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Date: 26.10.2013
From: Moz

Subject: Hi Newbie advice/suggestions Please in agony!

I am 59 and have Rheumatoid Arthritis my medication which was methotrexate, Enbrel injections has been stopped as it is not working any longer. I am waiting to see if I can have the Rituxamab infusion but the NHS as usual are dragging their feet. Meanwhile I am in absolute agony, shoulders, hands, knees and hips, but particularly shoulders I can't sleep for pain although my GP has given me morphine patches 10mg and paracetamol 4 hourly it doesn't touch the pain. I can't take Tramadol or co-codamol or diclafenic as it upsets my stomach. I am now trying rubbing gel that my wife massages into my shoulders it helps a little, can anybody recommend a good rubbing ointment/gel that may give me a few hours pain relief my RA nurse can't see me till the 19th November. Desperate Dan (AKA real name Maurice, moz for short). Thank you.
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Date: 26.10.2013
From: bsk

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hi Moz, Can't you have a steroid injection to tide you over? I would phone your consultant and ask for one. They will need to give you something as the rituximab doesn't kick in straight away and it's not acceptable for the nurse to leave you on pain that long. Either that, or I would pitch up in A&E and they can get a rheumy to see you there.
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Date: 26.10.2013
From: bsk

Subject: Re: Hi Newbie advice/suggestions Please in agony!

p.s. the consultant can leave a prescription for a steroid injection in the clinic and any nurse can give it. That's what happens in my hospital.
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Date: 26.10.2013
From: Colin W

Subject: Re: Hi Newbie advice/suggestions Please in agony!

hi Moz

they can give you stronger patches & maybe a steriod injection to help until they got a bio that works

there is a few on here having Rituxamab infusion , are you still on Mtx & are you taking any dmard , most of us take more than one along with a bio
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Date: 26.10.2013
From: Moz

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Thanks for reply. I have had two steroid injections recently and they didn't work. I am only on morphine patches from my GP and paracetamol at present. No other medication has been offered so I am in limbo until my next appointment with rheumy nurse on the 19.11.13 I feel that nobody is bothered. My GP will only prescribe painkillers as he says RA clinic should take care of me!

regards
Moz
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Date: 26.10.2013
From: rhona

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hi Moz, I have tried a few creams and I have found Voltarol to be the best, it also has a cooling effect. I am going for my 3rd rituximab infusion on Monday and they have really helped me.
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Date: 26.10.2013
From: bsk

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Phone your consultant Moz! I'm not entirely sure what they can do but maybe bring your appointment forward for a start.
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Date: 26.10.2013
From: Moz

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Thank you will try anything!! I will try ringing the RA clinic on Monday but they don't answer, you are put through to the Rheumy nurses voice mail and if she rings you back the same day your lucky! I realise all clinics operate differently (mine is the Minerva Clinic in Preston), but surely when you are in absolute agony they can priotise you. Will maybe have to spend another night on the recliner because lying down for long is impossible. Thanks all will keep in touch.
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Date: 26.10.2013
From: bsk

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Don't ring the clinic. Ring your consultant's secretary. That's what I do when things go pear-shaped. My rheumy nurse is very responsive and I generally get a call bak within 24 hours but sometimes she is away and then I ring the consultant. They have the power to get you in very quickly for treatment. Tell them you are sleeping on a recliner at night and you can't go on like this.
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Date: 27.10.2013
From: moz

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hi bsk, thank you I will take your advice. I could barely get out of bed and walk this morning and I can't stand this pain any longer I have an appointment at 11.30 today to go to primary care. If they can give me pain relief for a few hours it is something. How bad do you have to be to get them to come out to you!! Will let you know how I get on.

BTW my wife is typing all this as I can't type and wouldn't be able to even if I knew how with the pain levels at the moment!
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Date: 27.10.2013
From: Emma

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hi moz, I'm waiting to go on a new injection and waiting for funding to come through to hospital, as I am waiting my consultant has put me back on steroids until I get the ok and to tie me over so I don't flare. I would call your consultants secretary and tell them that you need something to help while your waiting. Hope you get sorted soon, take care emma x
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Date: 27.10.2013
From: ms. Moz (aka Kath)

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hi Emma, thank you for your post. This is Mrs. Moz.
Moz is in hospital they admitted him this afternoon after a two hour wait in primary care but at least he is in the right place and they will start him on pain relief asap. The doctor we saw was very kind and he had no qualms about admitting him. So we will have to wait the outcome he is on a rapid assess unit so hopefully by the time I go back this evening they will have started him on something. What a horrible disease this is I have arthritis in my spine and get a lot of pain when walking but nothing like RA pain. Thank you all for your input much appreciated. Will keep you posted. x
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Date: 27.10.2013
From: rhona

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hi Kath, Sorry to hear that Moz has been admitted to hospital but it's probably the best thing. I was in the same position 18 months ago and was kept in for 8 days and put on steroids. I am now on rituximab infusions and feel a lot better, so perhaps it will speed things up for him with his treatments. x
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Date: 27.10.2013
From: bsk

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hi Kath,

I'm also sorry he's been admitted but glad he is getting the care he needs. Let's hope they can get the pain under control quickly. Let us know how he gets on xx
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Date: 27.10.2013
From: Colin W

Subject: Re: Hi Newbie advice/suggestions Please in agony!

hi Kath , hope he is ok , imagine they will give him steriods for short time but he needs the drugs like dmard , can he take methotrexate as most of us take it alone the biologics , high does folic acid is the way to deal with the side effects

rituximab infusions will take some time to work so he needs something up until that happens , real hope he improves soon

in the link section above you will find national rheumatiod arthritis society & arthritis care & both have free helplines if you need them for advice
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Date: 27.10.2013
From: helen

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hi kath. Haven't been on line for a couple of nights so reading up on posts. I too have been in similar circumstances waited over two weeks for SOS appt. I just sat and cried for help but nothing just a sarcastic nurse saying oh dear are you on your own nobody to make you a cuppa tea. I just put the phone down but I was more upset that they didn't ring me back to see if I was OK. I couldn't even get up the stairs. Iv since been given steroid injection which did ease my pain but I think next time I will be visiting our a&e dept for much faster help. I'v got PSA and on
Mtx for the 2nd time but have had talks to go on the injection. This forum has helped me a lot all offer some good advise
So thank you all.
Kath I hope Moz gets some good pain relief and some comfortable sleep I wish him well.
Helen.
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Date: 28.10.2013
From: moz

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hi all, thanks everybody your such nice people it really helps to have somebody understand what's going on and how things are. Rhona,thank you he has been put on morphine every 2 hours and feels more comfortable.
bsk, will keep you posted. ColinW he has been on mtx and enbrel self injection they took them off him because it wasn't controlling the pain neither was the steroid injections for some unknown reason stopped working for him. Thanks for advice may ring RA society to ask how to complain about our RA clinics negligence IMO!
Helen, sorry you've been through same. we have found the rhemy nurses can be very unsympathetic they knew how bad he was and still only gave him an appt date for the 19th Nov hopefully our hospital will now kick them up the bum! will keep you posted going to see him this afternoon he is not as in as much pain but said his shoulders are wrecking feel like they are broke. bye for now x
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Date: 28.10.2013
From: marlene

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hi Moz, I have just read the posts and would just like to say you are in the right place you will be helped out now. Keep your chin up both of you!!!
Take care XX
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Date: 29.10.2013
From: Moz

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hi all, the hospital are trying Moz tonight on Lidocaine patches and if he is ok with them they will let him home tomorrow. The hospital have been brill and really took care of him. The change in him today was unbelievable he could move about with very little pain and looked much perkier. We are expecting our 2nd grandson to be born anytime tonight so that's something for him to look forward to. He's our second grandson to be born in two months. I'm dreading Christmas lol.
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Date: 29.10.2013
From: Bsk

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Wow! That's great news Kath. I'm so pleased he's got some decent treatment. Best of luck with your grandson's birth!
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Date: 29.10.2013
From: Jeanette

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hi Moz

Just been reading your posts, regarding pain, when I have a flare in a new joint on hand, the pain is agony and I mean agony. It was explained by occupational therapy at my hospital the reason being so many nerve endings in your hand, fingers.

I can cope with my normal RA pain, but when I get tthis type of flare I can't, even going through all the normal stuff you do for swelling and pain. So I said to my GP my pain management is not adequte in these cases. It is not fair to let me go through 12 hours of pain, trying to keep my hand open so it does not claw. My GP gave me oramorph for this type of emergency, it has got a 3 year life span so sitting in my medicine cabinet, hopefully I won't have to use it.

Best of luck to Mr Moz and that is is now receiving care, and good luck with new baby grandson. I've got 2 with 8 months apart and another due in February, they are my rays of sunshine.
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Date: 30.10.2013
From: marlene

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hi Kath and Moz, how lovely a new baby. Any news yet??
I have 4 grandchildren ranging 14 down to 1yr old they always lift me when I am down.

Secondly so glad to hear Moz is feeling a whole lot better. It is so amazing the difference the correct treatment makes.
Take care xx
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Date: 30.10.2013
From: moz

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Thank you Marlene and everybody. Unfortunately, the patches don't seem to be working so they have kept him in again today to try different painkillers. He is very low, as I am but we will get their in the end. At least he is getting some pain relief. New baby still not arrived!

Hopefully, he will be sent home tomorrow.
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Date: 30.10.2013
From: marlene

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hi Kath, sorry to hear the patches are not working as you say they will get there. I recently had my husband in hospital and like you we were both very low. We got through it together as you will. Hospitals not the happiest place to be for patient or visitors.
Moz will be home before you know it.
Wow a long labour for mum!!!
Let us know how things go. Take time to get your rest and keep your chin up. Big hug xx
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Date: 31.10.2013
From: gail wngrave

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hi Moz and Kath,
I am a newbie like yourself and cant add much to what has been said except a couple of things.
One of the things the Rheumatologist said when he diagnosed me 2 yrs ago was that 'pain was not an option'
I have worked as a lab technician in hospitals for many years and gathered the same thing 'pain is not an option' I do think the N.H.S should work to this principle, and often do,
so do not be afraid to demand adequate pain management. It is your right.
The other thing I wanted to say is, isn't it fantastic to have such a strong support group-it makes a lot of difference. Take care,
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Date: 31.10.2013
From: moz

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hi Marlene, My daughter in law was 2cms dilated on Tuesday at the midwifes appointment then everything stopped!! So I'll be cooking her a vindaloo lol.
Gail I agree and Moz did put his foot down and said he had had enough and demanded in a nice way some pain relief, which they are giving him and all due credit they have treat him very well. Recieved a copy of a letter this a.m. from the RA clinic apparently Commissioning Requests Panel have discussed at a meeting the use of Rituximab (not just for Moz)and they have got no further to quote "the CCG Medicines Management Group, which meets monthly, has yet to consider the recommendation and the Panel therefore agreed that a decision on funding should be deferred until a policy decision and the Flex recommendation had been made and ratified by the CCG". In other words you can whistle for it!! What does Flex mean in this instance? So we have to wait even longer and still not guaranteed to get this infusion. I do understand from one of the hospital doctors that some of the medication involved can be toxic. So it is understandable but it's a wait and see situation. I've a feeling they may keep Moz in again tonight will keep you posted. thanks all x
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Date: 31.10.2013
From: Bsk

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Rituximab is standard in my hospital when you have failed some dmards and anti tnfs. In fact, I'm going to be put on it next, I believe, whether I like it or not. Apparently it is NICE recommendation, according to my nurse. Maybe you could find it online and wave it under their noses.

I hope Moz gets sorted out soon. xx
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Date: 31.10.2013
From: Colin W

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hi Moz and Kath,
if they wont give the funding for Rituximab , then I would ask for another anti-tnf like SIMPONI (golimumab) which they wont need funding as they already have it for anti-tnf treatment Enbrel

he realy need to be back on the DRAMD's like methotrexate now & they need to sort it with his rheumatology consultant as he is the only one who can give out these drugs
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Date: 01.11.2013
From: Moz

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Thanks Bsk and Colin will use that info when he goes for his RA appointment. The hospital discharged Moz last night and they sent him home with:-
Prednisolone, Omerprazole, Cyclizine, Diclofenc, Oxycodone Hydrochlride, and Morphine and Lidocain patches!! But as long as it helps him stay virtually pain free we will cope with all that lot. I am just about to make a chart on the pc so that we can keep track of it all. bye for now x
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Date: 01.11.2013
From: marlene

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hi Kath, good to hear Moz is back home and plenty of pain meds. I had to do charts for my hubby he also was on so many meds in the end. It is better to do that as when you are busy it is so easy to forget.
Oh Dear I bet your daughter-in-law was disappointed. A drive down a bumpy road might help LOL. Keep us posted.

Take care both of you and I hope you both get some rest!!! xx
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Date: 01.11.2013
From: helen

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Good to hear that Moz is home. At least now that he is home less running too and fro from hospital visits its all so very draining and a worry on how Moz is that visit. When I take extra pain meds I usually write down date and time and name as when on oramorph and diaxepam I tend to lose the plot !
Any news on a baby yet?
Hope you both have a lazy and pain free weekend.
Helen
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Date: 02.11.2013
From: moz

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hi Marlene, Helen, baby not budging we know it's a boy but that explains it! lol Moz is doing ok but I've just had a dose of sickness and Diarrhea last night so feeling c--p today. Got a chart done it's a big help. We have been told that our pharmacy will do blister packs with your tablets so we are going to look into that on Monday. Have a nice weekend, I'll just pop another pepto bismol! x
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Date: 03.11.2013
From: helen

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hello Kath. How awful a sickness and bowel bug maybe brought home from the hospital?? Let's hope Moz doesn't get it worst thing ever especially if not moving very good and dosed up on strong meds.
Hope you feel better soon Kath.
Let's hope this baby boy arrives soon something to smile about. Can't believe our little grandaughter is 2 middle off November they grow up so fast.
Take care
Helem
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Date: 03.11.2013
From: marlene

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Oh Kath, sorry you are unwell but its not surprising you came down with something in and out of a hospital.
I know all about baby boys having had two myself!!!
You will both find the chart helpful when one is in pain and one is tired it is easy to make a mistake. I had one the whole time my husband was waiting for his back surgery as he was on five different pain meds to be taken at different times through the day and night.
Ask your pharmacist if they can be put into little bottles much easier.
Take care both and hope to hear all about that little one soon xx
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Date: 17.11.2013
From: moz

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hi all, sorry I have deserted you for a while, been hectic to say the least. New baby Harry arrived at 8lb 10oz by C section mother and baby doing well. I would post pics but you can't do on here can you? Moz doing ok but in a lot of pain first thing in the morning he can barely walk and his tablets knock him out for six, poor lad gets out of bad to virtually fall asleep again! RA clinic on Tuesday, oh btw they rang to apologise for not keeping him informed of what was going on with his treatment. Still no answer re rituxamab we can only wait now. Hope you've all got your thermals out! Bye for now regards Kath n Moz x
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Date: 17.11.2013
From: marlene

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Congratulations!!!!!!! Glad to hear mum and baby doing well. What a gorgeous early Christmas present.

Poor Moz I have OA and the first 45mins in the morning are a nightmare with pain and stiffness and has me reaching for the pain killers.

I hope he gets some good news about better meds on Tuesday. Let us know.

It is very cold here as we are very open to all the farmers fields but it is worth the extra thermals.

Take care and keep warm xx
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Date: 17.11.2013
From: Colin W

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Congratulations to you both
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Date: 17.11.2013
From: moz

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Just a thought but have recently received a phone call form the dreaded DLA and they say I will be called in for an assessment. Has anybody been for one and how did you get on with the assessment. Although I know I am not fit for work they may think differently, but I can certainly use my nose for a scanner at Asda checkout!! Comments welcome. regards Kath n Moz
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Date: 19.11.2013
From: Moz

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Well not good news folks after waiting a month for an RA appointment we have been told quite bluntly that until the CCG review the request for funding for Rituximab we will just have to whistle. The CCG meet monthly and the RA nurse said if and when they make a decision we will be informed until then suffer! The RA nurse said that we do not have anti TNF drugs i.e. rituximab without MTX approval in our area at the moment and Moz can't take MTX cos his blood platelets are too low. Although Moz is trying his best to cope, his pain is excruciating especially first thing in the morning. He keeps asking how other people cope with the pain? Any suggestions/advise welcome.
regards to all Kath n Moz x
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Date: 19.11.2013
From: helen

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hello to you both. Iv been awarded DLA for middle rate care and higher rate mobility. This wasnt for my psriatic arthritis osteoarthritis and newly diagnosed fibromylargia. It was for my chronic back pain. Anyway firstly turned down. Tried again and they wanted to do an assessment I'd been told by CAB to tell them your not well enough to go to them. They have to arrange for someone to visit you. Make sure your wife/carer is there to open the door sit in the assessment etc. It will all help with your claim. I have to reclaim next may. It just gives you more stress worry that we could all do without. I'm being nosey but are you claiming for both as its best to do them both together as I was told by CAB.
Good luck
Helen.
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Date: 19.11.2013
From: marlene

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hi Kath and Moz Oh dear what a knock back I just don't understand how they could be so flippant. Well I do it isn't them in pain is it. I hope Moz still has all his pain killers. If they are not working you need to call out your GP or go to A&E Just keep banging on all the doors until he get what is rightly his and that is proper meds..
I have read your post about DLA they need to visit you don't let Moz go running about.
I just wish you both all the best and keep your chins ups.
Take care x
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Date: 23.11.2013
From: basskathleen@yahoo.co.uk

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hi all been having trouble with this website it wouldn't send my posts. So I will try again. Moz has at last an appointment for an infusion of Rituximab next Wednesday yaaaaaaaaaaay!! Helen, Moz gets high mobility DLA but low care I appled to be his carer but was refused due to his low care component. So if he is re-assessed I will have another stab at it. I have arthritis in my spine can't walk far without pain but it's not severe enough to claim. Marlene, thanks for your advise we will certainly go with that. Will keep you posted on the new treatment. regards all Kath n Moz
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Date: 24.11.2013
From: marlene

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hi Kath, soooooo pleased to hear Moz is getting an infusion on Wednesday.
I don't understand this carer's allowance and how it works. I applied for my mum and was refused as I have a state pension. I know we will care for our loved ones regardless but I do think the Government need to look at it again.
I often pay for cabs to the Drs and Hospital for mum not that I mind but our government are so good at chucking money around. It's about time they treated carer's better. Now I am getting off my soap box LOL.
I hope you are both have a relaxing day today.
Oh yes and you are not spoiling those little ones are you? Oh go on why not. I love it when my grandchildren come round. My eldest is 14yrs and such a little lady the youngest is just 1yr old.
the two in between are 12yrs and 3yr old.
I just read that back and I feel really old LOL.

Take Care and Chin up xxxx
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Date: 24.11.2013
From: moz

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Aww thank you Marlene. Old whose old! lol I'm a young 61 (so can't claim my pension till March 2014)but still be 21 in my head. Just been told by my middle son he and his partner are expecting a baby in July, so pleased cos they have been trying for a while. Dreading next Christmas 4 grandchildren all under 6yrs old. I was youngest of 7 so like lots of family. Will post on Wednesday to let you know how Moz gets on fingers crossed it works. xx
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Date: 24.11.2013
From: marlene

Subject: Re: Hi Newbie advice/suggestions Please in agony!

I have just had a visit from my eldest son his wife and lovely granddaughter. She is just a little sweetheart 14yrs and growing up so fast.
I love the little visits out of the blue.

I wish your son and his partner all the best it is so lovely. My youngest son also waited a long time for his two children. So I know how pleased you must be.
Take care let me know how Moz gets on xx
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Date: 24.11.2013
From: helen

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hello moz and kath. Pleased with the news that moz is getting the correct treatment on Wednesday. My mums friend has that infusion she is a different person after for a good six months.yes she gets the odd bad day but nothing like before she's in her very late seventys so she expects the odd ache. Good luck. My granddaughter was two yesterday 23rd can't believe how the time flies. She lives with us and her mum. Some days I think how tidy and quiet our house would be if they moved out but deep down I don't want them to leave I do love them here. Anyway good luck with the DLA assessment I do hope he can be awarded the middle rate every little helps when unable to work. Must remember you have to answer the care you give him or what he needs on the worst days and nights. This is when its best to talk to the CAB.
Its good to talk. Take care Helen.
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Date: 25.11.2013
From: julie

Subject: Re: Hi Newbie advice/suggestions Please in agony!

MozI know its probably not much help now as you have your treatment sorted but earlier in the year nothing was working for me and i was in so much and like you had a couple of steroid injection's that didn't work one bit so they gave me a steroid infusion which takes about 4 hours i must admit that the next day i wasn't to well with flushing etc but then i got about 3 months relief out of it.
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Date: 28.11.2013
From: moz

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hi Marlene, Helen, Julie, well the good news is he had his infusion for about 6 hours yesterday and leapt out of bed like a spring chicken this morning! Can't believe the difference in him, early days we know but seems to be working so far. He has another treatment in two weeks time and hopefully that should last him quite a while, upto 12 months we have been told. regards all xx
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Date: 28.11.2013
From: bsk

Subject: Re: Hi Newbie advice/suggestions Please in agony!

That's great news. I think they want to give me that next so good t know it works.
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Date: 28.11.2013
From: marlene

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hi Kath, what great news!!!! I hope it stays that way for Moz. 12 months would be fantastic fingers crossed.
Take Care both of you xx
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Date: 28.11.2013
From: rhona

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hi Kath, I am pleased to hear that Moz has had the infusion at last. I am on my third course of it and it has made a big difference to me.

Rituximab can sometimes take a wee while to work, I don't really think Moz would feel the benefit of it so soon, I think it is more likely to be the steroid that they put into the infusion that has helped him but I could be wrong, some people feel the benefit within weeks and it can take up to 4 months before the full benefit is felt.

Congratulations on the new baby! That is lovely news. xx
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Date: 28.11.2013
From: helen

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hello moz and.kath that's great news how lovely to feel good in just a few hrs. Best wishes to u both maybe now moz starts to feel a little better you can have some relaxing time I'm sure you need some after the last few wks/months. Carers have a hard time aswel. Great news.
Helen. X
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Date: 01.12.2013
From: moz

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hi Rhona, I think you are right as he is not feeling good today. But at least he has something to look forward to he has his next infusion on the 11 December so he may feel some benefit before Christmas. We really appreciate all the advise and comments from members on this forum, it's always a help to know your not the only one!
regards Kath N Moz
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Date: 01.12.2013
From: rhona

Subject: Re: Hi Newbie advice/suggestions Please in agony!

Hi Kath, I hope it isn't too long until Moz feels the benefit. I'm sure it will make a big difference to him. Good luck xx
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