Well, wish I knew what was going on in my body, horrid whatever it is, one day I feel ok, during the night...bam......bad neck, shoulders, ankles, wrist, ribs, upper arms, knees, shall I go on?

Sorry to moan, its just nice to know that people I know have experienced similar pain, not like others that just say, oh yes I ache sometimes, its not just ache, its pain!!

Had a letter from hospital also, cant understand all the letters, rnp, ana, ss something....nobody explains what they mean!!
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Date: 08.02.2014
From: willis

Subject: Re: Karen,Helen,Rachael

hi karen
i googled the intials to see what they meant , that and the others on here let me know
no two days are the same are they
i'm in london tomorrow seeing friend from germany that i haven't seen for 2 years- i just hope i last the day - will be making sure i have plenty painkillers on me!
hope today is a good day for you
xxx
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Date: 08.02.2014
From: karen

Subject: Re: Karen,Helen,Rachael

Well it says i am ccp neg, ana pos, anti jo antibodies neg, rnp pos, ssa positive, rheumatoid factor pos, ck ranges from 370-425, normal ace level, esr 8, do you understand any of this?c4 slightly low at 0.13

Sorry to go on but in the next paragraph, it says they want an emg to look for evidence of myositis and to rule out ana pos, rnp pos and ssa pos

Surely if I have tested pos for these things, why do they have to rule them out, confused!

I had a quick look but dont know which pages to read, I understand some point to mctd which dr suggested but it would be nice if dr explained it instead of me reading info I dont understand

I hope you have a great day tom, its nice to catch up with old friends, also takes your mind off of everything else....enjoy! x
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Date: 12.02.2014
From: willis

Subject: Re: Karen,Helen,Rachael

hi karen
london was good but i walked too much! own fault and whilst in a flare was bad idea lol but was great to see friend and her husband.
with regards your post above
you might do best to start a new thread with your questions, it will bring it more to the top of page and people can see you need help on that specific topic
i'm still none the wiser i'm afraid and i tried googling it for you!
some others on here have a much better understanding of it all than me

hope you are having a good day today or as best as it can be
lots of hugs
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Date: 14.02.2014
From: Rachael

Subject: Re: Karen,Helen,Rachael

Hello all.

Sorry to hear your in a lot of pain Willis.

I seem to be in CONSTANT pain so I never no what is a flare and what isn't. My fingers still feel like glass and I limp 24/7 with my hip.

Tremadoc & gabapentin don't work much.
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