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Date: 11.08.2012
From: Fiona

Subject: I failed my ESA Medical (inflammation in SI joints)

hi Everyone My Name is Fiona. I am 24 and I have inflammation in my SI joints and my doctor said it has been their for a while. I have been currently on ESA for the past 6 months due to arthralgia , no other infammation has been found apart from the Sacroiliac joints. I get severe pain on my lower back knees and hips when I over do things from as simple as sitting , standing or bending over to walking. I take NSAIDS + Gabapentin for the pain .I feel great some days then I feel so ill the next. I get temperatures , warm throbbing knees and back etc. I will be revisisting my rheumatoligist on the 3rd of september.

Today I got a letter through saying I am no longer entitled to ESA I recieved 0 points. I expected this i truelly did because there is no good coming from these medicals from un qualified people. I will be appealing against there decision because I have nothing to hide , if i was feeling well i wouldnt be on here whinining at you wonderful people. I am at my wits end , i am scared of the outcome of my problems and I am scared of where i am going to end up in the future. The government don't give good honest people a break , how do they expect me to work again when I wont be given work when an employer sees my circumstances. Can someone shed some light on my situation please?

With love and support.

Fiona.
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Date: 11.08.2012
From: Deborah

Subject: Re: I failed my ESA Medical (inflammation in SI joints)

Hi Fiona,
I just wanted to say that my son who has AS has been turned down as well.
I see how bad he can be he couldn't even walk yesterday and I just don't understand the mentally of the new system I also have PA so have an idea of how much pain you are in.

The only thing I can say is keep fighting and hopefully someone will see a bit of sense!

The only thing I can suggest to you is try to get help from some of the organisation's that specialise in your condition.

Good Luck! And let us know how you get on. Deborah xx
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Date: 11.08.2012
From: marlene

Subject: Re: I failed my ESA Medical (inflammation in SI joints)

Well here we go again this govermet needs a kick up the backside,

Fiona you go girl. I hope you are successful more often than not peoples monies are reinstated on appeal.#

Deborah, bless your son. I hope he is appealing also?
Citizens Advice Bureau is supposed to be helpful. I can't say first hand.

Take Care and Chin Up Ladies xx
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Date: 12.08.2012
From: Deborah

Subject: Re: I failed my ESA Medical (inflammation in SI joints)

Hi Marlene,
Thank you for your reply,
My son has appealed so many time's but I tell him to keep trying.

All everyone seem's to do is bang on about getting back to work, keep fit, swimming,eat well etc when none of these help,s any Arthiritis if anything they aggravate the disease even more.

I have suffered with PA for 12 yrs and I have found that you listen to what your body tell's you because if you don't and just keep trying and pushing on and listening to doc's, gov etc you just end up worse and even more crippled and if you end up really crippled and end up in a wheelchair who is the one left to suffer you!! after all does anyone really care as long as they don't have to live with a horrible progressive disease.

I can fully understand the gov wanting to cut down on a lot of abuse of the system,
but surely all case's will have medical evidence to back up their claim.after all arthritis is hard to fake.The doc's will know that continued pressure on joint's affected by Arthiritis will only make it worse and the changeable climate that we live in does not do it any good.

So I just can't understand this new system at all.

Hope you are keeping well yourself Marlene and will let you know of any change. xx Deborah.
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