Date: 25.04.2013
From: Tara
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Subject: Cant believe this is happening
Hi all I am just back from a hospital appointment with my 10 year old little boy he was having pains in his leg around his hip joint knee and ankle also sore when we got there doc did a full body exam and found stiffness in both shoulders also to make a long story short doc thinks my small man has JRA you could have blown us away with a feather he is going to be refered on to the same rheumy as myself any one have any thoughts or expierence with this is it the same as adult ra or can they grow out of it we were so shocked we didnt ask any questions hugs to every one Tara
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Date: 25.04.2013
From: rhona
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Subject: Re: Cant believe this is happening
Hi Tara, I am sorry to hear that the doc thinks your little boy has JRA. Hopefully it won't be that and just some growing pains or something mild that kids get. It is good though that he is sending him to get checked out and then if he has got it then they will know what to do. I don't know very much abour JRA but if he does have it then he might have it mild and i have heard the kids can go into remission with it. The other thing to remember is that medication has come a long way, even over the last 10 years and should get better still. Try not to worry too much until you have seen the Rheumy as it won't do you any good and will cause you more pain. It is horrible when our kids are unwell, my daughter became diabetic when she had just turned 12 and it is still a worry and she is now 34. Take care and hope you find out it isn't JRA when you go to the rheumy. xx
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Date: 25.04.2013
From: Colin W
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Subject: Re: Cant believe this is happening
hi Tara , realy hope its not , such a shame young people can suffer with JRA
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Date: 25.04.2013
From: marlene
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Subject: Re: Cant believe this is happening
Hi Tara, I also hope it isn't RA. Hugs to you both. Chin up and take care XXXXXXXX
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Date: 25.04.2013
From: Bsk
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Subject: Re: Cant believe this is happening
That's a shock Tara but it's good if they have spotted it. Hopefully he will do well with treatment. xx
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Date: 26.04.2013
From: Tara
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Subject: Re: Cant believe this is happening
Thanks so much for your replys this all started about 2 months ago Oran came home from school with a sore hip he was playing in a hurling match that day so i thought he pulled some thing but it did nt settle down i took to my gp and he sent him for xrays at our hospital all came back normal saying all that doc in a and e was nt happy so asked me to bring him back in a week when i went back he asked if there was any one in the family with ra the penny dropped with me looking back he had all the signs but i never thought of it you dont expect to have a young child to have the same sytoms as your self so i just did nt think of ra any way rant over thanks again for your replys hugs to you all Tara
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Date: 26.04.2013
From: Shruti
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Subject: Re: Cant believe this is happening
I'm so sorry that must be awful for you and him. Hugs to you Hope he gets better soon
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Date: 26.04.2013
From: Emm
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Subject: Re: Cant believe this is happening
Tara just want to add my support to you and hope that your son does not have RA. It is a shock for you both to hear it is suspected. We will all be hoping that it is not and keeping our fingers crossed for you both. Keep positive for now. Lots of love to you both. X
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Date: 26.04.2013
From: Deborah
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Subject: Re: Cant believe this is happening
Hi Tara, I am sorry to hear that your little man may have JRA and am sure it must have been quite a shock for you and your family. Hope it is not but if it is at least the medication now is a lot better than it used to be. My own son has AS he has had it now for four year's and is on a bio-logic and he seem's to be managing well, so I know what you are going through although my son was older 23yrs old. Hope everything work's out ok hug's Deborah x
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Date: 27.04.2013
From: Tara
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Subject: Re: Cant believe this is happening
thanks to all of your suppot it helps a lot kids are so funny my little man is telling any one that will listen that he may have JRA just like his mam and grandad he thinks its cool and we are allies in our illness i had to laugh he is so sweet hugs to all Tara
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Date: 28.04.2013
From: Patsy
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Subject: Re: Cant believe this is happening
Hi Tara, really praying for you and ur son. Xxx
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Date: 28.04.2013
From: Emm
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Subject: Re: Cant believe this is happening
Oh what a lovely little story, kids make you smile. He sounds a little loveable character. Reading that brought a smile and a little tear! Love and cuddles to you both. X
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Date: 28.04.2013
From: Two hip replacements and still going!
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Subject: Re: Cant believe this is happening
Hi Tara, I was diagnosed with JIA when I was 14 (17 years ago). The hospital were very good and I was diagnosed very quickly and put on medication within a few days of being admitted into hospital (I was really ill with mine, my GP thought it was flu and kept telling us to come back, until I couldn't physically get to the surgery). I was back at school with reduced hours within 2 months and got my statement very quickly. I had to change some of my activities that I could do at school - no more hockey :( or cross country :). We were told that it was possible that I might grow out of it. The medication that is available now is so much better than then so I think we should all be hopeful for children with arthritis leading normal lives. Good luck Tara.
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Date: 07.05.2013
From: Emm
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Subject: For Tara
Hi Tara, just wondering how your son is? Emm x
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Date: 08.05.2013
From: Tara
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Subject: Re: Cant believe this is happening
Hi Emm small man is doing ok his fingers started to act up and this morning one of his elbows was sore and stiff thing is he isnt swelling very much but joints feel hot to the touch so dont know any more til we see rhuemy i will ring them tomorrow it will be 2 weeks since seeing A and E doc and hopefully they will have gotten his letter by then thanks for thinking of us hun will let you know how we get on hugs Tara
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Date: 11.05.2013
From: Emm
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Subject: Re: Cant believe this is happening
Oh sorry to hear he is in pain Tara, I hope you get your appt' soon and can get help. Thinking of you both, keep us posted as we are all routing for him. I hope you are not too bad too. Hugs too. X
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