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Date: 29.03.2013
From: David Moore

Subject: monthly infusion of toxcilimab

I'm on this drug infused on a monthly basis. Its been 12 months now, I think its working though more time will tell and if it does it will stop one day as has all the ANTI TNF therapys that I have undergone. What I am finding is that cuts and abrasions take forever to heal. A simple spot will ulcerate and I will be putting dressings on it for weeks on end.
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Date: 29.03.2013
From: rhona

Subject: Re: monthly infusion of toxcilimab

Hi David, currently on rituximab and it has helped after failing on enbrel. I had a spot that i thought was just a pink spot and it turned out to be a rodent ulcer (basal call cancer) although it was easily removed and doesn't spread but i am sure the treatments were in some way responsible. Anything that doesn't clear after a month i would get checked.
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Date: 07.04.2013
From: Susan Leigh

Subject: Re: monthly infusion of toxcilimab

Hi
I am also on tocilizumab and I have had 3 infusions. I am not convinced that it is working for me. I was told that it usually starts to work between infusions 3 and 4.
I have some sort of inflammatory arthritis and have taken virtually all of the available medications. Either they don't work for me or I get bad side effects.
I am having a bad time lately with a flare up that started in January and is proving very difficult to control.

Susan
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Date: 07.04.2013
From: kazz

Subject: Re: monthly infusion of toxcilimab

hi im on methorexate and folic acid and pain killers etc etc ... 15mg i was put staright on to dont think its doin much tbh just makes me like a zombie and a moody one at that so my partner says haha anyone expericnce mood swings
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Date: 08.04.2013
From: chrissy

Subject: Re: monthly infusion of toxcilimab

Hi all i was on toxcilimab had 19 infusions,but kept getting tooth abcess,s after each infusion, so it was stopped last month, and now im waiting to start on abatacept, is anyone on this drug? this will be my 5th bio drug, damned if you do, damned if you dont, does any one know if when stopped of a bio could you have withdrawels as ive been anxious and dizzy,thanks for reading chrissy.
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Date: 05.01.2016
From: lynn

Subject: Re: monthly infusion of toxcilimab

Yh I can also say that with this drug the side effects are persistent coughing and ask for abatacept I had that drug as well and I noticed a lot aside effects to it
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Date: 15.01.2016
From: Kelly

Subject: Re: monthly infusion of toxcilimab

Works wonders on joints. I've literally gone from not being able to walk, lift my arms or even get myself dressed to feeling like I don't even have arthritis.

Problem is it makes you feel constantly ill. You can't fight off any bug, cold etc. I'm constantly under the weather and yes I agree with above cuts etc that would normally take a few days take months to heal.
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Date: 15.01.2016
From: Suz

Subject: Re: monthly infusion of toxcilimab

Thank you for the this forum helps everyone with the information on certain drugs and its effects.
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