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Date: 22.08.2013
From: Samantha

Subject: Hands and mtx

Hi everyone.

I've two questions which I hope someone can advise!

My right hand and fingers are mostly affected by my PsA and I am worried that it will turn into a useless claw. Is there anything I can be doing to prevent/halt this? I'm unable to straighten three fingers now, one finger is completely bent over. I'm of course right handed! It's so disabling already and to be honest, it terrifies me just looking at my hand!

Secondly I'm on mtx at 25mg and will be taking my fourth dose this week. No improvement yet but I know it takes time to work.

Can someone spell out exactly what miracle will occur when it does? Will I be able to use affected joints as I did before arthritis, or does it just stop more joints being affected?

Is the damage already done now permanent or will mtx reverse anything?

In a nutshell what's the best I can hope for as and when MTX does kick in? What am I waiting to see/feel?
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Date: 03.09.2013
From: Tracey

Subject: Re: Hands and mtx

Hi, I've recently started methotrexate too but it's my toes that are affected as well as most of my other joints neck, back, shoulders, hips, knees and ankles I too am waiting for it to kick in although I was started on 7.5mg for 4 weeks and to go up to 15mg next week. Going for joint injection this thu to ankle just wish mix wud kick in soon hope it does for u too x
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Date: 04.09.2013
From: rhona

Subject: Re: Hands and mtx

Hi Samantha,

Sometimes the swelling and inflammation can make the joints look swollen and a bit deformed and hard to bend etc and when the medication starts to work it will help a lot with the pain and swelling etc and you should notice an improvement with your hands. You could also ask the OT at the hospital about splints as they can sometimes help.

Hope it kicks in soon. x
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Date: 04.09.2013
From: helen

Subject: Re: Hands and mtx

Hi Samantha. I too have psa was put on mtx in Jan this yr. Went up to 20mg I also couldn't understand what I was waiting for or looking for to happen to my joints. Consultant&nurses couldn't understand why I kept saying I didn't feel alot better after the first 12wks I was told I was depressed and maybe that's why I didn't feel any better than expected. IV now got more joint pain& in the feet can't seem to get anybody to understand how they feel theyv now put me in for ankle&heal scan its as if they don't believe me. I wish they would understand not everybody responds the same to treatment. I'm now off mtx due to breathing problems next wk I spk to the nurse for the nxt episode of my treatment. IV heard it might take some people longer to recieve the right sort of drugs for them. If it wasn't for this site I wouldn't have known that. Hope u get some answers ur looking for.
Take care
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Date: 04.09.2013
From: Rachel

Subject: Re: Hands and mtx

Hi Sam, I've got RA and I'm on meth,leflunomide and now infliximab. I use my hands a lot for work (secretary) and asked for a referral to an occupational therapist via my GP last year. I found these appointments really helpful in terms of educating me as to what I can and can't do, providing wrist/finger splints/exercises etc. Speak to your GP and get a referral. Good luck x
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