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Date: 16.11.2013
From: karen

Subject: Anyone with a connective tissue disorder?

Hi all

Have just been told that my consultant thinks I have a cts due to bloods coming back high on the muscle test, she took lots more bloods to pinpoint what one it could be....

My ra has been in remission for nearly 3 years nos so why this now??? :-(
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Date: 16.11.2013
From: Sean

Subject: Re: Anyone with a connective tissue disorder?

Hi Karen

My AS has been predominantly a connective tissue disorder with the cartilidge, tendons and muscles becoming inflammed, sore then hardening to a crunchy, stiff glue (rib cage and muscles around my back being the worse). A few joints effected but mostly connective tissue!

I've thought for a long time that disease names are convenient labels - we are not all that easy to pigeonhole.

Did the rheumi say that your issues were RA on non typical?
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Date: 17.11.2013
From: Colin W

Subject: Re: Anyone with a connective tissue disorder?

Karen , it sorts of goes with RA , if you look up connective tissue disorder on wiki it list Lupus , RA & Sjgren's syndrome ,

think they may be checking for Lupus which is treated by Hydroxychloroquine (dramd) & steriods , alot of us suffer with our eyes like Sjgren's but they used plotting paper to check that

I would look up Lupus , several people has it along with RA , you are lucky to have RA in remission , mine never has

http://en.wikipedia.org/wiki/Connective_tissue_disorder
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Date: 17.11.2013
From: karen

Subject: Re: Anyone with a connective tissue disorder?

Hi Sean, the rheumy didnt say much else, just that she will know more when the bloods come back

Colin, I tke hydroxy twice a day now, I do have dry eyes & mouth but not that bad, Ill look it up, thanks

I am lucky my ra is in remission, just have this to deal with now! lol
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Date: 17.11.2013
From: Colin W

Subject: Re: Anyone with a connective tissue disorder?

karen when did they put you on hydroxy , was it after she mentioned CTD ? its used to treat RA anyway so dont know its its linked
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Date: 17.11.2013
From: karen

Subject: Re: Anyone with a connective tissue disorder?

Hi Colin

Have been on hydroxy for a cpl of years now for my ra, was talk of decreasing it...but maybe not now...
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Date: 17.11.2013
From: ann crocker

Subject: Re: Anyone with a connective tissue disorder?

Hi Karen do you take anyother drugs besides Hydrochloroxyquine?
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Date: 17.11.2013
From: karen

Subject: Re: Anyone with a connective tissue disorder?

Hi Ann

I take nifedipine for my raynauds
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Date: 20.11.2013
From: karen

Subject: Re: Anyone with a connective tissue disorder?

Ive had a read of the dif ctd & my symptoms overlap, I have dry mouth/eyes, muscle stiffness, swollen glands in my neck, no rash though, fatigue but have learnt to rest & have early nights, seems to help a lot....Ive scared myself due to the swollen glands on my neck, I have a constant 'cramp like' feeling in my neck that sometimes when I 'catch it; is excruciating!.....I hate waiting & apparently I have a 4 week wait to get results/see consultant.......
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Date: 20.11.2013
From: Colin W

Subject: Re: Anyone with a connective tissue disorder?

karen would not worry to much about the swollen glands in neck , I get it a lot & dont think its that much to worry about , I get problems with my muscles in my arms , feels like repetitive strain injury + swelling sometimes with fluid moving up my arms which can be paainful , my consultant just said its maybe some kind of ctd & did nothing about it & just let me get on with it
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