Date: 08.01.2014
From: Tracey
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Subject: whos all on an anti tnf
Hi, ive got psa and been on methotrexate 20mg, sulfasalizine x 4 a day and naproxen. I was only diagnosed in aug. At one point I could barely walk. My esr was at 126 and crp at 115. These have now came down to 45 and 23. Im back at rhummy on tues when they are making decision regarding anti tnf. Ive been reading up and a bit worried about side effects esp higher risk of sle and ms. Anyone any advise. I am feeling a bit better but stil sore esp ankle, knee and my neck is agony esp at night. Im only 34 with 2 young kids age 6 and 3.
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Date: 08.01.2014
From: Sean
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Subject: Re: whos all on an anti tnf
Hi Tracey No hard sell - you just might want to read this and then do some google.. http://paleohacks.com/questions/170255/paleo-diet-to-treat-psoratic-arthritis.html
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Date: 08.01.2014
From: Colin W
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Subject: Re: whos all on an anti tnf
hi tracey http://www.nras.org.uk/about_rheumatoid_arthritis/newly_diagnosed/which_drugs_are_used/antitnfa_treatment_in_rheumatoid_arthritis.aspx the treatment for PaS & RA are the same , alot of us take anti-tnf drugs & its not always easy to get one that works for you , the link above list all the drugs & the one I take is Golimumab (Simponi) but think they will change it soon your CRP was very high & even at 23 is still pretty high , mine last month was 26 & the reason they thinking of changing it , just go for it & you may be very luck & find something that works
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Date: 09.01.2014
From: rhona
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Subject: Re: whos all on an anti tnf
Hi Tracey, I started on medications for RA about thirteen years ago, and over the last couple of years have been on Enbrel and now rituximab. It is a worry taking drugs but they will monitor you closely when on them and if you have any side effects then you can stop them but they have been a great help to a lot of people. If you are worried about starting them then it is important that you speak to your rheumy nurse or consultant and tell them your fears. I managed on mtx etc for years before going into the anti-tnf's but do speak to them more about it and decide what is best for you. Good luck. x
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Date: 09.01.2014
From: tracey
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Subject: Re: whos all on an anti tnf
Thanks everyone for your replys. I will have a read through the links you have sent. Seeing my nurse on tues where she said she would start screening me for anti tnf if my bloods hadnt improved, which they havent really since last I saw her.
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