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Date: 13.08.2013
From: Linda Bradley

Subject: End of my tether

Hi folks, just wanted to vent my fustation... it may help.
Feel no one is taking notice of me. Wish I could change my Doctor and Rhuemy. Thing is there is only one other consultant in our area and he has so many on his lists I'd have a longer wait to see him than the one I have now. Been for a blood test at Gp's this am, she (the nurse) gave me the impression she could'nt be bothered! Work just think I'm moaning. Feel like crying. Sorry, just needed to to blurt it out. Felt like crap this am, bad headache, felt sick. I'm sure its my pills. Fed up of feeling like this.
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Date: 13.08.2013
From: Emm

Subject: Re: End of my tether

Hi Linda, sorry to hear of all your problems.
I am a bit like you as I find it difficult to get in to see a proffesional when I am having a joint flare up. My gp is not a lot of help and refuses to give me injections which are the only thing that help me. Hence I have to phone Rheum' secretary and then have a wait to get seen there.
I get 6 monthly appointments with him but now I usually need help in between and it's difficult to get. Specialist wrote to gp saying she could give me steroid jabs, but still no joy with her.
I agree that some staff seem ' not bothered'.
These people should not be in the nhs if they are not interested.
Here I have known receptionists trained up to take the blood. I may be old fashioned but years ago people trained for years to be in healthcare.
I think it is just modern times, everything has changed and it is all about money.
Anyway back to you, what type of arthritis have you? What medication are you on?
There are a lot of people on here on various meds and are quite well informed. Perhaps if you write again and share your experiences you can compare.
This site helps me a lot, even if it is just to moan and get it off your chest!
Good luck with it all, we all know on here what it is like for you and sympathise.
Write again. X
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Date: 13.08.2013
From: Linda Bradley

Subject: Re: End of my tether

Thanks Emm,
I know what you mean about receptionists taking blood etc. They would rather pay them a bit extra than paying for a proper nurse. I work in x ray as an assistant, and they're asking us to do more!
Anyway, I'm on methotrexate. I did get a steroid injection a month ago. Has helped a bit, it's my feet that I struggle with.They tell me it's inflammatory arthritis, only been diagnosed about 8 months. Thanks for letting me get it off my chest. It does help having a moan, you all know what it's like. Thanks again.
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Date: 13.08.2013
From: Emm

Subject: Re: End of my tether

Linda I am on methatrexate to and have been for years. There are the biological drugs, have you been offered any of those?
Some people find a great improvement.
I have a friend who has actually come off steroids, slowly, she is on a fortnightly injection of Humira and does it herself at home with a pen type syringe, her fingers are bad but she manages to do it.
I can't have those because of a recurring chest problem. But wish I could!
I don't feel methatrexate help me any more as I have extra joint damage over the last year.
I hope your doctors can help. It is a horrible disease.
Ask about new treatment though, you never know!!!
A big hug for you x
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Date: 13.08.2013
From: Linda Bradley

Subject: Re: End of my tether

Hi Emm, no,not been offered anything else. Probably won't see my consultant for a few months now. Having shared care with my Gp, not sure how it works. I asked the nurse today when she took my blood, she just said make another appointment in 4 to 6 weeks for them to be taken again. I have stomach problems, doesn't take much to throw up! So they may not try me on anything else. Thanks for your reply. I really appreciate it. X
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