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Date: 12.04.2012
From: rhona

Subject: New Thread reply to bsk and Lynn

Hi Girls, Hope you are feeling a bit better today bsk and hope you are ok Lynn. I am not feeling too good today, i haven't even managed to get dressed yet and it's nearly 3 0'clock, i hate feeling so stiff and sore. xx
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Date: 12.04.2012
From: bsk

Subject: Re: New Thread reply to bsk and Lynn

Lots of hugs Rhona, just take it easy and hang on in there for that appointment.
xx
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Date: 15.04.2012
From: Lynnr

Subject: Re: New Thread reply to bsk and Lynn

Hi girls I hope you both have been ok I'm feeling much the same at the moment Im really sore the methotrexate is making me feel sick a lot and tired but not as bad as before, but this is only week 2 so I will wait and see, I'm still waiting n my humira they say my paperwork is through at healthcare at home so here's hoping it will be here soon.

Take care
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Date: 15.04.2012
From: rhona

Subject: Re: New Thread reply to bsk and Lynn

Hi Lynn, I'm still very sore but probably not any worse than i have been. I hope it's not too long til i hear from the hospital. That's a shame that the MTX is making you feel sick, perhaps your doctor could give you something to stop that, i have heard that some people take it in injection form and that seems to help prevent the nausea.

How are you bsk? hope you are alright. xx
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Date: 15.04.2012
From: bsk

Subject: Re: New Thread reply to bsk and Lynn

hi Gals! I'm ok thanks. Trying to protect my knee a bit by not doing too much. Desperate to get away at the end of the week!

Lynn, have you got any anti sickness tablets from your gp? They help a lot. Hope you get on Humira soon.

Rhona, how is that knee?
xx
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Date: 15.04.2012
From: Lynnr

Subject: Re: New Thread reply to bsk and Lynn

Hi ladies I have heard that the injection of mxt is better for the nausea he told me if I was still feeling sick I could change onto the injection, I do take anti sickness tablets it was same the last time and got worse each week I took it until then the nose bleeds started, I hope you get your pain sorted rhona and bsk enjoy your time away

Take care
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Date: 15.04.2012
From: bsk

Subject: Re: New Thread reply to bsk and Lynn

Thank Lynn. don't like the sound of the nose bleeds. Hope you don't get them this time.
xx
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Date: 15.04.2012
From: rhona

Subject: Re: New Thread reply to bsk and Lynn

Hi bsk, my knee is very swollen, i probably will phone them again tomorrow although very fed up with it all. I forgot that you are getting ready to go away, i hope your knee isn't too bad, what do you do about it? will it settle with rest or will you have to get an injection? take care xx
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Date: 16.04.2012
From: bsk

Subject: Re: New Thread reply to bsk and Lynn

Let us know how you get on Rhona. Don't leave the knee. I'm just resting mine as much as possible, using a support and waiting to see my nurse on Wed. Don't really want to increase steroids and don't think it is bad enough for injection. In any case, wrists, ankles, shoulder and fingers now hurting. Guess drugs are wearing off.

good luck today. x
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Date: 16.04.2012
From: rhona

Subject: Re: New Thread reply to bsk and Lynn

Hi bsk, That's not so good that you are hurting, you are probably right about the drugs wearing off, i feel that the steroid injections i got in hospital have worn off now. I called today and I managed to get a cancellation appointment for my knee tomorrow, so hope that helps. My hands are really sore which makes it difficult to do anything.

Take things easy this week and look after yourself and hopefully when it's time to go away you will feel better, at least you know you have the steroids just in case you really need them. xx
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Date: 16.04.2012
From: bsk

Subject: Re: New Thread reply to bsk and Lynn

Thanks Rhona. Great news about the cancellation, good luck with it tomorrow. Hope it helps.
Mostly resting today. Can't keep my eyes open for long! xx
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Date: 17.04.2012
From: rhona

Subject: Re: New Thread reply to bsk and Lynn

Hi Girls, hope you are both feeling a bit better today. I went to hospital and got knee aspirated and injected was also given another injection to help with pain all over, that's the first i have ever had two injections on same day. I was really embarrassed as when they called my name i couldn't get off the chair and needed help to get up. Just hope this helps for a wee while. Hope you get on ok tomorrow bsk. xx
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Date: 17.04.2012
From: bsk

Subject: Re: New Thread reply to bsk and Lynn

Well that is great news Rhona. I'm so pleased you've finally got the treatment you need. Hope they kick in very soon.
I'm ok, finally looking forward to getting away!
xx
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Date: 17.04.2012
From: Lynnr

Subject: Re: New Thread reply to bsk and Lynn

Hi girls rhona I'm glad you got some treatment and open they start to work soon, bsk enjoy the break... I'm taking week 3 methotrexate tomorow this was when it went down hill last time so fingers crossed this time.

Tc x
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Date: 17.04.2012
From: rhona

Subject: Re: New Thread reply to bsk and Lynn

Try not to think of that Lynn, if it does upset you then perhaps the injections might be a better option. Do you find they are helping? x
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Date: 18.04.2012
From: bsk

Subject: Re: New Thread reply to bsk and Lynn

Hi girls, Hope you are feeling better Rhona and you ok on the mtx Lynn.

I've got a throat infection and back on antibiotics. Can you believe it? Also have to up my steroids. Not a good day for me. Curled up on the couch most of the afternoon. Hope I can get away at the weekend.
xx
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Date: 18.04.2012
From: rhona

Subject: Re: New Thread reply to bsk and Lynn

Hi bsk, Oh that's not good you back on antibiotics but they usually work quite quickly so hopefully it won't interfere with your plans to get away at the weekend. Make sure you get plenty rest and drink plenty water. This is the first day in as long as i can remember that i feel almost normal, i just wish I could feel this way all the time but i know it wont last. Hope you are doing ok Lynn on the mtx. xx
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Date: 18.04.2012
From: marlene

Subject: Re: New Thread reply to bsk and Lynn

Hi BSK, keep wrapped up warm and rest and you should be good for your break. Wish you well xx
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Date: 19.04.2012
From: bsk

Subject: Re: New Thread reply to bsk and Lynn

Thanks Marlene and Rhona, I intend to follow your advice!


Rhona, I'm so pleased for you. Make the most of it.
xx
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Date: 19.04.2012
From: rhona

Subject: Re: New Thread reply to bsk and Lynn

Thanks bsk, hope you are a bit better today. I was at the nurse getting my bloods done this morning and she thought i looked much better, i have a healthy glow from the steroid, looks like i have been in the sun lol. I just hope it lasts a wee while as i dread going back to the way i was on Tuesday. I hope you have a good weekend bsk, the break will do you good. xx
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Date: 19.04.2012
From: bsk

Subject: Re: New Thread reply to bsk and Lynn

thanks hon! Your steroid should last quite a few weeks, so enjoy!
So glad to hear you are feeling better.
xx
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Date: 21.04.2012
From: Lynnr

Subject: Re: New Thread reply to bsk and Lynn

Well ladies I've not been on in a few days how have things been? I've still not had my new delivery of humira they are not sure how long it will take so just plodding on with mxt, waiting to speak with doc on we'd about my bloods.

How you are both well x
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Date: 21.04.2012
From: rhona

Subject: Re: New Thread reply to bsk and Lynn

Hi Lynn, I'm not too bad at the moment thanks but that's because i got the steroid injections on tues. it has make a big difference. I'm still waiting to hear from the hospital about an earlier appoint. Hope you are feeling a bit better and get your bloods sorted out on wednesday. take care xx
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Date: 24.04.2012
From: Lynnr

Subject: Re: New Thread reply to bsk and Lynn

Hi ladies I've not been on for a few days I'm so fed up to be honest I've got another throat infection which means I'm off the methotrexate and enbrel :( I am so sick of this it's infection after infection I really am at the stage of stopping all my meds and seeing how i feel hope you oth are getting on better than me I've still not heard anything about the humira being delivered and to be honest I really don't care I'm so down these last few days sorry to rant

Take care lynn x
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Date: 25.04.2012
From: rhona

Subject: Re: New Thread reply to bsk and Lynn

No wonder you are fed up Lynn, i know the feeling. I have an appointment with the consultant this afternoon so don't know what they will suggest as next course of treatment. I can feel the steroid injections wearing off already. At times i could scream with it all.

How are you bsk? hope you had a nice break away. xx
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Date: 25.04.2012
From: Lynnr

Subject: Re: New Thread reply to bsk and Lynn

Hiya rhona how did It go did they give you a different anti tnf? I hope so xx
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Date: 25.04.2012
From: rhona

Subject: Re: New Thread reply to bsk and Lynn

Hi Lynn, they want me to start on Rituximab which is an infusion, they gave me a leaflet to take home and read and decide what i want to do. I really don't know what to do, seemingly there is a rare fatal brain disease that is can cause which scares the hell out of me but she said my arthritis is very active which i aready knew so i may just have to go for it. I would hate to agree then it not to work or to take some horrible side effect but i dont really think i have much choice. I hope bsk is ok, unusual for her not to be on. you take care and hope you feel better soon. xx
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Date: 26.04.2012
From: Lynnr

Subject: Re: New Thread reply to bsk and Lynn

Aw I was dreading my rhumy mentioning that drug to me as I've read about that rare thing it's really a catch 22 I'm not sure if I'm going to stop all my meds for the time being because they are just making me much worse but as you say this might just be the drug for u it's horrible that you have to make that decision but try not to worry the decision you make will be the right one... Did they offermu an alternative to the infusion? Yeah I've noticed bsk hasn't been on I hope things are ok

Take care and let me know what you decide, it can take a while to get the next drug as I still hasn't recieved my humira :(
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