Date: 27.04.2012
From: anne
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Subject: anyone on tocilizumab
I was wondering if anyone is on tocilizumab and if they are what they think of it. thanks
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Date: 30.04.2012
From: chrissy
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Subject: Re: anyone on tocilizumab
Hi anne im on tox, ive had 9 infusions and up to last mth was doing ok, but i got a cold that wouldnt go and a tooth abcess so i had to miss last mths infusion, i am really flared at the moment,i had my infusion last tues still waiting for it to kick in,its hit and miss what the devil you do or you dont,have you had any other biologics, i had to fail humeria,rituximab, embrel, before i could get the tox, anyway you go for it good luck.x
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Date: 30.04.2012
From: anne
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Subject: Re: anyone on tocilizumab
Hi Chrissy, Thanks for your reply i have had enbrel without any success and now they have mentioned tocilizumab but will have to wait until next appoint to see what is happening. x
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Date: 01.05.2012
From: kylee
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Subject: Re: anyone on tocilizumab
hi anne i t am in your position. i have been on embrel for 12 months and rhummy has decided to try the infusions i havent started them yet but have my appointment for the 30th may to discuss treatment ill let you no how things are once started if you havnt done so b4 me
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Date: 02.05.2012
From: anne
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Subject: Re: anyone on tocilizumab
Thanks Kylee, let me know how you get on when you start it. good luck x
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Date: 03.05.2012
From: Aurora
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Subject: Re: anyone on tocilizumab
I've been on tocilizumab for 2 years now, and am officially out of the study but still getting it every 4 weeks.
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Date: 03.05.2012
From: anne
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Subject: Re: anyone on tocilizumab
Hi Aurora, Do you have many side effects with it?
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