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Date: 27.10.2011
From: lynnr

Subject: lefluomide and bruising

hi i was wondering if anyone that is on lefluomide has ever had any bruising it says on my sheet you have to stop it immediatly and contact rhumy nurse which i did and i am waiting on a call back, i have got around 16 bruises on my lower legs which are definately unexplained!!!! any advice would be grat, this is my 4th dmard and im having a major flare and want this pain to go away grrrrr rant over x
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Date: 31.10.2011
From: jae

Subject: Re: lefluomide and bruising

yes a little had to give it up after 8 months made me feel like death itself decided i would rather suffer with the pain than feel as bad as i did dont get me wrong i didnt have one flare up whilst i ws on it but the side affects for me at least just not worth it `but do remember this is not a nice drug and any symptoms you are worried about JUST STOP TAKING IT until you get confirmation that its ok
lol j
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Date: 14.11.2011
From: mads

Subject: Re: lefluomide and bruising

oh Lynnr sorry to hear that, you started the lef around the same time as me. I don't have bruises but i am so exhausted all the time and whilst it has helped with my knees i am still in constant upper body pain.
I have had two episodes where i go really cold and then shake for about an hour until i can get heat into me. Its really wierd like the onset of flu but then it goes again.
How are you now?
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