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Date: 18.10.2013
From: ANN CROCKER

Subject: RITUXIMUB INFUSION

Hi alli amdue to try my first infusion and am nervous as i have been told by the rheumy nurse it can attack the brain and be fatal although rare,she had to inform me.I am on Prednisolene Hydrochloroxyquine Methotrexate and Arthrotec and in constant pain feet ankles knees shoulders hands and even my jaw with poor mobility,i just need some quality of life back am worse now than i was before taking medication!need a miracle
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Date: 18.10.2013
From: rhona

Subject: Re: RITUXIMUB INFUSION

Hi Ann, I am having my 3rd course of rituximab next week. Before I got it I could hardly move. I agree the side effects can be worrying, especially the rare brain disease but I have been told no one in Britain has suffered from it. All medication has side effects but I think you have to weigh up how bad you feel and I know at the time I would have taken anything to help with the pain. I have found rituximab to be really helpful as I can now get around, it has really given me my life back. Good luck with the infusion.
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Date: 21.10.2013
From: ann crocker

Subject: Re: RITUXIMUB INFUSION

Hi Rhona thankyou for your reply how much of an improvement have you in your mobility? i would like to be able to go up and down my stairs normally instead of one at a time and how soon did you have any improvement pls?
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Date: 21.10.2013
From: rhona

Subject: Re: RITUXIMUB INFUSION

Hi Ann, It took 4 months before it started working although some people get benefits much quicker. I was really bad before I got it, I could hardly walk and I even needed help getting off a chair. I am so much better now, I can walk up stairs fine now although I find it harder coming down and often still come down one at a time. Thankfully I don't have stairs inside my house. I still get pain and my ankles and feet still get sore but I am so much better than I was.
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