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Date: 24.02.2013
From: Emma

Subject: Been taken off methotraxate

Hi everyone, I'm a newbie to the site, I was diagnosed with ra 3yrs ago I was on methotrexate which worked with my humira and my other tablets and started to feel good.
Went to see rheumy doctor and he asked me what worked best before taking humira was it my methotraxate or one of my tablets called leflunomide I told him methotraxate , then he said well I'm taking you off that as it could be doing more harm as I have nodules on my hands and feet but I have had them for ages. Now I'm feeling stiff and more lumps are appearing . Called hospital all last week still no one got back to me. Has anyone been taken off methotraxate , does this usually happen and calm down, I'm really not sure what to do would like some advise from anybody please. Thank you emma
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Date: 24.02.2013
From: rhona

Subject: Re: Been taken off methotraxate

Hi Emma,

Welcome to the forum and sorry that you are suffering just now. I think you should call the hospital again and try and find out why you were taken off the mtx if it was helping you. Was it affecting your liver? If you can't get anyone to speak to you tomorrow then ask your GP to get in touch with them.

Good luck and let us know how you get on.
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Date: 24.02.2013
From: Emma

Subject: Re: Been taken off methotraxate

Hi rhona, thank you for your advise, no my liver was fine the consultant said he was taking me off them because I have nodules which I have had for ages he thinks it could be making it worse. I will call the hospital again tomorrow if no luck I will have to try gp but that could be a mission in itself as they are not very helpful. Thanks again rhona will let u know how I get on. Emma x
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Date: 24.02.2013
From: Colin W

Subject: Re: Been taken off methotraxate

hi Emma , welcome to the forum

no idea why they took you off Mtx as it works well with the bio's , sounds like they maybe need to change your bio
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Date: 24.02.2013
From: Emma

Subject: Re: Been taken off methotraxate

Hi Colin thank you for your reply, just confused me if it was working well with the humira and I have no liver problems, why take me off it, he says I could be doing more harm as in my nodules which I have had for ages. Will try to contact tomorrow again to see what I should do. But much appreciated for taking the time to comment. I shall let u know how I get on. Emma
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Date: 27.02.2013
From: Emma

Subject: Re: Been taken off methotraxate

Hi everyone, my consultant got back to me yesterday and told me to go back on methotraxate. It's the first time I can't wait to have an injection lol. Hope you are all well or as we'll as u can be, and thank you for your advice and support. Emma x
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Date: 27.02.2013
From: rhona

Subject: Re: Been taken off methotraxate

That's good news Emma, i hope it kicks in quickly for you.

Take care x
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