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Date: 09.04.2013
From: Patsy

Subject: Glazed eyes

Hi, is it jus me being crabby or does peoples eyes glaze over when you tell them bout RA,symptons etc? Lol. They ask how my back is and when i say bout being diagnosed with RA they dnt want to know. Yet if i said im fine they'd be saying " oh sure she was telling me theres nothing wrong with her". Hahaha. Sorry myrant is over. I try to look at funny side things else ud crack up.
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Date: 09.04.2013
From: Linda

Subject: Re: Glazed eyes

And when you say you've got arthritis, they say, so have i. They haven't, they've just got a few aches.
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Date: 09.04.2013
From: Colin W

Subject: Re: Glazed eyes

most people when asking are just being nice & realy dont want to know how you are so allways say fine or good & only if they ask twice do they realy want to know

see they glazed eyes & you know it time to shut up , Linda is right about people think all arthritis is the same & think RA means you got a dodgy hip
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Date: 09.04.2013
From: Tara

Subject: Re: Glazed eyes

I hear you ppl
I just don't bother telling any one any more just on a need to know bases
They just don't understand
Oh well what can you do only laugh when you see the disinterest in there face
Even some of the doctors are the same lol and they should know better :-)
Tara
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Date: 09.04.2013
From: Patsy

Subject: Re: Glazed eyes

Hehe. Im keeping gob shut frm now on aswel i think Tara. X
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Date: 09.04.2013
From: marlene

Subject: Re: Glazed eyes

I only tell people on a need to know basis. Unless you have any type of arthritis what would any one understand? I have OA and have had since my 30s I would love a pound for every time I have heard oh thats what old people get, Even on this forum some are still of this opinion. I had no idea about how many Arthritis there was so I was quite ignorant to it. I have somewhat of an insight from this forum but I still learn something new most days. So what I am trying to say is people don't understand!!!!
I don't think they mean to be so dismissive they just don't have a clue!!!!
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Date: 09.04.2013
From: Patsy

Subject: Re: Glazed eyes

Yea ur right, its a lack of knowledge. My mothers had it for years and didnt know a thing about it until i got diagnosed. I've had to tell her what RA is and what it can do to you. Im disgusted with her gp that shes had no treatment whatsoever. She could manage her pain but seems to be struggling with it now. Her hands are getting quite deformed.
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Date: 10.04.2013
From: Tara

Subject: Re: Glazed eyes

Omg patsy that sounds awful did your mam every have a rheumy appointment bloods or ex ray ? The poor woman must be in terrible pain
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Date: 10.04.2013
From: Deborah

Subject: Re: Glazed eyes

Hi all,
Know what you mean when people say I've got arthritis too.
A neighbour of mine who is 75 think's she has the same as me when I mentioned about my back, but then she was heading up the town on foot to have her hair done so no comparison.
So won't be mentioning it again or anything else for that matter.
I am glad I have a great doctor who I can sit and chat to and he fully understand's what I am on about, in fact he is the only one I can really talk too if it was'nt for him I think I would have gone mad long ago.
Just had my mtx increased again up to 25mg because of flare's along with my Golumamab so see how I get on.Hope everyone is ok at the moment.
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Date: 10.04.2013
From: Patsy

Subject: Re: Glazed eyes

Tara she's had no treatment at all. Jus tkes painkillers when she bad but they not working for her anymre. Im worried bout her.
Dianne is mtx effective for you?
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Date: 10.04.2013
From: Deborah

Subject: Re: Glazed eyes

Hi Patsy,
Firstly I think that it is dreadful the way your mum has suffered so much with arthritis without even a doctor noticing that she has a disease like that tell her to go back to her doctor and ask to get referred to a rheumatologist as soon as possible as there can be quite a waiting list to see them.
And secondly yes without the methrodrexate I don't think I could stick the pain without it although it would not work for me on it's own as my disease is quite advanced that is why I am on a bio- logic as well.
But if your rheumatologist is thinking of putting you on it I would certainly give it a go because if nothing else it stop's deformity and the joint's from getting really bad.
Let me know how your mum get's on and you too. Deborah x
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