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Date: 30.04.2012
From: rhona

Subject: to bsk

Hi bsk, Hope you are well, we haven't heard from you in over a week just wondering if you are ok. x
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Date: 30.04.2012
From: bsk

Subject: Re: to bsk

Hi Rhona, Lynn, et al,
Thanks for your concern but I have been on holiday, got back on Saturday night and am just beginning to surface. It was lovely to get away.
How are you all?
xx
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Date: 30.04.2012
From: rhona

Subject: Re: to bsk

Oh that's good bsk, i thought it was just the weekend that you were going away but a week is even better, glad you enjoyed it. I am ok just have to decide if i am going on Rituximab or not, still thinking about it. take care xx
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Date: 30.04.2012
From: davina

Subject: Re: to bsk

hi bsk glad you had a lovely holiday.
how are you after it?

rhona what was you on before/now, good luck with your decision xx
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Date: 30.04.2012
From: rhona

Subject: Re: to bsk

Hi Davina,

I was on enbrel for 13 weeks but it didn't do a thing for me in fact i think it made me worse. I am still taking mtx 25mg and sulphasalazine and plaquenil just now and they have recommended i start rituximab infusions. It is the side effects that put me off but i will probably have to go for it unless a miracle happens lol. How are you doing? hope you are keeping well. take care xx
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Date: 30.04.2012
From: bsk

Subject: Re: to bsk

Thanks gals! I did have a lovely time, beautiful weather and the rest did me a world of good. Not so thrilled to be home lol!

Rhona, you are between a rock and a hard place, like many of us but it may work well for you so is worth the risk in my view. I'm about to restart Enbrel on Friday, half dose. Watch this space - might be following you down the rituximab path if my intuition is right.

Davina, how are things with you?
xx
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Date: 03.05.2012
From: davina

Subject: Re: to bsk

hi bsk and rhona i have gotten so bad this last week and just want to be in bed all day but have a child to look after and house work ect....
i will be getting a steroid joint shot next week in my knee so hope it helps my gp does then which i found out this week but only does 1 at a time so 2 weeks later i can have my elbow and then 2 weeks after for my shoulder ect...

rhoona how are you doing without the enbral?
and i agree with bsk the drugs all have their down side but if the pain stops and helps you to get thought the day then its worth it.
and bsk how are you doing and i really hope enbrel half dose helps xx
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Date: 04.05.2012
From: rhona

Subject: Re: to bsk

Hi Davina,

Sorry to hear you are suffering just now, it's good that your doctor can do the steroid jags, mine doesn't, i have to go the the hospital for them and even then you have to wait for an appointment which can be weeks away, although i probably have too many. I don't think i am any worse without the enbrel Davina, i really didn't feel any better on it and my hands started swelling up during the time on it and i didn't have that before. I am in quite a lot of pain though and i am considering taking some oral steroids that i have in the house.
It must be hard for you looking after a child, I hope you get plenty help. I hope you get some relief soon, you take care xx
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Date: 05.05.2012
From: bsk

Subject: Re: to bsk

Hi Davina, the steroid shots will help a lot though I'm so sorry you are having such a rough time of it. It must be very difficult for you to manage.It's a hard disease to have, most of my friends have no idea what I go through so thank goodness for this site. At least we all understand each other here.

Take care.
xx
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Date: 08.05.2012
From: davina

Subject: Re: to bsk

hi rhona i am sorry enbrel didn't work, for me either so i know how frustrating it gets, where is the miricle we were told.

bsk thank you, i had the shot this morning and its so painful but i know it should help so that out weights hopefully.
how was your enbral injection on friday? hope it went well.x
i know what you mean my mum bless her said her elbow hurts he with tennis elbow, i always ask her if she wants to swap pain and areas so she understands, i'm not in anyway saying her pain is not important or painful for her just that she doesn;t understand what pain is in multible joints at the same time xx
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Date: 08.05.2012
From: bsk

Subject: Re: to bsk

Hi Davina,it is very hard for people to understand, also the fatigue is bad for me and that is hard to understand too.

Feel ok with Enbrel shot but very, very tired. Don't know if that is enbrel or arthritis lol!
take care.xx
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Date: 08.05.2012
From: rhona

Subject: Re: to bsk

Hi Davina,
I hope your steroid helps you lots. I am feeling so sore again today and i started the oral steroids yesterday, i think i will have to get in touch with the hospital soon and maybe go for the infusions although i am so nervous about it and can't bring myself to do it yet but when i can hardly move it doesn't seem I have an option. It is very hard as you know living with this horrible disease. Take care xx
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