Date: 17.11.2013
From: angie
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Subject: Diagnosed with RA but blood results never show high CPR levels
Hi Had RAfor seven yrs now tried everything now having rituximab in 2wks which does help thank god One question always boggles my mind when have blood done my esr and cpr levels are all normal never raised although my pain is so high i feel i cant cope sometimes anyone else have this problem with bloods
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Date: 17.11.2013
From: Patricia
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Subject: Re: Diagnosed with RA but blood results never show high CPR levels
Hi Angie :-) Even at my worst when I was in the most excruciating agony all over confined to bed my ear/crp were not sky high and now (taking steroids/celebrex/morphine) they are 22/6 but I still have lots of pain. There is a Seronegative inflammatory arthritis which I think I have and you most probably do too - it doesn't necessarily show up in the blood. As my Rheumatologist says - he doesn't treat blood results he treats the whole person (bloods and symptoms) :-) Really sorry you are having such pain. It isn't easy and it is such a hard illness to treat. Take great care xx
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Date: 17.11.2013
From: Bsk
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Subject: Re: Diagnosed with RA but blood results never show high CPR levels
hi Angie, at my worst (when I couldn't dress myself or walk) my crp and esr were only moderately elevated and, since I've been on steroids, they are both very low. It does feel hard to explain why you are feeling so rotten when the blood tests state things are under control but a good rheumy knows this can happen when you are taking meds that are partially controlling the condition. I'm on a low dose of steroids at the moment which are keeping me mobile but not without pain and swelling and my last results were perfectly normal.
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Date: 18.11.2013
From: angie
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Subject: Re: Diagnosed with RA but blood results never show high CPR levels
Hi thanks it helps to know I'm not alone the ra factor comes positive and another comes positive and scans show bone erosion in hands this is a horrible disease and is underrepresented by most people who do not have it and think you moan for the sake of it!!!
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Date: 18.11.2013
From: bsk
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Subject: Re: Diagnosed with RA but blood results never show high CPR levels
Angie, that's why we all come on here and moan!
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