Arthritis Forum
Home.

News.

Personal Stories. Links. Message Board.  
Arthritis Forum  
Add your comments to this topic Start a new topic
Date: 08.02.2013
From: sue

Subject: new trials

hi everyone has anyone read the artical in the daily express today. i have to say i am so very excited and look forward to the day when i will have my RA go into remission

take care xx
reply | back to forum

Date: 08.02.2013
From: bsk

Subject: Re: new trials

Yes, I read that. Fingers crossed!
reply | back to forum

Date: 08.02.2013
From: sue

Subject: Re: new trials

i so hope its right bsk

take care xx
reply | back to forum

Date: 08.02.2013
From: Suz

Subject: Re: new trials

I read it too. Hope it works. Doesnt mention when it is available tho..doh :-(
reply | back to forum

Date: 08.02.2013
From: sue

Subject: Re: new trials

i no im at the hospital again on thursday so i will ask my team if they no anything about it xx
reply | back to forum

Date: 08.02.2013
From: Bsk

Subject: Re: new trials

Well,they are trialling it right now in a London hospital so suppose it has to succeed at that then go through NICE. Could be soon. or am I being over optimistic? Am moving to a new doctor soon who is supposed to be at the cutting edge of research so I will ask her as soon as we meet!
reply | back to forum

Date: 08.02.2013
From: Emm

Subject: Re: new trials

Hi bsk, I am thinking of asking for a second opinion from another specialist, because as you know I've felt my RA out of control for the last18-24 months.
I was told as well that I would be able to have unlimited injections for shoulders and knees.
I don't agree that is the way forward for me.
I just feel a bit naughty if I ask to see someone else.
If you do ask and see someone else, does that mean you are only under the second specialist after that.
Regards x
reply | back to forum

Date: 08.02.2013
From: bsk

Subject: Re: new trials

Hi Emm, it does mean you get referred to another consultant so will be under their team from then on.

Don't be afraid to change if you really feel you are not getting the support you need. Do you have a sympathetic nurse at the hospital you could discuss this with? Sometimes they can tell you if there is a doctor they think you will suit better. You are not there for the doctors, it is the other way around!

I would also chat to GP as well and get their view. Quite often these sort of decisions to change are best managed together. Also, do your research on line and talk to other people too.

I can't remember what meds you are on but maybe there are others you could try.
xx
reply | back to forum

Date: 08.02.2013
From: Suz

Subject: Re: new trials

Pls let us know. if anything will show up soon with this new trial on the nhs.
reply | back to forum

Date: 08.02.2013
From: Colin W

Subject: Re: new trials

dont trust anything in the Daily Express , thought go on the NRAS website & cant find anything about it , live & hope one day
reply | back to forum

Date: 08.02.2013
From: bsk

Subject: Re: new trials

Colin, don't be so cynical :) Arthritis Research are funding it and Kings College Hospital are running the trial. You can find details on their website under the research. It is something called binding immunoglobulin protein which kickstarts the immune system. Sounds promising.
reply | back to forum

Date: 08.02.2013
From: Colin W

Subject: Re: new trials

did find this , does sound hopful , will be several years before most of us gets a chance but they are doing so much good research into RA in last 15-20 years , even if this is not the answer we can still have hope

http://www.kcl.ac.uk/newsevents/news/newsrecords/2013/02-Feb/First-in-human-trial-of-a-new-drug-for-arthritis.aspx

btw the Daily Express were having 7 cures a month for arthritis which is part of the reason for not trusting them
reply | back to forum

Date: 08.02.2013
From: bsk

Subject: Re: new trials

I know Colin! I was teasing you. This does look hopeful though.
reply | back to forum

Date: 08.02.2013
From: Emm

Subject: Re: new trials

I think this is great news.
To be actually tackling the disease via the immune system, which must be faulty, seems to make sense to me.
Hope we can all benefit soon.
It seems a new 'take' on things.
Bsk, thanks for answering my query.
Let us know what your new doctor says about reserch.
Regards Emm
reply | back to forum

 

Add your comments to this topic
Subject:
Please type your comment here:

Your name:
email:

4+6=
(This sum is to help prevent automatic spamming through this page - thank-you)


top

Site design: T - Creative Home | News | Personal Stories | Links | Message Board