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Date: 28.10.2011
From: Irene

Subject: what is wrong with me?

Maybe, somebody will help me to understand what I am suffering from. The doctors fob me off for four years, because my Rh Factor and autoimmune profile is clear.
It started with swellings on fingers, at first small knots, then the whole joints, now I wake up every day, not being able to bend front fingers for a few hours and in pain. Recently it spread on a knee joint. I got a bulge on the side, which is here to stay. First two days the bluge was hot, now it's cold but painful and painful to walk. I was given steroid injection in the knee, which didn't make the slightest difference. Generally steroids or leflunamide have very limited effect on my condiion, but it seems to be slowly spreading. Now hip joints are burning. Usually it preceeds to swelling. I am afraid that if steroids don't seem to work for me, I will be told that it's not an inflammation (they diagnose me with fibromyalgia, but F. doesn't cause joints to swell or disfigure them) and left at that.
I used to take sulfasalasine and plaquenil, but they stopped helping me, after a severe a prolonged stress. That's when the illness began being unmanageable and started to slowly spread. Before knee swelling, I took a few pregnenolone pills. They always seemed to set a pain off, but this time the joint has changed. If anyone can give me a clue. I'm tired of being trown from pillar to post and of this constant pain. I am told that it's not arthritis, and as steroids don't help much, I'll be told this again.

Thank you.
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Date: 28.10.2011
From: davina

Subject: Re: what is wrong with me?

hello irene sorry your having a really tough time and no one as given you an answer. it sounds like arthritis not sure which one but the syptoms go with it.
what was the highest dose of steroid was you give because i went up to 40mg because i didn't respond to them before
have you seen a rheumy?

just a though maybe ask for another specialist to see you to get another opinion and hope they help more than this doctor.
take care.x
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Date: 31.10.2011
From: jae

Subject: Re: what is wrong with me?

definatly arther get a second or third opinion until they give you an answer i stuck with leflunimide for 8 months until i relised i prefer the agony rather than how ill i felt just keep on at the docs good luck lol
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