Arthritis Forum
Home.

News.

Personal Stories. Links. Message Board.  
Arthritis Forum  
Add your comments to this topic Start a new topic
Date: 18.05.2012
From: Tom H

Subject: HUMIRA

HI All,

My Humira gets delivered to me on tuesday abd I start it later that day.
Can somebody who is on it give me a brief story of how the first week or 2 went for them (i.e. Any side effects, when did it start to work? best place to inject? etc.)

or point me in the direction of a thread which may help me.

I'm still on 25mg of Pred each day and been told to keep taking these.

Thanks, Tom
reply | back to forum

Date: 18.05.2012
From: bsk

Subject: Re: HUMIRA

Hi Tom, the nurse will tell you all that when s/he comes to show you how to inject.
reply | back to forum

Date: 18.05.2012
From: sandy

Subject: Re: HUMIRA

Hi Tom
When i was on humira i found the best place to inject was in my stomach (surprisingly easier and less painfull than in your legs) just remember to alternate sides every time you take it
hope it works well for you - take care x
reply | back to forum

Date: 24.05.2012
From: suze

Subject: Re: HUMIRA

hi tom im on cimzia which is anti tnf. i inject in my legs and tummy and have to say i was terrified to do it but iv found it ok, hope this helps take care
reply | back to forum

Date: 24.05.2012
From: Chris

Subject: Re: HUMIRA

Hi Tom,
took me a couple of times to get used to it, i always injected it in my thigh. You are supposed to change injection site, so i alternated between them.
The nurse will take you through it all, but one small piece of advice i would give is to make sure the solution warms up a bit, don't just stick it in straight away, if it's very chilled it can be a little painful.
I *think* (altho not sure if i'm remembering correctly) that i got a headache as a side effect, not strong, but there none the less. In the end i looked forward to it, as i knew the injection was working.
Best of luck.
reply | back to forum

Date: 29.05.2012
From: Eva Jarl

Subject: Re: HUMIRA

Hi Tom!
I hope for the best! Things might go very well for you. For me it didn't. I was on Enbrel, which I chose because of intuition. But later I tried Humira since it seemed easier. I got so many infections that I had to give up and go back to Enbrel. It also causes infections, but not at all as often - in MY case! We all respond in very different ways since we are individuals.

Best of luck!
reply | back to forum

Date: 14.06.2012
From: Tom H

Subject: Re: HUMIRA

Many Thanks for your replies. THere was a bit of a delay geting the nurse out but she came yesterday and I had my first injection in my stomach. Was pretty much painless.
In the last few hours I've started to feel a bit nauseus, hoping maybe I have a bug thats gone around.

Anyway, I will keep you updated with my progress please feel free to add any experiences you have had on the drug both good and bad.

Cheers, Tom
reply | back to forum

Date: 29.06.2012
From: Tom H

Subject: Re: HUMIRA

Took 2nd one on weds in my thigh, not as much nausea as last time, think it was a bug. No improvement yet. In fact my Psoriasis is slightly worse.
reply | back to forum

Date: 29.06.2012
From: Deborah

Subject: Re: HUMIRA

hi Tom H,
Please let me know how you get on as I am due to start humira in two months time to be honest will be glad as I have not be well as last while.

I will also be taking mtx along with the humira not sure what dosage but it will be lower than what I am on.


At the moment I am on 25mg of mtx and am getting steroid
Injections just to keep me going.

Wish you luck and hope that the humira really helps with your arthritis regards Deborah x
reply | back to forum

Date: 06.07.2012
From: hawker

Subject: Re: HUMIRA

It has been fantastic for me. Sulphasalazine didn't help that much - maybe not at all - and methotrexate improved things a bit, but Humira took away 80-90% of my pain, all noticeable swelling, and all fevers within two to three weeks of the first injection.

I'm currently suffering from low WBCs so they've reduced my methotrexate and I'll have to see how that goes. The anti-TNF transformed how I felt though.
reply | back to forum

Date: 08.07.2012
From: Tom H

Subject: Re: HUMIRA

Great to hear such a positive response hawker. Thanks for that.

Deborah - I will update my progress on this thread and thanks for the good luck.

Cheers
reply | back to forum

Date: 12.07.2012
From: Ian Murray

Subject: Re: HUMIRA

Hi Tom H,

I have, over the last 35 years, gone through the full gamut of Voltarol, Sulphasalazine, Methotrexate and finally, about a year ago I went onto Humera, which I found very helpful. However I recognised that I was still, after all those years, filling my body with chemical. In January 2012 my daughter suggested I try drinking Aloe Vera gel (120mls per day) and, having taken my last Humera injection on the 4th January I am now, much to my surprise, pain free with much reduced joint swelling. I have a greater range of movement my energy levels are through the roof and the Psoriasis which was on the top of each foot has cleared up. The Humera costs the NHS £10,000 per annum per user. The Aloe Vera drink I have to buy but the cost, at around £3.00 per day is ridiculously small for the huge health benefits I have seen. My GP is so astonished at my results with the Aloe Vera that he has now started to refer his arthritis patients to me...which is quite a reversal.
reply | back to forum

Date: 19.07.2012
From: Tom H

Subject: Re: HUMIRA

Hi Ian,

That is great to hear such a positive response to Aloe Vera.

However I tried it for 6 months and got no benefit at all. It really is strange that some things work for some and not for others.

Cheers for your reply. Tom
reply | back to forum

Date: 19.07.2012
From: marlene

Subject: Re: HUMIRA

Hi Ian can I be so nosey as to ask you are you a sales person for this product???
reply | back to forum

Date: 19.07.2012
From: Lynnr

Subject: Re: HUMIRA

Hi Tom I started humira last week I have had all the routine DMARDS which all failed either with side effects or must not working, i was also on enbrel anti tnf before thisI've got PsA in most of my joints and had it for just over 2 years so I'm back on methotrexate for the third time along with humira this time, I found the injection more painful than enbrel but maybe I didn't leave iit out fridge long enough any way let me know how you are getting on with it.

Lynnr
reply | back to forum

Date: 23.07.2012
From: Simone Scott

Subject: Re: HUMIRA

Hi everyone, I have Rheumatoid Arthritis and due to start my HUMIRA Injections tomorrow, now i'm sitting here going out of my mind with fear at the thought of having to inject myself. Now there is so many emotions going through my mind. I am dreading the pain that goes with the injections? What side effects I am going to encounter? Once you inject yourself are the side effects instant or does it take a while to manifest? I am on steroids and that is the only thing that has appeared to work for me over the period of 10 yrs due to me being allergic to everything else. Can anyone advice me and give me good advice or advice in general regarding my fear about this injection? and what I am going to encounter with this?
reply | back to forum

Date: 23.07.2012
From: Two hip replacements and still going!

Subject: Re: HUMIRA

Hi Simone, I have suffered from RA (or the juvenile version as it manifested when I was 14) for 16 years, I had been on steroids for 12 years and had been on leflunomide for 8 years, which had eventually stopped working as well as previously. I started off on the Enbrel anti-tnf injections which worked very well for two and half years. It allowed me to come off both the steroids and diclofenac. It did stop working and I have been changed over to the Humira injections, which have been working well for nearly two years, although I have been put back on methotrexate and continue to take leflunomide. I've had no side effects from either one, and do not suffer from infections or colds etc any more than anyone else. The anti-tnf drugs literally changed my life. I am now able to cycle and use the cross trainer with no pain and I recently completed a 40 mile bike ride. I also work as a reception teacher full time which as you can imagine takes a lot of energy. Hope the Humira works as well for you. Ruth
reply | back to forum

Date: 30.08.2012
From: Tom H

Subject: Re: HUMIRA

I have done 8 injections now and apart from a general improvement in my psoriasis it has had no effect at all on my Arthrytis. They are talking about stopping the Humira and trying something else already.

On the puls side I have not had one infection and the injections are a peace of piddle with no site soreness.
reply | back to forum

Date: 07.09.2012
From: Tom H

Subject: Re: HUMIRA

Start weekly injections of enbrel at the end of the month.
reply | back to forum

Date: 07.09.2012
From: Two hip replacements and still going!

Subject: Re: HUMIRA

I found Enbrel controlled mine better than the humira does. It's a shame I had to change it.
reply | back to forum

Date: 18.10.2012
From: Tom H

Subject: Re: HUMIRA

Been put back 2 months...

Still on Humira, not made any difference to joints.
reply | back to forum

Date: 19.10.2012
From: Deborah

Subject: Re: HUMIRA

Hi Tom,
Sorry to hear that the humira has not worked so well for you.
I have started on a bio- logic called Golimumab last month apparently it is better for pa than most.
I presume you have pa when you mentioned psoriasis in an earlier post.
I have not noticed any change but it is early day's yet.
Hope they can find something that suit's soon.Deborah.
reply | back to forum

Date: 20.10.2012
From: Tom H

Subject: Re: HUMIRA

Thanks for your kind post Deborah. I'll be interested to hear how you get on with Golimumab.

Yes I have PA.

Cheers, Tom
reply | back to forum

Date: 28.10.2012
From: Deborah

Subject: Re: HUMIRA

Hi Tom,
I have had my second injection notice I am a bit brighter on the day of my jab but wear's off again know it is early day's yet but it could be a sign of thing's to come although my psoriasis has gotten worse but heal's up really quickly again strange but hope it will settle, so far no prob's only one cold sore long may it last.

How have you been doing Tom?
How many injection's have you had now?, it must be quite a few.
Hope you are presently well myself still tired all the time but looking forward.

I really do hope you have had a change and feel better.
Look after yourself Tom. Deborah.
reply | back to forum

Date: 31.10.2012
From: willis

Subject: Re: HUMIRA

hi
daft question - you say take it out of fridge before injecting - how long for before injecting?
still waiting for them to call to come show me/husband what to do as had it since last thursday and no phone call.
reply | back to forum

Date: 31.10.2012
From: rhona

Subject: Re: HUMIRA

Hi Willis, when i was on enbrel i was told to take it out half an hour before using it but i preferred to leave it around 45mins. Good luck x
reply | back to forum

Date: 31.10.2012
From: Deborah

Subject: Re: HUMIRA

Hi Willis,
I had to phone the company who supplies the nurse as there was some sort of mix- up try and phone them to arrange a time with them.
I take mine out of the fridge a half an hour before injecting.
Hope you get sorted soon Deborah.
reply | back to forum

Date: 01.11.2012
From: willis

Subject: Re: HUMIRA

thanks rhona/deborah.
i gave them a call they are aware of me just taking time to get appts out there, girl is chasing it up for me.
i can feel the steroid injection wearing off so want to see if one replaces the other lol
have a good day xxx
reply | back to forum

Date: 08.11.2012
From: Tom H

Subject: Re: HUMIRA

Hi Deborah, seems like you are having mixed results, hope things turn for the better for you.

I have had about 12 injections now. The only thing it's really helping is my psoriasis. Bit frustrating as yet again MRI on knee has not really shown any inflamation even though you can feel it and I can't walk very well without supports. Will be back with updates and to see how the rest of you are gettin on. Cheers
reply | back to forum

Date: 11.11.2012
From: Deborah

Subject: Re: HUMIRA

Hi Tom,
It is sad to here that I thought maybe by now you would have felt better but it goes to show that all these bio- logic's are not the cure everyone made them out to be at the start.

Tom please see if they would start you on Golimumab it might suit you better with you having the same as me (pa).

I have really been well on these the last two week's I cannot believe the difference they have made to me personally. I have more energy and even went for a walk with my grandson in the buggy. No pain in any of the joint's no more headaches in fact have felt 20 yr's younger I can't believe it at time's just how much of a difference this has made to my life of course it could be just a flash in the pan but long may it last last am going to enjoy every day of it.
Just wanted to say the nurse say's this drug work's better for younger people althought I am 47.
So Tom see if you can get started on them they might help you as well.
Let me know how you get on and here's hoping we all have a better pain free future.
All the best Deborah.
reply | back to forum

Date: 25.03.2013
From: Tom H

Subject: Re: HUMIRA

HI Deborah, I hope you are still getting positive results. I'm on enbrel now but again, no real improvement.

Think I might ask about Golimumab, also Orencia.

Cheers
reply | back to forum

 

Add your comments to this topic
Subject:
Please type your comment here:

Your name:
email:

2+1=
(This sum is to help prevent automatic spamming through this page - thank-you)


top

Site design: T - Creative Home | News | Personal Stories | Links | Message Board