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Date: 30.12.2011
From: davina

Subject: arthritis under control, if so how long.

Hi all hope everyone is well and had a lovely Christmas and new year.

As the title says I want to get to know more of you guys so I thought I would ask you all if your arthritis is under control or not, how long you have had you arthritis, what meds your on and if its under control how long for.
If you don't want to please don't feel you have to.

Also if you want to add other info regarding your family life or work please do so.
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Date: 30.12.2011
From: willis

Subject: Re: arthritis under control, if so how long.

hi Davina - here goes
obviously had RA for years and didn't realise or just ignored assuming was just 'unfit' lol. after suffering badly for 5 months! family and work colleagues forced me to docs. so in march 2010 was officially diagnosed with sero-negative RA. was put on plaquenil + steroid tabs high dosage and methotrexate low dose and over the weeks had to lower steroid tabs and up the mtx. must admit had instant relief but that i've discovered was the steroids :) since then i've suffered a flare up - thought my time was up as it was worse than i'd felt ever. meds now 200mg a day of plaquenil, 20mg of mtx per week, no steroids :( each day is different but i ache constantly still. today my arm and shoulder are letting me know they not liking me typing this. all in all i am better than i could be i suppose, adjusting to 'new life' has been and ordeal as always did everything at 100 mph in life and now i have slow or stop lol. i am very lucky that work in family business so can do just 3 or 4 hrs a day and celebrate whenever i manage a full day at work -but that is getting less these days. frustration is the biggest problem other than constant pain and/or stiffness as mentally i am fine but body can't keep up. so i finish work early and then have to rest when what i want to do is tidy house, go shopping etc but can't :( . doc and rhuemy nurse are great i have to say. and that's it really , that's my story. I could cry most days but am glad i can sleep all night 3 out of 7 which is an improvement. So, under control (ish) but better than I know I would be without the meds. what about you? xxx
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Date: 30.12.2011
From: rhona

Subject: Re: arthritis under control, if so how long.

Hi Davina, I have had R/A (sero positive) for over 10 years and for a while i got by on sulphasalazine then methetrexate was added and finally plaquenil, unfortunatley the last few months have been really bad, swollen knees, sore feet and now my hips are sore along with shoulder and other joint pains, my last ESR reading was 95 the highest ever. I am now waiting to start embrel, it is being delivered soon and i hope it works. I had a nice Christmas but i had to do my shopping on-line as i haven't been able to get out so i hope 2012 will be a better year for myself and everyone else. best wishes. x
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Date: 30.12.2011
From: davina

Subject: Re: arthritis under control, if so how long.

sorry couldn't conect to the internet so this is my story.

i had pain all during my pregnancy and my knee give way while walking down stairs when i was 22 weeks and had 2 night stay in hopsital.
after having my son started having pains in knees, wrists and shoulders, after suffering for 8 months and returned to work the pain started to increase. after going to see gp and being dignosed i have been on methatrexate, plaquenil and sulphasalazine which didn't work no currently on enbral and waiting to start cimiza.

my son is now 2 1/2 and and i have been diganosed for 2 years, current not uncontrol at all and really hoping cimiza does its thing for me. xxxx
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Date: 30.12.2011
From: sandy

Subject: Re: arthritis under control, if so how long.

Hi Davina
iv'e had RA for over 10yrs,Iv'e tried all sorts of treatments and at the moment i'm taking rituximab methotrexate sulphasalazine and oramorph - since iv'e been on the rituximab i think its the best iv'e ever been - i still have bad times it never goes away but at least at the moment it's bearable and i dont feel like banging my head against a wall!!
i work in audiology i'm 49 a mum of three and grandma of 4
just want to wish you and everyone else on here a very happy new year
take care xx
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Date: 30.12.2011
From: Christine

Subject: Re: arthritis under control, if so how long.

Hi Davina. I was diagnosed about 2 years ago. At first I was told to take paracetamol every day then I was prescribed sulphasalazine but it affected my liver. I then tried hydroxychloroquine but came out in a rash all over. Diclofenac did the same. Just had a letter to say I missed an appointment just before Xmas but didn't get the letter telling me when the appointment was so I don't know what the rheumatologist will suggest next.
I haven't been taking anything for about 4 months but don't seem to be affected too much now. I started off becoming more and more stiff with painful joints. It was a big blow as I used to run half marathons but now, I am starting to feel that I may be able to go running again.
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Date: 01.01.2012
From: Sidney

Subject: Re: arthritis under control, if so how long.

hi, Davina...wish you all a pain-free 2012.
I have gout and for last 6 years I have it controlled ... although I feel it when the pain is comming back... a tickleing sensation on those gout points... when my joints feel pain, here is what i do that time:
few times a day, I cradle my right elbow (folded) with my left hand and press the crese of my elbow with thumb of my other hand ... I do the same with my other elbow... (in acupresure, they call it "Crooked Pond")
what I read in the Internet, if I press at the crease of my elbow, the brain releases more endorphins. (Endorphin is a natural body painkiller).. I feel some relief...
One have to follow what our GP ask us to do... but I thought, hey, why not try our body's own painkiller... and it works for me...
please do lot of reading before go for any alternative, but I just wish you contain the pain and sleep well every night.
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Date: 03.01.2012
From: davina

Subject: Re: arthritis under control, if so how long.

hi everyone thanks for your comments
willis sounds like your family know whats best lol, i am too have good/bad days and everyday i wake up and pray its good but the bad out weight the good. my elbow and knee on oppsite sides are affected which is difficult to use crutches but get on with it as i have my son.
i too like to do things really quickly and still not got used to doing things as my body tells me too, i still over do it to much. xx

rhona sorry your pain has got worse and wow 95 foe esr mine was 74 at highest. really hope enbral works for you and your levels go down. i to did lots of shopping online has i have my son with me and some items can be heavy so its just easier. happy new year x

sandy thank you for that sound like all is good for you at the moment. x
sidney that sounds very interesting and it works for you which is great. sorry the pain is coming back hope its just a little blip and stops soon. x

christine really sorry that meds arn't working for you i hope 1 med does soon. sounds like your under control hopefully you will stay like it a while. x
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