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Date: 09.05.2013
From: Lynn

Subject: New thread for Rhona bsk and Marlene

Hi ladies its been a while since I have been on I hope you are all well!!! Or as well as you can be I see you have clocked a good number of comments on the last thread I thought I would start a fresh as I haven't had time to read them all.

I am currently still off all meds except my pain meds I have had loads of bloods testing for all sorts of auto immune test and I have had the MRI testing for MS but at the moment I am waiting on nerve conduction testing to be done the the neurologist is going to look at all the results together, the tingling I have been experiencing could have been my fibro flaring so its all still a bit of a muddle up!!! I have been getting sorer by the day my joints r swelling and I am noticing my fingers starting to look quite bent and out of shape I do not see my rhumy until the end of June and that has been since oct last year I was in for feb but it got cancelled till end of June she has spoke to my rhumy nurse who told me because of all my side effects she wouldn't try any of the other anti tnf but suggested that enbrel can be given in a 25 mg injection but we shall see as it was enbrel I was having infections every other week with!!!

I hope you are all getting on well and not in much pain.

Take care ladies

Lynn x
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Date: 09.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Lynn,

Lovely to hear from you again, we have been wondering how you were. I am sorry to hear that you are still having a bad time of it and i hope they get things sorted out soon for you as the last thing you want is to have your hands getting bent. My hands are quite swollen as well and i can see some changes in the shape of them. Hopefully when you go back in June they will have all the test results and you will be able to get back onto either the enbrel or something else. I have found the rituximab has helped even although i still have pain but a lot better than i was.

Hope you are well today Marlene & bsk. I went into town today as i had a few things to do.

Take care xxx
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Date: 09.05.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Rhona, It started raining last night and has been on and off all day to-day . I am now hurting all over thanks to this horrible weather.
I am praying this is not the end of the summer like last year. What an awful thought!!

Did you buy anything nice Rhona?
I have been in all day to-day the rain and wind is never inviting no matter where you live.
Hope you are ok bsk.
Nice to hear from you Lynn.
xx
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Date: 09.05.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Lynn, did I mention I was on a half dose of Enbrel - 25mg split into two doses a week? My infections have reduced dramatically though it doesn't entirely control my arthritis. I take small dose of pred too.

Hi Rhona & Marlene!
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Date: 09.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

I hope it isn't the end of it Marlene, I would hate to think it would be a repeat of last year again.
I didn't buy anything nice just some sealant for around my shower and my daughter bought a new brolly lol. We did go for lunch though and i enjoyed it.

I hope you feel better tomorrow, take your hot water bottle to bed.

Sleep well xx
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Date: 09.05.2013
From: Lynn

Subject: Re: New thread for Rhona bsk and Marlene

Hi ladies thanks for the replys I think that was what my rhumy was talking about doing bsk as you say it won't totally control the arhtritis but its better than no drugs at all thanks for that I'm even more hopeful now :-)
Marlene this weather is so depressing and as you say might be the only sun this year sorry ladies what a depressing thought.

Take care x
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Date: 10.05.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, the wind here last night along with my pain had me awake on and off all night.

That was nice Rhona having lunch out with your daughter.well sometimes we have to do practicle shopping LOL.

Bsk how is your eye. Have you rested up after your visitors. I bet you are enjoying the quiet. I love having visitors but when they have gone its nice to curl up on the sofa!!

Lynn, I hope you are all sorted soon and your pain is sorted for you.

We are off tomorrow to a steam fair. It also has some stalls arts and crafts and a fair ground for the young ones. I am hopeful it isn't going to rain. There is five adults and two little ones it should be enjoyable something for everyone. (I hope).Anyone else doing anything exciting?
Well take care

XXXXXXX
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Date: 10.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

It has been like winter here today Marlene and the forecast is for rain over the weekend. I do hope it improves soon. I don't think i can stand much more of this cold damp weather.

You are doing well with the all the different fairs that you are going to Marlene, i hope it stays dry for you.

I have nothing exciting planned for the weekend, probably do a bit food shopping tomorrow and i think we are going out for dinner on Sunday as i got another deal lol.

Haven't heard much from you bsk, hope you haven't fallen out with us, lol.

Sleep well xx
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Date: 11.05.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Rhona, I was wondering if perhaps bsk's eye is troubling her. It has been one thing after another for her over a good few months. I hope she is ok.

There are so many villages having all sorts of stuff going on. One village has a 2 week music festival another has a medieval market and a vintage car show/wedding festival. I won't be going to the last one LOL not looking to getting married again I think I will stick with this one (43yrs) lol.

Good for you where do you find all this great deals?? It is lovely to be waited on for a change, I just run out of ideas sometimes.
It has been raining again this evening and my hands are swollen again. Like you I have had enough and we have had some good weather.
It has to change soon surely.

Take care Rhona and I hope you are ok BSK xxxxxx
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Date: 11.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Another wet morning here Marlene, i hope it is better where you are for your fair.

I get the deals from places like KGB, Groupon, 5pm etc. If you go to their website you can sign up for the city closest to you and they send you an email daily with their deals. The hotel we went to a few weeks ago had a saving of over 60 and i confirmed this by checking the hotel website. They also have deals for hairdo's etc. My daughter got a full body massage a couple of weeks ago for 15.00.

I had Millie at the vet again last night and it was the vet that owns the surgery. He lifted Millie onto his table and examined her all over and seems quite sure that she has a tumour on her spleen. He has given me another 3 weeks supply of steroids but wasn't very optomistic at all.

I hope you are alright bsk.

Have a nice day xxx
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Date: 11.05.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

No I haven't fallen out with you lol! I've just been quite busy - more family stuff this weekend. My hands are also quite painful so not on the computer so much. My eye is responding well to the drops though.

Sorry to hear about Millie, Rhona. I hope you can keep her comfortable with the steroids for as long as you can.

Marlene, sounds as if you are well entrenched in village life already. Good to hear there's a lot going on around there.

This cold weather is getting me down too. I've got a scan next week but really need to phone my rheumy nurse after that - though I think I've got an appointment at the end of the month, I'm not sure I can wait that long to get my joints sorted out.

take care.xx
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Date: 11.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Good to hear from you bsk. Sorry that you hands are giving you bother, let's hope that they settle down. Do you think they have flared up because you were off the enbrel for a wee while?

I hope you enjoyed the fair Marlene. I just went to Sainsburys for some food shopping this afternoon. It is like winter here. I will be taking my hot water bottle to bed tonight lol.

Take care and sleep well xx
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Date: 11.05.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, bsk I was getting worried glad your eye is improving. You have had such a lot lately I hope those hands are better soon.

Rhona, as long as Millie is happy and the steroids are helping her thats all that matters.Bless her!!

We got soaked! when we arrived at the fair the weather was not too bad at all. Just as we reached the end the heavens opened. Well we all just carried on like nothing happened. the little one was promised a ride on the steam train and we all waited getting more wet. She was oblivious to the rain just having fun. We enjoyed the day regardless. It is still raining.
We are off to visit my father-in-law tomorrow when we got back we had a call to say he took a fall and is in the community hospital recovering the poor thing he is 90 in November. My husband goes in the begining of June for MRI on his spine.
Rhona I have a hot water bottle on my back right now.
I hurt all over just like I do in winter I am bored with this weather and worried this is the end of summer. Oh to be in the Canary Islands LOL.

Have a good nights rest everyone xx
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Date: 12.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Well, surprise surprise! another wet miserable morning here. The Canary Islands sounds like a good idea Marlene.

I hope your father-in-law will be ok, what a shame and almost 90, that is a good age.

Will not be doing too much today, just going out for dinner tonight.

Have a nice day. xx
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Date: 12.05.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

It was a lovely morning here butr going to get wetter I believe. Did some gardening, which was a mistake given the state of my hands. Oh well.

baking a cake this afternoon for sister's birthday.
victoria sponge with strawberries and cream.
xx
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Date: 12.05.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi ladies, Well the weather started well and now its raining again.

Bsk thats the trouble with gardening we have to use our sore hands but it is worth it WHEN the sun shines and the flowers are all out.
The cake sounds Yummy. What a lovely change from normal iced birthday cake.

Hope you enjoy your Meal to-night Rhona.

Dad-in-law not too bad needs physio to get him walking better. It seems he had three falls in sucsession (not good) that is how he became so bruised every where. He is in good spirit.

Take care I am going to surf the sofa this evening as I am very sore in lots of joints xxx
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Date: 12.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Mmm That sounds lovely bsk, i love strawberries. I hope your hands feel better soon.

Glad to hear that your father-in-law is in good spirits Marlene, poor man having all those falls.

Our meal was lovely tonight. It was in a traditional type pub/restaurant with tartan seats and tartan carpet. I managed to bring Millie a doggy bag home and the best part was not having to cook.

Hope you are well Lynn and Willis & everyone else.

Sleep well xxx
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Date: 12.05.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

So glad you enjoyed your meal the pub sounds so lovely with all the tartan. I bet Millie was a happy doggie. We ate a pub lunch to-day just me and hubby it was a typical country pub. It was so nice just the two of us chilling out after a busy week-end. It is good to have a day off of the kitchen run as I call it LOL.

Hope all you other ladies are doing ok.
sleep well all xxxx
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Date: 13.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hope you are all well tonight. It has been a wild day here with strong winds and heavy rain and so cold and just to really cheer you up i heard on the news that is it only 40 days until the nights start to draw in.

I am very worried tonight about Millie, she hasn't been very good today at all and has no appetite, i think the time is about here to call the vet in and i am dreading it. I actually feel quite sick at the thought.

Take care and sleep well xx
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Date: 14.05.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi Rhona, I'm so sorry to hear Millie has taken a turn for the worse. It's the hardest thing to do but it's the right thing to call in the vet. Thinking of you. xx


p.s hands settled down a bit.
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Date: 14.05.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Rhona, are you ok?
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Date: 14.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Not really bsk but thanks for asking. The vet came today at 2 o'clock and put Millie to sleep and thankfully it was quick. I have been tearful all day and miss her so much already.

Pleased to hear that your hands are a bit better.
xx
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Date: 14.05.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

It's really sad and I'm so sorry. Sending you a very big hug.
xx
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Date: 14.05.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Rhona, it is very sad but remember Millie had a wonderful time with you and your family. Bless her!!! Of course you are missing her. I am sending you a great big hug xxxxxxxx
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Date: 14.05.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Bsk I am so glad your hands are feeling better.
All my pains are back thanks to this terrible weather.
No good moaning I suppose.

Take care xxx
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Date: 15.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Thanks bsk & Marlene for your kind words and i do feel a bit better about it today although still very sad.

I hope your pain eases soon Marlene and hope you are ok bsk. I went into tesco today and i went to get something of a shelf and i got the most horrible pain in my index finger and it is now agony when i try to move it, it is strange how things happen like that for no apparent reason.
xx
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Date: 15.05.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Rhona, I am glad you feel better to-day you will be sad for a while xxxx

Sorry you are also in pain with your finger my hands are so painful again.
On a better note I had my hair done to-day the hairdresser kept saying are you ok and I was just saying I'm fine. You somehow say it without a thought. I just didn't want to tallk about it.
I hope your finger eases off soon.

Bsk are you ok to-day??

Night ladies xx
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Date: 15.05.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi Rhona, I was going to say the same as Marlene. It will take a while, Millie was with you for a long time. Sorry to hear you are suffering today, you too Marlene. This weather can't help.

I'm feeling a bit fed up today. I had a scan of my hands this morning and the doctor said there was no damage to my joints (which is great) but she couldn't see any inflammation either. Also great, but doesn't explain why they hurt. She thought it was 'mechanical' i.e. hurt when I use them but that doesn't really explain it. There is some fluid in my right wrist but not that much.
I think I'm going to drop the steroids down and see what actually is going on. Seeing my nurse on Monday so will see what she has to say.
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Date: 15.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Bsk, When i was in having my infusion a lovely female doctor came round with some students and asked if they could speak to me and look at my joints and of course i said yes. I heard her say to the students that there doesn't always have to be inflammation showing for it to be r/a so that makes me think that you can have pain without any evidence in the joints. My hands do look swollen and that makes it easier for them to see and she told them that too but reminded them that it's not always the case. It might be a good idea to cut down on the steroids as they are possibly masking it.

I'm going to the hairdressers tomorrow Marlene to get my roots done again.
xx
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Date: 15.05.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Thanks Rhona, that is interesting. She didn't give me that impression at all and made me feel uncomfortable about questioning her. My nurse is very experienced so I will see what she says on Monday. My wrists are quite painful this evening. She implied that having no damage after 4 years of RA is unusual. I thought that was what the drugs were for! I also wear splints every night and have heard they can prevent joint damage.

Enjoy your trip to the hairdressers!
take care xx
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Date: 15.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Was the person you saw a rheumatologist bsk? as it doesn't sound like she knows too much about r/a. You are absolutely right about the drugs preventing damage and perhaps the steroids have done a good job with regards to the inflammation. It is good that you have no damage and that proves the drugs have been effective.

Sleep well and don't let her annoy you. xx
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Date: 16.05.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Yes she was! I hope I don't have to see her again.

On a more positive note, I got a text from my friend in ICU this morning. I can't say how happy I am she has got to this point. She's got a long time in hospital still, along with major surgery, but I really thought she wasn't going to make it. Yay! What a great start to my day.

xx
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Date: 16.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

That is great news bsk, i hope it is plain sailing for her now.

My hands are killing me this morning, i really hate this disease.

I hope you are alright Marlene & everyone else.

Have a good day. xx
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Date: 16.05.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

How are you doing today Rhona? You've been under a bit of stress so maybe that's why your hands are worse today. How are yours Marlene?

I've had backache all day. Finally gave in and took some painkillers this afternoon, which helped a lot.

We are a sorry lot lol!
xx
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Date: 17.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

How are you today ladies? Sorry that you have backache bsk, i hope it's easier today.

It has been a lovely day here today although it is clouding over now. Hope it has been sunny where you are.

I went to the diabetic hospital with my daughter today and they have ordered a "talking blood monitor" for her as she sometimes has problems reading her blood results. Delighted that she is getting it but a pity she needs it at all.

One of my neighbours sent us a lovely card through the post today to say that they were so sorry to hear about Millie, i thought that was so nice of them.

Hope you all have a nice weekend. xx
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Date: 17.05.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, I Hope your back is ok to-day bsk. I was so pleased to hear how Heather is doing she must be one fiesty lady. I hope she carries on this way and wings her way to good health and the return home (hugs for her).

Rhona that was so nice of your neighbour there are some lovely people out there.
It will be better for your daughter but as you say it is a shame she needs it at all. (hugs ).

I have been doing a lot of sofa surfing these last couple of days my hands are so sore and my middle finger on my right hand is so swollen and painful I can't bend it at all.As for the rest of my joints they are also playing havoc. This weather has me back to how I was in the winter. Oh for a bit of summer.
Hopefully I am going to the Medieval street market in the next village. Not sure what we will find but that just adds to the fun of it all. Let you know what it was all about.I will max out on pain meds before I go.

Ihope you have a good week-end and hopefully a little less pain all round.
xxxxxxx
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Date: 18.05.2013
From: Lynn

Subject: Re: New thread for Rhona bsk and Marlene

Rhona sorry to hear about your dog must be terrible we have only had our dog 1 year and he is like part of the family x I am in agony with my feet and ankles I know there is a lot of disease activity in my feet lately because my toe nails are coming off seemingly quite common with psoriatic arthritis

Hope you all have a lovely weekend x
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Date: 18.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Thanks Lynn, it is going to take time getting used to her not being here and when i was really bad last year she lay at my feet the whole time.

I hate when my feet get sore Lynn, that sounds really bad and poor you having your toe nails coming off. Have they decided whether or not you can get a small dose of enbrel? you really do need something that is going to help you.

Sorry to hear that you are so sore Marlene. I hope you manage to your medievel street market. It is raining here today again although yesterday was quite nice.

Are you ok bsk?

Have a good weekend all. xxx
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Date: 18.05.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi everyone,

I'm ok thanks Rhona, wrists a bit sore but not bad considering. Have been doing too much. How are you feeling?

Nice to hear from you Lynn. The toe nail thing sounds horrid. I assume they just grow back eventually but it must feel very odd.

Marlene, how was the medieval thingy?

I went to see my friend yesterday. She had just moved out of ICU onto a ward and is looking amazing. It was so great to see her. She's got more surgery to come but I'm not worried about her at the moment. So that's a massive improvement.

Chilling out at home tonight, no friend or family to look after this week so am getting stuff done.

Hope you all are having a good evening.
xx
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Date: 19.05.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Firstly Hi lynn, sorry you are feeling so awful right now. Your poor toes and feet a big hug on
its way.

Bsk glad you are feeling better. It will be good for you to take time out as you say you have been having fun looking after everyone. Now you need some you time to recharge those batteries!!!!
I am so pleased your friend is out of ICU what a lady.

Rhona, if you don't get some sunshine soon you will just have to pay your daughter a visit in Spain LOL.

I went to the street market it was fun Morris Dancers everywhere lots of stalls selling all sorts jewellery sweets cakes jams and a fantastic bread stall. I had to buy some bread it is now in the freezer most of the bread was Italian so lots of olives and cheese with onions and tomatoes bread made for warming and sharing.It will go well with pasta.
I am hurting to-day and was going to stay home but have decided to go out in the sun. There is a classic car show come a few stalls, not really my thing but hubby likes it. I will take in the sun and maybe my sore bones will stop hurting (i wish).

Well ladies have a lovely day XXXXXXXX
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Date: 19.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

That is good news that she is out of ICU bsk and hopefully it won't be too long until she is home. I hope your wrist is a bit better today, i think a restful weekend will do you good.

Glad you made the street market Marlene, it sounds as though it was worth going to and the bread sounds delicious. You are right about needing some sunshine (dull again today) so i decided to book a holiday to Fuerteventura, well it's just the flights i have booked. The girls had booked to go for 2 weeks and they said why don't you and dad come too so we are going for 9 days. I still have the hotel to book. Is that where you go Marlene? We go next month.

We are going to a Catherine Gallacher show tonight, i had never heard of her but i got another deal lol (tickets at half price) it is described as a Theatrical Extravaganza of irish dance, if nothing else it will be a change.

Enjoy the car show Marlene and i hope the sun shines for you.

I hope you are a bit better today Lynn.

Take care everyone.
xxx
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Date: 19.05.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Rhona, you will love the island. Yes we go there every winter for two weeks. It is a quite place in November but everything is still open. The restaurants are lovely and the people. We go to Caletta-de-fuste not far from the airport. We stay in an apartment or villa and pay for the flights seperate. We have stayed in different areas and the whole island is lovely and peaceful.
I hope you enjoy it and the sun will do you the world of good. The pace is slow and it suits me just fine as no one rushes and I don't think any one notices how slow I am lol.

I did enjoy the car show as the sun was shining and it wasn't a big show so I didn't feel worn out. We went to a garden centre after then we had dinner out.
I hope you enjoy your evening out it sounds like fun. You are right Rhona it will be a change from the normal and that makes it a good night out.

Lynn and Bsk hope you are both well xxxx
Nite
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Date: 19.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Marlene, That is where we have decided to go, the girls have been there before and loved it so i have booked a hotel for 5 days there and i think we will go to another part of the island for the other 4 days. The show tonight was alright but a bit repetitive.

That was good that you enjoyed the car show. Did you buy anything at the garden centre? I have still to buy some border plants, perhaps next weekend we will get them.

Sleep well xx
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Date: 20.05.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Rhona, you will love caletta as well. I was just wondering any room for me?? LOL.

Well at least the show got you out of the house Rhona.

We purchased some lovely flowering shrubs Rhodies and a pink flowering shrub not sure what it is called but it will be very pretty. We have a very large garden the garden from the front of the house to the top of back garden according to Bing aeriel photos is 400 foot.
It is a long walk to the top of the back garden thinking of asking for a bus stop to be put in hahaha.
I do love it, but we need to shrub and put more lawn down so my other half can have a sit on lawnmower for his latter years. The garden has also been neglected but it is all coming into shape with a lot of help from my daughter and sons good job they like gardening.

Off to Tesco shortly oh what Joy!

Take care have a lovely day. X

You ok BSK?? xxxx
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Date: 20.05.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Have you got room for me too Rhona? I could use some sun!
I'm thinking of going away somewhere, not sure where or when yet but it has to be somewhere warm.

Marlene, your garden sounds fantastic! I would have an orchard if I had the space.

I'm ok, but with sore wrists. Saw my rheumy nurse today who wants to add in another drug to the mix. I'm not sure. She also said I DID have some joint damage plus some other stuff going in my hands. She read the letter that was written after my scan next week. I should get a copy soon so can see for myself. I really don't understand why the doctor said there was no damage and she didn't know why I've got pain. Seeing my rheumy for the last time on Wed so will see what he has to say.
take care
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Date: 20.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

I would love to take you both with me, then i would have someone to listen to my moans lol.

Your garden does sound lovely Marlene and it's good that your family help with it. I have noticed a few shrubs in my garden have died this year, we even had to cut a tree down a few months ago as it had died.

It might be a good idea bsk to add another drug if it allowed you to get off the steroids completely, see what the rheumatologist says on wed. Is he retiring? i think i remember you saying before he was.

It has been a lovely day here today although i haven't been doing very much.

Have a nice evening xx
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Date: 20.05.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

yes he is Rhona, so my last visit :( Who know what the new one is like!
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Date: 21.05.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, well it is a miserable day so far it rained early this morning.
Bsk glad to hear you haven't got to much pain. When you get all your test results back then maybe you can decided about adding another drug.
Don't take too long booking yourself some sunshine lol. I will be missing my sunshine break this year.

Rhona you don't need us to moan to you will be enjoying that sunshine and good food too much.!!!! Glad you had some good weather.

I am sofa surfing again to-day my hands and feet are hurting so much to-day. I have to make dinner then hubby off to work to-night so surfing the sofa again this evening. The excitement it is all just too much LMAO.

Have a good day x
reply | back to forum

Date: 21.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

It is a nice day here Marlene, that's two in a row lol. I hope it warms up for you soon and your poor hands and feet feel better. It is horrible when your feet & hands are sore. I think sofa surfing is sensible when you are in pain.

I went for a facial today, it was nice although to be honest if i wanted a big improvement i think i would need a facelift lol. I would be too much of a coward to go through that though, i think we suffer enough pain.

Hope you are alright bsk and you too Lynn.
xx
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Date: 21.05.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Rhona, it has turned out a lovely sunny evening here. Glad you are still having the good weather.
I am still really sore to-night you would think I would be used to it by now!
How lovely a nice relaxing facial. As for a facelift not for me either. years ago I had an abscess removed from my boob so painful after so a boob job forget it not that I need one lucky me.LOL.
I am sure you don't need a facelift anyway. I will be growing old disgracefully without any ops to make me look younger what's wrong with wrinkles???
I am trying to find somewhere that do massages at a reasonable price not much success yet.
Well hubby gone to work so I am back on the sofa with my hot water bottle feeling sorry for myself.

Take care x
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Date: 21.05.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

I'm with you on growing old disgracefully Marlene! No surgery for me. It's bad enough having necessary operations lol! I'm sure you don't need a facelift Rhona!!

Lovely here too but has been cold and grey all day. For some reason, my wrists are exceptionally painful today. I've never had problems with my left wrist until now so haven't done much today. Took some strong painkillers earlier but am about to get the hottie out too. My sitting room is being decorated at the moment so camped out in the bedroom, which is also accommodating furniture from the former so I feel under siege. It's starting to look good though so worth the disruption. My landlord also is getting them to put everything back, including a rather large quantity of books, so I don't have to touch a thing. It's great.

I hope you all have a good evening.
xx
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Date: 21.05.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Bsk, how nice a new sitting room, as you say the inconvenience will be worth it. That will be great someone putting everything back for you especially as your wrists are hurting you.
I have just refilled the hot water bottle to take to bed. I have another lump on a different finger my GP said it is the OA so not much I can do.

Nite everyone I hope you all sleep well xx
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Date: 22.05.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Morning everyone,

I hope you are feeling a bit better this morning Marlene. My left wrist is still painful and looks quite swollen this morning. Good thing I'm seeing my rheumy today but don't really want to put my drugs up :(

I've been meaning to ask you Rhona, how you are getting on after your last infusion? Is it helping do you think? I'm sure you are still sad about Millie but I hope it feels a bit easier this week. How is your daughter getting on with her eyes?

I think it's going to be quite a nice day today. Just as well seeing as it's going to get colder this week. I'm very fed up with this weather. I'm going to try and potter in the garden today but carefully with my wrist. Decorators back today. I have to say they are really nice to have around and very clean as well. I'm impressed!

Speak later no doubt. Have a good day.
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Date: 22.05.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Bsk, I can understand you don't want any more drugs and I don't blame you. I hope all goes well with the rhumy. Be careful with that wrist of yours if you are going to potter in the garden although I know like me you like to be in the garden. I am not sure that sitting around too much helps either.
It is great when you have people in doing stuff and you have faith in them and their work. It is good that they clean up well behind them. What colour are you having? You will be delighted when you get back into your lounge and Bsk you deserve something nice!!!!


My hands and shoulder are driving me mad. My feet are a lot better. Its a bit cold here for gardening but have plenty to do inside lol.

xxxxxx
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Date: 22.05.2013
From: Lynn

Subject: Re: New thread for Rhona bsk and Marlene

Hi ladies my feet are still causing me problems they are really sore and right round my ankles the morning stiffness is getting worse I'm thinking of phoning my Rhumy nurse to see if any my test results are back as I don't see my Rhumy till end of June I don't think I can hold off till then my toenails r much same the big toe isn't right off but it will be soon the Rhumy told me its the psoriasis under the nail beds that's caused this with psoriatic arthritis all my finger and toe nails have deep ridges on them again the psoriasis I'm lucky to still have all my finger nails just keep polish on them helps with the look of them hope you are all keeping good it has been nice to see some sun although I hope it gets a bit warmer soon.

Take care ladies
Lynn
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Date: 22.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Marlene Bsk & Lynn,

I hope you got on well at the hospital today bsk. Are they going to give you something else? I am doing alright thanks although my feet are sore tonight. I just hope it doesn't flare up before we go away, when i think how bad i was last year it still scares me so i am grateful to have been given the rituximab.

It is still strange not having Millie in the house bsk, especially when i come in and she's not there.

My daughter is doing ok and she will get the other eye operated on after the holiday.

I hope you feel a bit better soon Marlene. It was nice here earlier but it has turned quite cold and there is a wind here.

I think you should contact the hospital Lynn, that's too long to wait until the end of June. I don't know how you are coping without the drugs, surely they must be able to give you something to stop your nails falling off and to help your pain, you must be exhausted by it all. Would a steroid injection help your pain until you get something sorted? I hope you get something soon.

Take care everyone. xxx
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Date: 22.05.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi everyone,

I echo what Rhona says Lynn. Don't wait.

I had a steroid injection today as it happens. My rheumy wants to see if it helps the swelling (which was obvious to him!) and pain in my wrists. I've got to have xrays to see if there is damage from secondary osteo caused by the RA. Oh lovely, more horrid surprises for me. And I thought RA was enough on it's own.
It's good to know I'm not going mad though. Last appt with my rheumy and I'm sorry to see him go, he's so straight forward and easy to talk to.

Marlene,sorry to hear you are still feeling rough, I do know what you feel like!

My sitting room is finished and the guys are coming back in the morning to put my massive book collection back on the shelves. Can't lift half of them so ought to get rid of them really! But they are my art books and I've had them for years. The room looks good and I'm pleased with it.

When are you going away Rhona? The sun will do you a lot of good. I'm quite jealous!
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Date: 22.05.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi all, Lynn sorry you are feeling rough and I hope those nails regrow soon. XX

Rhona, I think its this awful weather having us all in pain but I am sure the sunshine will help you. When are you going?

Bsk That's good that your room will all be back together for the week-end. Put your feet up with a good book and just relax in your lovely room.
I am still hurting but what's new lately I am getting a bit fed up again I am trying not to let it get to me but this constant pain is a nightmare.
Bsk I do hope you don't have OA as well like you don't have enough to put up with.

XXXXX
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Date: 22.05.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

Thanks M. I hope you feel better too. xx
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Date: 22.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Was that not painful bsk? I have never had one in my wrists or fingers or ankle and i imagine them to be really painful. I have had plenty in my shoulders and knees though. I hope it kicks in soon but remember and take it easy for up to 48hrs after getting the injection and rest your wrist to get the full benefit. I hope yout xrays turn out to be ok. Just as well you don't have to lift all your books back.

You are having your time of it too Marlene.

We go away on the 13th June and we are flying from Edinburgh at 6.30am and i am not looking forward to that part although we come back into Glasgow.

Sleep well xx
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Date: 23.05.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

It was the one in the arse Rhona!
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Date: 23.05.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Well BSK I hope you have a soft sofa!!

I got up to hail stones this morning just great and it is cold as well.

Rhona don't forget if you need help at the airport ask!! Not long now.

I am going to dose up on pain killers my hands and fingers are so painful xx
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Date: 23.05.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

I got hailstones as well on the way home from my gp. She things I have a basal cell carcinoma on my back. Been referred to a dermatologist. This is just one assault after another.

Rhona, you can book help in advance through your airline. I would take everything that is offered - wheelchair through customs/passport control etc. That way you don't have to stand in any queues.

Marlene, you take those painkillers! I hope you haven't got too much to do today.
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Date: 23.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

It is cold here today as well, crazy weather for this time of year. My ankles are a bit sore today so i hope it settles until at least after the holiday. I am hoping i will manage on ok but ryanair usually have a stair to go up and down and it is the coming down that's the worst but if needed i will ask for assistance.

It's a shame that you are suffering so much Marlene. Was there not some talk of a new injection to help OA. Would wax baths help your hands? Try not to do too much and rest them as much as you can.

That is what i had not so long ago bsk. It is always best getting these things checked out and if it is then it is easy to remove. I was told by the dermatologist that enbrel can cause it although he did say it was more likely to have been the sun as i wasn't on enbrel very long.

Hope you are a bit better Lynn. Have you called the hospital yet?

Take care.
xxx
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Date: 24.05.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Rhona, book assistance before you go. I've done it and it's well worth it. It's so much easier if you do it before you fly.

Marlene, I'm sorry your hands are still bad. Mine are too and am still waiting to see if the steroids will help. I don't know what to suggest - if I did I'd be doing it myself lol!

xx
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Date: 24.05.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Morning, well it is freezing here to-day and yesterday wasn't any better hailstones on and off all day.
I am hurting all over and my hands are so bad. I am going to get an appointment with my GP after the Bank Holiday. I don't know what I think they can do but my painkillers aren't touching the pain.
I now have three fingers that I can't bend at all with the pain.
Rhona I am so glad you are going away the break and sunshine will be so good for you.
Bsk when are you going to get a break from all of this. My son had a nasty looking Mole removed from his back a short while ago. I hope your books are all back in place and you are resting in your lovely new room. What colour did you have?
Keep warm everyone!!!!!
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Date: 24.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies,

I am sorry to hear that you are still suffering Marlene. I think it is a good idea that you are going to the doctors. I'm sure the tablets become less effective after a while. Perhaps if you get something different it might help. My hands are really bad today, especially the left one, it is so swollen. I am hoping that i haven't waited too long between infusions, or worse still, it isn't working.

I hope you are alright today bsk.

It has turned out quite a nice afternoon here.

Have a nice evening xx
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Date: 24.05.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Rhona, I am not sure what to do the Drs don't ever seem to think there is any thing stronger on offer. I seem to cope very well and then I go through a patch like this where I don't cope at all. I am trying to carry on the same but it is hard. Sorry to be so miserable this is the reason I usually don't come on the forum when I am feeling like this.... you all have enough on your own plates without listening to me battering on. I feel like the weather outside wet windy and cold.
I am glad you are having some nicer weather.
Your poor hands they sound like they match mine. Rhona what a lot we are!!!

I am sofa surfing to-night at least I should feel lucky that I can.

My sons are coming over the week-end and I should see the grankids that usually cheers me up.
Take care xx
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Date: 24.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Oh Marlene, I feel for you. I look forward to reading your cheerful posts and you are not being miserable at all and even if you were that would be ok as that is what we are here for after all. I doesn't help with the weather being so cold and you have being doing so much lately with the house etc so just you take it easy for a change and do some sofa surfing (i do a lot of that myself)

You take care Marlene and i am sure when the grand kids are visiting tomorrow it will help.

Sending you a big hug xx
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Date: 24.05.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Complain all you want Marlene. I don't mind. I'm feeling pretty down at the moment too with my hands being so bad. Sorry to hear yours are bad today as well Rhona. Let's hope some sunshine makes an appearance this weekend.
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Date: 24.05.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Thanks I appreciate your support. It doesn't help that the other half is on night shift. It makes the evenings long normally I fill it reading but I can't concentrate on anything.
Bsk I know exactly how you feel enough is enough.
Rhona I hope your hands feel a bit better tomorrow.
Sleep well and thanks again xx
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Date: 25.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

I hope you are both feeling a bit better this morning. It is a beautiful day here, i hope it's the same where you are. I may even sit out for a bit later.

We are waiting on my dining table/chairs arriving this morning. I didn't expect it to arrive so quickly as it was only about 10 days ago that i ordered it.

Have a nice day xx
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Date: 25.05.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, Rhona I hope the table/chairs look good.
It has been a lovely day here as well. I sat in the garden for a while, it just makes you feel better to be outside. I feel slightly better to-day but I am in soo much pain still.

Hope you are ok bsk.

Sofa surfing now. lol.

xxxxxxx
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Date: 25.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Glad to hear that you feel slightly better. Perhaps after getting some sun today will have helped. My hand is still very sore, perhaps a teeny bit better but it comes and goes.

The table/chairs look lovely although my poor husband spent hours putting it all together this afternoon and didn't get to see much of the sun.

Hope you sleep well and feel a bit better tomorrow.

Nite nite xx
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Date: 26.05.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi everyone, beautiful sunny day and I'm sitting by the open French windows soaking it up but, unfortunately,feeling really ill. I think I'm coming down with something, again. And it's not a hangover either, though I had a lovely dinner at my sister's last night. Aw shucks!
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Date: 26.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

It has Turned very cloudy here bsk. We went to B&Q this morning and got some plants for the garden and spent the afternoon planting them, I just hope the wind doesn't start again and kill them off.

I hope you're not in for anything, at least a hangover doesn't usually last too long so you would have been better with that.

I'm just sitting with my feet up now as my ankles are feeling sore tonight.

Hope you are a bit better Marlene.
xx
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Date: 26.05.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, well I have been soaking up the sun to-day although my pain is still bad my mood is better LOL.
Bsk I hope you are not getting anything wrong with you like you need anything else. Glad you had a nice evening at your sister's and good food. It is nice to have time with family.

My son came and worked so hard in the garden. It is all prepared for the grass seed now off to B&Q tomorrow. Popular shop its seems Rhona haha.

You sound very pleased with your purchase of table and chairs glad you like them now you have them all set up. Your plants should be ok Rhona my hanging baskets have been done a few weeks and are doing fine considering how cold it has been. They have started to flower.
Hot water bottle and dressing gown is the order of the evening.
Take care xxxxx
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Date: 26.05.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Did a bit of research and forgot to factor in steroid injection. Which would explain my short temper, possible fluey symptoms (or susceptibility to infection or whatever), lack of sleep and general miserableness. On the positive side, one of my wrists seems better so hopefully not OA.

Sounds as if you've both done a lot in the garden today. Beautiful day for it. I think the weather is going to hold for another day. I'm going to watch the French Open tomorrow. I just love the tennis.

Hope you are not suffering too much from the gardening. Sleep well. xx
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Date: 26.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

That's good if your wrist is a bit better bsk, Yes, i have heard that can happen with the steroids.

Good that you feel a bit better Marlene the sun is a tonic.

I am going to the Modern Homes Exhibition tomorrow with my daughter.

Sleep well xx
reply | back to forum

Date: 27.05.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

that sound interesting Rhona, is that in Glasgow? Have fun!
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Date: 27.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Yes, it's at the SECC bsk. It has been raining here all morning. Hope it is better where you are and hope you are both feeling a bit better today. xx
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Date: 27.05.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Morning lovely sunny one.

Hope you are all ok. Enjoy your day.

Have fun Rhona!!!!
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Date: 29.05.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Well it looks like I have a cold so tucked up on the sofa but need to drag myself out to get some tissues. These grey days kill me.

How are you all doing? Has Rhona gone away yet?
xx
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Date: 29.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi ladies,

I don't go for another 2 weeks bsk. I was in town earlier and just got home before the rain came pouring down. I hope your cold doesn't last too long. I always think hot lemon helps.

How are you Marlene? I hope you are not suffering too much.

Are you alright Lynn.
xxx
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Date: 29.05.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

I thought you were a bit quiet Rhona lol! Still not sure if it's a cold or not, not that sniffy but feel dizzy and shivering. Slept on the sofa most of the day and watched the tennis in between. I've had to cancel a lot of things which is rather annoying.

xx
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Date: 29.05.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi ladies, bsk I hope your cold doesn't come to much. Keep tucked up on that sofa.It is so annoying when all the plans you have made get ruined. maybe when you feel better you can sort out the things you want to do. XX

I am feeling pretty rough went to the Drs. on antibiotics for chest infection. Steroid and antibiotic drops for infection in both ears. had all long chat about OA and he has asked me to go back when I am over chest infection to have another chat. My swollen fingers are OA and the lumps are caused by it.
I am not sure what he can do for the OA but I will go back for another chat maybe he has a plan!

Rhona did you buy anything nice in town? I bet you can't wait to go away and leave this weather behind. It is so depressing.

Well take care xx
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Date: 29.05.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Oh Marlene! I'm sorry to hear you have an infection. You will be sofa surfing tomorrow I expect. Drink plenty of fluids and keep warm etc. Maybe your doctor can help with pain relief for the OA.
Take care. You too Rhona.
xx
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Date: 29.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Poor you Marlene, that must be horrible for you. I remember having an infection in my ear years ago and it was agony. I hope the antibiotics clear it up quickly. Rest as much as you can and keep warm. I bought a dress and a pair of sandals today Marlene and a table runner for my new table lol.

Hope you both feel a bit better tomorrow.
Sleep well xx
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Date: 30.05.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi bsk and rhona, no capitals to-day hands so sore. i am sofa surfing to-day and having take away to-night not that i have much appetite.
my chest feels worse to-day but i expect that is the pitch and it will start to ease once antibiotics kick in.i shall be feeling better in a few days i'm sure. just feeling a bit down and sorry for myself.

rhona glad you had a good shopping day. I guess the dress and sandals are for your holidays good for you. its nice to treat yourself.
I use a table runner as well it saves the table.

take care xx
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Date: 30.05.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Sorry to hear you are feeling down Marlene. If it's any consolation, I am feeling sorry for myself too. Met my friend who I had dinner with on Sat and he's got a sore throat and chest infection too. So I guess that is where I'm headed lol!

Weirdly, my wrists are very bad today as well. So maybe it is secondary oA. Need to get to the hospital for that x-ray soon.

Rhona, dress and sandals got to be for holiday as not much chance of wearing them here haha!

take care everyone and, Marlene, you will be better soon so hang on in there.
xx
reply | back to forum

Date: 30.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hopefully you will feel a bit better tomorrow Marlene when the antibiotics start working, it can take 2-3 days before you feel them taking effect. It is bad enough having pain with the arthritis without a chest infection.

I hope you start to feel a bit better soon to bsk. What are we going to do with the pair of you. I think you both need a bit of sunshine.

I am wakening up every morning with a sore head and i think it is coming from my shoulders, it would be lovely to waken up one morning with no pain. I seem to sleep for 2-3 hours after i go to bed then i am very restless the rest of the night and i have been having strange dreams every night, i am wondering if it has to do with the medications.

Sleep well xx
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Date: 31.05.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Morning Rhona! Thanks for your comments. Funnily enough, I've been having really vivid dreams lately. I was wondering the same thing. And yes, it would be nice to be out of pain for a while.

Weather is changing today I believe so I will sit out in the garden this weekend if I can.
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Date: 31.05.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

just a quick post. Bsk sorry you are not great either. Lovely to see the sun it has been hot here.
It may be meds that make you have weird dreams I only remember my dreams when I max out on pain killers.
Thanks to you both for your posts.
Have a good week-end XXXXXXXXX
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Date: 31.05.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

That's good that you are getting the sun Marlene, i hope it helps the joints. It started sunny here early this morning but then it dulled down and we had a couple of showers this afternoon. I hope you both feel a lot better tomorrow. I am going to bed shortly as i am feeling a bit down tonight the word "scunnered" actually came to mind lol.

Sleep well xx
reply | back to forum

Date: 01.06.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

How are you both today? Are you feeling any better tonight Rhona? I'm feeling a bit down myself today. Must be post viral blues.

Are you ok Marlene?
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Date: 01.06.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, well what a lot we are all down in the dumps. I am getting there still feeling rough but my ears have stopped hurting so thats one thing less.

I sat in the sun not much help lol. I am banking on a few more days and then the chest infection should be more or less gone fingers crossed. ( well thats if I could).

Rhona you must be looking forward to going away to get some decent weather. It has been cloudy here most of the day.

Bsk I hope you are feeling a bit better to-night.

Off to bed now gone 11 and I am still awake. Got on the scales to day and have lost a bit of weight not that it shows. One good thing that has come out of feeling not well.LMAO.

Good-night Ladies hope you both feel better tomorrow.
XXXXXX
reply | back to forum

Date: 02.06.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Bsk & Marlene,

That's good that you are feeling a bit better today Marlene. Take things easy until you are over it completely. It was very cold here today and i had my winter jacket on when i was out.

Are you feeling any better bsk? I am still feeling quite miserable, i think i am just fed up with everything, perhaps tomorrow i will have brightened up a bit.

My daughter was at the hospital yesterday and they are going to operate on her other eye in July. I just hope it is as successful as the last one.

You are taking weight off Marlene and i have put a bit on. I've been eating like a pig lately, perhaps it's boredom.

Well off to bed now, it's way after midnight, in fact i think i will have a snack first. lol

Take care xx
reply | back to forum

Date: 02.06.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Morning, beautiful sunny day here for once!

Sorry to hear you are still feeling ill Marlene. Hopefully, you will start to feel better soon. I'm still a bit unwell. Haven't got the chest infection though, been trying very hard to rest.

Rhona, I'm not surprised you're feeling down what with losing Millie and your worries over your daughter. Like you, I've been eating like a pig and have put on weight. Very hard to deny yourself treats when dealing with so much in your life - at least that's what I tell myself lol! Maybe off to WW this week!

take care. xx
reply | back to forum

Date: 02.06.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi there, I have been sitting in the sun all day and have relaxed. My cough is dreadful and giving me a headache lol. I am feeling less ill so it seems the antibiotics are working.

Rhona, you have had a lot and of course you feel fed up. I am sure when you go away you will feel much better. I hope your daughters operation is successful.

Bsk rest is best as we all know its just doing it!!

I think sometimes we have to have nice things to eat to compensate for all our pain. LOL
xx
reply | back to forum

Date: 02.06.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

It has been a better day here today. We had a BBQ in the garden tonight which was nice, it was lovely to sit out and have a glass of wine.

That's good that the cold isn't in your chest bsk. Look after yourself though.

Perhaps the infection in your chest is breaking up now Marlene and that's why you are coughing badly. Make sure that you finish the antibiotics and maybe a hot toddy would help.
sleep well and pleasant dreams xx
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Date: 02.06.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Rhona, that sounds lovely Barbie and a glass of wine. I agree I love sitting outside to eat on a summer evening.
I think you are right about the coughing well I hope so.

I hope your glass of wine helps you sleep well.

NIGHT ALL XX
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Date: 02.06.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

Good to hear you are both in better spirits. Me too, went to a very nice party this afternoon which cheered me up. I sat in the sun too.
xx
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Date: 03.06.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

another sunny day!!! going to see my daughter to-day she needs Dad to do a few things for her. So I will be waited on. Going to spend the day sitting in the garden . I feel somewhat better to-day.
Oh that was nice bsk doesn't take much to cheer us all up does it!! Take in the sun again to-day if you can.

Hope you are ok Rhona
xxxxxxxx
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Date: 03.06.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

It's not so nice here Marlene, i am hoping the sun will come through, it's hiding under the clouds just now. That's good that you are feeling better and enjoy your day at your daughter's you deserve to be waited on.

I hope you are ok bsk. I am a bit sore this morning.

Take care everyone xx
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Date: 03.06.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi, had a good sit in the garden and feel so much better for it. My daughters fence all up and her dead tree down. She fed us all a lovely meal. I am now in bed and I am tired out.
Night ladies sleep tight xxxxxx
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Date: 04.06.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Woke early with a headache from hell. Sitting in the lounge no one up headache is now drifting off after two different lots of painkillers. I have the washing on as it is another sunny day. Rhona I hope you have some sun shine to-day.
I have a bit of catching up to do in the house to-day but I will be plodding trough no rushing I don't have the get up and go feeling!! I should have I sat most of the day yesterday LOL.

Have a good day xx
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Date: 04.06.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

I hope your head is alright now Marlene. It's not been your week at all.

It was a lovely day here too, what a difference to see some sunshine.

I hope you are alright bsk.

I have the hospital in the morning early so best get to bed soon.

Take care and sleep well xx
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Date: 05.06.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

hi, I've got a headache too. Think mine is caused by Enbrel. I'm really fed up at the moment. I need a holiday!
How did the hospital go Rhona?
xx
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Date: 05.06.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

So strange, i also have a headache. It went fine bsk. I've to get a scan done on my finger as i can't bend it and she said i might need a new knuckle but i said i wouldn't be going down that road just now.

It's been a beautiful day here today.

We are going to a funeral in the morning, it was my friends sister-in-law she had cancer.
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Date: 05.06.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

I hope it goes well tomorrow.

Don't blame you about the knuckle. Enough is enough without adding in surgery!

Marlene, are you ok?
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Date: 05.06.2013
From: Willis

Subject: Re: New thread for Rhona bsk and Marlene

Hi all, hope you are all keeping ok, sorry haven't read the previous messages.
Husbands operation went well and he is recovering so well they have taken him out of ICU to a ward in only 36 hrs!
He still has a long way to go but just relieved :)
I am shattered after two 18 hr days and my feet are the worst lol. Had to do my own humira injection tonight as no hubby! I'm too chicken to do it but... Obviously just needed the 'no option'
I haven't been on as was stressed and didn't want to moan when you all have your own issues
I just hope you are all still fighting
Lots of hugs and best wishes
Xxx
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Date: 05.06.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Oh that is great news Willis. I had been wondering how things were. You will be so relieved. I hope he will be home soon. Try and make some time for yourself too and rest when you can.
We are here to listen anytime you feel like moaning Willis, i moan often enough. lol

Take care xx
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Date: 05.06.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, well I am on the mend now thank goodness. I have taken a lot of sun and have a nice healthy tan.
I had two days of headaches but that has also gone.

Bsk you should take a holiday after the year you've had. You so deserve it.

Rhona I don't blame you not going done the op route with your knuckle. I know first hand it is bad enough with the normal pain without adding to it. I would wait until you really had to.

Willis you must be so relieved your husbands operation is all done.It sounds like he is doing well. It is amazing what you can do when you have to. I would be a chicken injecting myself as well LOL.
Take care and take time to relax when you can.

Night all xxxxxx
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Date: 06.06.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Glad to hear that you are feeling better Marlene. I wish i could tan, i burn very easily so i have to take care in the sun. It has been beautiful here for the last few days and what a difference it makes, even being at a cemetary didn't seem so bad with the sun shining today.

I hope you are alright bsk? I know the feeling of being fed up. Treat yourself to something nice, that sometimes helps.

Hope you are alright Lynn & Willis.

Take care all xxx
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Date: 06.06.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Rhona, I feel much better just left with a cough and feeling a bit washed out.
Isn't that sunshine such a tonic. It just makes you feel better.
Bsk I hope you are feeling better to-day. I was feeling peed off big time so I understand what it is like. As Rhona said treat yourself. I love fresh strawberry tarts as a treat lol.

Willis I hope your hubby is still progressing well.
Hugs to you all xxxxxx
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Date: 08.06.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Beautiful morning here again. I hope you are all feeling well today. You are right Marlene the sun is a tonic. I am actually quite red and i wasn't sitting in it too long. I will need to be careful next week the drugs i am on make me even more sensitive to the sun.

Are you alright bsk? hope you are feeling a bit better. My joints, especially my hands and feet are hurting. I should probably have asked for a steroid jag last week.

Have a good weekend. xxx
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Date: 08.06.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi everyone, how are you all doing?

I am feeling better on the whole thanks! Though have had a headache for about 3 days now. Not entirely sure the wine last night helped with that ha ha! Enjoying the better weather which is helping along with the steroid jab. Can you ask them to give you one before your holiday Rhona? My lot will do that for me if I need it.

Glad you are recovering from your infection Marlene. I saw friends last night who both had viral infections (needless to say they didn't tell me before I went!) but one of them has been ill for two weeks. It's a nasty bug and I hope I don't get it, though have had something it wasn't a chesty thing.

Willis, I hope your husband is doing ok and Lynn, hope you are doing ok.
take care. xx
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Date: 08.06.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, Rhona is it too late to ask for a jab before you go away? Try not to get to sunburned I usually burn but surprisingly I haven't this year. I have a very nice Tan I look very healthy.

Bsk don't you just love it when people don't mention the are ill. I like you have to be careful with my chest as my Asthma is set off by the slightest cold. I hope you don't get anything nasty you have had quiet enough lately.
I am feeling much better still have a cough but I suppose that will hang on it usually does.

I hope you are both enjoying the week-end.

Willis hope you are ok and hubby is doing well.

xxxxx
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Date: 08.06.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

I know Marlene. Saw another ill friend today but at least he warned me! I would love a week without anything at all. Fat chance! Glad you are feeling better tonight.
xx
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Date: 08.06.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Marlene & bsk,

That's good that you are both feeling better today. Sometimes a cough can be a good thing Marlene, better than it being in your chest.

My feet and ankles are so sore tonight, i can hardly bear to put my weight on them. If they are still bad on Monday i will call and ask for a steroid jab and hope i can get it. I just hope it eases off. I am going to go to bed soon perhaps the rest will help. I would have thought the sunshine would have helped.

Anyway, sleep well tonight and enjoy another sunny day tomorrow.

Nite Nite xx
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Date: 08.06.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Rhona, sorry you are having feet and ankle problems. I have OA in my feet so I guess you will be feeling similar pain. What are we all like???? I hope you can get a jab explain you are going to a sunnier climate and I am sure they will oblige.
My old GP used to give me a week of steroids to help with the OA not a normal thing, but it always helped.

Fingers crossed you stay well bsk. There seems to be so many germs flying around at the moment.

Nite all xxxx
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Date: 10.06.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi bsk & Marlene, I hope you are both doing alright. I stayed in and rested today and my ankles feel a bit better for it. Its has been very dull here today but at least it has been dry.

Not organised at all for going away, i actually find packing and travelling quite stressful. I don't suppose i should complain lol.

I hope you are getting on better Lynn and i hope your husband is improving Willis.

Take care and sleep well everyone. xxx
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Date: 11.06.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi everyone,

Glad you are feeling better Rhona. I don't like packing very much either and travelling always stressful! You'll enjoy it once you are there though.

How are you doing M? I think I might be ill again. Got no energy and sleeping all day. Or maybe it's the arthritis. Though normally steroid jabs give me a boost. Hmm!
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Date: 11.06.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, So glad you are feeling better Rhona. Just pack the case and anything forgotton can always be bought out there. All I make doubly sure about is meds passports and tickets. Rhona all the stress will go once you are in the sun with your family.

Bsk I am not too bad, I like you are so tired but having trouble sleeping. Bsk I do hope you are not getting ill again as you can do without it.
I have got over the chest infection pretty well. I had a new GP so I made a point of telling him what works for me. A bit cheeky I know but some antibiotics don't work for me.
Its very grey here and not so warm and rain is on the way again so that will be good for us (joke).So pleased for Rhona getting away from this weather.

Have a good day catch up later XX
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Date: 11.06.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Bsk, I hope you're not in for anything else. It's exhausting having other health issues on top of the arthritis. Make sure that you are looking after yourself.

You are right to tell the new GP what works for you Marlene, we know our own bodies better than anyone. We have had rain here today too. Did you find it very windy in the Canaries Marlene? I remember being in Lanzarote years ago and everything was blowing away, even my cap and i couldn't catch it lol.

Take care xx
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Date: 12.06.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies hope you are well.
It is windy in the canaries but you will need it for the heat. The wind isn't cold but refreshing break from the heat lol. Not long now before you go, I hope you have a fantastic break you deserve it.

I am off shopping with hubby to-day :- grass seed paint and oil, how exciting. I might grab a coffee while we are out.
Its a bit grey and windy here this morning.

Have a good day xx
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Date: 12.06.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

I could so do with a week in the Canaries! These grey skies are really getting me down.

Shopping list sound thrilling Marlene! Hope you treat yourself to something nicer when you are out.

Not long to go now Rhona. I'm so envious.
xx
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Date: 12.06.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Bsk & Marlene, I'm just getting the last of my ironing finished and then i hope to relax a bit. I have arranged a taxi to take us to the airport at 4am (what a crazy time) I'm going to try and get a couple of hours sleep before we go.

I hope you both keep well while i am away and i will catch up with your posts when i get back on.

Take care xx
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Date: 12.06.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Have a fab time Rhona!
xx
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Date: 12.06.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Rhona, have a fantastic holiday Will miss your posts xxx

Bsk it is raining here and grey skies it is also having me fed up already. I made a very nice purchase of a mirror for the hallway. So shopping was very good in the end.
Bsk are you planning a holiday this year? I am already missing the fact we are not having our usual winter holiday.
I am going to bed early as my back and hands are awful I have two fingers that are so painful and swollen.

Take care and Rhona ENJOY xxxxxx
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Date: 14.06.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Morning Bsk, Hope you are feeling ok. Looks like the best of the weather is slowly fading.

Off to the theatre at the week-end. Let you now what it was all about not sure myself Daughter booked tickets.

Have a good day!!!
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Date: 14.06.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi Marlene, ill again, sore throat and cold grrr! Weather vile for time of year. Keep trying to wear summer clothes and then having to go back home and change!

What are you going to see? I have to admit I'm not a fan of the theatre generally, though occasionally enjoy it. I prefer film myself. Anyway, have a lovely time!

Take care. xx
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Date: 14.06.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Oh Bsk poor you do you think your friends shared with you. Joking aside you have had so much lately bless you. The sun is shining now has been on and off but very windy. Flaming June who ever said that was right but in the wrong context.

I am going to see The Shaolin Warriors a bit of kung fu and stuff. It does have a story I think. My daughter is into that kind of thing so I agreed to go along. The theatre is new and disabled friendly seats are comfortable.. There are three or four restaurants purpose built for the theatre so it is a very good atmosphere. We have seen a few things there. I like the cinema also.
Looking after the two youngest grandchildren on Sunday. My youngest son is doing the London to Brighton Bike ride for British Heart Foundation. He is going to the Isle of Wight the next day for a five day break (he will need it).
I am hoping they have some good weather for the little ones. The girl wants to go to the beach oh and to see the baby sheep.
Went to IKEA and purchased two chest of drawers and a lovely mirror. They had a sale on so they were a very good price. I love a bargain LOL. Hubby is putting them together
Hubby had result of MRI He has one bulging disc and two slightly moved and his something or other nerve is impacted. Now he is being referred to Orthopedic Surgeon. More stress.
Oh well Bsk that's my long winded story.

I hope you feel better soon. Take Care and do some sofa surfing with a hot water bottle XXXXXXXXXXX
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Date: 14.06.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

Blimey Marlene, you've got a lot going on this weekend! i hope you enjoy the theatre and spending time with the grandchildren.

I should check out the Ikea sale as there are a few bits I need but will have to wait until I'm better.

Saw my GP this morning (I've posted this somewhere else so sorry if you've read it already) and took the letter from the doctor who did the scan who said there was no inflammation in my joints. Letter was full of descriptions of various joints that were inflamed and my GP said she was confused too, as was my consultant. She told me to ignore it haha! Luckily, I've got a fab gp with a sense of humour.

Am really trying to rest so I get over this bug as I've got things to do! Speak soon. xx
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Date: 15.06.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Good morning ladies, I am having a stiff slow start so popped in while waiting for tablets to kick in and get me moving.
It's a pain this arthritis!
Bsk, I am going to ask my specialist if, like you, I can maybe try a half dose of bio drugs as I think my arthritis is way out of control. My knee and ankle are up again, it's so tiresome, we have some nice weather and want to get on and live a bit of a decent life.
Ooooooh it's so frustrating.
Some of you are up to some fun things, holidays, shopping etc. Nice to hear that you are having some fun.
I may go and see my daughter in Switzerland if I can get a jab in July ( when I see doctor) and can get moving a bit better.
Love to all and good health! X
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Date: 15.06.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

hi Emm, good to see you on this thread - perhaps we should change it to 'general chat' thread so more people join in. In fact, I'm going to do that.

Sorry to hear your arthritis is bad. Can't you phone the rheumy team and ask for a jab sooner? Mine are quite obliging!

xx
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Date: 15.06.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Hi bsk, I went to GP on Thursday, she said 2 weeks prior to that , when it first started to be inflammed, to go back in 2 weeks and she would do it. I was actually on the bed and a nurse had the injection set ready for gp to inject, but when she came in she thought there was not a lot of fluid around so wouldn't do it. She said come back if it gets bigger.
I never get any satisfaction from her. I think she seems scared to do it!
Last time I had it I limped to the hospital 6weeks after and he did it without qualms.
He has written to her saying to give me them, but it never happens. Oh well, what can we do!
Things never run smoothly here.
Was due to get an ear syringed another day this week and they cancelled as they have had no nurse for 3 weeks.
It is a shambles.
I will wait for July1 st. ...Specialist appointment. It is not easy though struggling to get mobile, especially on a morning.
There I go again .....moaning.
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Date: 15.06.2013
From: Patsy

Subject: Re: New thread for Rhona bsk and Marlene

Hi everyone, hope you're as well as can be expected. Haven't been on in awhile as just getting over bad flare up. Feeling bit better now but soo down. Depression seems to go hand in hand with this illness. On a brighter note got a new puppy, newfoundland, named him after my idol Elvis lol.
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Date: 16.06.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Patsy glad you are a bit better, I think feeling down goes hand in hand too!
Isn't a Newfoundaland a huge dog when fully grown?
It will be a lot of fun, a new puppy in the house.
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Date: 16.06.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, Bsk the theatre was great I didn't thin k it was going to be my thing at all.
I have the grankids to-day and at the moment they are sleeping. The 3yr old told me she went a boat twenty years ago!!! Wow.
Its nice to see some new ladies on here.
Patsy good luck with the puppy what fun. They are such lovely dogs. I bet the food bill won't be cheap LOL.
Feeling down is par of the cause with Arthur.

Emm Switzerland how lovely. It would be great for you to go and see your daughter.
Take care everyone. xx
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Date: 17.06.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Hi Marlene, I hope so if I can get my flare up under control. It just takes so long to get to see the specialist!
Enjoy the nice weather, seems like it may be a good week. X
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Date: 17.06.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Morning Ladies, I am shattered this morning and in pain from head to toe. I over did it this week-end and need to chill out for a few days. I forgot just what hard work two little one can be. I did enjoy having them.
I hope you are ok BSK. I was thinking about Rhona this morning I hope she is enjoying her break.

Take care everyone XX
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Date: 17.06.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Sorry to hear you've overdone it again. Must be those children. My nieces exhaust me! Hope you had a restful day. I'm feeling a bit better tonight. Finally took my Enbrel. Finger's crossed I don't get ill again. take care. xx
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Date: 17.06.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Bsk, well I pottered in the garden and I do feel better to-night. It is harder than I remember looking after little ones lol.
I am glad to hear you also feel better tonight.
Well good news that you have taken Enbrel again and I will keep my fingers crossed that you stay well.
Take care Bsk and rest up I am going to have another day taking it easy. XX
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Date: 18.06.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi Marlene, glad you are feeling better. I'm very cranky at the moment. Been home too much lately. Need to get out a bit more!
take care xx
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Date: 19.06.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Bsk, I get cranky when I don't get out and about. You know we have a lot in common. We both seem to suffer with SAD as well.
The weather has been good and now waiting on the storms I hope they miss us out my poor dog will be fretting the whole time. She just hates loud rain and thunder being a German Shepherd this is nothing unusual.
It is very muggy tonight and has been all day.
I have been gardening for three days my hands are so painful but they are anyway so they might as well hurt for a reason. LOL.I just love being outside and it lifts my mood a lot. I hope the storms don't bring rotten weather with them.

Take care BSK and I hope you feel less cranky today. Have a nice evening.
XXXXXX
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Date: 19.06.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi Marlene, thanks for your support, much appreciated! I do feel better as spent most of the afternoon with a friend in the park - like you I find it makes a difference. It's very humid today - it's given me Glasgow hair haha!

I hope you haven't overdone things with the gardening. It's so easy to go on and on without realising what you are doing.

take care xx
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Date: 20.06.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Marlene and bsk, I feel SAD if I don't get out every day too. I also feel it on dull days.
Bsk, what is glasgow hair? I haven't heard that expression before.
It's 2.19am and I can't sleep, came down for a cuppa and decided to do internet banking, then popped in here.
I'll get my cuppa now and take it back to bed and try again.... X
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Date: 20.06.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Morning Ladies, I haven't heard that expression either I will take a guess all curly and frizzy!!
I have over done it but Bsk I am so happy with the results I think to myself at least I know why my hands are so sore. Not the best plan but I am not ready for that old rocking chair yet.
So glad you got out sitting in the park is so lovely. It always reminds me of the long days as a child. I spent many a day with the kids in the park and it never cost a penny and they where always shattered.

Emm, I hope you managed some sleep. SAD is a real complaint and is acknowledge by GP's now. I have to take vitamins for the lack of sunshine.
I have always loved the outside and the sunshine.

Well have a nice day and take care xx
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Date: 20.06.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

Yes, it is frizzy! I've got fine hair and it becomes completely unmanageable in humid weather. Not product I've tried helps so far so it's tied back at the moment.

I'm feeling a bit better this evening. Managed to do some stuff today which was good though I have got a very sore thumb caused by a gooseberry thorn. I hope it isn't stuck in my thumb, had a large splinter before which put me out of action for weeks!

My cat is really amusing me at the moment, she's stretched out full length with her front paws curled up under her chine. She makes me laugh. She's bought in three tiny live frogs in the past couple of days plus a dead mouse. Not so funny.

Hope you are doing ok Marlene. Isn't it nice to get out in the garden at last? Enjoy yourself in the sun.

Emm, I often do my correspondence in the middle of the night! I hope you get a better rest tonight.
Take care everyone. xx
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Date: 21.06.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Bsk, my dog has been frog hunting in the Ivy. I started to pull the ivy up and it is full of them. The dog has us in fits of laughter banging her paw on the ivy until the frog jumps in the pond. Then of course she looks a bit worried.

I am glad you are feeling better. My hands are not letting up at all and at midday I gave in and took painkillers grrr! I have lots of swelling on my fingers and knuckles but it is OA and nothing I can do. They say I must keep using them so I am doing the gardening not sure if they really meant use them in that way.
I know all about thorns on gooseberry bushes I have one.
My son gave his Dad a lovely Pear Tree for fathers day our first tree towards the Orchard lol.
Have a lovely week-end and don't go doing anything I wouldn't LOL XX
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Date: 22.06.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Bsk, I know what you mean about your hair now, my friend Heather has naturally curly but gets it straightened, now she hates being caught in the rain and whips out an old fashioned rainhat if she hasn't got a coat on with a hood.
Funny it's called Glasgow hair as her mam is origionally from Edinburgh! We all laugh when the plastic hat comes out! She doesn't mind as long as her hair is saved.
Had 2 good nights sleep, took a Tramadol as had a niggly back. I find they totally chill me out and I rest better.
Marlene, my grandparents had an orchard, sadly, years ago now, but it was a lovely place to play and climb the small trees.
Emm x
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Date: 22.06.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Going to buy some liqurice, I am craving for some! I have loved it from being a child!
What do you all love?x
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Date: 22.06.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

I love those Black Jacks we used to pay one old penny for four. They were bigger then and pocket money day I would buy Black Jacks and my friend would buy the Fruit Salad ones.

It is good to know you have had a couple of good nights sleep. I had very little sleep last night. First my hands were hurting then my feet joined in and to top it all my shoulder decided to hurt as well. Looking out of the window at the rain didn't help much.
I am planning on sleeping tonight as I am hurting I have just taken Tramadol along with co-dydramol. I am so tired and need to sleep.

Take Care sleep well xx
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Date: 23.06.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi there, sorry I haven't posted but have been spending time with my family.

I had a very bad day arthritis wise yesterday and could hardly walk so upped my steroids. All my good work at dropping down undone! It seems as if I really can't manage without them.

How are you doing Marlene? Getting any sleep with the painkillers? I hope you are feeling a bit better.
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Date: 24.06.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Bsk, I hope you had a lovely week-end with your family. I was on family Patrol all week-end two sons and daughter popped in good job not altogether haha. My granddaughter coming up three had a lovely holiday and found treasure on the beach (seashells). She also had pink chocolate!! her mum and dad not sure where she had that. Oh for the love of the little ones.

My hands are very sore and I also have developed pain in my Jaw. I looked it up and it seems like it could be OA keeping fingers crossed it's not.

Bsk if you need your steroids what can you do? You can't sit in pain all day. I hope they help you soon.
Another miserable day here. Come back sunshine all is forgiven LOL. The wind yesterday was not good.

Have a good day and take time to rest up after your busy week-end xx
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Date: 24.06.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Family can be exhausting sometimes Marlene! I like the term Family Patrol - going to use that myself. I hope you haven't got OA in your jaw but sometimes it can be something as simple as grinding your teeth in your sleep. You could ask your dentist next time you see them.

I'm resting up though waiting for a call from my dad to meet him after his lunch but no sign of him yet!

take care Marlene.
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Date: 24.06.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Bsk, hope you have a nice catch up with your Dad!
My jaw is just aching now so hopefully it will go away. I have had it before but didn't think much of it.
Family patrol is something I have always called it not sure why it started to be a saying of mine. It can be very tiring but I love it when they visit.

Sofa surfing tonight I am tired to-day but I haven't been sleeping to well with the pain.
Take care xx
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Date: 25.06.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi Everyone, how are you all doing?

Emm,to answer your question, I've just scoffed a bar of salted caramel chocolate! But I also like liquorice a lot.

Marlene, how are you doing? My legs have stiffened up something rotten this evening. I've no idea why, unless the steroid jab is wearing off. I'm also feeling very tired as usual. However, have enjoyed the decent weather today for a change!
Take care
xx
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Date: 25.06.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Bsk, poor you so much going on for you lately you have really been going through it. Maybe the steroid jab is wearing off or have you been overdoing it ? I am also very tired I think this all part of being in pain and not sleeping well. When we have pain the quality of sleep is rubbish as you well know.
I am on the sofa cup of tea and hot water bottle. My hands have returned to swollen painful and throbbing. I also have enjoyed the lovely weather to-day
You take care of yourself and have a relaxing few days.
I have just eaten a Dime Bar yummy!!
XXXXXX
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Date: 26.06.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies,

Well that's the holiday over and back to the usual humdrum. The hotel was lovely and the weather was sunny but very windy, the receptionist told my daughter that June was the windiest month but it was pleasant during the day although too cold at night to sit outside. I have put on a few pounds so will need to go on a low diet now. I've been very tired since getting back. Hope you are all well. xx
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Date: 26.06.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Hi ladies, glad you have all enjoyed your goodies! And why not.
Bsk, I am like you at present, with stiff legs and am hoping for a jab on Monday when I see specialist. Could do with knee and ankle but don't know if he will do them.
Rhona, am pleased you managed a holiday, I didn't go with friends because of my legs, they have returned from Lake Garda today. Hope I can fit one in later if I get more mobile.
Marlene I hope your jaw has returned to normal.
It gets us all over this horrible arthritis!!!
Keep as well as possible all. X
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Date: 26.06.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Emm, I went to the market with my daughter when we were away and getting off the bus was enough to set my ankle off and I have been limping since. It does spoil things when your mobility is affected. Hope you manage to go and see your daughter later this year. xx
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Date: 26.06.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi There,

Welcome back Rhona! I'm sorry to hear it has aggravated your ankle but I hope the change of scene did you good.

Emm, I've not long had a jab so have no idea why things are flaring. Hope you get yours on Monday.

Marlene & Lynn, how are you doing?
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Date: 27.06.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, firstly good to have you back Rhona. Sorry the ankle let you down but I am sure you didn't let it hold you back. I didn't know June was the windiest month there that's worth knowing.
Did you treat yourself at the Market?
I hope you all had a great time. As you say back to the humdrum.

Emm I hope you get sorted and can book a break to see your daughter.

Bsk sorry you are still hurting this damp weather doesn't help.
I had to get up in the night and take my engagement and wedding ring off my hands were so swollen. My Jaw is still bothering me but I am just trying to ignore it along with everything else. I am hurting all over this rain is to blame for some of it I am sure.
My hubby is waiting on seeing a Surgeon with regard to his three slipped discs (poor thing) I am worried for him as I know all about back surgery. I am trying to be positive but it is hard.
Well that's my moan for the day half a good evening.
Take care everyone xx
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Date: 28.06.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Thanks ladies, I can't really say that it's nice to be back lol. We went to Costa Calma on the Tuesday and from there we went to the Market in Jandia on the Thursday. I didn't see anything worth buying Marlene, I thought it was a very poor market. We did get a wee massage though lol. There was a Chinese man doing massages so me and my daughter sat on a wee stool and he massaged our back and shoulders for 10 euros each. Oh I forgot i bought a hat for my daughter to wear in the sun. They don't get back until tomorrow. I got a text from them tonight and they don't want to leave, they love it there.

I had to get my rings altered a wee while back Marlene as my knuckles had got very swollen. I hope your hands settle soon. I hope your hubby doesn't have to wait too long to see the surgeon. It is hard not to worry. My daughter has to get her other eye operated on next month.

I hope you are feeling a bit better bsk.

Nite Nite xxx
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Date: 28.06.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Morning!

Well I've started the day with not very good news. For the past month I've had a kind of tingling down one side of my leg but it's got much worse. Its not painful, just annoying. Anyway, read the med label and it's a potential serious side effect. Rang my nurse this morning and she's told me to stop Enbrel for two weeks to see if it goes away. If it doesn't, I can't take it any longer. It's sort of like the tingling you get after a nettle sting and originally that's what I thought it was.

I'm bad enough at walking already so am worried things are going to get worse. It's really teeing me off. I seem to get every bloomin' thing going. I reckon I should be doing drug trials as anything would show up with me!

Enough of me. Marlene, I'm sorry you are really suffering at the moment. I periodically have to take my rings off or switch fingers. You could wear them on a chain round your neck.....
I don't know if it is the humidity that is causing the problems but it has been high and now raining heavily this morning.

It's never nice to come back after hols Rhona, especially when the weather is awful. I've found some Spanish markets to be disappointing in the past though there are some really good ones. I wish I could go to Spain this summer!

How are you doing Emm? Can I ask, do you get pain with your stiff legs? I'm not in too much pain but am just finding it difficult to walk, a bit how I was when I was first diagnosed. I think this disease is vicious with me, sadly.

Anyway, take care all and have a good day. xx
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Date: 28.06.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

That's not so good if you have to stop it bsk. Do you have a rash or is it just the tingling? It does make sense to stop it and see if it goes away though. I am having bother with my feet and stiffness in my legs too and when I get stressed it seems to get even worse and I do have a lot of stress at the moment. I am so fed up with all this illness in my family. My husband has parkinson's disease although he doesn't complain much about it and still manages to work but it is such a worry with everything that is going on,

Try not to worry (I am a fine one to talk) hopefully it won't be anything too serious and it will settle.

Take care xx
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Date: 28.06.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

It's just the tingling. Apparently Enbrel can cause MS and tingling is one of the symptoms. My nurse says it is reversible - I hope she's right. I'm fed up too Rhona, you've got to just take each day as it comes. Such a cliche I know but it does help.
xx
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Date: 28.06.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi there Ladies, sorry to hear you both have a lot to deal with at the moment.

Bsk you will feel fed up you have had so much lately. Lets hope coming off of the Enbrel will help. You need a holiday!! I am thinking of you and it makes me feel a bit guilty for moaning.

Rhona, sorry to hear about your hubby and you also have a lot to deal with. When is your daughter having her eye op. Once that is dealt with you will have less to worry about. It is so stressful when our loved ones are ill.

My hands are less swollen but very painful and my shoulder is agony to-night. Taking each day as it comes is the best we can do. I always think there is someone out there worse off than me and get on with it.
Sending hugs to both of you have a restful evening!!!!!
XXXXXXXXXX
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Date: 28.06.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Evening all, I am so sorry to hear of your poorly legs, bsk. I hope coming off Enbrel is the answer!
My legs are terrible after being out for ten minutes, the pain goes from knee down the shin bone along the ankle and feet.
It is my ankle that is swollen all the time now and my knees could do with an injection, a temporary fix I know.
I have not done much travelling this year because of them.
It is a vicious disease, you are right.
Rhona, I am sorry to learn your husband and daughter are ill too.
I hope we all find some improvement soon. My hugs are on the way too. X
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Date: 30.06.2013
From: Lynn

Subject: Re: New thread for Rhona bsk and Marlene

Hi ladies is been a while I'm still in alot of pain saw my rhumy on Friday she had spoke about me trying the half dose of Enbrel but after discussing this with her she thinks maybe because of all the infections I was having on the enbrel I might b best to take humira again but monthly instead of fortnightly I suppose I'm quite deflated after the appointment as 2 of the previous because get out of bed because of pain and stiffness and yet the day I saw my rhumy I wad feeling much better I hate that I hardly ever see her when I'm at my worst Oh well no point complaining just need to sit tight and wait on delivery I guess
hope you are all well
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Date: 30.06.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi Lynn,

the reason Enbrel is good for people who get infections is because it has the shortest half life so leaves your system quickly so you can recover. I had a chat with my specialist nurse on Friday as I may have to change anti tnfs and she said it was a problem because Enbrel the best if you get a lot of infections.

Enbrel has a half life of about 4 days, humira 2 weeks. so I can't see the point of you having monthly humira as opposed to half dose of the former. I'm wondering if that means for half the month you have no cover at all of the humira where as with half dose Enbrel you have lower level cover all the time.

Do you have a specialist nurse you can discuss this with?
xx
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Date: 01.07.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

My friend back in ICU. Not good.
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Date: 02.07.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, so sorry to hear about Heather Bless her.
I spent from 13 hours in A&E with hubby. They had him on Morphine plus other pain killing meds.
Sent him home in ambulance with a frame to aid walking armed with Morphine Tramadol and Co-codamol. I have had four hours sleep and am tired full of pain from comfy hospital chair (not) and feeling peed off. My poor hubby is in so much pain.

Talk later xx
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Date: 02.07.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

That's awful Marlene. I hope he gets his back sorted out soon. Sending you a big hug.
xx
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Date: 02.07.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

So sorry to hear about your hubby Marlene, I hope he soon feels better. Sending you a big hug too xx

Bsk, That's not good that your friend is back in ICU hope she picks up again soon.

Things are not too good at this end either, endless worries that I can't want to put online.

Take care xx
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Date: 02.07.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Oh Rhona, I'm sorry you are having problems too. Let me know if you want to email and I'll give you an address.
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Date: 02.07.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Bsk and Rhona, what a three we are.
Bsk is there any news on your friend what happened she was doing so well!! I am sure she will continue to fight. Big hug for her and of course a big hug for you XX

Rhona bless you I hope all comes good what ever it is you are worrying over. I am sure as they say it will all come out in the wash. I will be thinking about you also Big Hugs XX

My hubby is little bit more settled at home but his pain is still awful. I am praying the pain settles before his morphine runs out fingers crossed. I am feeling stressed with it all. I am sure it will all turn out right once he gets to see the right person.
Have a good evening and try not to worry both of you xxxxx
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Date: 02.07.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Thanks bsk, I will keep that in mind xx
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Date: 02.07.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

No news Marlene. I am very worried about her but hope no news is good news.

The bad news is that the tingling on my leg has gone after 8 days off Enbrel. Which means I might not be able to go back on it. hmm!

We could all do with a break to be honest.
take care everyone xx
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Date: 03.07.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Bsk, what will happen if you can't go back on Enbrel? Bsk if its not one thing its another good job we have learned to be tough cookies! Bring it on I say and we will still beat you!!!!

Bsk you are right you certainly need a break from all this. Have you thought about going away maybe for a long week-end. Bsk I don't know what to suggest to you I feel for you. I hope your friend will pick up again. Take care and rest up GREAT BIG HUG XXXXX
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Date: 03.07.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Marlene, my friend is dying. I've just been to say goodbye. I'm very sad.

I have got a weekend away at the end of the month another beginning of September.
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Date: 03.07.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

I am so sorry to hear that bsk. That is so sad, especially when she has come through so much. You take care of yourself though and try and not let it affect your health. xx
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Date: 03.07.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

After reading your posts I would like to add my best wishes to the three of you that are all going through hard times at present.
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Date: 03.07.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Thanks Rhona and Emm xx
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Date: 04.07.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Oh Bsk, I am so sorry to hear this news about Heather. How sad she has been such a fighter. BSK I am sad for you. Take care not to let it get you down to much. Oh bless you both!!!!
I am glad you have some week-end away to look forward to. GREAT BIG HUGS ON THERE WAY XXXX
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Date: 04.07.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Thank you Marlene. She died last night. Very sad day.
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Date: 04.07.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

BSK, XXXXXXXX So Sorry XXXXXXX
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Date: 04.07.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Thank you hun. I've spent most of the day remembering her and thinking about her family. She has two small children.
Needless to say, my arthritis is flaring up.

How are you all?
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Date: 04.07.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

How sad bsk, especially with two small children. The arthritis always flares when we are stressed so try and do some relaxation and get a good sleep. I know it is so hard.

At least we are all due some warm sunshine for the weekend xxx
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Date: 04.07.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Bsk, having a young family makes it extra sad. Try to remember the good times with her. Take time to relax have a warm bath and try to get a good nights sleep as Rhona said it is hard.
I am thinking about you good night sweetheart xxxxxxxxxx


Hi Rhona hope you are feeling a bit more relaxed. We all have so much going on. You also remember to relax hugs for you xxxxx
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Date: 04.07.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Thank you Emm for you kind thoughts. It is so nice to have so much support from everyone.
Take Care xx
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Date: 04.07.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Thank you both. It is great to have your support. I've had the bath and am about to go to bed. xx
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Date: 05.07.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Night Bsk sleep well XX
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Date: 07.07.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

How are you all faring with this weather? I know it's not so warm in Glasgow Rhona, probably no bad thing as it's too hot to do much.
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Date: 08.07.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi all, just a quick post hope you are all ok.
I will post as soon as I can hubby in hospital admitted yesterday.

Take care all xx
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Date: 08.07.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Oh no! Is it his back? I'm sending a very large hug and good wishes for a speedy recovery. ((((())))) I thought you'd been a bit quiet.

How are you Rhona?
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Date: 08.07.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi bsk & Marlene,

Sorry to hear that you hubby is in hospital Marlene, I hope it's nothing too serious. I will be thinking of you both and hope he get's home soon xx

It is so warm here today bsk. We went to Troon yesterday and stayed overnight, I have never seen the beach so busy. I have got sunburn all round my neck, I think it's the tablets that make me more sensitive to the sun.

Didn't Andy Murray do well, so pleased he win, he lives in Dunblane just about 20mins away from me so guess it will be party time there.

Take care xx
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Date: 08.07.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Oh Rhona, the match was great, I was crying at the end. He kept us on the edge at the end...3match points he had then back to duece, but he did it. Yippee, am over the moon about it..
Sorry for butting in on your post to bsk and Marlene.
I am so excited we have a Wimbledon champ.. At last..
Watched his grandparents being interviewed today from home.
Nice you live near there, I am pleased you had a lovely time at Troon.
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Date: 08.07.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Emm, I was a bit emotional too, I read someone here put a 30,000 bet on for him to win, they must be over the moon. Troon was lovely and so hot, I do like it there and it is so clean. How is your knee?
Take care xx
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Date: 08.07.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

I see RA specialist on thursday this week, It was so stiff and painful this morning, it felt like my leg was twisted, but the ankle of the same leg is bad too so it's difficult. I took extra steroids today.
I feel unsafe coming down the stairs at present, probably need a stairlift at some point.
It's sad because all that sounds so 'OLD' and I don't want to feel like this.
Oh I am going to ask if I can maybe go on half a measure of a bio.
Hopefully will get a magic jab of steroid! On Thurday. Then get a life back.
Take care
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Date: 08.07.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

I hope you get the injection on Thursday Emm and ask about the half dose of anti-tnf. It is horrible when you feel like that. My ankle is sore just now so going to bed shortly and hope it feels a bit better in the morning. x
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Date: 08.07.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

I've heard the weather is very good in Scotland at the moment Rhona. I'm coming up at the end of July and I expect it won't last until then.

Nice you are getting away. Hope things going ok.
Emm, good luck on Thursday.

I'm ok, seeing my gp tomorrow and going to have a serious discussion with her about this tingling (which seems to have gone today, which is not a good thing.) Then I'm going to phone my rheumy nurse and tell her what I am going to do!

So there!
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Date: 08.07.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Bsk and Rhona, yes he was admitted for his back he was so bad he couldn't walk at all. It was so hard just watching him suffer. He was taken to A&E and luckily for him there was an Orthopedic surgeon on call and he was admitted straight away. He is more comfortable now he is on better pain meds. He has to have physio to get him mobile again so have no idea when he will be home. Needless to say I am hurting everywhere and I am in need of some decent sleep. Going to bed in a minute.

Take care xxx Look after yourselves.

Oh yes and well done Mr Murray although I missed it all running commentary at the A&E LOL
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Date: 08.07.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi Marlene, I'm so sorry. I hope he gets well soon. You too, don't overdo things in his absence, let them wait for a bit.

Sorry you missed the tennis!
take care everyone, have a good night!
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Date: 09.07.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Thankyou ladies, Marlene my best wishes to you and your husband, it is hard enough when one is ill, I wish him a speedy recovery.
Good luck with the 'tingling' and your GP appointment, bsk.
Rhona isn't the ankle a very painful joint, very dibiliatating! Hope yours is just a passing problem.
Sweet dreams all.x
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Date: 09.07.2013
From: marlene

Subject: Rhope: New thread for Rhona bsk and Marlene

Morning Ladies, thanks for your lovely comments and support. It is very hard at the moment I woke up at 3 this morning needing to take full pain meds my shoulder is so painful still.

Bsk I hope your appointment gets to the bottom of this tingling for you it must be a strange sensation. Bsk what are we all like ?? One thing after another. I am so glad I have you all to spill my problems too and you never judge just support. My daughter and sons have been so good and are so worried so I am trying to jolly along like. I don't have a care in the world but inside I am stressed to the hilt.
I know you have had so much on your plate lately and hope you are feeling better about it all. Bless you xxxxxx

Hi Rhona I hope your ankle is settling down for you. Rhona it is so lovely to know you are here for me. XXXXXXXXXX

Thankyou Emm and I hope you are ok to-day. It is hard but we will struggle through to-gether. xxx

Have a lovely day and enjoy this lovely weather!!!
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Date: 09.07.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, It must be so hard for you at the moment Marlene, especially with your own pain. I am glad you have the family helping out. Is there any word when your husband will get home yet? I hope it's not too long. It has been so muggy at night which doesn't help with sleeping. I am wakening up every hour or two during the night. It is roasting hot here today, it is warmer than it was in Fuerteventura. Try not to worry too much and if you can get a good sleep tonight it might help. Will be thinking of you.

I hope you are alright bsk. Did you see your GP today, I hope she was of some help.

Yes Emm, it is so painful when the ankle joint hurts. hope you get some satisfaction this week.

Take care everyone xx
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Date: 10.07.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Back in A&E this afternoon for eye problem - uveitis from cataract op and back on the eye drops. Very annoying. also not great news about Enbrel, which I suspect they are not going to put me back on as the tingling is improving the longer I'm off it. GP couldn't help much apart from being very sympathetic. Oh my! What a journey.

How are you all doing? Rhona, has your ankle settled down?
Marlene, how are you and how is your other half doing? I hope he is getting better.
Emm, are you ok today?

take care my friends. xx
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Date: 10.07.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Oh i'm sorry to hear that bsk. Is it common for that to happen? I hope it settles quickly. My daughter has her operation a week on Monday, it seems to be constant with us. I think we are all due a break from it all as we have all had more than our fair share. If you have to stay off the Enbrel what will happen, will they give you something else? Sometimes it is best not to think too far ahead and just hope that things will work out alright.

I have just been taking it easy today, my ankle is still hurting but it could be worse.

I hope you are alright Marlene and I hope your hubby is getting better.

Is it tomorrow you go to the hospital Emm?

Take care everyone and sleep well xx
reply | back to forum

Date: 11.07.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi rhona, it's not that common (of course, I get all the uncommon side effects!) I've got eye drops for two months!

Best of luck for daughter's op. Is that another eye one? Sorry I've lost track! Too many ailments. I hope it goes well.

Are you using ice on your ankle? I found it helps.
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Date: 11.07.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Morning Ladies, five minutes to myself so I thought I must have a chat with my friends!!!
Bsk I am really sorry you are having all these problems you have had so much to put up with someone needs to give you a break. You must be peed off with it all. Big hug sweetheart. I am sure it will all come right for you it has too.

Rhona I hope your ankle settles soon. Good luck for your daughters eye operation. I hope you are keeping relatively well. Hugs for you.

Emm Hugs for you take care

Hubby still in hospital at long last things are moving he saw a pain management team yesterday. They are going to give him a tens machine and changing all his pain meds. She told physio don't make him do what he can't and don't do it at the height of his pain (makes sense).
They weighed him yesterday and he has lost 2 stone he is a slim man anyway so he looks all skin and bone. I am hoping to get him home soon.

Take care all xxxx
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Date: 11.07.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

how are things tonight with you all? I hope your husband is feeling more comfortable Marlene.

My eye feels better already with the drops but got another 2 months to go with them! Now I've noticed a nasty looking mole on my wrist. It's been there for a couple of months but seems to have grown. It doesn't look good. I'm going for an appt next week to have the basal cell carcinoma one looked at next week but it is a 'non-malignant' clinic and this one doesn't look so benign! Do you think I should wait til next week or should I ring my GP? Any help good!
xx
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Date: 11.07.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Glad to hear that your husband is getting some help Marlene and hopefully it won't be too long until he is home with you and then you can feed him up and get a bit weight on him. I hope you are looking after yourself too.

That's good that the drops are helping bsk. I think you should call the doctor and get your wrist looked at, no point waiting and worrying. If they can't get you to see a dermatologist quickly I would consider getting it checked out elsewhere. I have a spot on my arm that resembles another basal cell the sun seems to have brought it up more. If it doesn't go down soon I will get it checked.

It is so hot here tonight, I have ordered a lightweight duvet for my bed so will collect it from john lewis tomorrow.

Off to bed shortly but probably won't sleep.

Take care and sleep well xxx
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Date: 12.07.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Thanks for that Rhona, I'm going to phone them in the morning (well, later on as it's 4.30 am at the moment.

I bought a lightweight duvet last year and sleep a lot better for it so not quite sure why I am awake now!
xx
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Date: 12.07.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, bsk get it checked sweetheart don't wait. So glad the drops are working for you.

It is hot at night its is so muggy I don't know the weather is never right for us LOL.

Rhona hope you are ok.

Well hubby is home now. I will be feeding him up. The weight is still falling off so I am going to make appointment with GP. He is armed full of drugs for the pain so he is struggling along,
I am so pleased he is home I have lost a stone with all the worry not that it is so noticeable but I must say I am secretly pleased.
I had a run in at the hospital he needed a wheel chair from the ward to the car. They sent me all over the hospital looing for one. At the main reception at A&E they suggested I look on all levels in the multi storey car park. I said" I am not one of your porters and I have OA and can't trek all around looking for a wheel chair" "oh well" was her reply. A lovely young porter gave me a wheelchair and said orthopedics should have arranged a porter to push him and get him in the car. I was furious and I am thinking of reporting the whole thing. I am now in agony after pushing my hubby the length of the hospital in and out of two lifts. But all said and done I am happy to have him home.
I am so disappointed with this new hospital it is nothing like the RF in your area BSK. The trouble is I had so much faith in my old hospital. The Dr I spoke to was so arrogant until I said I had had back surgery so I absolutely understand all about a slipped disc. He tried not to speak to me again regarding the problem my hubby has. Not to worry I spoke with the Pain Management Lady twice she was so helpful. I would like to see her myself but I need a GP referral. I am going to ask.
Well enough of my troubles.

Take care all and I hope you have a lovely evening xxxxxxxx
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Date: 12.07.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Good evening ladies, I have just read a few of the posts above and am so sorry you all seem to have problems at present.
Marlene, it seems unbelievable that you had to go off and find a wheelchair and push your husband yourself. I would have thought that was a health and safety issue! in a hospital too.
I think reporting the incident is feasible, just to stop it happening again.
Bsk, I hope you rang and could be seen promptly with your wrist. Good luck with that and the eye problem.
Rhona I was at hosp yesterday and had injections, I reported in the other post about it. Seems a lot better now.
I hope your ankle improves too.
Yes we are having a good spell of heat at the moment, I feel more fatigued I think, but still like it and am making the most of it as we don't get it every year. I just drink plenty of water and have a lie down in the afternoon if it gets too much. I have stopped feeling guilty about doing that this last year as I have been more poorly with RA?
Hugs to all. X
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Date: 12.07.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

That's awful Marlene, they should have sent a porter with him to the car. Good that he's home and can have some decent food, hospital food being what it is!

I'm really enjoying the heat Emm. Like you, I am not giving myself a hard time for taking it easy. I feel a bit like I'm on holiday.

I phoned the surgery this morning and they told me I'm seeing the consultant so can get them to look at my new mole. My friend's funeral is that day, quite some distance from me, and I would really like to go but don't want to leave the moles as I've no idea when a new appt would come through. A shame.
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Date: 12.07.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

That's good that your husband is home now Marlene. That really is bad that she expected you to go and look for a wheelchair, some people have no sense at all. At least you don't have to run back and forward to the hospital now as that is so exhausting, try and have a restful weekend sitting in the sun.

That's a shame your appointment is the same day as the funeral bsk. I hope the mole is innocent but it is best to get it seen to as soon as possible.

Pleased to hear the injections have helped Emm. It is lovely having the sunshine, a treat for us here in Scotland although I am sitting her with my fan on at the moment.

Hope you all have a pain free weekend.
xxx
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Date: 14.07.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Yes, it is a shame but it is a long way and my joints are finally complaining about the weather! I think I need to look after myself at the moment though sad I am not to be able to go. However, there will be a memorial at some point for her so I will go to that.

It's extremely warm in London today. I stayed inside most of the day and then went to a concert with a friend. It was lovely but I bawled through half of it thinking of my friend who died.

I hope things are going ok for everyone and you are managing this weather ok.
take care my friends. xx
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Date: 14.07.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, I have a free hour before my bed starts calling me LOL. I am shattered and hurting everywhere. My ankle is like a balloon (oa). I have booked myself in at the Drs Friday.
My other half is struggling he also has a review at the Drs Friday. I hope this is all going to be a distant memory soon.

Enough of my troubles.

BSK I am sorry you are also struggling with the weather I think its the humidity. I bet you are sad about Heathers funeral but you can go to the memorial as you say. Aww big hugs for you I am sure your friend wouldn't want you to be sad.
You must look after yourself no matter what and getting that mole looked at is important. xx

Rhona glad you have some sunshine in Scotland. Try not to get burned. I hope you are doing ok hugs xxx

Emm, glad to hear the injections are helping out. You take a rest when you need to. I need to learn to do the same. hugs xx

How are you Lynn ?

Take care
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Date: 15.07.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Good Morning Ladies,

I hope you are all doing ok today. It is not so sunny here this morning but hope it comes out later as we are planning having a b-b-q tonight.

Hope your hubby is improving Marlene and you are not so sore, just take it easy.

Not long until your appointment bsk and hopefully your mind will be put at ease.

I'm not too bad at the moment although my feet are still a bit sore but I don't suppose I will ever be pain free.

Have a nice day and take care xx
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Date: 15.07.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Rhona, I am sure the sun will popping out where you are. Enjoy that BBQ.
My son and his family came round yesterday armed with all the stuff for a BBQ to give me a little break it was lovely and the kids had a little swimming pool and the swings to play on so they were happy.

I have a real painful ankle right now so it must be feet week haha.
I am sure he is improving each day but it is going to be a long haul but I am sure he will get there in the end.

Have a lovely day xx
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Date: 15.07.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Marlene, We had the BBQ tonight and I enjoyed it, especially the wine lol. The sun didn't shine but at least it was dry. Glad to hear that your husband is improving. Sounds like you had a lovely day with the family yesterday, lovely for the kids to be able to play in their paddling pool.

I hope you are alright bsk.

Take care everyone. xx
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Date: 15.07.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hello everyone, enjoying this hot weather? I'm finding it a bit much if I'm honest. Not so bad for my joints bizarrely but not good for my mood! I feel hemmed in by it.
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Date: 16.07.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

It has really cooled down here bsk. I see in London it is very hot. I think it would be too hot for me. Is it today that you are seeing the dermatologist? I hope it all goes well. Let us know how you get on xx
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Date: 16.07.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Morning Rhona, no it's Thursday. It's unbearable here during the day plus I feel a bit unwell, suspect it is pollution/pollen/asthma related. Going up to Glasgow end of next week. Looking forward to it!
xx
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Date: 16.07.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hopefully it will be a bit cooler here for you. I heard this weekend coming has to get very warm here again. How long will you be here for and do you have many plans? Have a nice day and try and stay cool xx
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Date: 16.07.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

Thanks Rhona, camped out in the bedroom (it's the coolest room with a fan on me at the moment.

Any plans for another bbq?
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Date: 16.07.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Well another hot day I love this weather but my joints are not LOL. The weather here rain snow and humidity all have a bad affect on me. There never seems to be that happy medium all or nothing.
Glad you enjoyed your BBQ Rhona a little drop of what we like is a bonus.

I hope you are not too bad to-day. I am feeling a bit better although the ankle is a real pain in the backside.

Take care and stay cool hope the sun is with you Rhona.
XXXXXXXX
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Date: 16.07.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

I forgot to say have a good break BSK you deserve it and good luck on Thursday xxxxxx
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Date: 16.07.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

thanks Marlene, not going til next weekend but am looking forward to it. Sorry to hear you are suffering. HOw is your husband doing?

Rhona, Emm, etc. are you all ok?

It's so hot here tonight 25 in the flat with all the windows open.
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Date: 16.07.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

It is uncomfortable when it's as hot as that bsk. It's not too bad here.
I am feeling quite sore tonight, fingers not bending, toes and ankle sore and now my shoulder is hurting. Bet your sorry your asked lol.
Hope your husband is getting better Marlene.
Try and sleep well tonight. xx
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Date: 16.07.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

Never Rhona, I hope you get some sleep and feel better in the morning. xx
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Date: 18.07.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies it is still so hot but we have a little breeze to-day so that helps.
Rhona sorry you are suffering bless you.

My hubby is getting there but he is still in so much pain and I don't like the cocktail of pills he is on:- Morphine Codeine Paracetamol Dizapam
Amytripline (spelling). He has to go to the GP tomorrow so maybe he will change some!!!

I am still in so much pain but it is all this extra load but what can I do??
Have a lovely day and take care xxxx
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Date: 18.07.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

Well, my appointment was good. I have nothing to worry about in the skin department. Sad to have missed the funeral but at least something positive has come out of the day.

Still sweltering here. I'm lying on my bed about to have a nap!

Sorry your husband is still in pain. When the amytriptyline kicks in he'll feel much better and so will you Marlene.
xx
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Date: 18.07.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

It is beautiful here today Marlene, very warm but a lovely wee breeze. Your poor hubby having to take all those pills. I hope he can cut them down soon.

I have just been in and out the garden today, feeling a little better now but felt awful this morning, my shoulders have been so sore. I think taking it easy today has helped a bit.

How did you get on today bsk?

Take care xx
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Date: 18.07.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Our posts must have crossed bsk. That's great news! x
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Date: 18.07.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Thanks, it is and one less thing to worry about.

Taking things easy is always a good idea with arthritis Rhona! It's going to get hotter your way I believe.

xx
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Date: 19.07.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Good news BSK you must be relieved!!!!

Another hot sunny day yep on its way to Rhona.
I hope you are all as well as can be be.


Off to Drs this afternoon and if not happy I have put in place a different hospital for second opinion as he is still losing so much weight above all this is such a worry and the children are so upset now. I am sure I will get it sorted soon for him.
I am feeling unwell to-day just as well I also have DRs appointment my chest is sore to top it all.

Take care and have a lovely day!!!!!!!
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Date: 19.07.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Best of luck with hubby and doctor's this afternoon. I think you need to emphasise the weight loss, esp in this hot weather. Your GP is good, from what you say, so I hope they can help you. Let us know how you get on.

Rhona, wasn't your daughter having another op soon?

Emm, how are you?
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Date: 19.07.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Marlene, I hope you both get some satisfaction at the doctors today. That's the worst of having a condition yourself, it always seems to play up when we are stressed and it is understandable that you will be stressed. Did they do tests on your hubby when he was in hospital? If he is taking all those painkillers it is enough to put him off his food. Will be thinking of you and sending you a big hug.

My daughter is getting her operation on Monday bsk she has to go in on sunday afternoon. I am trying not to think too much about it but she is feeling very nervous.

It is really hot here today and I am still sore. My sister that lives in Canada was telling me it is so hot where she is and it is affecting her breathing as the humidity is so bad and she has her humidifier on and she empties it every night and there is 26 litres of water in it. If the humidity is bad here then I can understand that it could make arthritis worse if all that is in the air.

Take care everyone. xx
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Date: 19.07.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Hello Ladies. I have just read a few of above posts, getting up to date!
Bsk, I am so pleased your skin problem is not a problem, nice to hear a good result.
Marlene, I am sorry to hear your hubby is still in pain, we all know pain is a terrible irritable thing that is hard to get on top of , but wishing him all the best. I know it is upsetting for all the family and as you are ill too it is an extra worry.
Rhona, good luck to your daughter with her op. My friend has a dehumidifier and uses it all year round, she lives in Barnard Castle, but she thinks her house is a bit damp! She gets water in it continuesly.
My knee is doing great after my injections, but not so for the ankle! It is slightly better but not what I would have hoped.
The doctor did say they are not as successful as other joints!
Oh well !! what can we do.
Of course it is lovely here too, I am determined not to complain as it is the best year for a long time and I think I suffer from S A D on the cloudy days when the daylight is limited. So I have decided to adjust my lifestyle and do what I can when I can and if I can't I am not going to worry. It is a long winter.
Been to put my prescription in for my calcium injection that I get every 6months, does anyone else get it? I didn't like taking that resednonate, the one that you had to take with a big glass of water once a week and then not eat or lie down for half an hour afterwards.( spelling probably not correct)
So have had this 2 years now.
Hugs and regards to all, enjoy the sunshine. X
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Date: 19.07.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Oh, I do like it when someone sends ' hugs' , I know it makes me feel better!!! I know we don't know each other personally, but I am sure we feel as if we do. Thanks all. X
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Date: 19.07.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Emm, Nice to hear from you. I am pleased to hear than your knee is a lot better, just sit and rest your poor ankle and enjoy the sunshine. I don't get calcium injections. I am waiting to go for a bone scan, that's if they ever send the appointment in. I have just had a call from my doctor (it's a new indian lady doctor) I haven't met her yet. The other two doctors are retiring and I must say I am quite happy that they are, anyway she called to tell me to cut down on the levothyroxine as it is now showing that I have too much. This is the first week the new doctor has looked at my blood results so just wonder how long they have been like that.

My daughter had a call this afternoon from the hospital so her operation is cancelled until next week as they had three emergencies.

Hope you got on well at the doctors Marlene.

Sending you a special hug Emm xx
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Date: 19.07.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi Emm, good to see you on here.

Rhona, sorry to hear about daughter's op. Disappointing for her. I hope they take her in soon. It's horrible waiting.

Marlene, how did things go this afternoon?
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Date: 19.07.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, going back to Drs Tuesday with a view to sending hubby to another consultant for second opinion. GP agreed he cannot be left indefinitely like this. So a good visit upped the amytriptiline. (spelling) I just hope it helps.

I have a chest infection and I have to go back to the nurse in two weeks as my blood pressure is up (shocker) I am not at all surprised.

Anyway I hope your daughter's operation is done soon nothing worse than hanging around waiting and worrying Rhona hugs for you and your daughter. It is awful when our family are going through tough times!!!

Bsk hope you are ok they are saying next week is going to be even hotter well we wanted a summer and now we have it LOL. Joking aside oh for a storm to clear the air.

Emm so glad you are feeling the benefits from those injections. You are right we are best friends that just haven't meet. I find this forum helps everyone reads the posts never judge and just support. I am so glad I found it!!!!
HUGS
Take care all xxxxxxxx
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Date: 19.07.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi Marlene, sorry to hear you've got a chest infection. The stress you have been under can't be helping. Also, I think your blood pressure can go up when you've got an infection too. Pleased to hear about referral with your husband. Your GP does sound good.

I would LOVE a storm right now . When I lived in the States, back in the day, weather like this would always bring on the most spectacular storms. The cat is making herself as long as possible to get air to her body and panting, she must be so hot with all that fur.

Emm, yes, this place is a real boon. As Marlene says, no-one judges. That's rare!

Hope you all get some sleep tonight.
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Date: 19.07.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

That's all you need Marlene, lets hope your infection clears up quickly. I hope your husband gets the referral soon and all is ok with him. Life can be a bitch at times.

Take care and look after yourself. xx
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Date: 19.07.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Well put Rhona!
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Date: 20.07.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, No storm yet!!!!!

Rhona life is a bitch at times I always say chuck it all at me and lets get it over with. I have never had blood pressure issues so I am a bit worried about it.

I hope you are all ok!!!!

I am going to my sons with my daughter and mum (hubby staying home). It is the little girls birthday party (in a hall) then a BBQ for adults at my sons home. I will be staying for a few hours which will be a way of distressing for a while. She saw a frog for the first time in my pond and watched it until it jumped away. After about an hour she suddenly said "nanny you put a battery in the frog for me didn't you?" She couldn't understand why we were all laughing bless her. I don't think she really got the it is real. Kids!!!!!!

Take care all Hugs and thanks for listen to me going on about my tales of woe!!

XXXXXXXX
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Date: 20.07.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Marlene,

Blood pressure can sometimes do that. If you have been stressed then it's natural that it would go up. That's why they always take blood pressure a few times before they would class you as having High blood pressure and even if you do there is tablets to treat it, both my husband and daughter take them.

Your little grand daughter sounds delightful. I would just love her. They do make you laugh with the things they say. I hope you have a lovely day with them tomorrow and hubby might be glad of the peace and quiet.

How are you today bsk? I heard that there could be a storm in some parts of the country next week. I want this sun to stay with us a while longer.

Take care and sleep well xx
reply | back to forum

Date: 20.07.2013
From: Lynn

Subject: Re: New thread for Rhona bsk and Marlene

Hi ladies sorry I've not been on had a tough time been up and down saw my rhumy who to be honest gave the impression she couldn't care less but recommended I go back on enbrel but half the injection to 25mls but I then reminded her that I had an infection every week on it and never felt any benefit she suggested I try the humira but instead on fortnightly only do it monthly!! She has told me she is clutching at straws as there is no more drugs to try so I will do it although I must say I'm not looking forward to it I have felt so much better in myself apart from the aching joints which I'm used to now but as I said i will give it a go I hope you are all feeling as well as you can and coping with this heat I love the sun but even I've struggled.

Take care xx
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Date: 21.07.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi Lynn, good to see you on here.

I took half dose of Enbrel and it helped but not totally and have to take steroids as well. I might have to come off it as had some neurological problems, they think. Like you, I get a lot of infections so these drugs aren't great for me. Humira is my next and last option so I know where you are coming from.

You might be ok on a half dose. It's certainly worth a try. It's a worry really as I don't know what I would do if I had to come off the drugs. There is a trial going on in King's College Hospital for a new drug. I've heard on another talk board they are recruiting for patients. Might be worth a look. I think Arthritis Research are funding it so you can find the info out on their research pages.

Try and keep positive Lynn, though I know how hard it is. And please keep posting on here. Take care hun.
xx
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Date: 21.07.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Guess what.... I am on antibiotics for cellulitis from an insect bite. Bah humbug for immunosuppressants and all other drugs.
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Date: 21.07.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Oh bsk, whatever next! My husband had that a few years ago and was in hospital for a couple of days so keep a close eye on it. xx
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Date: 21.07.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

I am thanks. What did you say earlier in the week - Life is a bitch?
haha. It's not too bad because of early intervention so hope the antibiotics kick in quickly.

How is the weather up there?
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Date: 21.07.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

The antibiotics should clear it up quickly. It is a lovely day here with a nice breeze. Having another barbeque later, I want to make the most of this weather. x
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Date: 22.07.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Bsk, what are you like!!! Poor girl make sure you look after it!!!!! Bsk you so deserve a good long holiday or a win on the Lotto You are such a tough cookie they chuck it all in your direction and you get on with it (what else can you do).
GREAT BIG HUG xxxx

Rhona enjoy your BBQ. Do you think you could share a bit of that breeze? LOL We are expecting storms I won't be crying the air needs clearing. Just one big storm will do nicely. I do love the sun I must say, it makes me feel better.

Lynn, sorry you haven't been so good. I hope you are feeling better to-day.

Hubby feeling a slight improvement thank goodness off to GP again tomorrow. Fingers crossed for some good news for him.

Take care and enjoy the rest of the day
xxxxxxx
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Date: 22.07.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Marlene, That's good that your hubby is feeling a little better. I think we have to get rain tomorrow and possibly thunder. I see London was very hot today, must have been a great atmosphere with everyone waiting on news of the new arrival.

I hope you are doing ok bsk and your leg is healing.

Hope you get the humira Lynn and is helps you.

Sleep well xx
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Date: 22.07.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

I'm fine thanks everyone, antibiotics kicking in already. It didn't feel too bad in london today- a very nice dry heat and going in my garden reminded me of the kind of heat you get in Spain - the sort that radiates off the walls. I love that but I see it is going to get muggy next couple of days.
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Date: 23.07.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Bsk, glad to hear you are ok. It was so hot here yesterday and muggy but had a lovely storm in the night. It is sunny now but feels so much fresher but again it is going to be muggy his afternoon. Have a good day xxx
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Date: 24.07.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

How are you all today? It is very humid here, we had a bit thunder and lightening yesterday and think heavy rain is due tomorrow. I hope it clears up for you bsk. It is this weekend you are coming up, isn't it?

Is your husband any better Marlene? I hope your chest infection has cleared up now. My daughter is going into hospital on Sunday unless it is cancelled again. The waiting is almost as bad.

Take care xx
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Date: 24.07.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Yep, up tomorrow. I've packed my waterproofs haha! Looking forward to a bit of cooler weather.

Best of luck for your daughter on sunday and hope everyone else is doing ok. Speak to you all next week.
take care.
xx
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Date: 27.07.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Marlene,

How are you? I hope everything is alright with your husband.

It is a bit cloudy here today although the sun pops put now and again. At least it is dry for bsk's visit, although we had the thunder and downpours yesterday.

My daughter goes into hospital tomorrow, I will be glad when it's all over.

Take care and have a nice weekend xx
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Date: 27.07.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Rhona, Well I am exhausted my hubby is still in so much pain and he is so fed up now. I am trying to do what I can each day but it is hard with him laid up and mum to look after. I will get through it!!!

I am in a lot of pain myself thank goodness I have good pain meds other wise I would be laid up as well.
Big hugs for your Daughter Rhona and try not to stress too much she will be fine. Bless you both!!! It will be good to get it all out of the way it's horrible when our children are ill.

Well it has been lovely all day and it is now thunder and lighting and become very dark. Still waiting for the rain.

I hope Bsk is enjoying her break she so deserves it. The poor girl has had one thing after another and still has a sense of humour. She is always so supportive of everyone regardless of her own problems. You are exactly the same Rhona and I find it so refreshing to have a chat and know that everyone is genuine and caring. Well enough of my mush LOL.

Take care Rhona have a lovely week-end and let me know how your daughter gets on. Great big hug xxxxx
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Date: 28.07.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Hello Ladies, just read a few posts from above, catching up!
Marlene, you certainly have your hands full, last time I popped in I thought your poor husband had found some relief, I am sorry he is no better. It is so tiring with the warm weather, and now you have more stress and nursing to do. I wish you all well.
Rhona, I hope your daughters op goes ahead today and is successful. I read your other post about your red eye. Sometimes I get that, it just appears out of the blue but usually goes away on its own. I wonder if it happens when we are run down. It may be wise to get it checked out.
I broke my venner on one of my front teeth on Thursday night, on an ice lolly. I got an appointment on Friday but they didn't do much and have to go back Monday, aren't the dentists slow, they always have you back and forth for a few minutes at a time. They should make a longer appointment and get on with it! I will probably be walking around like this for 3 weeks before it is cleaned, measured and a new one made. So frustrating.
Then on Friday evening I burnt two fingers on the cooker hob and ended up in A+E getting them dressed, gosh the sting was unbearable for 2 hours I suffered, running them in cold water but they would not cool down. I rang 111 and they made me the appointment. They are a lot better now and I can take the bandage off tonight. I probably have thin skin as a result from taking steroids.
It rained a lot here in Durham last night and this morning, but nice again now.I
I hope everything improves for everyone soon. Oh my knee is good after the injections, the ankle, only slightly. X
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Date: 28.07.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Emm, Sounds like you are having your time of it too. A burn it horrible, I hope it heals well and I know what you mean about dentists having you in for 2 mins and then going back again, it is very frustrating.

My daughter is getting ready to go to the hospital just now she has to go in between 6-8 this evening. What a fright she got last night, she had some food in the oven and the next thing it exploded, the inner glass shattered, just as well in went in the way or it would have been nasty. I have just ordered a new one on the internet today, I have no time to go and look at them.

It has been raining here all day today, I am hoping that's not the end of the summer. For all that I can't really take the sun I still enjoy seeing it and sitting in the shade.

Thanks for the comment on the eye. I also bruise very easy and I am wondering now if it's the medication, just something else to worry about lol.

I hope things are a lot better today for you Marlene. Take some time to rest.

Take care all xx
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Date: 29.07.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Morning Rhona, Did your daughter get in hospital OK.
If so I hope all goes well!
Gosh an exploding oven, that must have been a scary experience, hooray for the internet, it is easy to order when we can't get out. I once ordered a fridge freezer from comet and they took the old one away, fitted the new one and it all went very smoothly. I hope your cooker delivery goes as well.
My fingers are fine now just hard white skin, nurse said to apply vaseline.
Dentist today at 11.15 but I know she will just look and I will have to go again before any work is even started. It will cost 214. Could have done without that expense. Oh well, what can we do.
Take care and best wishes to your daughter. X
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Date: 29.07.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Morning Ladies, Good luck for your daughter Rhona.
I do hope all goes well and she is back home soon. My Goodness your poor daughter must of been scared what a shock exploding ovens!! xxx

Thanks for the post Emm, I know I shouldn't moan but I am so tired and stressed. My hubby is back to the GP to-day. They keep messing with the pain meds and he has been suffering all week-end. Fingers crossed for some help with this different GP.
Oven burns are horrible and so painful but I am glad it is better!! I have to wait until September for my appointment with the dentist and it is a front tooth I have chipped. I am hopeful it wont break any more before then. .Good job it doesn't hurt

Well I have to get on with things and it takes me so long as I am sore all over along with a dodgy knee (bring it on) LOL.

I hope Bsk is enjoying her break in Bonny Scotland.

xxxxxxx
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Date: 29.07.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Hello again, Marlene, we come on here to moan because we all understand, Arthritis is in itself a lot to cope with but when we get extra problems it is amazing how we summon up the strength to cope. BUT we do get very tired and stressed.
I was only in the dentist 10 minutes today for another interview, work starts tomorrow though. 8.40 appointment to get the rest of the veneer off, filed and an impression taken, then a temporary veneer fitted for two weeks when the new one should be ready.
Why does it take so long? I thought one could be made in at least a week!
I am finding Tramadol helpful, I think they chill me out too. Only take 1 a day. I don't want to get hooked!
Pain is so tiring so I do hope your husband is sorted out soon, back pain is also terrible. Was it caused through an accident?
I too hope bsk is having a super break. Scotland is lovely.
Good luck with everything. X
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Date: 29.07.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Emm, These dentist's I am sure they hang it all out so they can warrant the high price we have to pay for the service LOL.
I am glad you are getting on well with the tramadol the have been my saviour for years.

My husband went to Drs today they have change his pain meds again. He is now on Tramadol Oramorph Dizapam and Amitriplyn (spelling). I am so not happy with all these pills so the sooner the better for the Consultant to see him. The appointment is in September so another six weeks. I had a good chat with the gp and she suggested I call them and say he will take a cancellation and we could be there in a couple of hours notice. Worth a try I suppose.
He has what they term a total disc prolapse and it has trapped nerves so this is the out come.
I know exactly how he feels as I had surgery for the same thing plus I also had OA spurs shaved away as they also were trapping nerves. I don't know Emma when he will get sorted but I hope it is soon.
I feel a bit more settled now he is out of the terrible pain again. He is not pain free but coping better.

You take care sweetheart and thank you for your support. xxxxx
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Date: 29.07.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Marlene & Emm,

Glad to hear your fingers are healing Emm. I think I just waited a week for my veneer. As long as they make a good job of it, that's the main thing.

I hope your husband gets some relief soon Marlene, constant pains wears you down.

I went up to the hospital tonight so that's my daughters operation over thank goodness, she was sitting up in bed tonight and looks well, they told her it could be 2 months before she gets the full benefit. I just hope it has been successful but it seems to have went well and she thinks very highly of the surgeon and will hopefully be home tomorrow.

Take care and hope everyone's pain settles down.

XX
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Date: 30.07.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

Morning everyone! Back home in the rain lol. Had a fabulous break; beach, scenic trips and lots of time with the children and my sister. Very lucky with the weather on the whole.

Sorry to hear your husband is still in pain Marlene. I do hope they can do something for him. You too Emm.

Rhona, I am pleased to hear your daughter has had her op. The time will go very quickly and she will soon see the benefit.

I've got to brave myself to phone the rheumy nurse today about a decision about my drugs. My leg has been a lot better so not sure what she will say. Ho hum! Will let you know later.

xx
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Date: 30.07.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Morning girls, Had my temp tooth fitted today, at least it looks better! Back on 14th August for the real thing, can't wait. Chose an 8 am appointment!!!
Marlene I understand now why your hubby is suffering, will he need an op to correct it? As you said help with his pain will make a small difference.
Rhona its nice to hear your daughter got the op over with, wishing her well with recovery and success in the long term.
Bsk your break sounds lovely, I love Scotland, which places did you visit?
Good luck with medication appointment.
Have a lovely day everyone, it is a bit fresher here today, more bearable, still sunny and warm though. Love. X
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Date: 30.07.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Well, off the Enbrel permanently. Not pleased! My nurse found me an appt with my new consultant in a couple of weeks so will discuss what next. Trying to take it in my stride but am really pissed off.
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Date: 30.07.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Evening Ladies, well the rain has stopped and it is a lovely evening.
Rhona, so pleased your daughters op was ok. She will now soon be back to her old self. You must be pleased it is all over with.

Emm you will soon have that beautiful smile back. Thanks again for the posts.

Bsk, I am so pleased to hear your break in Scotland was a good one. Special times when it is spent with family and extra special with the little ones. Does your sister live in Scotland or did you all go together. (not that I am nosey lol).
Bsk what do you think they will do for you now? Thank goodness you have a good nurse that found you a quick appointment. Bsk if its not one thing its another.

Just to top it all my father-in-law was taken into hospital this morning. I had a frantic call from my mother-in-law when the ambulance called by the GP arrived as she was on her own. I was ringing around and spoke to her eldest son and he said he couldn't leave his wife as his mother-in-law had passed away a few hours earlier. I told the ambulance lady to just take them and I would sort something. I spoke to the daughter later and she said she would go to them straight after work. STRESSED is what I am and have felt rough all day.
I am off to have my blood pressure checked tomorrow. It should be a laugh if it is normal.

As I said throw it all at me and lets get it all over and done with LOL.

Anyway I am now sofa surfing Take Care all and try to relax!!!

XXXXXXXX
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Date: 30.07.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies,

Pleased to hear that you enjoyed your break bsk and the weather wasn't too bad for you. It is strange, yesterday was torrential rain all day here and my husband's office is only 10 mins drive away and they had it dry. I can understand that you will be disappointed at stopping the Enbrel, try not too worry too much about it just now, wait and see what the new consultant has to say.

I hope your father-in-law will be alright Marlene, that would have been stressful for you, especially when your husband couldn't get up and go to the hospital and you trying to get someone to go. It's a true saying, "it never rains but it pours" Get a good sleep tonight and try and get the blood pressure down.

Glad you got the tooth sorted out Emm, it's always worse when it is a front tooth.

My daughter got home this morning and seems to be doing ok although her eye is a bit sore and she has drops to use.

Sleep well everyone xx
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Date: 01.08.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

morning ladies, so pleased your daughter is home Rhona you all must be so relieved. Lets hope it all turns out the best it could for her. Bless her!!
We have had a lot of much needed rain but the warm sunny weather is back.

Thank goodness my blood pressure has dropped to normal. The nurse I saw was lovely and said they will monitor me until all this is worry is out of the way.
Rhona they sent my father-in-law home and then he went straight back in the next morning. I was so cross with them all. He is so frail and needs 24/7 care and mum-in-law just cannot cope. The family have to work and no one seems to care about that. I am sure it will all resolve its self in the end.

Have a good ladies enjoy the sun!! xxxx
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Date: 01.08.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Pleased to hear your blood pressure has dropped Marlene. It proves that worry is bad for us. I don't know what the hospitals are thinking of sending people home when they are obviously not fit, it seems to be the way of things now. Will they send someone to his home to help to nurse him? Such a shame, not good this getting old.

It poured down all morning here, still damp and quite miserable. My shoulders have been really sore today so I've had another lazy day, I have been so tired today, I didn't sleep last night, think it was after 4 that I finally fell asleep and then the phone went at 7am this morning, it was the delivery men with my oven, so doing a lot of resting and sofa surfing. xx
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Date: 01.08.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Evening all,
Rhona you have your daughter home, yippee, and you have your oven, that's good, It was quick delivery, but things are nowadays.
I woke up about 2.30 am and didn't get back off to sleep, got up for a cuppa at some point.
Just dropped off to sleep at 5 this evening on the settee for one and a quarter hours. I feel a bit better for it!
Marlene how aweful, sending your father in law out of hospital, things are just not the same these days. The constant changes in the health service are scary! They have been for a long time now. I do hope all your family problems do not make your health worse. It is true, never rains but pours!
But try to take care and I hope his care can be arranged.
I have been invited to go for the day to York tomorrow and even at this late time of day have not made my mind up if I have the energy to go! I seem more fatigued in the heat, but I know everyone is. I am still enjoying it though.
It will be gone all to quickly.
Take care everyone. Night night. X
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Date: 02.08.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Morning Ladies, well I had some good news yesterday I rang the hospital and asked if my Husband could see the Consultant before the 13th September and we were discussing the different routes to go down when someone cancelled an appointment at 2:30 to-day. After checking the notes could be pulled up in time the receptionist called me back and hey ho we are off later to-day to see the Orthopedic and Trauma Team. I am so pleased we need to know exactly what is going to happen. Fingers crossed we get some answers.

Have a lovely day all xxxxxxx
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Date: 02.08.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi everyone, sorry I haven't been around.

Marlene, how did things go this afternoon?

Rhona, glad to hear your daughter is doing ok. I guess it will be a wait to see what the results are. Sorry your shoulders are painful though. I'm beginning to notice the lack of Enbrel in my system, stiff joints and painful ones too. Seeing the consultant in 10 days. No idea what she is like.

Emm, how are things? Did you get to York?
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Date: 03.08.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Morning all,
I didn't go to york sadly, I felt too tired, but later in the day I wished I had, my three friends had a good day, they went on the big wheel and lunched and shopped.
Marlene, good news about hubby's appointment, we are all dying to hear the outcome of that.
Rhona, is your daughter doing well? Did you get the oven fitted ?
Bsk, is it a new consultant you are seeing? Sad you had to stop Enbrel if it was helping. I keep asking to try a biological but always told no because of my chest.
Just had a lovely soak in the bath and put in some Elemis Frangipani oil as I have very dry skin on my upper arms, I think I have not been putting sun cream on regularly enough.
I think because we are just out and about as normal and not actually sunbathing we forget it is necessary!
Lovely here again but every now and again a cloud appears.
Hope the rain comes in the night if it has to come!
Have a lovely day everyone and I look forward to hearing the next installment!!! X
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Date: 03.08.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Good morning to you all,

That's a shame that you didn't get away with your friends Emm but never mind there will be other times. At least you have the sunshine to enjoy. It is not so nice here, yesterday was pleasant enough but this morning doesn't look too promising and there is a bit of a wind. My daughter is doing ok but her eye is sore and itchy and it's driving her mad but I remember being told when a wound starts to itch that's it getting better so I hope that applies to the eye as well. Yes, we got the oven fitted Emm, a friend of my husband is an electrician and he came and fitted it. I haven't used it yet as we went out for dinner on Thursday night and last night it was my slow cooker I used. I'm trying to keep it clean lol.

Marlene, I hope your husband had a worthwhile visit yesterday, that was good that you managed to get a cancellation. Let us know how he got on.

Bsk, I hope the sunshine is helping you, just as well you don't have too long to wait to see the consultant. I am sure they will have something to help you. Try not to stress about it.

Hope you all have a lovely day in the sunshine, i'm jealous. xxx
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Date: 03.08.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, well the next instalment is my hubby saw Consultant and he has put him on the emergency waiting list for surgery. Not fantastic but he can't continue in this pain. He did say he could inject but he was sure the result would be negative. My hubby is now saying like I did just hurry up and do it. I remember the morning of my op I walked in the theatre area thinking come on then lets do it. First time I have ever been happy at the prospect of an operation. At least we can both see the light at the end of the tunnel.

Rhona I hope your daughters is recovering well. That itch thing when we repair is so awful when you know not to scratch. The weather here has been sunny cloudy raining funny kind of a day weather wise.
It is lovely sitting by the window the farmer is up and down the lane with his tractor not sure what he is doing but seems very busy. The Dog he has sitting next to him. I am so loving this new life even though I have all this stress right now.
My brother came with his Granddaughter and her 7yr old girl. They are both lovely girls. It was nice to sit in the garden and relax for a while.

Bsk I hope you don't get into too much pain before your appointment. I will keep my fingers crossed for you. Have a lovely evening.

Emm, what a shame you missed your day out. I know what you mean about wishing you had gone. I tend to just go and try to keep up and if I can't I find somewhere nice to sit with a coffee and arrange a time for them to come back for me. It usually works very well for me. I have never been to York it is one on my wish list.

Have a restful evening and a good nights sleep.
xxxxx
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Date: 03.08.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

I suppose if operating is the best way to go Marlene then I hope he doesn't have to wait too long. It is a worry.

My daughter that lives in Spain is on holiday in Ibiza just now and her friend was looking after her little pup, I can't remember if I told you she bought a black toy poodle a couple of months ago. Well she got a call this morning to say it has gone missing along with her friends little white poodle, they think they have been stolen. My daughter is heartbroken and that will be her holiday ruined. Her friend had left them in the garden for a short time while she went to make a coffee and when she went out they had gone. How can people be so cruel.

xx
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Date: 04.08.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Oh Rhona how horrible!!! I would be heart broken if someone stole my dog. I don't know what to say I am so upset thinking about it. Your poor daughter oh dear!!
Rhona I really just don't get it well I do they steal these lovely dogs to sell them. I just hope the dogs get nice owners poor things I bet they are also wondering what's going on.

Rhona there is some awful people in this world and all they think about is their selves. They don't care what they are doing to any one.
I do hope they get caught and the dogs get returned. Big hug for your daughter bless her.

Rhona try not to stress too much as you will be in a lot of pain before you know it. Take care sweetheart and hugs for you XXXXXXXX
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Date: 04.08.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Good morning ladies, Marlene glad your husband is getting an op, and hopefully quickly, it is not nice that he has to have one, but if it fixes him it will be for the best. Good luck to him with that.
Rhona sorry about your daughters missing poodle. It seems to be happening more often, dog theft. Some people are despicable. The crimes they stoop to. Dogs are part of the family aren't they. We love them like our children!
Woke up with yellow gunge in my eye today, don't usually have eye problems, I hope I can get something over the counter for it as I am sick of going to the doctors. It seems just one thing after the other!
Nice here again today but loads of rain forecast for tomorrow, am going to the cinema tomorrow with 3 friends so it won't interfere with that!
Out to lunch today with family so thats nice. I hope yout all have a lovely day too. Love x
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Date: 04.08.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Rhona, just a thought do they have dogs chipped in Spain? My neighbour told me that had happened in the village some years ago people stealing the dogs. What next?? They are just low life!!!
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Date: 04.08.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

I'm sure you can get them chipped in Spain but the problem would be finding it first. Sad someone has taken them.

Good news about husband's op Marlene. I hope he gets taken in very quickly.

Rain forecast here tomorrow as well Emm. Beautiful today though and have spent the day in the garden.
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Date: 04.08.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Marlene, Yes, they have been chipped and her friend has put posters all over the area in Benalmadena. One of her friends called her and said someone seen a one armed begger with a pup fitting his description in a supermarket car park but who knows. It will be a miracle if they turn up. xx
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Date: 05.08.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Just to let you know they have been found. A farmer found them and looked after them all weekend. Take care everyone xx
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Date: 05.08.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Rhona, fantastic news!!!!!! How nice to have some good news xxxxx

I hope all you ladies are doing OK.

Just waiting on a date for hubby!

Take care all xxx
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Date: 05.08.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Ooo great news Rhona, thats great!!! So pleased for your daughter!
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Date: 05.08.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

That's good Rhona.

Can hardly walk today as knees quite stiff and painful. Am alright pottering around at home but not so good when I go out.
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Date: 05.08.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Oh bsk, I know the feeling, that's how I was last year. Is it this week you go to the hospital? I hope things get sorted out for you when you go. take care xx
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Date: 05.08.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Thanks Rhona, I go next Monday I think. Not looking forward to it to be honest.
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Date: 06.08.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Bsk, sorry you are suffering I hope when you go to the appointment you get something to help you. Try to rest up as much as you can.
Big hugs xxxxxxxx
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Date: 06.08.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Thanks Marlene. I'm not too bad today, though limping earlier and had to use a walking stick - haven't used one of those for a while.
How are you all doing?

xx
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Date: 06.08.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Bsk, I am hurting a lot but that comes with running around all day being a nurse.
My brother is going to take my mum home with him for a week to give me some breathing space. To be honest I am feeling pretty low. It is just a waiting game now. I am so worried about all the drugs hubby is still taking.

I have been using my walking stick lately and I hate it. It makes me feel old LOL. I have developed a really painful knee.

I am laying on my bed so tired so I will say have a good night sleep NITE xxxx
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Date: 06.08.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

I know what you mean about feeling old with a stick! I hate it too but it does help.

Glad to hear your brother is going to help out. You do need to look after yourself before you can look after any one else. I hope your husband's op comes through quickly. Can you get your gp to look at your knee? Could you have a steroid jab in it?

Sleep well. xx
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Date: 06.08.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

That's good that your brother is taking your mother for the week Marlene, I hope that makes things a bit easier for you. As bsk says you have to look after yourself too.

I hope your knee improves bsk. I have quite a few sticks but I didn't really think they helped. When I was in hospital last year I was given a crutch and I found that better to use as it went round my elbow and was more comfortable to use although I hated using it too but if you need it and it helps then better to use it.

I am feeling very stressed myself, my younger daughter is having some problems and I am worried sick about her. I can't believe the amount of things that keep happening, it's one thing after another.

Take care everyone xx
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Date: 07.08.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Morning all!
Everyone has a lot of problems at the moment, I hope things work out well for everyone.
Life seems to throw everything at us at once. I got bumped on the shin bone by my sisters boisterous dog, It really hurt and I felt my knee click so now have a huge bruise on the leg and a swollen knee, I am so angry about it because I just had the other knee injected about three weeks ago and it is doing fine. I am putting up with it for now as I have said before I can not get my GP to inject my knee and always have to wait to get pushed in with the RA specialist!
Am thinking of you girls and sending you special hugs. X
reply | back to forum

Date: 07.08.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

morning everyone, Rhona so sorry to hear your youngest is having a bad time. It is awful for us when our kids are hurting for what ever reason. I am sure your daughter will take comfort in knowing she has great parents that are there for her. I hope her problems are all sorted soon.

It is 10 o'clock and I am still laying on my bed waiting for the pain meds to work. I am not going anywhere until later in the day so I have decided to chill as they say. I feel shattered and have made an appointment for next week to see my GP.

Emm what a nuisance that the dog banged into your good knee. Rest it and with a bit of luck it may settle.

Bsk thanks for your support and I hope you are ok to-day.

Take care and have a good day all xxxxxx
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Date: 07.08.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Morning all!

Rhona, I'm so sorry to hear about your youngest daughter. I hope things get sorted out soon as you've had enough to deal with this year (as we all have it seems.)

Glad to hear you are chilling out today Marlene.

Emm, I hope your knee settles down. I got bitten by a mossie last night at 6pm (a bit early for them I would have thought....?) Anyway, massive swelling around my ankle. Does it ever end....?

Take care everyone and treat yourselves today - I'm going to :)

xx
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Date: 08.08.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Bsk just read your post. Yesterday I pulled on a weed it wrapped itself round my wrist and guess what? Stinging nettle. My wrist is still red this morning and itchy. So as you say does it ever end? Take care of that bite you can do without an infection. What a year is very true.

Have a good day!!!!!
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Date: 08.08.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi everyone, I have had anther lazy day to-day.
I saw my youngest grandchildren to-day. The little girl cried as she didn't want to go home. Oh Dear!! They only popped in as they were passing the village. I bet Mum won't do that again. LOL.
I hope you all had a good day.

How are you doing Rhona?
XX

Forgot to say the GP rang and asked how my hubby was and when I told her still in a lot of pain she changed how he takes his pain meds and is going to ring on Monday to see if it helps. I thought that was very nice as they are so busy at the surgery.
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Date: 08.08.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

A lazy day would do you good Marlene after everything you have been through. That sounds a nice doctor that you have and I think it is important that you can relate to your doctor. We have a new doctor although I haven't met her yet, our two old doctors retire in September.

Hope you are alright bsk and the bite is going down and hope your knee is ok Emm.

Take care and sleep well xx
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Date: 09.08.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

Yes I agree about lazy day. GP sounds good.
Rhona, hope you are doing ok and your worries are manageable.
Emm, look after that knee.

My bite is painful and looks infected so back to the doc in the morning. Ye gods, this is never ending.

On a more positive note, I've had a couple of really nice evenings out with friends. For dinner on Wed which was great fun and drinks with some girlfriends last night. Just what was needed.

Chat later (it's 5am!)
XX
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Date: 09.08.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Good morning, just had my breakfast and having a scout around my ipad while having a second cuppa and listening to breakfast telly before my shower. Popped in to see how you all are!
I am waiting in today for a lightweight vacuum for upstairs I ordered on line, hope it comes before 2pm or will have to cancel my hair appointment. I am tired of hugging my other upstairs with my bad legs and hands.
Bsk, I have had a couple of little bites in the house at night but yours sounds nasty, get it seen quickly as you say. I am pleased you have had a couple of nice social evenings.
Marlene sorry to hear your husband is not comfortable, hope he gets more comfortable soon. At least your GP is trying.
Rhona my knee has mended itself a little, don't think I need a jab for it, so thats good. I hope your daughter is seeing some improvement in her health problems too.
I am thinking of you all and sending you some of our 'special hugs' have a good weekend all. X
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Date: 09.08.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Bsk oh dear poor you one thing after another lets hope it sorts it self out with a hand from your GP.
Lovely to hear you have had a few lovely evenings out. It makes a nice change and lifts us.

I have made an appointment to have my hair done on the 19th and that made me feel a little better.
I am popping round to my eldest sons with my daughter my Granddaughter is 14 soon (now I know i'm getting old lol). So that will get me out for a while.

Hi Emm I have a lightweight hoover so much better than lugging the other one around. Glad to hear your knee is doing ok.

Rhona hope all is well with your youngest daughter. Take time to rest and keep your chin up xx
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Date: 09.08.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

How did you get on at the docs bsk? I hope it's settling down a bit now.

Hope your hoover arrived Emm and you managed to get to your hair appointment.

Your grandkids must be good company for you Marlene and a good distraction from all the pain. I don't think my girls will ever settle down and make me a granny lol. My daughter is coming home from Spain next week with her Spanish boyfriend. I'm looking forward to seeing them. He is only going to be here for a few days and she will stay another week.

Have a good weekend everyone. xxx
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Date: 10.08.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Rhona, that will be nice having your daughter and her boyfriend home. It will also be good to have her on her own for the extra week.
My grandkids certainly help me forget all the rubbish going on.
I have to say my pain is really bad to-day painkillers not touching it. I am going to find something to do to try and take my mind off of it.

Have a good week-end. I am going to have a quiet one!!! (boring) haha xx
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Date: 11.08.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi everyone, sorry I've been busy this weekend. I'm back on the antibiotics but they are working well so am feeling much better.

Sorry to hear you are in bad pain Marlene. I hope you are taking it easy this weekend.

Rhona, good to hear your daughter is visiting. I hope you have a lovely time with her.

How are you doing Emm?
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Date: 11.08.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Marlene bsk & Emm.

Glad to hear the antibiotics are working bsk.

Hope you are in less pain today Marlene. My hip has been a bit sore but hoping if I ignore it, it might go away.

Just went for a meal tonight, I am going off cooking lol. Would be lovely to have a live in chef.

Been quite breezy here today. I just hope that's not the summer over.

I have been wondering how Lynn and Willis is doing.

Take care everyone and sleep well xxx
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Date: 12.08.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Good morning girls,

Rhona, are you having some good mother/daughter time, I love those special moments, as I have said before my Rachel lives in Switzerland and I do miss her and the children.
I agree a live in chef would be a great.
I went to see the Lone ranger yesterday with 2 friends, it was brilliant. I recommend it.
Hope your hip is a little better today.
It is my ankle that seems relentless at the moment, it just won't improve.
Marlene, I hope all your problems are getting a bit easier and you are not as stressed. Big hug for you!!
Bsk you seem to get quite a few antibiotics like me! Hope you are a lot better too. X
Just had brekkie and think I will have a soak in the bath this morning rather than a shower. Feel like my feet would enjoy a soak!
Have a nice, trouble free and painless day everyone. Love x
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Date: 12.08.2013
From: willis

Subject: Re: New thread for Rhona bsk and Marlene

Good Morning All
Been a while since I was on. I hope you are all keeping ok and not been suffering too much. Hubby had his operation and is recovering well thankfully. I did a bit of cleaning yesterday and am off work today lol. Been feeling alot more aches these past few months but not a flare or anything so just glad of that. I think 11 weeks of full time work are taking their toll and so don't feel guilty of not working today. I just wish that if I go back to part time that the aches and pains would go away lol I can dream cant' I. My daughter is just about to buy her first house with boyfriend - gulp, no idea what I'll do without her here to talk to lol. Thank goodness for technology nowadays :) I should go shower and dress but oh my to just sit here and do nothing would be bliss. You all keep well and no doubt I'll be back at some point. lots of love and hugs to you all xxx oh question, I forgot. Does anyone know what if any difference there is between Surgical Appliances and Podiatry? I went to SA and got these pathetic shoe inserts that make my feet hurt more than they did but didnt' go to Podiatry appt as the guy at SA said it was the same as him!! just wondered if Podiatry did something different or better! xxx
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Date: 12.08.2013
From: Runn Singh

Subject: Re: New thread for Rhona bsk and Marlene

Try this video
http://youtu.be/uNbaQxvdvzw
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Date: 12.08.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

News bulletin!

Saw my new consultant today. She is lovely and thorough and the upshot of today's appointment is I will never, ever go back on anti tnfs. She is also referring me urgently to a neurologist for tests for MS. Enbrel can cause demyelination apparently. However, she is not too worried as, hopefully, if I have it will remain mild and not progress.

She gave me a steroid shot and is seeing me in 6 weeks.
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Date: 12.08.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi bsk. Did the tingling not stop when you stopped the Enbrel? Always best to get checked out even if the chance of getting MS would be slight. It is a worry with all the nasty side effects. Good that she is seeing you in 6 weeks again.

Hi Emm, My daughter doesn't come home until Thursday, it will be lovely to see her again.

Hi Willis, That is good that your daughter is getting her own place. You are right about technology, I can chat to my daughter in Spain every day through the laptop. Pleased to hear the your husbands operation went well.

Are you ok Marlene. xx
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Date: 12.08.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

It did and then it started up again. I'm pleased I'm getting a check to be honest though slightly worried what the future will hold now I can't have the tnfs.
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Date: 13.08.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Hello ladies, having a very tired, achy day today. It is 12.40 and I have not done much yet. I feel a bit guilty although I tell myself not to.
Bsk, I cannot have bio's either, always wished I could try them but because of infections can't. I do hope you can manage your arthritis ok while off them. Am pleased you like your new consultant, it matters I think that you feel at ease with them. I hope your test results will be ok too. Which joint did you get injected?
Rhona, won't be long now till you have your daughter home, wish mine was!! Have a lovely time together.
Big hugs all round x
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Date: 13.08.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

thanks Emm, got a systemic injection so am full of beans today!
Marlene, are you ok?
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Date: 13.08.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, Bsk sorry I haven't been on so full of pain the last few days and you know me I like to just be on my own until I feel a bit better.
The pain is not so bad to-day I rested up yesterday and this morning. My brother took my mum for a while to give me a break. So a little less to do. Actually a lot less to do.

My hubby is still waiting for an appointment so I will be ringing them tomorrow. I know he isn't the only patient they have but the surgeon hasn't even written to the GP to change his drugs. Everything is so slow!!!!!

Bsk pleased to hear the injection has you feeling good. I read the tests you have to have and you must be worried. I am sure you will be fine and they are just ruling everything out.It is good they are being very thorough with you. Take care and big hug for you!!

Rhona Willis and Emma I hope you are all ok.

Rhona you must be getting ready for your daughter and her boyfriend. I hope all is well with your youngest now.

Take care all xxxx
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Date: 13.08.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Sorry to hear that you're not so good today Emm but don't feel guilty. I have started listening to my body now and if I am sore then I just leave things and do them when I feel better. You must miss your daughter too, I often wish she hadn't moved but she is happy where she is. I am going up to Aviemore next week for a couple of days with her so that will be nice.

I am pleased to hear that your pain is a bit easier today Marlene, long may it last, like the rest of us you are due a break. Try and give yourself a few treats this week while you have the chance.

That's good that you got a jab bsk, I hope it lasts a while. Don't worry too much about the future, one day at a time. Perhaps that cure is just round the corner.

Take care ladies xxx
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Date: 13.08.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

Where's your daughter Emm? Sorry to hear you are not feeling good as well. Rhona is right about not feeling guilty. If you can't do it then don't!

Marlene, I always worry when I don't hear from you as know it means you are not good. Glad to see you back on here and thanks for your thoughts. I hope your husband gets some attention soon. Yes, it is all slow.

Rhona, when is your daughter back? Lucky you going to Aviemore, it must be beautiful this time of year.

take care everyone, lots of hugs to you all ((()))
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Date: 14.08.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Morning all,
I am off to the dentist today at 8.00 am. Think I have been awake half the night in case I slept in! Getting my permanent veneer fitted. YIPPEE, seems to have taken forever, why is everything so slow?
Bsk, my daughter, Rachel lives in Switzerland with her husband and two children. She is in a beautiful part near Montreux, near to lake Geneva.
Rhona enjoy Aviemore next week with your daughter, special times when we don't see them that often.
I am a bit less stiff today so the rest helped me. But am a bit worried about my ankle, it just won't mend,!! May have to see a surgeon again to see if anything can help, steroid jab has not.
Have a lovely day all, am going to have a second cuppa before I go. X
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Date: 15.08.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, well good news!!!!1 Hubby's operation date has come 10th September going tomorrow for pre op assessment. I know it is still a month away but thank goodness the light at the end of the tunnel is shining through. He can't wait he is so fed up and still on all the meds and just hates it.
I have been awake on and off all night with the pain just wondering if its the rain on the way that is not helping along with all this stress.

Rhona enjoy your break with your daughter. I am thinking about booking a week away when all this is over. I might try for Fuerteventura if I can get a last minute break out there.

Bsk thanks for caring at least you are aware that my thing is to go very quiet when the pain is really bad. I hope your injection is still helping you.

Hope all goes well at the dentist Emm.

Have a good day!! xx(by the way I know you all care) Thanks everyone
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Date: 15.08.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

That's great news Marlene. The time will fly by.
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Date: 15.08.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Marlene, thats brilliant news about hubby's op. Not too bad for the NHS. I am delighteed for you both.
My veneer looks really good , thanks.
Take care lots of 'hugs'. X
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Date: 16.08.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Off to hubbys pre op assessment soon getting closer to the day.

Hope you are all ok xx
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Date: 16.08.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hope it all went well today Marlene.

Pleased you are happy with your veneer Emm.

Rhona, I expect your daughter is with you by now. I hope you enjoy here visit.

I think I'm getting a cold - in August! Going out for dinner tonight so am going to have some very spicey food to see if that helps.
Sort of ok today, apart from that, which is good.

xx
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Date: 16.08.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Bsk, enjoy your meal and I am pleased to hear you are feeling pretty good. Lets hope the spice gets rid of the cold.

All went well to-day but my hubby is in a lot of pain as the pulled and prodded and left him reeling with the pain. I never really understand the does this hurt what about that LOL.
Have a good week-end and Rhona I hope your daughters visit is giving you a real tonic. (better than any pills).

Take care xxxx
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Date: 17.08.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi everyone I thought my knee was a new problem but looking back at some posts I can see I had some trouble with it in 2011 so maybe just a blip (fingers crossed).
It is a funny morning with the weather sunny cloudy then wind then a lovely gap from the wind and warm sun. Rain later have got the washing done hope it will dry. (hate tumble drying).
I am enjoying this week-end doing as little as I can. My mum bless her will be back Monday or Tuesday she has been having a lovely time. Spent two days at her old club. Seen her granddaughter great granddaughter and great great granddaughter with my brother five generations I can't wait to see pictures. What a legacy five generations!!!!!
I couldn't imagine how proud she must feel.

Take care xxxx
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Date: 17.08.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Pleased to hear that your husband has got a date for his operation Marlene and it's not too long away. A holiday would do you all good so I hope you do manage to get away to Fuerteventura (just what the doctor ordered) especially after an op.

Glad to hear that you are feeling a bit better bsk, long may it continue.

That's good that you are pleased with the veneer Emm, now you won't have to hide away lol.

It is such a wet morning here. We went through to Edinburgh yesterday, it was a lovely sunny afternoon there but so busy with the festival being on but a lovely atmosphere.

Enjoy the rest of the weekend everyone. xx
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Date: 17.08.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Rhona , I have been to Scotland many years ago. Never been to Edinburgh would love to go. Any hotels you could suggest would be appreciated.
I am looking to go in May next year for our anniversary. I have been looking on line for inspiration.
It sounds like you had a lovely day out yesterday.

Take care xx
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Date: 17.08.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Marlene, We got a deal for the Carlton just after new year, it was nice enough but I thought the Radisson Blu looked nicer although I haven't stayed in it. It is right at the Royal Mile so it is in an ideal position. Check it out online and see what you think. I know Emm has stayed in one but can't remember which one.
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Date: 17.08.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Thanks a lot Rhona will check it out in a bit. I will ask Emm where she stayed and if she would recommend it. It would be great to know someone has stayed in a hotel and liked it.

Take care xx
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Date: 20.08.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, I hope you are all ok. Went and had a haircut yesterday and I feel almost human again. It was lovely to just sit in the chair and have someone else wash my hair she also gave my head a massage HEAVEN.
I am just resting up to-day very sore after a busy day yesterday. I had great plans for to-day but hey ho tomorrow is another day. My brother dropped mum back yesterday and is going to take her again for two weeks when my hubby has his op. That will be good one less thing to worry about. My daughter has five days off when hubby goes in so we are going to visit and eat out I won't know what to do with myself LOL.

Rhona I had a look at the hotel it looks lovely actually they both do so I have put them in my favourites for now. Thanks for that!!

Take care everyone xxx
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Date: 20.08.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

HI Marlene, you sound a lot more relaxed which is great to hear. So glad your brother is helping out.

I'm coming down with something, feel a bit rough so am staying around the house today trying to rest. Same old, same old!
xx
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Date: 20.08.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Bsk, sorry you are not so well. You probably like me are fed up to the back teeth with the constant niggles. I have had a really quiet day sofa surfing I have been hurting all day.
I do feel more relaxed I have to say. I can see the light at the end of the tunnel now just three and hubbies op will be over. Then we can concentrate on his recovery and get back to normal well as normal as can be.
I have to say my elder brother is stepping up and being a real help. You certainly find out the ones that truly care!!!
Lets hope we both feel better tomorrow.

Rhona I hope you are enjoying your daughter being home!!!!

Emm hope you are well!!!

Take care and hope you all seep well xxxx
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Date: 20.08.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Sorry to hear you are still in pain Marlene, let's hope things get back to normal (whatever that is) soon. I'm constantly fed up these days but am trying very hard not to let it get to me. No mean feat!
Take care everyone!
xx
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Date: 21.08.2013
From: willis

Subject: Re: New thread for Rhona bsk and Marlene

Morning all
Well i've read from 16th aug to bsk last post and was smiling as you all seemed in high spirits and well then of course you're not really as you still have this awful bloody pain and aches and arghhhhh. I have just realised therefore that I have got so use to the aches and pains that although I know I feel the pain daily I don't notice it now it's part of me and for that i'm actually really annoyed.
i've been popping paracetamol for a few weeks now so wonder if i'm having a wee flare. haven't seen consultant or nurse for 5 months now and to go see nurse end of september so i got a 6 month break! well i'm sorry i'm wittering on
I hope you all have as good a day as your body allows and asking all the angels to help you have a pain free day. luv and hugs xxx
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Date: 21.08.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Hi everyone, just caught up with the last few posts.
bsk, is it a cold you are starting with? Hope it passes quickly.
It is a viscious circle of pains and bugs and fatigue for us. We do get sick and tired of it, so I sympathise with you and send you a big hug!
Marlene, you seem to have a lot of support from your family, thats good. I like a nice head massage too, at the hairdressers, it is lovely.
My friend has stayed at the Edinburgh Carlton and says it is the most comfortable hotel bed she has slept in.
We always stay at the Mercure on Princes Street, we go at least once a year. It is 3 star, but it is in such a good position it suits us fine. The dining room has a great view of the Castle and the hotel is next door to Jenners the department store.
We usually go Early December when the ice rink and Christmas market are on, so it is really handy for those.
I hope you get to go soon.
Rhona, how are you? Not too bad I hope! Has your daughter gone home yet? Hope you had a lovely time together!
I have been to the cinema again this week and out to lunch with friends. Still got a swollen ankle, but trying not too let it stop me. I bought a floor steam mop for the kitchen floor today and tried it out, it is good, another labour saving tool for me, to make life easier!!! I have taken to getting anything that makes chores easier.
I keep thinking of a stair lift but haven't acted on it yet. Probably will next time my knee flares and I get scared on the stairs.
Well think I will pop to bed now with a cuppa. So goodnight all and lots of hugs for my internet pals. X
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Date: 21.08.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi Willis, good to see you on here, and everyone else!
I'm feeling a lot better today. So often 'good day, bad day' around here. Guess it's the same for everyone.
Emm, why don't you do the stair lift before your knees get bad again? You don't have to use it - I know quite a few people who put their washing on it and sent it upstairs - very useful!

I'm away for a few days tomorrow, off to see my father. Speak when I get back
xx
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Date: 22.08.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies. Bsk enjoy your break with your Dad.

Willis good to hear from you!!

Emm a stair lift sounds good to me. My mother-in-law has one and she uses it for everything. sending her washing up and down, taking up bathroom stuff after shopping. Sending up cups of tea. She loves it.

Rhona hope you are enjoying having your daughter over.

I have hip pain to-day and full up with pain meds and feeling miserable. Just keeping fingers crossed it is poor posture rather than another joint with OA.

Take care and enjoy the sun tomorrow xxxx
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Date: 23.08.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Hi again,
Been for my monthly blood test today, last months showed a hb of 11.2 so if this months is still low, ( they said a couple of extra tests were being taken today) I will be contacted about it. Probably Tuesday when results are back.
Does anyone know if this means I am anaemic?
I know I have been extra tired for months now?
Would appreciate any opinions.
Big hugs to my fellow sufferers. X
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Date: 26.08.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Sorry to hear that you are suffering Marlene, I hope your hip is better today. It has been a lovely sunny day here today, I hope it's been the same where you are and has helped you a bit.

I hope that blood test goes well tomorrow Emm, it doesn't sound too low to me, I am usually just around 10 and have been under that too.

My daughter went back to Spain yesterday. We had a lovely couple of days in Aviemore and the weather was perfect. The scenery around that area is beautiful with many lochs and mountains and good fresh air.

I hope you have enjoyed your break bsk.

Off to bed now so sleep well everyone xxx
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Date: 26.08.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Emm, I checked what the hb should be and it says between 11.5-16.5 so you may be slightly low but I believe people with RA are prone to anaemia and i'm usually between 9.1-10.7, I know I am anaemic but I hate taking iron tablets. xx
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Date: 26.08.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Rhona, so glad you had a good time with your daughter. Aviemore sounds like my ideal chill out holiday.

They changed my hubby's med from Amytripline to Gabapentin and I cannot believe the difference in him. He is so much better.

I have to go to my GP my pain is now hip leg and knee exactly how I was when I needed surgery I just cannot be laid up now!!! I am resting up all the time. this is so worrying I don't think I could face more surgery keep your fingers crossed for me. I am telling myself it is just where I have been over doing it.
What a pair we are now LOL.

Emm I hope your bloods are ok. I also feel tired all the time it is all this pain I am sure.

Bsk hope you are enjoying your break with Dad!!!
Willis hope you are ok.!!
Lynn How are You ?????

Take care everyone big hugs and sorry for being a misery on a bank holiday as well. XXXXX
reply | back to forum

Date: 26.08.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Aww poor you Marlene, if you are not walking correctly then you may be putting strain on your hip and it might settle (I hope so) you have enough to contend with. Have you tried rubbing something onto hip, I think voltarol is pretty good. Just take things easy and get your feet up.
speak later xx
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Date: 27.08.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Hello ladies,
Blood was up to 12, so they are not giving me any iron, don't they scare you when they ring and say 'there is a problem'....
Rhona Aviemore sounds lovely, I have just passed it en route to Dornock in the past. Dornock was lovely too, as you say beautiful clear air. There was lichen growing on the trees. That is supposed to mean extra clean air, I think that is what the guide said. I love Scotland. I would like to go to the Tattoo next year.
Hope your daughter got back safely and am so glad you had a super time.
Marlene I hope you don't need surgery too! You have so much to cope with at present, nice to hear hubby has pain relief though.
I do hope things start to get better for you both.
Isn't the weather great, I'm so pleased we have had a better year it does make a difference.
Hugs to all. X
reply | back to forum

Date: 27.08.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hello everyone, back from my long weekend with a cold but I had a lovely time. Hope you are all doing ok? Will post when i feel a bit better. xx
reply | back to forum

Date: 27.08.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Nice to have you back bsk. I hope you don't have another cold, I thought with you being off the Enbrel it would have put a stop to them, best increase the vitamin C. My throat is a bit annoying tonight, not nice.

Meant to say Marlene, that's good to hear hubby is getting a bit relief and I hope you are feeling a bit better.

That's good about the blood Emm, mine has never been that high. Liver and black pudding is good for iron, I should really try and eat some lol.

Take care and sleep well. xxx
reply | back to forum

Date: 28.08.2013
From: Lynn

Subject: Re: New thread for Rhona bsk and Marlene

Hi ladies
Sorry it's been a while I'm still struggling on I'm back on my humira monthly and 3 weeks after my first injection my wbc was below 3 so I'm thinking its not going to work I took my 2 nd injection and all I can say is I feel terrible I have a suspected urine infection,sore throat,sore ears ulcers all over the roof of m mouth I'm going to do my bloods in 2 weeks and if they r still low I'm not taking another one I feel worse when taking them I would rather suffer the pain.

Hope all you ladies are coping and feeling better x
reply | back to forum

Date: 28.08.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hello Lynn, lovely to see you on here but sorry things are not good for you. I'm off my enbrel because of neurological symptoms. At the risk of upsetting people on anti tnfs, I'm beginning to think these drugs are just not good for you. Am surviving on steroids at the moment, not great but waiting for an appointment with a neurologist. Supposed to be 'urgent' but no sign of it yet.

Rhona, did you have a good time with your daughter? I'm feeling a lot better today after a decent sleep last night.

How are you doing Marlene & Emm?
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Date: 28.08.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Lynn, That's a shame that that you're still not doing so good. Perhaps it will take a wee while for the humira to kick in but if it is making you feel worse then it's not worth it.
I don't usually get sore throats but just now my throat is feeling horrible, like it is closing in and choking me.

Yes, had a lovely time with her bsk. I think I did a bit too much though and suffering now.

Take care everyone. xxx
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Date: 30.08.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Being off the enbrel is starting to cause me problems. My knee has flared and my wrist and ankles and am up on the steroids again. Very impressive service from NHS this morning. Phoned my nurse and left a message telling her what is going on. Ten minutes later my consultant rang me with a plan to help. She says my pred dosage is so low I'm virtually untreated - which of course explains a lot. I've got to ring on Monday if I'm not better and they will have a look at my knee. Amazing!

How are you all doing?
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Date: 30.08.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

That's a good response bsk. Truly Amazing!
How many steroids are you taking? It is nice to know that you will get help on Monday if still in discomfort.
Take care and good luck. Hugs.
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Date: 30.08.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

Thank you Emm! I'm only up to 10mg for two weeks then dropping back down to 5mg over the next two weeks. Got a bad throat too so am lying low this weekend. Plan to do a lot of reading!

Good to hear you aren't anaemic.

Marlene, how are you and how is hubby?
Rhona, what's going up your way?
xx
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Date: 30.08.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Bsk, what a quick response that is exactly how it should be. Glad to hear they will help you on Monday if need be. I am also laying low and sofa surfing this week-end. I am still suffering it is the OA so hey ho in for a penny in for a pound.
I am so stiff in the mornings it takes me ages just to get out of bed. Then an hour for the painkillers to work. So I am a bit snappy and miserable at the moment. My hubby is doing well with the new Meds thank goodness only a couple of weeks until his surgery.
Bsk take care have a lazy week-end whatever you don't do will be waiting on Monday, because I bet just like me you don't have any Fairies living in your house LOL. xx

Hope you are feeling better Rhona at least you are hurting for a good reason XX

Lynn sorry you are feeling unwell take care xx

Emm hope you are ok xx

Willis I hope all is well with you xx
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Date: 31.08.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

That is impressive bsk. How do you manage it? I hope your joints are a bit easier with the increase in steroids.

Glad to hear that your husband is getting some relief and not too long now for his operation. You will be glad when it's all over Marlene. At lease there is light at the end of the tunnel now.

I'm not too bad at the moment although my feet have been hurting. My throat is a bit better now but the same thing happened last week after I took the methotrexate, that's a couple of times this has happened so I have cut the dose down and if it happens again this week then I will know for sure that's what's causing it, probably because my 'B' cells have been depleted with the rituximab and now more prone to infection.

It has turned really quite cold here, it was raining earlier but I see the sun has come through, I think it is just teasing me but I hope it stays for a wee while, not looking forward to the winter. Haven't the nights started to close in a bit.

Hope you are alright Lynn, Emm & Willis.

Have a good weekend everyone. xx
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Date: 31.08.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Sorry to hear things are still tough for you Marlene. do you take your painkillers before you get out of bed? I do sometimes. Two weeks will go quickly and at least you can have a rest whilst your hubby is in hospital. I hope it goes well.

Rhona, have you spoken to your nurse about the Mtx giving you a sore throat? They might want to do a blood test.

It's been beautiful here but I am laid up. Got a bad throat still but steroids are kicking in and helping my knee. Shoulder not great though. oh well. I;m going away at the end of next week so want to be well for that.
xx
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Date: 31.08.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Sorry to hear your throat is sore bsk. Where are you off to next week? I will get my blood checked next week and have hospital in less than 3 weeks.

I hope you are a bit better today Marlene. xx
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Date: 31.08.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Off on Thursday. Glad to hear you are getting some bloods done.
xx
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Date: 02.09.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

It suddenly dawned on my last night my 'cold and flu' symptoms are a return of RA symptoms that have been suppressed by the Enbrel. Been feeling as if I'm coming down with something for quite a while but not actually got anything. Duh!!
reply | back to forum

Date: 03.09.2013
From: willis

Subject: Re: New thread for Rhona bsk and Marlene

Morning all
well a quick hello before I get ready for work. I think I'll be finished with work on 13th! then just consult in when needed! looking forward to it but trying to think of what i can do instead as boredom and me are not a good mix.
got a surprise on saturday - appt for rhuemy nurse came through to me and there was me thinking i'd have to argue with hospital to get one ;) think steroid jab from march is wearing off as feeling the pain more but stiffness not as bad as it was! im assuming this is the humira doing it's job. bit sad when you look forward to six monthly steroid injections!
Bsk hope you feel better soon.did the doc tell you to up your pren tablets then?
hope you all have a good day xxx
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Date: 03.09.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi Willis, sorry I've lost track of threads - are you giving up work completely? You'll sound find something else to keep you occupied, I guarantee!

I love my steroid jabs - sad but true but the one I had recently didn't help as much as I'd wished so my rheumy doubled my pred for 10 weeks, dropping down over another two weeks. I'm due to see her again at the end of the month so can discuss things fully. Still waiting for my 'urgent' neurological appointment! Off on holiday on Thursday and slightly worried how I will cope with my knee as it is quite rural where I am going. Knee support, walking stick and painkillers I suspect!

Hope you get your jab soon.
reply | back to forum

Date: 03.09.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Hello ladies,
I am having a bad day today so popped in to get some sympathy I suppose!
I have a terrible bad lower back pain and a bloated feeling, not got diarrhoea but a feeling of needing to go!
Had the back pain for ages now but it's worse today. I have put the heating on as I went so cold and yet it is quite a nice day.
I am fed up with feeling ill. We have enough to put up with and getting something extra it is NOT NICE.
I feel frustrated and seem to want to do things when I know I am not able too.
I even think I may pop into bed until this goes away, I hope it does go away!!! Still be stuck with all the other rubbish that goes with RA though.
UUUUUGGGGGGHHHH? Wish I was normal. I would love to come back as a healthy person for my whole life.
Gosh I had better go or I will have everyone depressed.
Enjoy your break Bsk, hope your painkillers, stick and supports get you through and you have a good time. Hugs to all.
reply | back to forum

Date: 03.09.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Sorry to hear that you're not feeling so good Emm. Poor you. Have you made an appointment to see the doctor? It is hard when you take something else on top of the usual pain but hopefully it will soon pass. I get days too when I get so fed up with everything but then the next day can be a bit better and you do seem a positive person so better days are round the corner, so try and keep your chin up. Hugs to you too.

I am sure you will pass your time being a lady of leisure Willis and you should feel the benefit from it. Has your husband recovered now?

How are you Marlene? I hope your pain has eased off. Is your husbands operation next week?

Lynn and bsk - hope you are both doing alright.

xxx
reply | back to forum

Date: 03.09.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Do you think you might have a kidney infection? You sometimes get backpain, the shivers and bloated feeling with it. Don't leave it Emm, try and see the dr tomorrow.
reply | back to forum

Date: 04.09.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, well my pain is not improving it is the OA so I am trying to deal with it the best I can.
I hope you ladies are all feeling well!! Emm I hope you are feeling better.

Hubby in for op next Tuesday!!

My neighbour came laden with Victoria Plums so for the first time I have made Jam and I have to say it is lovely. I also made Plum crumble and have frozen it ready for the cold winter days. The country living has grabbed me with both hands.
We have planted our first pear tree a present from our son. We are going to buy some more fruit trees. We have a gooseberry bush Red and blackcurrant bushes. Oh yes and a lovely glut of Rhubarb crumbles in the freezer. They will make me a country girl yet LOL.
At least this is all taking my mind off the pain.
I haven't been posting as you know Bsk I shut myself away a bit I know I shouldn't but that is just my way.
Rhona hope you are well!!!!
Any way take care everyone and big hugs all round XXXXX
reply | back to forum

Date: 04.09.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Sorry to hear you haven't been so good Marlene. Tuesday is not long now and at least the sooner it comes the sooner it will be over. I hope everything goes well. My joints have been sore too, i think stress plays a bit part.

How lovely of your neighbour coming laden with plums, would you believe i was sitting eating a plum as i read your post. I think i will come for some of that lovely rhubarb crumble, it is one of my favourites, especially with piping hot custard.

Beautiful day here so i should make a move and get outdoors.

Hope everyone is doing alright. xxx
reply | back to forum

Date: 04.09.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

Plums lovely but I'm away for two weeks tomorrow so expect mine will be over ripe by the time I get back!

Hope you all take care and best of luck for your husband on Tuesday Marlene.

lots of love to my wonderful friends on here.
xx
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Date: 04.09.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Hi everyone,

Have a lovely fortnight break Bsk, I hope you enjoy it and get around reasonably well.

Marlene, Tuesday will soon come around now, I wish your husband the best and hope everything goes smoothly.

Rhona, I am stressed too and I feel everything has gone haywire at present. My pain is not as bad as yesterday and managed a good riverside walk today. Still something not right though I feel.

Hugs for now x
reply | back to forum

Date: 04.09.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi everyone, lovely to read your posts.
BSK have a fantastic break you well and truly deserve it.
XXXXX
reply | back to forum

Date: 04.09.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Have a Good Holiday bsk. Will miss your posts. xx
reply | back to forum

Date: 04.09.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Thank you! I will report back in due course.
xx
reply | back to forum

Date: 06.09.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Morning ladies, well I have given in off to the Drs at five to-day. I think I have a chest infection as I feel awful.
Hope you are all ok post later to-day xx
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Date: 06.09.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

What a shame Marlene. If you have then I hope you get something to clear it up quickly. I think all the stress you have been under has possibly contributed to it. Take care and rest. Hope all goes well on Tuesday for your husband.

I'm ok, just the usual stresses and more but we have to struggle on. xx
reply | back to forum

Date: 06.09.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Rhona, well I am on steroids and anti-biotics. My Gp said you must feel terrible do you know you have a temperature. I'm not shocked I do feel ill.
He checked my hips and suspects Trochenteric Bursitis. I think I spelt that right any way if the steroids for my asthma doesn't help he will give me a steroid Jab. They do surgery but not if I can help it.
I have to be well for when my hubby gets home.
The Gp said I must be exhausted understatement to say the least. He did say if you feel fed up come and see us. I don't want to go down that road either if I can help it!!!!!

Have a good week-end everyone and take care.
reply | back to forum

Date: 06.09.2013
From: willis

Subject: Re: New thread for Rhona bsk and Marlene

Hi Marlene, sorry to hear you're not well. I hope the anti biotics kick in and help. you're hips must be so sore you poor thing. puts my pain in perspective!
I had the same feeling when husband went for his op - i don't know how i did it but i got there, now i'm the one needing looked after again lol
after blood tests, docs are sending me for more as wants to check B12 levels and iron - no wonder i've been feeling so weary! my diet is, well, rubbish so any vitamins or that he can give me all the better.
anyway, hope you feel better soon and have a good weekend
if not on here before then I wish your husband well for Tuesday.
hi to everyone else, hope you're not too bad.
this weather is changing and my bones can feel it already!

have a great weekend folks.
lots of hugs and love
reply | back to forum

Date: 07.09.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Sorry to hear that Marlene, it's just as well you went today. You should feel better when the drugs kick in but you must rest this weekend and get that hot water bottle filled.

I get B12 injections Willis, they do help the tiredness. It turned very wet here tonight, was horrible driving in it.

Take care xx
reply | back to forum

Date: 07.09.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Rhona and Willis thanks for the posts. I have my hot water bottle and I am snuggled on sofa. I still feel awful but I am sure in a couple of days I will be ok.
The weather was good all day but the rain is here now so roll on the extra pain LOL.

Willis so glad your hubby is on the mend. Sorry you feel unwell and the extra Vitamins will soon have you feeling better!!!

I am relieved my hubby will be having his op on Tuesday having had the same op I know exactly what pain he is in and its not good.

Take care and have a good nights sleep XXX
reply | back to forum

Date: 09.09.2013
From: willis

Subject: Re: New thread for Rhona bsk and Marlene

Hi all,
marlene best wishes and thinking of you and husband for tomorrow.
I'm ill! I cannot believe it! well, of course i'm ill i've got Arthur but i mean i feel like i've got a head cold thing or something, never felt like this in over 2 years since getting flu jabs. so tired and weary and just well yeuk
well just thought i'd share that with you all lol
not quite sure what to do with myself as i can't sleep - just fighting the depression i can feel creeping in , that and the crying i'd itching to do.
oh dear listen to me bleating on - sorry guys just needed to sound off
well me away now, hope you all not too bad
xxx
reply | back to forum

Date: 09.09.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Willis, sorry you are feeling unwell. The Arthur is bad enough without anything else. I am also unwell chest infection and a Bursitis on my hip. The anti-biotic and steroid has my stomach so upset. So I know how fed up you feel. BIG HUGS xx
Thanks for the kind thoughts about my hubby he is feeling nervous to-night but I just remind him this time tomorrow it will be over and done.

I hope you feel better tomorrow and if you feel like crying go for it. Sometimes I find it helps to let it all out.
Nite Nite and sleep tight xxxxxxx
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Date: 09.09.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Good luck for your husband tomorrow Marlene, I hope everything goes well. I hope you feel better soon. Life can be a bitch at times.

Sorry you're not so good Willis, sending you both a big hug xx
reply | back to forum

Date: 10.09.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Rhona, left hubby waiting for surgery lovely staff and hospital so I feel a little better. Spoke to the surgeon before I left. I am hopeful that his surgery will be done at lunch time. Going back at six so I will post and let you know how he got on.
I am glad to say I feel quiet a bit better to-day. I need to be well to be able to look after him when he comes home. Maybe with some luck after hubby has recovered things will settle down for a while. Forever hopeful.
I am going to do my ironing to-night and make some cherry plum Jam. I have the house to myself to-night as mum has gone to my brothers.
Well I will say bye for now and will post later.

Take care all XXXXXX
reply | back to forum

Date: 10.09.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

I do hope things have went well Marlene and glad to hear that you feel a bit better. When all this is over and your hubby has recovered you might be able to think of a wee holiday in Fuerteventura, would do you both the world of good. I hope you sleep a bit easier tonight and that things are now picking up.

Take care xxx
reply | back to forum

Date: 11.09.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Rhona, well my hubbies operation went well to-day after being cancelled yesterday. He seemed comfortable and was quite chirpy so I feel so much better.
Now he just needs to get well again slowly.
I am going to get a good nights rest.
I am beginning to feel much better in myself as well. So maybe things will just keep improving fingers crossed.
Take care and thanks for the posts xxxxxxxx
reply | back to forum

Date: 12.09.2013
From: willis

Subject: Re: New thread for Rhona bsk and Marlene

Morning Marlene
WEll that is good news that op went well and that you are on the mend.
I'm alot better today too but decided not to take my humira last night just in case.
blood tests came back fine so maybe it was my being run down that was causing it all
have nurse on saturday so i'll see what she has to say.
hope you have a good day today and hubby is improving
hi to everyone, hope you are all well too
xxx
reply | back to forum

Date: 12.09.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

That is good news Marlene. It could have been the stress of it all that was making you so sore, perhaps now it is over things will settle down. I hope it isn't too long before your husband is home.

Take care everyone. xx
reply | back to forum

Date: 12.09.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Rhona, how are you? The weather has certainly turned for the worse and the evenings are getting dark early sure sign winter on it's way.

My hubby is doing ok so relieved he is so much more pain free after his surgery. Onwards and upwards from now on.

I am feeling much better in myself apart from the oa pain but I can deal with that. Steroids and antibiotics seem to have done the trick.

Rhona I would love a break but it will have to wait until after the new year. Will you be having a winter break?
How are your girls good I hope.

Take care Rhona xxxxx
reply | back to forum

Date: 13.09.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Hello ladies,

I am so pleased things are going well for your husband and yourself Marlene, you have both had a rough time.

I have had a lot of stress because my daughter had a scare, she had an ovary and fallopian tube removed because of a growth but luckily it was benign!!! It was Wonderful to get the news as I was so worried.

I have not been so good either, I had tests but all were clear so it may be diverticulitis pain, which I was diagnosed with about 6 years ago. It doesn't normally cause me much problems but maybe all the worry and stress causes it, I don't know.
It has not settled down yet, so am not venturing very far at present.
Luckily my daughter's mother in law stayed with them and did household chores to help out. I do feel guilty that I am not fit enough to fly over but would probably be more of a hindrance than a help.
She had surgery not keyhole as was planned because of the tumor and so will take longer to heal. But she is doing well.

I am wishing you all well and big hugs for all. X
reply | back to forum

Date: 13.09.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

That is good news that your husband is in a lot less pain Marlene and so good that you are feeling better too. I am ok although my ankles are quite sore. My daughter went to the opticians yesterday and has passed her eye test for driving, who would have thought it before she had the operations. Where would we be without the fantastic surgeons.

Sorry to hear that your daughter had a scare Emm but so glad to hear that all is clear. Stress would have caused you to feel worse, I know it affects me that way. When you feel a bit better you will be able to go and see her.

Take care and have a as pain free weekend as possible. xx
reply | back to forum

Date: 13.09.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Thankyou Rhona,

Fantastic news for your daughter too, driving will be a bonus to her.
I have had a real lazy day today, I actually watched an old John Wayne cowboy on TV today and thoroughly enjoyed it. Took me back to being a child and watching them with my dad. I always felt sorry for the indians and wanted them to win.

I hope to be more productive tomorrow.

It has been dull today and I am not at my best on these type of days, think a bit of S.A.D. Comes into it.

Bye for now and wishing everyone well. X
reply | back to forum

Date: 14.09.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, Sorry I haven't posted hubby came home yesterday afternoon. He is very sore but coping very well Bless Him!! I am so glad he is home again. Last night we just chatted and laid on the bed together and I could feel myself distressing.
Best foot forward now!!!!

Emm, what a worry for you so glad the results were good for your daughter bless her heart. No wonder you have been unwell. xx

Rhona, what great news for your daughter. You are right we would be lost without our NHS I know we all moan at times but thank God for them. My husband had first class treatment and all his staff were so lovely.

I suffer with SAD so I am dreading the dark nights creeping in just another thing to deal with LOL.

Well ladies enjoy your week-end and take care xxxx
reply | back to forum

Date: 14.09.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Thanks Marlene, It was such a shock for my whole system.

Do you know she was examined initially, scanned two days later, saw the aneathaetist day after and operated on two days later and now on the mend. That IS great treatment, Switzerland, no time to get too worried. Wish it was like that here!

Oh I have a lovely mental picture of you and hubby lying together de-stressing. Thats lovely.
Good luck with a speedy recovery for him and less worry for you Marlene.

Have a lovely week-end too.
Hugs to all my forum friends. X
reply | back to forum

Date: 14.09.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Marlene & Emm,

That's good that your husband is home now Marlene and I hope he makes a good recovery. That was nice you relaxing with him last night, just be careful not to do anything to energetic yet, lol.

That was very impressive Emm, wouldn't it be good if it was the same speed here getting things done. I hope she is feeling better now. You will feel easier in your mind now that it is over.

I think we all must suffer a bit with SAD, today is brighter here but I think we have to get really strong winds tomorrow. I am not looking forward to the dark nights.

Have a good weekend ladies. xxx
reply | back to forum

Date: 15.09.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies,Wow Emm how quick was that no time to think about it fantastic. My daughter-in-law has found a lump on her boob and has had an examination now has to have a scan still waiting two weeks later.

I am sofa surfing now hubby sleeping and mum up the village hall helping out with the washing up. I am making the most of every bit of me time to put my feet up as my hip is healing well. It has been so painful so I am trying for a change to do as I am told.(LOL).

Its seems we can say goodbye to the summer!! It has been sunny for a while but the wind is whipping up and it looks like rain. I hope the weather is not too bad where you are Rhona I did see the forecast for Scotland on the news last night.
My son is 40 today.
I can't believe where all the years have gone my youngest will be 40 next year. Oh dear I must be getting old!!!!!
On a brighter note I hope BSK has had a good time.

Take care everyone big hugs to you all xxxxxxx
reply | back to forum

Date: 15.09.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Marlene,

I think the worry and stress I had have set a few things off with me, pain on my left side is still with me, I may pop to GP tomorrow as it has gone on for about 3 weeks.
Arthritic probs too.

We have had a real windy day with rain too. Yes it is the start of autumn, sadly. But we have had a good summer so that was nice.

I am so pleased your hip is mending! You have had a lot of stress too, I do hope your daughter- in- law is OK.

Hello Rhona, hope you have had a good weekend and am sure Bsk will have enjoyed her country break.

Regards and hugs.x
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Date: 15.09.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Marlene, I hope your daughter-in-law will be OK, it seems to be one thing after another with us but things will work out in the end. Don't be doing too much now that you feel a bit better. Your Mum must be settling in well to the village life if she is at the village hall helping out.

It has been a horrid day here today, wind and rain and getting really quite chilly.

Sorry that you are still sore Emm, it probably is a good idea to see the doctor about the pain in your side. Hope all is ok.

Sleep well and pleasant dreams. xx
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Date: 16.09.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, well its a cold Monday here and the heating is on. My joints are hurting so much hey ho winters back.

You are both right it is so much to deal with without a break in between but as always we will get through it all.

Keep wrapped up ladies xxxxx
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Date: 16.09.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Marlene, It's the same here, very cold and windy and I haven't been across the door today. I am feeling really quite sore. My shoulder is really hurting and it is causing pains to shoot through my head every now and then and my poor ankles are hurting. I am feeling rather scunnered today. Sorry, I will be depressing you all but never mind, tomorrow is another day and perhaps things will be better. I have just remembered, I am going to get my hair done tomorrow so perhaps that will brighten me up a bit lol.

Did you go to the doctor Emm? I hope you got on alright.

Take care everyone. xx
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Date: 17.09.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hello everyone! Back from my holiday last night, had a fab time in France staying with some friends there. Ate and drank myself silly so now have to go on a diet. Weather there great most of the time, not like here I gather!

How are you all doing?
xx
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Date: 17.09.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Hello Ladies,
I went to the doctors yesterday after having nasty symptoms for nearly three weeks. She gave me buscopan, but last night I was in so much pain I went back today and saw a different doctor who prescribed 2 different antibiotics, 1 for the chest and 1 for diverticulitis as he thinks it may be an infection.
I was diagnosed with this in 2009 but it has not been a big problem so if this does'nt work I have to have another colonoscopy!
So I have 3 illnesses, diverts' bronchiectasis and RA. To manage.
I do get scared at times with all the medication. So tomorrow I have to ring RA nurse to see if I should take methatrexate whilst on these antibiotics.

Bsk , so pleased you had good weather and a good break in France. I was going to classes last year for French.
Rhona don't worry I am also having a moan. Hope you improve soon.
Going to pop heating on now as it is chilly.

Take care all. X
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Date: 17.09.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Good to hear that you had a fab time bsk and a bonus getting the good weather. I am sore today but not as bad as yesterday thank goodness. Went and had my hair cut and coloured this afternoon, its a bit shorter than I am used to though, I will feel the cold on my neck now.

I hope the antibiotics clear your infection up Emm. RA is enough for anyone to deal with without anything else.

Going for dinner tonight with the family.

Hope you alright Marlene, Lynne and Willis. xx
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Date: 17.09.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, firstly nice to have you back BSK so glad you had a lovely holiday and the weather was good to you. Don't worry about the weight it will soon go. I always say putting on weight is a sign of a great holiday.LOL

Emm, I hope you get on top of that infection you poor girl. I am sure you are a tough cookie and won't let it get to you. Just got over chest infection and Bursitis myself so I know how miserable it can make you. Big hug xx

Rhona, I am also hurting everywhere sure sign winter is here!!! I always find going to the hairdressers makes me feel better also. Just a bit of me time is good for us all.

Hubby coming along just fine fingers crossed it carries on. Booked our flu jabs to-day can't believe it is that time of the year already.

Lynne and Willis hope you are both OK
XXXXXXXx
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Date: 18.09.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies,

I hope you are all well today. My brother has also made an appointment for his flu jab Marlene, I didn't know they did them this early.

I got a call last night from my daughter in Spain, she is worried sick, she went to the hospital yesterday as she was having pain in her pelvis and they have found a tumour on her ovary, she was going today for blood tests so looks like they will have to remove whatever it is. I now know how you must have felt Emm.

I have the hospital this afternoon for a review on the rituximab but can't be bothered with it now.

Take care xx
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Date: 18.09.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Rhona, you must be worried the poor girl. If it is any consolation I have received treatment in Spain and I have to say it was first class.
Big hugs for you both xxxxxxx

Rhona you must take care of yourself your daughter would be very upset to think you were neglecting yourself. Maybe you could fly out to see her later on. X
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Date: 18.09.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi Rhona,

Marlene is right, you must look after yourself first and then you will be able to look after your daughter. Go for your review and come and tell us what they said later.

Impressive they have picked up on the problem so early and I've heard health care excellent in Spain too. I wish her all the best. I had 'something' on my ovary many years ago, which turned out to be something benign so I hope this is the case for your daughter. Sending you very big hugs ((((()))))
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Date: 18.09.2013
From: Maria

Subject: Re: New thread for Rhona bsk and Marlene

Hello Rhona, I'm so sorry to hear about your daughter, but doctors in Spain are really very good. She will be well looked after. My heart goes to you and the family. xx
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Date: 18.09.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Marlene, just catching up on posts. Pleased to hear your husband is recovering well from his op. Sorry you are feeling a bit rough yourself though. My hands are very painful, probably from travelling though I didn't carry my case as I got assistance all the way. Got my neurological appt on Sat.

Emm, how are you dong?
take care everyone. xx
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Date: 19.09.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Thanks Bsk glad you had a good break. I hope your appointment goes well. Bsk we have all been going through so much this year what is going on? . Emm with her daughter now Rhona how horrible for them. My daughter-in-law still waiting.
On the plus side we all seem to cope very well my son always tells me every time I have a crisis and come out the other side I become stronger. I think he is right.
Glad to say hubby still doing really well and he is talking about going back to work soon always a good sign.
I am sore this cold weather is to blame LOL.

Well take care and wrap up I just wore a little jacket the other day and I was cold all the time we were out. I won't be doing that again.
XXXXX
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Date: 19.09.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Hi ladies,

Today I changed my doctor, after I was called today by the receptionist cancelling my blood test for a week as the phlebotanist is sick and they do not have a stand in.

A few months ago they had no nurse for a couple of weeks when she was sick.
So I have joined another in the town with 5 regular doctors and 4 nurses.

I am still having side pains and have my assessment at the new doctors on Monday so I will see if they will get me some investegations underway.

Rhona I am thinking of you going through the same as me with your daughter and I hope she gets similar, speedy treatment like mine did in Switzerland. It is a worrying time for both of you. I wish her well.

Marlene, amazing that your hubby is talking of work, nice for you both to get back to normality.

I noticed in the surgery that flu jabs are out and like you it makes us realise how we are getting into Autumn!!

Its 10.00 pm and I am off to bed. I am yawning tooo much, it makes me more tired.

Good luck everyone with all our problems, I will be thinking of you all and hoping for good results all round.

Goodnight and God bless, everyone. X
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Date: 20.09.2013
From: willis

Subject: Re: New thread for Rhona bsk and Marlene

Good Morning everyone
well today was to be my last day at work but turns out it is now next Friday :) gives me time to clear my desk without rushing. Quite looking forward to it I must say.
thinking of moving back home to scotland in the new year :)
i'm glad and sorry to hear of your ailments or relatives and hope it is all sorted out for the best result very soon.
Emm I don't blame you for changing doctors it's not any good for your condition if things get cancelled.
i had a steroid jab last week and that is starting to take effect so smiling a little more again lol
hope you all have a good day and hopefully the weather will be a little warmer over the weekend as predicted.
xxx
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Date: 21.09.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Willis, I hope you enjoy retirement I love it. Lots of me time. Scotland is a real treasure so living there must be so peaceful. I wish you all the luck if you do decide to go back.

Emm, good for you sometimes a new Dr pits a whole new perspective on everything. My new Drs are great. I had to change due to moving. I think a new set of eyes and ears can be good for us.
Rhona I hope you are ok xx
Bsk hope you are ok also.

Yesterday woke up to a flooded kitchen the hose had gone on the dishwasher. GREAT start to the day but all dried out now!!!

Try to have a good week-end XXXX
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Date: 21.09.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Hi all, Afraid I am still moaning, I have a rash now! Don't know if its the 2 lots of antibiotics but have stopped taking them.

Still got the side pains and back ache. But don't have my initial appointment at new doctors till Monday at 5.40.

My scalp feels sore too. Gosh I am sick of hearing myself moan on.

I would just love a few years of not having any problems! I never seem to be away from doctors, but never seem to get sorted out.

Marlene you are lucky to have found a good surgery.

Willis where in Scotland are you from?
I am sure you will enjoy retirement too. I left early due to my health, but at least when we are ill so much we don' t have going to work to worry about.
Did you have systemic steroid jab or one in a particular joint?
They do work like magic, it's a shame they have to wear off.

Keep well all. X
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Date: 21.09.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Glad to hear your husband is improving Marlene and it is a good sign that he is wanting back to work but tell him not to rush it butI am sure you already have. Hope you are doing ok and not too sore.

How are you bsk? Hope all is ok at your end.

Sorry to hear that you're not so good Emm, I do hope you get some help at the new doctors on Monday. You really have to find out what is causing the pain in your side.

Are you moving back to Edinburgh Willis? Are you sure you want to come back to this wet climate lol.

Thank you all for your words of encouragement regarding my daughter. The consultant seems certain that is not cancerous, he has called it a teratona, think it is the same as a dermoid cyst, (think that's what it is called) When my daughter heard that she was so relieved but also quite horrified, as seemingly they can have hair, bone, nails etc growing inside them she has to get it cut out so hopefully it won't be too long to wait.

I was at the hospital the other day and have been given a date next month for my next infusion.

Take care everyone and enjoy the rest of the weekend. xxx
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Date: 21.09.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Rhona, that is good news. I hope she gets the op very soon.

I saw the neurologist this morning. He was a complete prat. He didn't know anything about Enbrel and it's side effects and was rude about my consultant referring me, saying she could have ordered the mri herself! I'm sure she could but think she was being thorough. I've got to wait for that as it is the only way to tell if there is a problem. I'm reassured to some degree as he thinks I would be unstable on my feet if I had MS. So that is good. But he was a smug git.
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Date: 21.09.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

What a cheek! there was no need for him to have that attitude, I can't stand people like that. At least he has reassured you so that's good. Didn't know they worked on a Saturday at your end of the country, don't think they do that here.
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Date: 22.09.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

I think it is because they are so behind. I gather two hospitals have merged their neurology so it's causing problems. I took the Saturday appt as it was the quickest.

I'm so sick of hospitals!
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Date: 22.09.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Totally agree, SICK of hospitals.

Isn't arthritis a SOD to treat, I never seem to get mine under control. I don't think any of the treatments I have had have much effect!

Up early as rash is worse and thought of going to urgent care ( as it is Sunday)

But as am between doctors thought I may wait another day! Maybe silly, I don't know. Also thought of trying Piritron. Oh I get so confused as to what to do for the best!

I feel a nuisance.

Down and Gloomy today!!!!
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Date: 22.09.2013
From: willis

Subject: Re: New thread for Rhona bsk and Marlene

Morning All
Oh Emm sorry to hear you feel so bad. I think if you start to feel any worse then you should do the urgent care bit - it might get you some relief for a sleep at least.
Rhona - good that your daughters prognosis is positive and will be sorted soon I hope.
bsk - I think the prats are like the old green card system - every hospital has to have one and you got him - if you have to see him again - get the results and then ask him if he realises what a prat he is or how unprofessional he is - go on - have some fun :)
When I went to the pain clinic a year ago i ended up writing a letter of complaint and cancelled all other appts they have for me - i was having a flare at the time so everything seemed worse but he was a class A prat - it was the 'smirk' that did it for me -so i complained about him. Doesn't make any difference as he'd be the same with everyone else i'm sure, but i know he heard about the complaint - oh and the receptionist got a mention as well :)
Edinburgh is were i come from originally but thinking of west coast when returning. Rhona I'm struggling with the decision to be honest as yes the weather is food for thought but, Scotland is home and well.... I know I want away from were I live just now and home is something I never thought I'd be able to go to when I came here in 92! Who knows what will happen, still got to 'pretty' the house up and then got to sell - the market isn't too good just now so...
We'll see what the future brings but I'm looking forward to not having the struggle of getting into work - that'll do for starters :)
Today will consist of cleaning out the rabbit, sorting the Laundry and maybe even getting the grass cut.
Hope you all have a good day xxx
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Date: 22.09.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Morning Ladies, well the sun has come out so that's a good sign.
Everyone is having so many problems!!
I hope come next week some of them will subside.
My husband had a rude Dr the first time he was admitted to hospital but he wasn't ready for me. I can be rude as well. When I said there is nothing you can tell me I have already been there and worn the Tee Shirt he never looked in my direction again. Yes he may well of been good at his job but I just cannot abide RUDE people.

Well I am in so much pain again this morning I haven't moved from the sofa yet and I don't think I will LOL XX

Take care everyone GREAT BIG HUGS FOR YOU ALL XX
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Date: 22.09.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Willis, hi, Although I have all my bits and pieces going on I have been quite productive this morning. I have made the bed up with a clean set. Ironed, vaccumned and been to Next to get a new sheet as I like theirs.

Decided to try and take my mind off it all for as long as I can before my energy gives out.

Rhona, I am so pleased your daughter has had good news and goes on to be treated quickly.
It seems to be common to have overy problems, my friend had hers removed years ago. My daughter is still a bit uncomfortable with her wound as it was not keyhole. But otherwise is good.

Marlene enjoy your sofa day and may your pain subside quickly.

Hugs too. X
reply | back to forum

Date: 23.09.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

He! He! your posts cheered me up but I had to speak to him again this morning as, when I phoned up to make my mri appt, they told me it hadn't gone through on the system so I would need to speak to his secretary. Well, I was put through to an answer phone where the woman didn't say who she was so I googled my consultant, found a direct line and rang him. He said he didn't know what he could do about it etc. and it was another thing to add to his workload blah! blah! blah!

I lost it. I told him (screeching by this point) that his workload wasn't my problem; what did he expect me to do about it and I just want the scan done so I can get on with my drugs. He said he was being empathetic with me (really?) and he was just expressing his frustration at the system. So I replied that I was just expressing my frustration and this is not what I expected at such an eminent hospital! Then he went and sorted it out. Still don't have a date but at least I'm on the system.

Willis, I think the quality of life in Scotland outweighs the weather disadvantages. I have thought about Glasgow as my sister lives there but I'm so rooted in London it would be hard to move.

Marlene, I can't imagine anyone getting the better of you :) Sorry you are suffering so much.

How's the rash Emm?

Hi to everyone else!
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Date: 23.09.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

BRAVO BSK,,,,wow, how brave are you!
Ringing the consultant, wish I could be so forthright.
Brilliant
I know at times we wish we could go straight to the top and get some results, so well done you. Hope it does hurry on your apptmt.

I agree some things over the border do seem a lot better! But a move is such a big thing you have to be sure about it.

My rash is almost gone, thanks and I saw my new doctors this evening. Seem ok, not doing any tests yet about my side but will if further problems. Good thing is they will inject my joints if necessary as before I had to ring hospital and chase the specialist to get sorted, so that is good.
You may remember the last twice when my knee flared I had to do that and put up with it for weeks because my GP would not do them!

Hugs as usual girls. X
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Date: 23.09.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, good for you Bsk sometimes these people need to remember we are the ones in pain. They also need to remember more than anything we are human beings and not another NHS number.

Rhona so glad your daughters outcome is a positive one. I hope you are ok.

Emm good news you have a new GP and that rash is sorting its self out. Well you have been busy!! Try not to overdo things.

Hi Willis it is a biggie to move. I am a Townie but in January moved to the country. Thank goodness I love it.
Have a good evening and a good nights sleep.

I was just thinking I hope Lynn is ok!!!!
XXXXXX
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Date: 24.09.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

I bet he was sorry that he crossed you bsk. Perhaps it will make him think twice now before he snaps at people. My daughter was at our new doctor today and had a few things that she wanted to discuss with her but after about 5 mins or so the new doctor stood up making it clear her time was up and my daughter told her to sit back down as she hadn't finished. I asked her if she sat down again and she said she did, after letting out a big sigh. I had to laugh.

I was sitting at my laptop this afternoon and decided to book flights to go and see my daughter in Spain, so we are going over in a couple of weeks.

I think property is certainly cheaper in Scotland Willis, I hope you find somewhere nice if you decide to come back. I sometimes think I should move to the East as the weather always seems drier there.

Glad to hear that your rash is clearing up Emm and hope you feel a lot better soon.

Hope your pain settles a bit Marlene.

Are you alright Lynn?

Sleep well everyone xx
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Date: 24.09.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Your daughter sounds as if she is made of strong stuff Rhona! Pleased to hear you are going to Spain to see your other daughter. I'm sure you being there will be a massive support for her.
xx
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Date: 25.09.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Rhona, so pleased you are going out to Spain it will put your mind at rest and I am sure your daughter will be delighted to see you. Your other daughter seems well able to take care of herself and good for her!!! It is about time we as patients stand up for our selves. This is not the Dark Ages.

My pain is better I must say but the weather here is good at the moment I am dreading the winter!!!

My hubby is coming on so well he had is staples out this morning and has his first Physio on Friday. The nurse was so lovely this morning she also has had the same op so she was very understanding. He is so positive now so I am happy also!!!

Take care everyone xx
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Date: 25.09.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Hello girls,

Lovely to hear things are going well now for hubby, Marlene, the end of the tunnel is in sight for you both.
My daughter is doing well too. She is going back to work at the end of next week.
Rhona I am wishing your daughter the same result as mine has had and am so delighted you are able to go and support her. Unfortunately I have not been well enough to go to mine but she has had excellent support from her mother in law who stayed and did household chores for a week after her hospital stay.

I hope things pick up for us all now. I think we all deserve a few trouble free months, I hope we can all have less pain and more mobility and no more family worries for our loved ones.
We have all had a rough time lately.

Changing subject, I went to see the new Diana movie yesterday, didn't think it would be much good but it is all about her love affair with the heart surgeon. So was a bit different to the others!
There is one coming out 4th October I want to see which is set in Edinburgh called Sunshine on Leith. It looks excellent.
Had lunch out at a pub with my sister today and a bit of shopping after. It passed a drab murky day.

Hugs to all as usual.x
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Date: 25.09.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Emm, so glad you had some fun time with your sister. Pub lunch and some retail therapy sounds great!!

You are right Emm we have all had a rough time of it all ways. We certainly could all do with a break.
Sunday is my grandson's first birthday so we are all meeting at my sons for the afternoon. It will be lovely for us as my hubby missed my granddaughter's third birthday as he was laid up. I am looking forward to things being back to normal. We also missed my son's 40th Birthday Meal. My hubby was in hospital.

Glad to hear your daughter has recovered well.
Take care Emm have a good evening xx
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Date: 25.09.2013
From: willis

Subject: Re: New thread for Rhona bsk and Marlene

Good Evening everyone
well it's been a hype of activity on here the past few days ;)
I'm glad you all seem in good spirits regardless of the trials and tribulations going on.

I have two days left, getting quite excited. First job is to rest, rest, rest and then rest and the most i shall do it walk the dog and buy some groceries to make sure we still eat
I'm quite sure i'd just stay in house and not ever go out so will have to make sure i kick my own butt to move.

Rhona, there's you saying you have thought of moving to the east as it's seems drier over there and then there's even my own relatives saying that the west isnt' so cold!!! oh dear! think it's just a case of Scotland is cold and wet wherever you go.
I would be able to visit so many more people that i left behind many years ago and well, it's home so i think the decision is made it's just 'when' now.
We never know what is round the corner and we can plan as best we can in life but sometimes things are out of our control, I don't think any of us planned for Arthur to come into our lives but he did and he is a stubborn bugger to get rid of :)

if you are readers, a lady who just came to work with us in June, has written a book, well, poems actually - if you go on amazon and look for Amanda Hume - i just bought it on my kindle last night 4.12
She is a lovely spiritual lady, qualified nurse who now does health care training with us
she is so happy and positive all the time, it's lovely to see and work with someone like that, especially on down days :)

oh, just so you know, reading it will NOT cure your Arthritis - thought I'd better put that in just in case anyone thought is was a miracle cure like all these other posts i've been seeing recently xxx
keep well, lots of hugs xx
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Date: 26.09.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Good to read everyone's posts. I am pleased to hear that you are getting a bit relief at last Marlene and so good that your hubby is doing so well, you are well due a break.

Delighted to hear that your daughter is getting ready to go back to work Emm. I was reading about the operation my daughter will be getting and looks like it takes a month to recover, I hope she hears soon and gets it over with.

What type of work is it you do Willis? I hope you feel the benefit when you stop. Yes, Scotland can be cold and wet but I did read somewhere, that the East coast doesn't have any more wet days than some of the drier places in England, whether that's true or not I don't know. I don't mind the cold so much, it is the dampness I hate and I always feel worse when it's damp. I would like to live beside the sea, I would feel I was always on my holidays lol.

I hope you are alright bsk.

I better get to bed now, we have men coming early tomorrow morning to cut my trees down, you may remember that I didn't want to get them cut down while the birds were nesting. I will miss them but they are starting to take over the garden now and they are so high.

Take care everyone and sleep well. xx
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Date: 26.09.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Hi Rhona, yes it will be about a month since Rachel's op. She had a fallopian tube and an ovary removed.
Keeping my fingers crossed for your girls operation to go well too.
She was going back to work this week but needed another and starts next week.

Did you get the trees trimmed or cut back drastically? You feel cruel sometimes pruning, but it has to be done.

Nice day here after drab yesterday. Gosh it is almost October.

Hugs and a good nights sleep everyone. X
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Date: 27.09.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Morning all, I hope you all have a sunny day. I know October is looming. So pleased your daughter is recovering well Emm.
Rhona I hope your daughter gets sorted real soon.
We have to lop our trees what a job!!!!
Did some gardening yesterday, the garden is really taking shape now and the view from the kitchen window is lovely. We are going to thin out the end of the garden so we will also view all the farmers fields behind us.
Take care and have a good day!!!! xxxx
reply | back to forum

Date: 27.09.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Emm & Marlene,

We are having the trees chopped right down to the stumps Emm, they were so tall, around 25-30' the guys are still working away and my garden is a bit of a mess right now but the trees were starting to spread out and take over the whole garden and even touching the telephone wires lol. I love trees and greenery but it was the wrong choice, they were actually tiny conifers I got from Asds many years ago for 99p each and I didn't expect them to grow so tall and be so hard to control. We will build a wall where they were and still have privacy.

This is the September weekend and I think the weather has to be quite good, although it was a bit rainy here this morning.

I hope you all have a good weekend and not in too much pain.

Take care everyone. xx
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Date: 27.09.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Rhona, confire's are so hard to control they just grow and grow we have some in the garden although we have room we are removing them one by one. These trees caused so much trouble with neighbours in the London area you wouldn't believe. LOL I suppose for the ones that had no light it must of been a real nuisance.
I hope they clear up the mess for you. Hubby had physio and the were pleased with his progress. So that is a relief.

I hope the weather is good to us all over the week-end.

BSK are you ok?

xxxxx
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Date: 27.09.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi everyone, sorry I haven't been in touch the past few days. I'm ok thanks, sort of grinding to a halt as the steroids are reduced but am seeing my rheumy again on Monday. A bit of a waste of time to be honest as I don't think she'll do anything until I've had my mri.


I'm glad everyone is doing ok - sort of lol! You'll be so pleased with the light in your garden Rhona, when it's done. I've got five massive trees at the end of my garden but they have tree protection orders on them so can't be cut down. A wonderful haven for wildlife so I do enjoy them in many ways. They also give me privacy too. However, it makes the garden a tricky one as it's half sun half shade.

We are due a lovely weekend in London and I'm looking forward to it. I'm sorting out a lot of stuff in the garden whilst I can.

take care!
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Date: 27.09.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Bsk glad you are ok of sorts. I hope your rheumy does come up with something to help. When are you due your MRI?
I also want to do some work in the garden the week-end as the winter will be here before we know it. What a thought LOL. I'm not really laughing as the cold wet weather doesn't do me any favours and SAD will be looming with the dark evenings Oh what joy haha.
I love the trees we enjoy watching the black squirrels it is so lovely in the mornings. They are after the bird food. They can get to some of it but the are just as welcome as the birds.
Sunday afternoon we are at my sons his little one is a year old. I can't believe it is a year since I went to look after the little girl.
BSK take care not to overdo things in the garden. Have a lovely week-end xxx
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Date: 27.09.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

Haven't had a date yet Marlene. Will go down there next if something doesn't come through by Monday.

I don't think I've seen a black squirrel - they are all grey here, as you know!

Have a lovely time at the party on Sunday. Hasn't the past year gone quickly?
Have a good weekend yourself.
xx
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Date: 28.09.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Well Saturday evening and I am nicely shattered. Spent a few hours in the garden tidying up and putting all the tree cuttings together as we are thinking of having the family around Guy Fawkes week end. Nothing to much just a big fire, jacket potatoes, hot soup and a few fire works for the little ones. Weather permitting of course.
Sometimes I wonder what I am letting myself in for LOL. I will love it of course.

BSK I had never seen a black squirrel either there are also lovely Wild Doves here. I have never seen so many different types of birds either. I had to look on the internet to see what some of them were. Never to late to learn something new as they say.

Take care xx
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Date: 29.09.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies,

I hope you are all doing alright and enjoying the sunshine. We went to visit my brother today, he lives in Troon beside the beach, it was beautiful there today and lovely to sit by the sea.

I had never heard of black squirrels Marlene, i read about them on the internet. This site is very educational lol.

Take care and sleep well xx
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Date: 29.09.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

It's been lovely here too Rhona. I haven't been doing much today, just loafing about generally and eating.
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Date: 30.09.2013
From: willis

Subject: Re: New thread for Rhona bsk and Marlene

good morning all
hope you all had a nice weekend. i spent it at a macmillan night (they raised 800) and stripping wallpaper off bedroom in daughters new house.not on the same night of course :) i'm feeling it this morning but it was worth it as it's one less thing for her to worry about.
and today is first day i dont' have to think oh move as i have to go to work and it's odd. so put the washing machine on instead !
i hope you all have a good day
xxx
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Date: 30.09.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Willis, sounds like you had a busy week-end.
I spent Saturday in the garden tidying ready for the winter and Sunday at my sons for the little ones 1st Birthday. We had a lovely afternoon sitting in the garden BBQ was going for hours.

To-day went for Flu Jab so that's done for another year.
Looks like another good day tomorrow weather wise.

Hope you are enjoy retiring from work. I love it no more forcing myself to get up and go when I am in bad pain. I sofa surf inside LOL.
Take care xx
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Date: 01.10.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Morning everyone, let's hope it is another lovely day. I'm off to Moorfields this morning for a check up on my eyes, wish me luck.

Saw a rheumy yesterday who wants me to start on Sulfasalazine. I'm not sure but my nurse was in her clinic yesterday and went to have a chat and she's given me an appt for Monday to discuss it.

I've got my MRI scan appt. At 8.20 in the morning!! Means I'll have to get up at 6 to get there. I think they must be really busy to be starting that early.

Hope you are all well and enjoying the autumn weather.
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Date: 01.10.2013
From: Linda Bradley

Subject: Re: New thread for Rhona bsk and Marlene

Hi bsk, good luck with your check up. I work in x-ray at our local hospital. Our MRI is very busy, they start at 8am till 9pm. There is a long waiting list too,! Hope it goes well for you.
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Date: 01.10.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Bsk, I hope all is well at Moorfields GOOD LUCK!!!!
Glad your MRI appointment has come through. I had my MRI at 8 in the morning one good thing you are usually in and out no waiting around.
The weather is great just what the Dr ordered. LOL
Take care let me know how you get on.

Hope all you Ladies are good!!!!
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Date: 01.10.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi Linda, that's good to know! As you say Marlene, I should be the first in. Thanks for good wishes everyone.

Moorfields signed me off, which is great. I saw one of the consultants and they've given me some eye drops. Apparently my vision thing is to do with having very dry eyes, so I'll try this new stuff.

Am soooo bored with attending hospital appts. Had two this week and got two next week. When will it ever end?
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Date: 01.10.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies,
Marlene, can I ask which part you had scanned?
I have asked for this in the past only to be told well we know you have R.A. So it would not tell us anything we do not know already.
My flu jab is 16th Oct. I have been for chiropody today, poor girl, she has a bad back and puts the bed up really high so she can do feet standing, the pair of us had a real good moan.
I came out saying, poor you I hope your next patient is all happy, to which she replied, Oh I doubt it!
Lovely day here too, we have been lucky this year.
Rhona have a lovely visit with your daughter, wishing her the best!
Bsk I am wishing you luck with your eye check.
Willis, retirement can be a bit of a shock but so nice to know you don't have to get up and out when you are having the worst pain days. Am sure you will love it.
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Date: 01.10.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Bsk, good news from Moorfields Yeah!!!! Bsk lets hope it will all come to an end soon. xx

Emm I had my MRI scan for my back and hips. Then I had a CT scan (injected with radio something or other) This was a full body scan to show all OA. It was amazing to see on the screen as the OA shows up as bright white stars. Not so amazing when I realised how many joints were affected.
It was nearly two years before my MRI scan was done. It does seem they are reluctant to do the scans I know they are expensive.

I have had a real lazy day I am so tired I slept for an hour earlier. I never sleep during the day. I think it might be the flu jab I had yesterday.

Have a good evening xxx
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Date: 02.10.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Glad to hear the appointment went well at Moorfields bsk and hope the MRI one is clear too.

My eldest daughter is over in Spain just now visiting her sister and was taken into hospital with what they suspect is a sickness bug she is diabetic and that always makes things worse, I am hoping she will get out today so it has been constant stress.

I have a thumping headache this morning, it doesn't help when the phone rings when you are in a deep sleep only to discover it is another one of the Green Energy automated calls, I felt like throwing the phone out the window.

It is a wet miserable morning here to go with my mood lol.

Take care everyone xx
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Date: 02.10.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Oh Rhona, what a horrid time you are having at present. When I read this post I wanted to reach out to you, I feel I know what you are going through because of our daughters similar plights!
Now you have an added worry with your other daughter, hopefully it will be a short run bug, and as she has got to hospital her diabetes will be monitored.
Lots of love and hugs for you while you are so stressed and worried. X
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Date: 02.10.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Thanks Emm, I appreciate your message. I have just heard she is now out although I haven't spoken to her yet. We are due over next Wednesday for a week and she is going to fly home with us. I will speak to her when her phone is charged and decide if it is necessary to go over sooner.

I hope you are a bit better today Emm and your pain isn't so bad. xxx
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Date: 02.10.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Rhona, oh my goodness what a lot of stress for you. I am glad your daughter is out of hospital. It is good she has her sister with her.
When you call her you will feel better I am sure. I am sending you a great big hug and one each for your girls.
Rhona take care of yourself and next Wednesday will soon be here.Thenyou will be with your daughters and you can chill out for a while
If its any help the weather here isn't much better.
XXXXXXX
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Date: 02.10.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Thank you Marlene, I spoke to her and thankfully she is feeling a lot better now and has said she will take it easy today and sit in the shade. Seemingly there were quite a few English people in with the same thing she said the staff were lovely to her and very attentive and that was the spanish equivalent to our NHS she just used her E111 card, although it's called something else now. Hope you are doing ok. xxx
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Date: 02.10.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Rhona just read your update, that is great news. The E111 has been so useful for her. If other people have had the same bug, it is encouraging!!
Keep your strength up for next Wednesday, x
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Date: 02.10.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

That's great news Rhona. At least you can relax now. Not long until you go out to Spain.
I'm not too bad very tired the last couple of days. I think maybe it is just all the rushing around I have had to do lately catching up with me. Thankfully it has all come to an end so more relaxing time. Hubby is doing great staples are out now. Final check up with surgeon on the 22nd.
The Drs. are happy to let him return to work soon as his job doesn't involve any lifting.
It will be good to get back to normality again. It has been very stressful to say the least.
Well Rhona once a again big hug for you and take time to rest up after all the stress. xxxx
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Date: 03.10.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi Rhonal ditto from me too.
Glad your husband doing well Marlene.
Hello everyone else
xx
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Date: 03.10.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi ladies, what a miserable day weather wise. Just had about half hour in the garden and the rain showed up.
I spent the afternoon sofa surfing and then made dinner and sat back on the sofa LOL. I do feel more relaxed than I have in months. I hope things stay this way.
Going shopping with my daughter tomorrow it is her Birthday on Sunday. We usually spend the day together but she is going to Bournemouth to support her two brothers, they are both running their first marathon.
I hope you are all ok xxxx
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Date: 03.10.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

It's been a miserable day here as well Marlene although mild just very wet. I went into town today and I foolishly walked from the top end of town to the bottom end and I honestly thought I wasn't going to make it back up again, my ankles are really hurting and even my hip has started up, not going to be much fun going away if I can't walk.

I hope you have a lovely time with your daughter tomorrow and good luck to your sons for their marathon.

I know how you must feel Emm, isn't it horrible when your feet and ankles are painful?

Hope you are well bsk.

Sleep well everyone. xxx
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Date: 04.10.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Oh Rhona YES it is horrible. I have not gone to see my daughter yet due to severe ankle pain.
They look after me very well when I stay with them but while she is recovering ( her scar area is still tender after her op) I don't want to go and be more of a problem than a help.
Thank god she has a wonderful mother in law who helped with the children and housework.
I do feel miserable about it though as it was a shock and scary until she got results after her op!
I do hope you manage the journey and the visit OK.
We have a lot in common at present and I am happy to share it all with you.
I used to get a steroid jab and feel wonderful for a few months, but that does not seem to happen anymore! Nothing works for me now. It gets scary.
Anyway will be thinking of you and your family. Love and hugs x
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Date: 04.10.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Thanks Emm, Yes we do have a lot in common. I actually called the hospital this morning to see if they would give me a steroid jab before I go and she said she will try and get a doctor to sign the script for it and will call me back on Monday. I know what you mean about not being able to go over when you're not fit. I remember my daughter had a bad bout of flu when she wasn't long there and was quite ill but I couldn't get over then because of the way I was. I hope you will be able to go soon when you get a bit better. I am so glad we have the internet and can chat We will be staying in a hotel though as she couldn't put us all up and her flat has stairs up to the bedrooms so it wouldn't be ideal but we will go and see her every day or she can come to us for dinner, although she will be working. I am looking forward to seeing her new pup. I think it is going to be a couple of months wait for her operation she had taken out private health insurance just before this happened (typical) but you have to have it for 3 months before being covered.

Have a lovely weekend and I hope your ankles aren't too sore.

Hope everyone else is well. xxx
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Date: 04.10.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, just read your posts and thought how nice it is that you both can support one and other. It must be hard for you both when you want to be with your girls when they are unwell.
I hope you get your jab before you go Rhona. Have a lovely visit and soak up some rays of sun for me!!!!!!!

Emm I am sure you will be able to visit your daughter soon and I bet she will be real happy to see you!!! It must be lovely knowing her mother-in-law is such a help.

Went shopping to-day with my daughter had lunch and I am shattered so in PJ's ready for bed.
Take care and sleep tight xxx
Take care and sleep tight xxxx
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Date: 05.10.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi everyone,
Hope you have a good trip Rhona. My dad has gone to Spain today and I'm quite envious.

I'm exhausted all the time. I'm seeing my nurse on Monday with a view to having another steroid jab and starting on sulfasalazine. I'm not keen on either but don't have any other choices. To be honest, I'm really fed up with the whole thing but maybe I'll feel better if if the latter works. The fatigue really gets to me, I want to go back to bed the minute I get up up.

Hope you are all coping well and have got nice things planned for the weekend. xx
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Date: 05.10.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Thanks bsk but to be quite honest I am feeling so sore just now so I am a bit worried. I am hoping the hospital phones on Monday and tells me to go in for the jab and it works. I have been on sulphasalazine for over 12 years now and for the first 4 years it was quite effective on it's own so could be worth trying. Have you never been on it before? Just remember to build up gradually, usually I for the first week and 2 the second week until you get to the prescribed dose and if you do get any stomach pain just reduce it but they will tell you all that. When I was taking that alone I just needed to get my blood checked every 3 months.

Did you buy anything nice at the shops Marlene? I always enjoy a bit retail therapy when my ankles don't play up lol.

Have a good weekend everyone. xxx
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Date: 06.10.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hope you get the jab Rhona. I'm having one on Monday myself.
Thanks for info on Sulfa. Will probably have to give it a go, though not keen .
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Date: 06.10.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

I think it would be safer than taking steroids bsk. Good luck tomorrow x
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Date: 06.10.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Yes, that's what my nurse said! Thanks xx
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Date: 06.10.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, I hope you are both feeling less tired to-day.
I treated myself to a real comfortable pair of trainers made by sketchers. I bought my daughter trainers for her birthday.
My Son's both finished the marathon one just under 4hrs and the other just over 4hrs. Oh to be young and have so much energy. Although even when I had plenty of energy I was never up for 4hrs of running. LOL.( we are very proud)
Hope you are resting as it's Sunday.
Take Care xx
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Date: 06.10.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Marlene, I would be lost without by trainers now, I often wonder what I would do if they hadn't been invented lol. That was good the boys finished the marathon you could have tried your new trainers out and done a few miles lol. I bet they do feel proud. Running was never my thing although I could have walked for miles and miles but not now as my poor feet and ankles are really sore so really hoping I get the jab tomorrow. We are going out for dinner tonight if I can force myself of my chair. take care xx
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Date: 06.10.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Rhona, Try to go out for dinner might take your mind off it a bit. Poor you I hope you get that jab done tomorrow. If you don't hear first thing phone them.
I used to walk everywhere as I don't drive as for running not so much lol. My trainers don't do much more than a stroll these days.
You must be looking forward to going away. It will do you all good to be together. I know I love the whole family being round even thou it can be very tiring.
Enjoy your meal xx
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Date: 07.10.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Marlene, I got the jab this afternoon and it was quite sore, right into a muscle in my backside, I don't remember them doing it into a muscle before, either that or is was an extra big needle lol, as long as it helps.

Did you get yours bsk and have you decided about the sulph.?

Hope everyone is keeping as well as can be expected.

Take care. xx
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Date: 07.10.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi Rhona, I got one too and it was sore. They always do it into muscle, sometimes it hurst more than others.

We are putting the sulfasalazine on hold until the results of my mri are through. Nurse brilliant as usual!

Hope jab kicks in for you in time for your trip.
xx
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Date: 08.10.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Rhona, have a good flight and I hope your pain gets better now you have had a jab.
Will be thinking of you, it will be lovely to see your girl and her to see you.
Hugs for you. X
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Date: 08.10.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Morning Ladies, glad you both got a jab and hope it kicks in soon. Makes sense to wait Bsk have you got a date for MRI yet?
Rhona have a fantastic break and I hope your girls are ok. Catch a few rays for me.
Hi Emm are you ok?
Well I have to get showered and dressed visitors soon.
Take care and have a good day xx
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Date: 08.10.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Thanks Marlene, I will be thinking of you when I am burning in the sun lol. Feeling a bit better today although my face is really flushed with the jab. Hope you all stay well and I will be in touch next week xx
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Date: 08.10.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Rhona, I went to see the film Sunshine on Leith today, it was absolutely fabulous. Lovely shots of places I recognise in Edinburgh. Well worth seeing if you get the chance.

Marlene I am ok, the pain in my side is much improved. My ankle is the one that is mostly ongoing and it stops me getting about. May go to my new doctors soon and see what he can offer me, a miracle maybe!

Bsk I hope your steroid jab is successful for you too.

I would love to get an MRI scan but every time I ask the specialist says ' well we know you have RA so no point!

Take care all and go see the film if you can. X
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Date: 08.10.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

It's been ages since I have been to the cinema Emm but it sounds good so I will look forward to going when I get back. xx
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Date: 09.10.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Emm, so glad the pain in your side has settled somewhat. Can you get miracles on the NHS ? LOL.
My middle finger is swollen and so painful. I am trying to keep it straight as when I bend it the pain is awful. What joys this Arthur brings to us all!!!!
Take care xxxx
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Date: 09.10.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi everyone, I guess Rhona has flown off to sunnier lands (we are going to get cold here tomorrow, so I'm told.)

More swollen joints from me too. My knee is not great. Steroid jab made me irritable and stressed but no help to my knee.

Lovely autumnal day here today. Leaves beginning to change etc. I love this time of year.

xx
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Date: 10.10.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Morning, Marlene and bsk, it is cold here today too, a bit of a shock to the system! Heating is on for a couple of hours.
Had a sleepless night and feeling fatigued, but must do a grocery shop so after this cuppa will make a move.
Sorry the jab did not work on your knee, you think if they don't work what will.
Rhona should have arrived now. I do hope she can get around reasonably well. Hope she finds her daughter in good spirits too.
Have a good day girls. May all our pain subside!!!! Hugs x
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Date: 10.10.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi BSK and Emm, Sorry your jab didn't help bsk.Your poor Knee.
This morning was lovely here we took the dog for a walk in the farmers field and the wind was blowing and I said to my hubby my Dad always called this kind of weather bracing he liked the Autumn. Strange what you suddenly remember from your childhood.
Bsk I hope you are resting up a bit I am my joints are so painful I thought a walk might free them up a bit. I also went food shopping Emm so excited by it LOL.
I have to say my washing all dried. I thought I just said to Bsk I was resting up haha.
I have made a chicken hot pot and it is filling the house with a lovely aroma.
When I have had dinner I am not moving off the sofa.
Emm sounds like you need to put your feet up. I think lack of sleep is one of the things that make the pain seem a whole lot worse.
I also hope Rhona is enjoying her self. Bless her I will miss her on here.
Take care Ladies xx Big Hugs xx
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Date: 10.10.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

You resting Marlene - that will be the day!

I feel exhausted as well Emm but I've been sleeping. I think it's just the active arthritis.
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Date: 11.10.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Bsk, I know at times I am my own worst enemy. I have rested today (honest). The weather is miserable so that helps to keep me rested up.
Bsk I think the exhausted bit comes from all this pain. I have pain in a lot of joints today. My finger is agony such a small joint as well. I can't bend it at all. I also have a lot of Jaw pain. I am going to the Dentist on Monday so I hope it will be ok. If not I will have to make another appointment. I need to stop moaning!!!
How are you feeling now good I hope after sleeping yesterday.
I just can't believe the winter has arrived again. Spoilt by the gorgeous summer we had. I also was looking at all the Christmas stuff in the supermarket. I always think October is far too early to start Christmas shopping. If I buy it early it always gets eaten when the family come round. LOL.
I am sofa surfing and intend to keep it that way this evening.
Take care everyone xxx
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Date: 11.10.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi everyone,

I apologise for my brevity in my posts. I am just incredibly tired at the moment. It's very hard to know if it is arthritis, the neurological thing or if I'm coming down with something. I'm really fed up if truth be told.

Sorry you are still in pain Marlene. This weather doesn't help. I'm depressed that winter seems to have started early. I don't think I could bear 6 months of this.

Take care everyone.

xx
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Date: 12.10.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Bsk, apologise what for when I feel the way you do I don't even post. You and others know that's is what I do and accept me no matter what.
Bsk I am so very sorry you are tired. It must be hard for you when you can't even put your finger on why!!! I hope you are not coming down with anything else to add to it all.
I was looking out of the window and saw the rain so I just shut the blinds on it. I hate this weather it just makes me hurt so much more.
I went out for an hour with my daughter today and treated myself to a new jumper and one for hubby. It didn't make me feel any better that I needed warmer tops. LOL
I hope you feel better real soon Bsk I am sending you a great big hug.
Take care and chin up sleep tight xxxxxxxx
reply | back to forum

Date: 12.10.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Good evening ladies, just read the latest posts and it seems we are all tired and painful. Not Nice!
Only out for an hour and a half and glad to get to the car as my ankle feels like it may break, pain along the foot too, it makes me so slow and gosh it b....y well hurts. I think i must go and get help, soon.

Yes grey drab days are back. I too enjoyed the other day when it was bright, chilly and breezy but refreshing.
Go take yourselves to the cinema to see Sunshine on Leith one of these grey days. It really is superb. Much better than mamm mia, I think.

Marks and spencer had some lovely coats and things but it was too much hassle to try on. I do buy a lot on line now and today reminded me why. Because I am too exhausted with this arthritis to enjoy the simple pleasure of shopping.

Hugs to all. X

I
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Date: 12.10.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Thanks Marlene, I know you all understand the way I am feeling.
Sorry to hear things aren't great for you either Emm.
xx
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Date: 14.10.2013
From: Maureen

Subject: Re: New thread for Rhona bsk and Marlene

Hello everyone, first I just wanted to say what a,lovely group of supportive people you all are... I have been following your comments since i discovered the forum while lying in bed for six weeks following my left ankle replacement last November! I am now recovering from the right ankle being totally replaced, so I wanted to say to Emms she may like to ask fo be referred to a foot and ankle specialist and explore this idea. X-rays showed my ankles had collapsed, and I had an MRI on the left one three months ago which showed further deterioration. Specialist said if too damaged he couldn't replace it and i would have to fuse it instead. Lots of information on the web about total ankle replacement. Let me know if I can tell you anymore ? But trouble is, now, the wound has still not healed and is weeping, so have been referred to a plastic surgeon... The other healed within two,weeks! has anyone else experienced this following surgery. It's 5am now, so will see if I can get back to sleep! Hope this makes sense!
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Date: 14.10.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hi Maureen, I've got no experience I'm afraid. Sometimes things just go wrong but it good you are being referred to plastic surgeon. They are amazing and can do a lot. I hope you got back to sleep ok.
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Date: 14.10.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Maureen, I am so glad you posted. Can I ask if you have found the replacement a success, apart from the wound of course?
How is walking? And are you pain free in the first one you had done.
It does seem a long recovery time if you were in bed for 6 weeks, or is that just with the second one not healing?
Hope I am not bombarding you with too many questions! No doubt I will think of more too later.
I am wishing you the best for the future and look forward to you writing again, everyone on here is in the same boat and we all seem to help each other, seems strange when we never meet, but I find it a massive support because no-one understands like people in the same boat.
Big hugs x
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Date: 14.10.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Morning Ladies, Hi Bsk hope you are getting back to yourself. I had a really bad night full of pain. I have a feeling this sudden onslaught of winter is partly to blame. I am like you fed up!!!
I am sure in the next few days we will feel better (here's for ever hopeful).
I have Dentist at 2 o'clock today 45 minute appointment should be great fun!!

Hi Maureen, sometimes wounds after surgery do get infected. I have experienced it myself. My stitches inside didn't dissolve and it became infected and it was a bit yuk but plenty of antibiotics later it all sorted its self out. I hope you get it all sorted soon. Take care xx

Hi Emm, hope you are ok. I think Maureen is going to be great support for you. As you say when we are all in the same boat it is sad but at the same time so helpful.

Take care everyone xxx Hope Rhona is basking in the sunshine bless her xx
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Date: 14.10.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Morning Marlene, sorry you had a bad night, me too, finally fell asleep about 5. They are long nights! I usually have 2/3 every week.
Yes it is good for me to hear from a fellow ankle sufferer, that prompted me to read about the replacement and fusion options on the interent. I think the long recovery factor is definitely off putting but mine is getting so bad I am going to have to force myself into action.
I hope your dentist visit goes well. Earlier this year a broken veneer cost me over 200. It can be an expensive thing.
I have been thinking of Rhona too, is she back this week?
I do hope she has managed to get around OK.
I have the flu jab on Wednesday.
Hello bsk, I hope you are improving and not so tired, these dark drab days don't help.
I am at the cinema again tomorrow with 3 friends it is Blue Jasmine this week.
Big hugs everyone. X
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Date: 14.10.2013
From: Maureen

Subject: Re: New thread for Rhona bsk and Marlene

Hello Emm, I am so glad I wrote cos I wasn't sure whether to or not. Yes, the first ankle replacement went well, the,pain has gone from the actual ankle but.the sub talar joint underneath ( you get pain on the outer side,of the ankle for this,one!) is pretty damaged and causes me intermittent pain and may have to be fused... However, the right ankle is now,pain free when I stand on it, but because of the wound not healing fully,I can't really try and walk properly cos it opens up ( not the whole scar just a small bit in the middle) I think the reason for this is that the nurses and physio in the hospital made me hop around too soon, when I should have kept iif totally still,for about 36 hours... If your arms are strong enough you can hop about on crutches, once you are home, or, in my case a tall walking frame. Knee walkers are also v useful if your other ankle will make a scooting movement? After two,weeks, I was able to.weight bear for small trips to the kitchen or round the house, then immediately put your leg up. It would be difficult if you have young children...
Hope some of this helps, feel free to ask anything else! Thanks for the hugs, same to you too.
My prob, by the way, is,of course the wretched RA, with a bit of osteo thrown in for good measure! And... When it all started nine years ago I refused medication, feeling,I could try various forms of alternative medicine!! But I went on the methotrexate four years ago, so who knows if the damage would have been less if I had started it straight away. Now that's a confession!!
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Date: 15.10.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Emm, I know all about the long nights its awful it makes me feel miserable when I have had a bad night.
Not too bad at the dentist I am having very old fillings renewed and a broken tooth done. I have a big fat lip this morning I must of bitten it hard. Just something else to be going on with I have to say it is sore LOL.
Rhona is back today I think!!

It will take a good hard think Emm about the op but I have had a couple elbow and back and I haven't regretted either. My back is still awful but OA is in lots of joints so It will always be painful. The back op cured the sciatica. My elbow op was 25yrs ago and has been excellent. You have to decide if your quality of life will be better and the long recovery is not so long if you think about it just a few weeks out of the year. The infection part is just unfortunate for some. I would honestly say forget that part as the likely hood that would happen to you is very slim. I hope this little chat helps you.
Have a lovely day Emm xx
By the way how is your daughter doing?
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Date: 15.10.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Hello Marlene, Glad you survived the dentist ok, your lip should mend soon.
It will be good to hear how Rhona's trip went. I hope she has had better weather than us!
The film today wasn't that good but it was directed by Woody Allen...am not a fan.
I have made a GP appointment next week to discuss my ankle, so we will see....
My daughter is doing really well, thank you. She took the rest of this month off work. When her wound fully heals she will be fine, her 'inners' are feeling quite comfortable though.
I do hope Rhona's daughter has the same result. Rachel was really lucky to have gotten her op so quickly.
Have a lovely evening. X
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Date: 16.10.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Morning Emm, glad you have made a gp appointment.
Great news about Rachel she certainly had first class treatment which makes all the difference.
I hope Rhona is well rested and has a good journey home.

BSK how are you doing?

Very grey here this morning a bit like me. I am sore and my lip is very swollen and hurts a lot. Never mind the lip will heal soon. Not good looking like a boxer lol.

Take care have a good day!!!
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Date: 16.10.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Morning everyone,

It's vile here, chucking it down and cold. This is the worst October I can remember for a long time.

I still have no energy and the joints could be better, but have to just get on with it.
xx
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Date: 16.10.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Morning pals, no rain here today but grey, quite mild though.
I have been for my flu jab.
I was invited out to lunch but am having a stay in day instead, I have hair appointment tomorrow, I need to do a few chores!
Hope your lip goes down soon Marlene.
Bsk we know how you feel!! Hope you may be a bit better tomorrow.
Maybe we will hear from Rhona soon, am hoping she managed ok and enjoyed it as I am sure she will have, time with our girls is very special when they are abroad.
Hope your day improves girls. X
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Date: 16.10.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi BSK it is chucking down here as well. Need to go food shopping but still just sitting around.
It is awful when you just don't have any energy. The joint thing must be worse with the weather my poor old mum is suffering today.
You are right we just have to get on with it all.
I hope you feel better soon. It's just not like you to be fed up for so long. Sending a big hug xxx
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Date: 17.10.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hello,
How is everyone doing today? Is Rhona due back soon?
I'm walking with a stick at the moment, which I hate, but it doesn't half help. Sitting looking at my flame coloured Acer with red berries behind from weeping crab apple, garden looking lovely at the moment.

take care everyone. xx
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Date: 17.10.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Girls,

I got home late last night, well actually the early hours of this morning. We had a lovely time and the weather was perfect. What a difference wakening up to sunshine every morning. My daughter Elaine would come down at night and either have dinner or a drink with us, she often brought her little pup Rio with her and we would sit outside and have a drink, he was so well behaved. I was a bit disappointed with our hotel, although we did have a lovely sea view but the food wasn't the best although I still managed to put a few pounds on lol, I will need to go on low diet now. It was lovely just to sit and relax and have a walk along the promenade. They have a beautiful marina there, some of the boats were fabulous. We went on a short boat trip one of the days, I do like a wee sail lol.

The rain hasn't stopped since we got home, it really is miserable here, it makes everything so depressing.

I had a quick read at your posts and sorry to hear that you are all suffering. I do feel for you Emm with your sore ankles, it is horrible. I think the steroid helped me to get around a bit easier but would you believe I went over on my ankle (again) and was limping about for a few days. You are having your time of it too Marlene, it doesn't seem fair having so many painful joints. Do you think you might manage to get away this winter? it would do you good. I came home last night and went to bed with my hot water bottle.

Bsk, I'm sorry to hear the jab didn't help. I hate when I have to use my stick too but there were times when we were away I could have been doing with it. It is quite hilly there and that's when I seen to get problems, I like to walk on a flat surface.

I better finish off now, I had typed a long post out earlier and went to correct a few mistakes and lost it. so hope this goes through ok.

Sleep well everyone and hope everyone feels a bit better tomorrow. xxx
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Date: 17.10.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Yay! Rhona's back! Welcome home. I'm pleased to hear you had a good time, in spite of hotel and your ankle. Maybe you need to USE that stick Rhona lol! It's been a bit depressing its true but today was quite nice down south.
Must go to bed!
xx
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Date: 18.10.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Welcome home, Rhona. I am so pleased you managed reasonably well. I hope your daughter was in good spirits and gets her op soon.
Just done food shopping and sooooo pleased to get home, gosh I can hardly walk today. Knees and ankles are rubbish today.
Bsk, your garden sounds lovely, I love acers, they are really attractive. I hope your legs are a bit better today.
Having RA is horrible. It is a real debilitating crappy disease and I am sick of it. It is ruining my life now!

Sorry am feeling sorry for myself today have even got pain in the bone in my bum.
Two days are never alike!
Hugs to all. X
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Date: 18.10.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Sorry you are feeling sorry for yourself Emm! I am too today, as it happens. It is a crappy disease and I'm sick of it too. Plus I am missing my friend who died 3 months ago and just sat in the GP surgery and bawled about it all this morning.
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Date: 18.10.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Oh girls, what a shame. It is a horrible disease and I get so sick of it too, today I am feeling sore, not sure if it's the jab wearing off or the damp weather. I am due to get another infusion next week and I called the surgery to make an appointment to get my blood checked as it has to be done no more than 5 days before it and I couldn't get an appointment. I have been told they are too busy doing flu jabs and I should get it done at the hospital. It makes me quite angry as the surgery is 5 mins from my house and the hospital is quite a distance away. I said, well in that case the doctor will have to do it and was told no the doctor doesn't do it. I know the nurse can be a bit of a bitch at times. I don't know whether to call back and get an appointment with the doctor or just go to the hospital for it.

Perhaps you should get your ankle up and rest this afternoon Emm. I think you are needing to give yourself a wee treat bsk to cheer you up.

Take care xx
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Date: 18.10.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

.Hi Rhona, so glad you had a good time and plenty of sunshine to give you that feel good factor. Shame about the rotten weather when you got home. We are not going away this winter spent the money on the house and garden but I am regretting it now and I am so missing the idea of our two weeks in the sun. It is just not possible to have everything. I am making sure I have a break next spring.

BSK bless you!! Nothing wrong with a good old cry. It is very early days and of course you miss your friend. HUGS!! Your garden sounds lovely. All the trees leaves are changing colour and look beautiful. It has been a lovely couple of days weather wise and I have to say it has lifted me a bit. I still have a lot of painful joints but hey ho that's life (well mine). I hope you feel better tonight.

Emma nothing wrong in feeling sorry for yourself sometimes. This pain gets to us all at times. I am fed up with it all and the winter hasn't even arrived yet. I feel miserable at the thought of the cold damp weather having me in extra pain.

On a better note went out today and purchased some wallpaper for the spare bedroom. The only thing is mustering the energy to strip the bedroom of the old wallpaper. LOL.
Take care everyone and hope you all feel better tomorrow xxxxx
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Date: 18.10.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

Thank you Rhona and Marlene. It helps to come on here.

Rhona, I would just make the appointment with the doctor. Of course they can take blood. Mine has done it and she also gave me my flu jab last time I went. I didn't even have to ask, she had it ready for me. The nurses are quite nice at my surgery and will fit me in. Actually, they are all nice apart from one of the receptionists.

I can't believe you are going to strip the wallpaper, Marlene. Please go easy on yourself and don't try to do it all in one go.

Emm, take care and remember you are not alone. We are all in this together. Not like the government, who isn't all in it with the rest of us. Apologies if you are supporters of them. I'm not!
take care.
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Date: 19.10.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

I have made an appointment for during the week bsk so i'm hoping she will do it. It is another wet miserable day her and to crown it all I have toothache, just as well I managed to get a dental appointment for Monday.

I hope you are all doing ok today. xx
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Date: 19.10.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Hi ladies, we are all suffering by the sound of it. Oh poor us!
I drove to a bigger town today to return some boots to Charles Clinkard and only had a tea and a short look around with my sister.
Returned home, and it is only a half hour drive, in the house about half hour and I am getting searing pain in my knee, gosh it is scary! At GP on Tuesday to discuss my ankle so I hope if I need it, he will inject my knee.
Sitting on the sofa writing this and I am getting shooting pain.
Oh what else can life throw at us.
This is a relentless disease.
Hope everyone else is having a better day?
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Date: 19.10.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

I've been to the dentist this week as well. Lost a filling and half a tooth on Sunday and now need a crown. Oh joy! I'm trying not to eat on the temporary one as have a party tonight. After that, I don't care!
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Date: 19.10.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Have fun at the party bsk xx
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Date: 20.10.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Bsk, I laughed when I read your post I don't think I will be stripping all the wallpaper myself I have a steamer I will do the bottom half the top half my daughter will do. I don't climb ladders any more unless I really have to. It will take me ages so I guess my daughter will do most of it poor thing.
I made a dentist appointment as you know then after I broke two teeth so just as well. It is such a pain and expensive. Nuisance when they come and nuisance when they go!!!!
I hope you enjoyed the party just the lift you needed. xx
Rhona toothache ouch that and earache are the two things that have me in tears they both hurt so much. I hope you have some good painkillers. xx
Emm, sorry you have so much pain at the moment you are right it is relentless I hope the Dr can help you out on Tuesday. I have OA and that is bad enough you ladies are so strong and keep going whatever and all I can say is hats off to you all!!!! xx

Have a good day the sun has just come out and is beaming through the lounge window straight on me Heaven. Lol
xxxxxxxxxxx
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Date: 20.10.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Just thought I would share as I closed my laptop the Heavens opened and it hasn't stopped chucking it down since. Well that will teach me bragging about the sunshine. LOL
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Date: 20.10.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Same here. Thunder and lightening as well.
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Date: 20.10.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Hello everyone, same here with the weather, but at times has been lovely in the sun, and so warm, as with you all though, the showers came. Out to lunch today with family and was absolutely lathered in restaraunt in a sweater.
Means we are saving on heating a little though.
Ordered my second christmas gift today online, so have made a start. It is so expensive nowadays, so try to start early.
We had thunder and lightening last night.
Cinema tomorrow, it is Captain Phillips this week it is 2 and a half hours long and I have a paIn in my bum, deep in the bone of the left cheek! So hope I can sit it out. It started on Friday, don't know where that is coming from!!! Have had it before and it will go as mysteriously as it came no doubt.
Marlene, I love pulling wallpaper off, the only bit of decorating I don't mind.
Knee is a bit better today, I am determined it is not having me housebound, going to get out as much as I can. It is such a long winter with long nights.
Hugs to all. X
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Date: 20.10.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Emm, I am also going to the cinema tomorrow. the film is called Philamena (spelling) with Judy Dench. It is a preview my daughter got the tickets through Virgin a freebie so that makes a better night out. I am looking forward to it but like you I am hoping my back will let me sit long enough.

Christmas shopping get you!!! I am still buying Birthday presents. I suppose I should start thinking about it soon.
Don't remind me of the long nights coming. I hate it all closed in by four o'clock.

Enjoy the film xx

No thunder and lightning I love it but the poor dog is terrified.
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Date: 20.10.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Oh enjoy the film, it is one we will be seeing soon and there is another with Julie Walters too.
Do go see Sunshine in Leith, it is a good feel good film.
Have a lovely time. X
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Date: 20.10.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

We haven't had any thunder and lightening but plenty of rain. I managed a walk round the loch today between showers, it is about a 10 minute drive and it is nice and flat and easier for walking. My tooth is really sore tonight, I don't know why I should have toothache as I was at the dentist for a check up a few weeks ago.

I hope to go and see Sunshine in Leith this week Emm, I really must make the effort. Glad to hear your knee is a bit better. Hope you enjoy the film tomorrow Marlene.

How was the party bsk? Have you sobered up? lol, I am sitting here with a glass of cava, i'm hoping it will help my tooth, it was either that or some painkillers and the vino won.

Have a good evening. xxx
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Date: 20.10.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

OOOO Rhona, wine what a good idea. My favourite is a Gallo sweet white called Muscato. It's quite delicious. Enjoy.
Both you and bsk have tooth problems at present. Hope you get it sorted soon.
Which loch do you live near? How lovely, bet it is so pretty.
I love Scotland.
Do go see the film it is great.
You have got me wishing I had a bottle of wine in, could have enjoyed it while watching Strictly come dancing and the x.factor.
Have a lovely relaxing evening. X
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Date: 20.10.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Emm, It was Drumpellier Loch I went to. I am also about 10mins away from Hogganfield Loch, they are not huge lochs but nice to have a stroll round. I think my favourite in Scotland is Loch Morlich, it is near Aviemore and has wonderful views of the Cairngorm Mountains, although Loch Lomond is very pretty.

I have enjoyed the wine, that's it finished now unfortunately. xx
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Date: 20.10.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

The party was great thanks. I didn't drink too much but did sleep for 10 hours last night! It was definitely the champagne that did that. Very low key day hanging out with my family today and about to go to bed.

I went to Loch Katrine in the summer, very pretty it was too.
Scotland has some of the best scenery.
xx
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Date: 20.10.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Glad you enjoyed the party bsk. Oh I do love a glass of champagne. Perhaps we should throw all the pills away and just drink cava and champagne. Off to bed now, sleep well. xx
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Date: 21.10.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Morning Ladies, seems like the party was just what you needed Bsk. 10 hours sleep that is good!! Lovely hanging out with family.

Rhona strolling around the Loch's must be just lovely even in the winter. I came to Scotland when the children were small and I have always said the scenery beats Wales and I still do. Beautiful part of the country!!!
Emm I hope you are ok.

I am looking for somewhere to go for 4 days for hubbies birthday over here. Any ideas???? Been looking on the internet for weeks. End of March time.

Have a good day. It is so dark here this morning I guess more rain!!!!!
xxxxx
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Date: 21.10.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Girls,

It's been another wet miserable day here and it was dark just after 6 o'clock tonight. The clocks go back at the weekend so it will be dark even earlier next week.

I was at the dentist today and couldn't believe it when he said my tooth was fine. He thinks the pain has been coming from my shoulder or a nerve. I did feel a bit of a fool. This disease certainly is a pain.

Is it a special birthday for your husband Marlene? 21 perhaps.

Hope everyone is doing alright.

Take care everyone. xxx
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Date: 22.10.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, just got back from dentist all finished not too expensive. Off later for Hubbies Consultant appointment and I am keeping fingers crossed he will be discharged. He is doing very well and has gone back too work and says he is ok. They are being very good with him.

Rhona he is only 18 LOL. I just though it would be nice to use his holiday that he has left for his birthday. I just want something a little bit special. I am a bit useless because I don't even know where to go. Still searching on the net. I am sure I will find something.
It is so miserable here today. My neighbour just rang me for a chat she is unwell and so fed up with the weather as we all are. She is usually a bundle of joy!!
Take care all XX
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Date: 22.10.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Marlene, Hope all went well at hubby's appointment. That's fantastic that he is back at work so soon after the operation.

We went to see Sunshine in Leith tonight Emm, I enjoyed it and it was in a lovely new cinema not too far from my home. I want to see the one of the guy "Potts" the opera singer, it should be out soon. I saw a clip of it on the Graham Norton show and it looks good.

Hope you are all doing alright.

Nite nite and sleep well everyone. xxx
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Date: 22.10.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Marlene, Re: holiday, what about a city break somewhere? Obviously not London, as you know it well, but Edinburgh or York, Newcastle supposed to be good. You could take in a bit of the countryside around as well.

Glad your tooth is ok Rhona. Mine held for the party but the dentist said he didn't think he could give me a temporary one while the crown is made so will have to walk round with a gap.

I'm still very tired and joints uncomfortable. I will be glad when I get my MRI and can get on with some more treatment.

Sleepwell everyone. xx
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Date: 23.10.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

BSK you must know me so well lol I have been looking at York and have found some lovely places to stay and lots to do. I think as you have mentioned York that is where we will be going.

Bsk gap or not I bet you are still just lovely. It won't be long before you get it all sorted it just seems forever waiting.
Any news on your MRI date it seems a long time since they said they were going to do one. I hope you get sorted soon you just seem to have been left in limbo. I know you are a tough lady and will carry on regardless. BIG HUG xx

Emm, I saw Philomena with Judy Dench. Take along some tissues it is Hilarious but very sad in parts. I am not saying any more than that it is a must see.

Rhona everything went well at hubby's appointment and he has a six month open appointment so that is good. They are happy with results and told him ok to be at work and no lifting for another two weeks. So all Good.
I hope you are ok. The rain is relentless and has my joints aching so much but I am keeping active because sitting too long makes it worse. (not to active lol).
I hope you all have a good day xx
reply | back to forum

Date: 23.10.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Good morning ladies,
Rhona it is a good film, a feel good film, and I love the proclaimers music too. Glad you got to see it.
Marlene we are seeing Judy Dench film a week on Tuesday, yes it looks good from the trailers.
I love my cinema trips and there are so many good films out too. Julie Walters is in a new one soon too.
Marlene, York is lovely and there is so much to visit too. It is not far from me. I love going there. A good choice I think. If you are going by train the station is central to town, not far to walk.
Your husband has had a success with his op, I am so pleased for you both.
I went to GP with my ankle but was just told to talk to Rheumatologist as they can not help. He did say new ankle joints were not very successful.
Got some volterol gel!
We have had torrential rain but it is so warm. Sun out now so that is nice. May go out and enjoy it a bit.
Have a good day everyone. X
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Date: 23.10.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Emm, I use volterol and find it does help a bit, I have tried many and I find it the best one. Do you ever use an ankle support, I sometimes find them helpful or even a bandage to support the ankle can help.

York is nice Marlene, I have only been there once and it was many years ago but thought it a lovely place.

I hope you don't have too long to wait for the scan bsk, have you tried chasing them up about it? I got my blood taken at doctors this morning, a lovely Indian doctor, that is the first time I have met her and the nurse didn't look busy to me, I did tell the doctor she said she was too busy to do it.

Take care all. xx
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Date: 23.10.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, well it turned out a lovely day and it should be good tomorrow. Hubby is home so maybe we could do a few bits that need doing in the garden. Suits me I love being in the garden.
I started striping the wall in the spare room today. The paper is hard to get off even with the steamer I think they used super glue!!

I feel good about booking York now you have all said it is a good place to visit. We will be driving I find Transport difficult when I am having a bad day. I hate holding everyone up (they probably hate me) especially when they are commuting to work.
Have a good evening xx
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Date: 24.10.2013
From: willis

Subject: Re: New thread for Rhona bsk and Marlene

Morning All
hope you are all well. Been a bit down so haven't been on but can feel the black clouds lifting now :)
Wearied myself out by cleaning I think so not done any for a week!
York is lovely Marlene, it's been years since i was there but really enjoyed it.Glad your husband is ok.
hope the rest of you are not causing too much trouble to the world :)
have a good day
xxx
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Date: 25.10.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

No posts on here for a bit..I wonder what you have all been doing!

I'm on the sofa in my pjs as have headache and sore throat. Now I've realised I'm actually ill, I can stop trying to do stuff.

What is everyone up to this weekend? I've just cancelled most of what I was doing this evening and tomorrow.
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Date: 25.10.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Sorry to hear you're not feeling well bsk. Best take it easy for a few days and look after yourself. I think I will be having a fairly quiet weekend, nothing planned.

Hope you are feeling better Willis. Do you think it's because you have given up work that you have been feeling down?

How are you Marlene? I hope you haven't exhausted yourself with the stripping, I mean the wallpaper lol. Soaking it sometimes helps.

Are you ok Emm?

xxx
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Date: 27.10.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, just like you Bsk I am feeling so unwell sore throat and so much pain. I am not sleeping well either. My shoulder and knee are more painful than they have ever been. I just feel generally ill. I am having a very quiet week-end. FED UP!!!!!!


Rhona I haven't touched the bedroom just feel to unwell. I have just shut the door. How are you doing?

Emm how are you?

Lovely to hear from you Willis and glad you are feeling better. It must be the time of the year I feel fed up also. Take care xx

I hope you are all ready for the storm what fun (not).
Have a good day xx
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Date: 27.10.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Morning everyone,

I think there is a bug going around Marlene. I've had a headache for three days and massive fatigue. Slept all day on the sofa yesterday, with the cat! Staying in today too. The spare bedroom can wait for a bit I guess!

My dad was at a visit at the Met office on Thursday and someone there thought the storm wasn't going to be as bad as they say. We'll see! It's quite windy out there this morning already. I need to bring in some garden furniture. I think you will be alright in your part of the world Rhona!


Take care xx
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Date: 27.10.2013
From: willis

Subject: Re: New thread for Rhona bsk and Marlene

Hi all
well clocks changing is another thing we've to get use to :)
very windy but not as bad as I thought it was to be - yet!
I think i'm still adjusting to not working full time as I actually got to Thursday and thought, oh good it's nearly Friday! why?! lol a bit lost without a routine. So will have to sort myself out. cut the lawn yesterday and feeling it today but it looks better.
Bsk I hope you are feeling better today.
Marlene did you get yourself a hot water bottle for you knee and shoulder? sleeping a whole night is a thing of the past eh
Emm hope your ankle is behaving a bit more
Rhona I hope the weather up there isn't too bad just now.
and finally, is it really only 7 weeks till christmas? oh my this year has just not existed really time wise. you know its not because you are old that you think the years fly by when your 23 year old daughter says mum where has this year gone :)
Have a good day everyone and keep warm xxx
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Date: 27.10.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

I had a feeling you weren't too well Marlene when you hadn't been on for a few day. What a shame! I do hope it passes quickly.

I hope you are feeling a bit better this morning bsk. I have been so tired, just as well we had an extra hour in bed this morning, I'm not looking forward to it getting darker even earlier now.

It is windy here too this morning Willis, I got up and looked out my window and my garden is like a carpet of gold with all the leaves that have blown off the trees. I hope it doesn't get too bad where you all are.

Are you alright Emm? I hope your ankle isn't so sore.

I am going in the morning for my infusion, I always feel a bit nervous beforehand. My ankles are getting quite sore again so I just hope it is not becoming less effective now and stops working altogether. I would hate to go back to how I felt before I got it.

Take care everyone and stay safe. xxx
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Date: 27.10.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Good Afternoon ladies, it is 4.20 in afternoon and quite dusky, oh well we should expect it I suppose. I have mixed feelings about the dark nights, its nice to snuggle in but I think it is the fact winter lasts so long.
We have had a mixture of rain, sun and wind, but is 13 degrees outside on the car thermometer.
I have been to the cinema again this time we saw Last Chance about Paul Potts. It was quite good, a few surprises in it.
My friend has suggested looking at visiting Edinburgh early December, 4 or 5 ladies go every year, we are late booking this year. We will go 1 st class on the train, I love that.

My ankle is much the same so am telling myself to get on with it as best as I can, I see RA specialist December 17th.

Bsk I am fatigued much of the time too, terribly yesterday.
Oh Marlene you are having a tough time at present, cuddle in to your hotty and pamper yourself, It is the time for sore throats and extra pain. The bedroom will wait. Big hugs for you.
Rhona, I looked up the Lochs you live near too, not far from Glasgow. I want to visit Glasgow sometime, I read about walking around the loch and how flat it is, sounds really pretty.
You live in a lovely area.
Willis, it won' t take long for you to get over leaving work and will come to wonder how you ever had the time!! yes christmas is not far away, I have 2 gifts bought so far.
Take care ladies and wishing everyone the best. X
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Date: 28.10.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Morning Ladies, I have been up for hours and the wind was howling and the rain lashing down but it seems to be calmer now. I hope you are all ok and no damage.
My throat feels ok this morning. Just a short thing glad to say but my whole body is hurting and like you Emm I have an ankle that is so painful. I am so fed up with it all. The Dark nights don't help me at all I hate the thought of the long evenings. I like to sit in the garden in the evenings. I will have to get used to it!!!

I hope everyone is feeling better today.

Rhona, good luck for the infusion!!!!

Willis you will fill your days. I was lost when I first retired but now I have filled my days and wonder just how I fitted it all in. LOL

Bsk I am on the sofa with the dog curled up next to me and it just gives me that warm feeling. I love cats and I know how loving they are. Take care

Emm you are right we do just have to get on with it. We can moan all we like but we just can't let it hold us back. Go for the trip Emm sounds like fun!!!!

Have a good day xxxx
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Date: 28.10.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Hi again everyone,
I think I must be going senile!!
This evening I realised I should have gone for chiropody at 2.30, then when checking my calender, I saw I should have gone for my monthly blood test last Friday!!!
I never normally miss any appointments and am very angry with myself.
Can't explain why, isn't it strange.
Marlene we have had quite a calm pleasant day, I even managed a slow short walk with my sister and her dog, Max, he is a real character.
At least your throat is better.
Hugs x
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Date: 28.10.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

I get times like that Emm. Maybe you are just feeling rough and with that goes forgetfulness sometimes.

No damage after the storm here though plenty of trees down around London. I've been making quince jelly from the quinces from the garden. It's turned out well but they are hard to cut up so I cooked them whole.

My garden is looking fantastic, lots of red berries and golden leaves etc.

Still feeling very tired and legs stiff and painful this morning. I'll be glad to get back on some drugs to be honest.

Hope you are all doing ok.
xx
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Date: 28.10.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Pleased to hear that none of you have any damage with the strong winds. It has been very changeable here today although I didn't see much of it with being at the hospital. It took around 6 hours to get the infusion, it was painless although I have a nasty bruise on my arm with it.

Emm, I often have the same thing happen to me, even in hospital today I had a form to sign and I couldn't remember the date, i even had to think what month and year it was and i am not joking. I was wakened from 4am this morning so i blame lack of sleep on it. Think we might go and see the Paul Potts film tomorrow night (Tuesday is a cheap night) lol.

Your garden sounds really pretty bsk. It wouldn't be warm enough here for a quince tree but it sounds lovely. I love all the different colours on the trees just now although most of them will soon be bare.

Hope you are recovering well Marlene, just take things easy until you are fully recovered.

Pleasant dreams to you all,

Nite nite xxx
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Date: 28.10.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

Rhona, sorry I forgot you were having your infusion today. Glad it went ok. I hope it brings some relief soon.
xx
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Date: 29.10.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Thanks bsk, I hope you get some relief soon too. xx
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Date: 29.10.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

The sun is shining but not doing much for my mood I am totally miserable. My pain is awful and sleep is not good.

Enough about me I hope you ladies are all relatively ok. Have a good day!!!

Hugs to everyone xx
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Date: 29.10.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Oh Marlene, what can we do to help? I'm rubbish at jokes otherwise I would start a thread for them, which might make you chuckle at least.

Have you been to your doc to get some sleeping pills to tide you over, or do you need stronger pain relief? Which joints are hurting the most?
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Date: 29.10.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Bsk, my shoulder and knee are absolute hell for the want of a better description. I will go to the Gp if it doesn't settle soon it is driving mad.
I know it will always be this way and have to get used to that idea which has me more miserable.
I had to take sleeping pills before to get my body back into a sleeping pattern and I have to be honest it did work in the short term. So it might be a good idea to try it again.

I will feel better in a while my daughter-in-law phoned to say my little granddaughter was asking to come around she is missing nursery they are on half term (again) she loves it there. My son is working away in Rhona's part of the world and my hubby is working tonight. So it will be something to take my mind off of it. I guess my daughter in law is feeling lonely with two little ones and her hubby away working. He has his own business so he has to go where the work is.

Bsk I hope you are ok you have had a rough time yourself. I would be lost without the forum I can moan all I like and no one cares just supports me. Thanks a million!!!!

Have a lovely evening I will be sofa surfing apart from making a cuppa for us all LOL.
By the way just thought I would mention my daughter in law is bringing cakes.
xxxxxxx
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Date: 29.10.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Cakes are always good!

I would bombard my body with meds in order to get a little respite. You can always tail them off when you are feeling a bit more robust. Pain is debilitating and horrible and it's a great idea to have a distraction. Enjoy your evening. I'm pondering over what to have for dinner then am sitting with my feet up.

Lots of hugs to all of you ((((())))
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Date: 29.10.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Poor you Marlene, I wish I had a magic wand to take your pain away. I hope having your daughter- in-law visit with your little grand daughter helps to take your mind of it a bit then get to bed with your bottle and try and get a sleep. If you are still as bad tomorrow then best see the doctor. I hope you enjoyed the cakes. Were the home baked? or naughty big cream ones.

Went to see the film tonight called "One Chance" about Paul Potts, it was quite good.

I hope you are doing alright Bsk and you too Emm & willis and Lynn too, in fact everyone on the forum.

Nite nite and sleep well. xxx
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Date: 30.10.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Morning everyone, Well my grandchildren were a real Tonic the little girl was so lovely she said Nanny if I brush your hair will that make you feel better Bless her! The little boy just 1yr is so full of smiles for everyone.
Rhona it was a homemade cake!! Lovely!!

I took my full quota of pain meds yesterday slept for 4 hours so that was good but I could hardly get out of the bed this morning.I am just going to take full pain meds for a few days and see if that helps. It is my OA and the Dr has me on Tramadol and Co-Codamol I don't really want to progress on from that. I worry that if it gets worse as the years go on there will be nothing more for me. If that makes sense.
I am taking plenty of rest as well I am really Bsk. I have no choice!! I guess the cold weather coming on so quickly didn't help any of us. When they all left about 9 o'clock it was freezing out.

I hope you had your dinner BSK lol.
Rhona glad the film was watchable. It is good to get out. I am trying to organise a night out at the theatre but I can't find anything that has jumped out at me.

Well have a good day all and keep wrapped up it is chilly out there xxxx
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Date: 31.10.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Good morning all, I have just caught up with the posts of the last few days.
My ankle is still my problem at present, but trying hard to plod on. I am going on my Edinburgh break in December with the girls, I know I will struggle but one of my friends has RA too mayb not as bad as me, but we will have more coffee breaks if we struggle. 1 st class train and half board hotel booked. A good treat!
Rhona we are seeing Philameana this week at the cinema. I agree Paul Potts was just watchable.
Oh Marlene, you are going through the mill at present, I know how you feel when all the meds don't seem to work. you think where do I go from here! At least you had your lovely family to take your mind off it a bit.
It was lovely here yesterday, chilly but sunny and bright.
Not bad today either maybe not as bright.
Take care everyone, hugs all round. X
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Date: 31.10.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Scan at 8am tomorrow. I have to get up at 6am in order to get there on time. Not great as my joints are slow in the mornings. I will post again tomorrow.
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Date: 01.11.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Good luck bsk. I am the same when going anywhere, I have to get up a couple of hours early as it takes so long to loosen up.
Look forward to hearing from you later.

I had little sleep last night so decided to get up as was tired of tossing and turning!
Have a good day everyone. X
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Date: 01.11.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, glad your scan is out of the way Bsk and you can get some meds.

I am still in pain but it is (I think) subsiding. I hope so I was feeling quite ill with it. Feel a bit better today.

I hope you are all doing ok. Take care xxx
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Date: 01.11.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

How are you bsk? how did the scan go?

Pleased to hear that you're feeling a bit better Marlene.

How is the ankle Emm? my feet are hurting just now. That's great that you have booked up for your trip with the girls, I bet you will have fun and forget all about your ankle.

It's been a lovely sunny day here but it has got really cold.

Have a lovely weekend everyone, we are going to Dunkeld on Sunday for an overnight stay.
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Date: 02.11.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

It was fine Rhona. Hoping for clear results in the next week (ever the optimist!) Have a great visit to Dunkeld.

Glad you are feeling a bit better Marlene.

Hope you all have a good weekend. xx
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Date: 03.11.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, It is very cold today although so far the sun is shining. Bsk being an optimist is the way to go, no good sitting worrying all day it changes nothing.
Enjoy your stay at Dunkfeld Rhona !!

Well today I have a house full it is Mum's birthday on the 5th and my Son's on the 6th. I have niece nephew great nephew sister-in-law daughter son and wife two grandchildren and maybe my other son wife and two grandchildren. I will enjoy it but I know I will pay the price tomorrow.

Yesterday I went to look around the shops with hubby to get out of the house and came back with a new light fitting clock and mirror. Oh well they all look very nice and to honest it felt good treating myself.

My son lost his dog on Friday she was only 5yrs and had a cancer tumour in her stomach that had ruptured. The poor dog was only unwell a couple of days. My daughter-in-law is so upset my son bought the dog for her 30th birthday a lovely boxer. My son also is very subdued. They still have one boxer who is looking very lost. It is a horrible time for them.

How are you Emm and Willis?
Take care all xx
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Date: 03.11.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

It is very cold here too Marlene although the sun is shining. We a will leave for Dunkeld in a couple of hours, I am not at my best in the mornings and can't rush.

My goodness, you will have a busy house today but it sounds like it will be fun. My daughter's birthday is on the 5th as well.

What a shame about your son's dog. I know how horrible it is and it will take time for them to get over it, the only consolation is that it didn't linger with it's illness.

You will be relieved the scan it over bsk.

Take care all. xx
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Date: 03.11.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Morning Marlene, you sound upbeat today with all your family coming to celebrate, that is lovely. Sorry about the dog, they are members of the family, and they will all feel bereaft.
It is very cold here too, but sunny. Yesterday I got soaked in a heavy shower whilst out, it ruined my hair and I went for my eye test looking a wreck!
Ooo lovely for you to get the new housie things, you will feel good when they are all in place.
I have just been invited on another shopping trip this morning but am late up and stiff and know I can't jump up and be ready in 45 minutes so have declined as I don't want to keep people waiting. I would have loved to have gone, but no good first thing on a morning with no notice.
I also hope Rhona enjoys her weekend, if there is no cooking and housework she should get a rest. Good for you Rhona.
Morning bsk, I hope your results are good and you have a lovely Sunday.
Hugs all round x
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Date: 03.11.2013
From: willis

Subject: Re: New thread for Rhona bsk and Marlene

morning all
bsk fingers crossed for good results next week. Marlene you will need a week to recover from all the activities but enjoy yourself. sorry to hear about your sons' dog such a sad thing to happen. hope dunkeld was good rhona (i'm assuming you will see this post on your return not before you go)
Emm I'm sure the optician was thinking oh my goodness look at the state of this one! lol I hope you have a nice restful day today.
Our cat and dog have had or still have flamin fleas - trying to keep them out of the house and confined to the conservatory is a laugh, the dog is trying to figure out what he's done wrong and why i've taken his beds off him, the cat just hates me and i'm stiff and achy from constant hoovering! dog is getting groomed tomorrow which should help as with his hair shorter it will be easier for me to continue to brush and flea check him! the house has never been so clean in years :)
it was our 22nd wedding anniversary on Friday so we went out for a lovely (expensive gulp) meal. It was good though. Our daughter had got us six cupcakes with different photos of us on them - was a shame to eat them but were lovely.
hope you all have a lovely day and keep well.
xxx
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Date: 03.11.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Hi Willis, nice to hear from you, I am back on here again this morning as I am extra, extra stiff today and cannot seem to get going at all!
We have'nt had any pets for a lot of years now as even then it hurt my hands to hold a pulling dog on a lead. I just could not do it now so when she died she was not replaced. She was a Cavelier King Charles. Sad really because I am a farmers daughter and grew up with lots of animals around me. Good luck with the de-lousing.
What a lovely idea of your daughters doing the cakes with photo's. That was special. Happy wedding aniversary to you both and many more to come!
I declined a shopping trip earlier today but have now been invited to my neices hubbies photo exhibition in the town hall at Durham so I am going to try to manage that about 2 this afternoon. my pains are not subsiding very well at all today and I have a headache too. I hate days like this when it stops me getting on and enjoying life!
Ugh it has suddenly gone really dark after a lovely sunny start, hope I don't get wet again and look freaky at the exhibition!!!!!
Hugs and wishing you well. X
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Date: 05.11.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi everyone just a quick post I hope you are all ok this morning. All my pain is back again so I am sofa surfing all day!!
XX
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Date: 05.11.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

It is very cold and damp here today although it started off lovely and sunny this morning. We had a lovely time at Dunkeld and we were very lucky with the weather. It was beautiful walking alongside the River Tay. My foot is really hurting now so I am having a restful day.

Sorry to hear that you are suffering Marlene, let's hope it eases off soon.

Willis, I remember hearing that it's usually the cat that passes the flees to the dog. Horrible little mites (the flees I mean) but that's the price we pay for having central heating etc.

Hope you managed to the photo exhibition Emm, have you been to the cinema this week? It's my daughter's birthday today so won't be at the cinema tonight, we are meant to be going out for a meal but will see how we feel.

How are you bsk? When do you expect to get your results?

Take care and keep warm. xx
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Date: 05.11.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Good evening,

Rhona your weekend break sounds lovely I am glad you enjoyed it. Give your foot a good rest, it's the only way. Do something, enjoy it, pay for it in pain and then have a good rest afterwards.
I will be the same with my Edinburgh trip!

We saw Ian's photo's they are very modern with some things imposed over others, supposed to be related to states of the mind, a bit above me I am afraid, but very good.

We did not get to see Philameana this week as it was sold out, so we booked for next Wednesday.

Happy birthday to your daughter Hope you all had a good day.
It is mine on Thursday!

Regards and hugs to all. X
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Date: 05.11.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Scan results all fine everyone! Doctor left a message on my answer phone this afternoon.

I'm relieved but annoyed he didn't even want to talk to me as I have some questions for him but it is good news. I hope to get started on some new drugs in a couple of weeks.

Will come on and post properly tomorrow but just wanted to let you all know.
xx
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Date: 05.11.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Great news bsk! you will sleep easier tonight now. xx
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Date: 06.11.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Super, bsk. That is good news for you. X
reply | back to forum

Date: 06.11.2013
From: willis

Subject: Re: New thread for Rhona bsk and Marlene

morning all
bsk, very good news glad to hear it.
Emm, glad you got out to the exhibition
marlene, hope you feel better today
i'm off to work a morning then helping daughter paint some rooms in house this pm so tomorrow will no doubt be a rest day ;)
have a good day everyone
xxx
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Date: 06.11.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi everyone, Well Bsk so glad to hear all ok for you. Now they just need to get you on some meds. Take care xx

Rhona lovely to hear you had a good break. Strolling along the River fab my idea of complete peace!! xx

Willis take care not to overdo things !!! xx

Emm glad you made the Exhibition. You will enjoy the film I am sure. I loved it.xx

I am still struggling but just getting on with it only so much sofa surfing I can take. It is raining today with grey skies!! I hate it!!
I am going to make some apple pies and apple crumbles for the freezer. Apples freebie from my neighbour. Its what I call comfort food for the winter LOL.
Hugs to all xx
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Date: 06.11.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

Thanks everyone. I put in a formal complaint to the hospital today.

I hate this weather too Marlene. Good idea to free apple crumble. I've got windfalls too.
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Date: 07.11.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hope everyone is doing alright. It's cold and damp here this morning, not the best weather for the joints. I can't get motivated at all and my poor feet are still hurting. Apple crumble and custard is definitely comfort food Marlene and I do love it.

Have a good day folks. xx
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Date: 07.11.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, well I did my cooking all in freezer. Apple crumbles!! I have decided no more sitting around it makes no difference to the pain at the minute!!

Rhona, sorry about your poor old feet you are right the weather is no good for any of us.

I have found a lovely old Inn in York and it is 10 minute walk from the centre. It is a walk along a river so that will be just what the Dr ordered. I am going to show it to hubby and if he agrees it looks good I will book four nights at the end of March. I think a break will do us good. Something to look forward too!

I have been busy today bed changing washing cooking so I am having an hour or two on the sofa before I make dinner for us all. Hubby working.
Roast chicken tonight with roast potatoes more comfort food. I am not getting on the scales this week LOL.

I hope you are all ok xx
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Date: 08.11.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Morning everyone!

How are you all? I'm still very tired but hopefully that will change when I get on some more drugs. I've been referred for a bit of support with physio/exercise and some counselling to help me get through this bad patch. I'm relieved, to be honest. I think my friend's death has really affected me and I do need some support.

Marlene, glad you managed to make your crumbles, I might do something similar today as I have a bag of windfalls which will go off soon.

Rhona, good to hear you had a nice break. You seem to have some lovely spots of visit in Scotland. Easier to get into the countryside than from London!

Emm and Willis, hope you are doing ok?
xx
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Date: 08.11.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Bsk, I know what you mean about being tired my sleep is so up and down mainly because of the pain. I do hope they sort your meds out soon you have been struggling for a long time now.

Bsk I am glad you have taken up the counselling sometimes we don't realise the loss of someone close is having an affect on us. It will be good for you to be able to talk freely with someone not involved. Your friend must have been one lovely person that's all I can say. A great big hug is on its way to you XXX
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Date: 08.11.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Hi Ladies, Hope you are all ok. The weather here is cold damp and grey and is making me feel more miserable.
At least Christmas is on it's way. I love the decorations and have purchased some lights for the arched porch (outside). I have never bothered with outside lights before but I just want the cottage to be pretty. I love watching the little ones when they see the tree up. I am trying to convince myself there are positives in the winter LOL.

Take care and keep wrapped up warm inside and out xxxx
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Date: 08.11.2013
From: helen

Subject: Re: New thread for Rhona bsk and Marlene

Hello bsk. Hope you don't mind chatting on this thread. Just wanted to say I lost my life long friend 18mths ago to bowel cancer. 8 mths from start to end I held her hand till her final breath. Its taken from then to now to really feel I can talk laugh about her without crying. My family and husband has been brilliant and couldn't have managed without them. I too needed councelling but I couldn't talk to my Dr to sort it out afraid I suppose as I'd have to admit to my feelings of sadness and how lost I felt. I now go to visit her grave I don't like seeing her name written in stone but I'm going. Don't really know that what I'm writing is gonna be any good for you. Maybe just to say it does get easier and that there isn't a time limit to how you must feel. My friend was only 45 have been friends since aged 4 we always laughed that we will grow old together but not meant to be.
Thinking of you
Helen. X
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Date: 08.11.2013
From: bsk

Subject: Re: New thread for Rhona bsk and Marlene

Thanks, Helen, for sharing that. I'm sorry for your loss. I also lost another friend to bowel cancer 2 years ago, which is two friends too many. Both of my friends were too young, one 52, the other in her 40's with two young children. It's really hard I know.
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Date: 10.11.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Good Morning everyone,

Sorry too for your loss ladies, in February I too lost my neighbour and friend, she had bladder cancer, we were neighbours for 30 years and she was a lovely lady, I miss our popping in cups of tea and good chats and going out together too.
My knee is not good again, it needs a jab, so I will be back to trying to find someone to do it, always a problem for me!
Hope I can get one before Edinburgh.
Am stiff this morning, I know whats new!
Have a lovely Sunday girls, as pain free as possible. X
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Date: 10.11.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Everyone,

I sat the other night and typed out a long message and then lost it so here goes again.

That's good that you're going to get some counselling bsk. I think having a long term condition is stressful enough and when we have other things happening as well it can be a bit too much to cope with, life can be so cruel at times, unfortunately it's something that happens and when it does it's not nice. I also had a friend that died too young, she was only 44 and we had been friends since we were 7 years old.

Marlene, Your cottage sounds so homely. Christmas lights outside will be lovely and I can almost smell the aroma of your apple pie drifting through the cold air. I always had xmas lights outside on a tree until a couple of years ago when a van passed with a ladder on top and whipped the lights right out of the tree, the plug was even pulled out of the wall, I couldn't believe what had happened. I can laugh now but my poor lights were gone.

Emm, I hope you manage to get another injection soon for your knee and it lasts at least until after your visit to Edinburgh.

I slept so late today, I have been so tired lately, I actually wakened to hear the bagpipes playing outside my house, they always have a march for Remembrance Sunday and end it at the park beside me.

Stay warm and enjoy the rest of your Sunday. xx
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Date: 10.11.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

hello Ladies, hope you are all ok. It has been sunny but cold today. Washing machine on the blink kettle just would not work. So had to buy a new kettle. Washing machine being looked at tomorrow at least it is insured.

Went to see my Father-in-law for his 90th Birthday we had a big cake made for him to share with all the family as they visit. He was so happy to see 90 on his cake. He is frail but happy enough. Just did not know what to buy him thank goodness it was a good choice.

I have been in a little less pain to-day so fingers crossed I say that loosely.

Rhona I am actually looking forward to Christmas in the cottage although I am having dinner at my sons in the next village. I was looking at all the Christmas stuff in Tesco when I had to rush out to buy the kettle. They have some really nice things.

Emm I hope you get that jab soon and it keeps you out of pain for your trip.

Bsk I hope you are feeling better to-day. Take care xx

Well I am just going to find my hot water bottle and put my feet up for a while.
Take care hugs xxxx
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Date: 11.11.2013
From: Bsk

Subject: Re: New thread for Rhona bsk and Marlene

Hello all! Thanks for all your thoughts. I guess we will all lose friends throughout life and it's good to talk about it sometimes.

Sorry to hear your knee is still bad Emm. I hope you can get some treatment for it soon. Mine is not so good tonight and I've just taken some painkillers. I slept from 8.30 pm to 11.30pm so am now sitting in bed catching up on posts, emails etc. I don't suppose I will sleep much tonight!

What a nuisance about machines on the blink Marlene. I wonder what the 3rd one will be???? Things tend to go all at once in my place too. Very annoying!

I would love to wake to bagpipes Rhona! So Scottish lol!
Well, am going to try and go to sleep.
xx
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Date: 12.11.2013
From: willis

Subject: Re: New thread for Rhona bsk and Marlene

Morning everyone
not been on as been busy or resting. did help daughter with painting and yes paid for it over the weekend but at least some of the first coats are done for her. she can't do anymore just now until the 'men' are finished their bit so instead of more painting tomorrow it'll be christmas shopping. so, got that to look forward to.
sorry to hear you are struggling with your friends passing Bsk, my nephew died 3 years ago and that took me a while to feel any normality again, i could just cry now thinking of it but know I have to carry on, death - it's just a normal horrible thing that is part of life and floors us all in different ways. I hope the counselling helps you to move forward.
sorry to hear you're all suffering in one way or another this illness is just ..... won't swear :)
cold and wet here today. i could quite happily curl up for winter and come out in spring!
try have a good day everyone
xxxxxxxxxx
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Date: 12.11.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Evening everyone.

Willis we have had a beautiful day today.
I got up feeling a bit better today, with my knee, but by 2pm was back to square one.
Got a GP appointment but not for 2 weeks! You all may remember I changed GP, but it seems the service is very slow here too.
Marlene your cottage sounds very 'chocolate box' and your descriptions of it and your home baking and your garden conjure up some beautiful pictures in my mind. Sounds idyllic.
Rhona, how lovely to wake up to bagpipes, I hope you are feeling less tired.
Willis my sister had a scare last year when her grandson had to have a brain tumor removed, it was totally out of the blue, he was feeling sick and tired and doctors thought it was a tummy bug. What a shock all the family got, he is back at school now, but the surgery left an eye problem and he has an operation for that on december 3rd. I can understand how you felt losing your nephew and what a struggle for you all to come to terms with it. It is worse when it is the young ones.
As you say death is part of life, but gosh it is a devastating part.
It is Phillameana for us tomorrow at the cinema so should enjoy that. I never spell it correctly.
Hope all is well with you bsk.
Going to put my nightie on now, so I will say goodnight and wish everyone a pain free day tomorrow.
Goodnight x
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Date: 12.11.2013
From: marlene

Subject: Re: New thread for Rhona bsk and Marlene

Evening Ladies, It has been a lovely day here as well. Very cold tonight.
I had my hair done to-day so I feel a bit more human again grey all gone. (such magic)I am full of pain but am being positive and ignoring it as much as I can.
Everyone around me are telling me how they have done or nearly done all the present buying for Christmas. Is it just me who hasn't started yet?
Emm I love my cottage and it is very pretty. There are many that are prettier but I am very content with this one. We are looking into having a log fire fitted it seems it may be an expensive job, so we are just waiting on the quotes.

Willis try not to overdo things you sound just like me paying the price the next day but I think we all do. It is hard not doing anything I just can't sit around all day. It drives me nuts!!!

Rhona and Bsk I hope you are both ok.

Take care and sleep tight xxxx
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Date: 13.11.2013
From: Emm

Subject: Re: New thread for Rhona bsk and Marlene

Evening ladies,

Oh what a good film Philameana is, you cry, you laugh and you get very, very angry. What an amazing true story.
A must see for ladies especially mums.
So moved by it I had to write and say so.
Will catch up with other stuff later....casserole is calling. X
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Date: 13.11.2013
From: rhona

Subject: Re: New thread for Rhona bsk and Marlene

Hi Emm, Glad you enjoyed it Emm, I hope to go and see it when we get back. I think I have confused things with starting a new thread. take care xx
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