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Date: 25.10.2011
From: Dilizo

Subject: Feeling fed up with Meth and no improvement!!!!!

Hiya I am on the moan again... been on Meth for over 6 months now and to be honest not experienced any improvement only more pain. My ESR and Liver function tests are raised which they said can happen if I had had a drink the night before but I cannot remember the last time I had a drink so it appears to be having an effect on my Liver I am really considering coming of Meth all together as it seems to be causing even more issues.
Have managed to get an appointment with Rheummy nurse next week to discuss it so we will see how it goes.
Hope everyone else is doing well:)
Take care allxx
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Date: 25.10.2011
From: mia

Subject: Re: Feeling fed up with Meth and no improvement!!!!!

look after yourself.xx nightxx
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Date: 26.10.2011
From: davina

Subject: Re: Feeling fed up with Meth and no improvement!!!!!

Defo sounds like you need something else. like you know there are more meds out there to try and hopefully your liver count returns to normal.
take care. x
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Date: 26.10.2011
From: Val

Subject: Re: Feeling fed up with Meth and no improvement!!!!!

Know a couple of people who are now on injection and they have found this works for them. Take care and good luck.
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Date: 26.10.2011
From: bsk

Subject: Re: Feeling fed up with Meth and no improvement!!!!!

It didn't work for me either Dilizo. Have you tried any other dmards? If so, you might be eligible for anti tnfs. I still reliant on steroids to keep me reasonable ok unfortunately.
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Date: 26.10.2011
From: Sandy

Subject: Re: Feeling fed up with Meth and no improvement!!!!!

I agree with Val - using the injections does seem to work better (they do for me anyway)I hope you feel better soon xx
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Date: 27.10.2011
From: julie

Subject: Re: Feeling fed up with Meth and no improvement!!!!!

bsk ... Do you know if there is a limit to how many steriod injections you can have? x
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Date: 27.10.2011
From: bsk

Subject: Re: Feeling fed up with Meth and no improvement!!!!!

Yes, four in a year I think. I take low dose oral steroids, have done for two years so haven't had an injection for a while.
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Date: 31.10.2011
From: rhona

Subject: Re: Feeling fed up with Meth and no improvement!!!!!

i have been told a maximum of 3 into the same joint in a year but not sure how many if you have different joints injected.
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Date: 31.10.2011
From: bsk

Subject: Re: Feeling fed up with Meth and no improvement!!!!!

I was talking about systemic injections, not into joints. Sorry, misunderstood.
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Date: 31.10.2011
From: rhona

Subject: Re: Feeling fed up with Meth and no improvement!!!!!

does that mean you can have 4 systemic injection plus the joint injections? i never seem to get a clear answer when i ask at clinic.I would also appreciate any information on injections into the foot.
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Date: 31.10.2011
From: bsk

Subject: Re: Feeling fed up with Meth and no improvement!!!!!

It is max four injections for systemic. I had two in 6th months plus injection in knee and 2 in my shoulder. I think you can have up to 3 as you said. But I think it's much more likely they will try and get you onto other meds than keep injecting the same joint. At least that is my view anyway. Also, different rheumys have different points of view.
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Date: 01.11.2011
From: rhona

Subject: Re: Feeling fed up with Meth and no improvement!!!!!

thanks bsk for your reply, i have had quite a lot of injections this year and still feel awful, i am on meth.20mg sulphas and plaquenil and my ESR this morning was 59. I have an appointment at rheumy tomorrow and think you are right about needing another medication.
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Date: 01.11.2011
From: bsk

Subject: Re: Feeling fed up with Meth and no improvement!!!!!

Have you got RA? What about anti tnfs?
Good luck with your appt tomorrow. Let us know how it goes.
xx
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Date: 01.11.2011
From: rhona

Subject: Re: Feeling fed up with Meth and no improvement!!!!!

hi bsk, yes i have RA, i have had it for over 10 years but now feel medication isn't helping, i hope they suggest anti tnfs tomorrow. thanks for your good wishes rhona. x
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Date: 02.11.2011
From: bsk

Subject: Re: Feeling fed up with Meth and no improvement!!!!!

Sounds as if you are in a very good position to argue for them. Go for it! Chat later I hope.
x
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Date: 02.11.2011
From: rhona

Subject: Re: Feeling fed up with Meth and no improvement!!!!!

hi, just to let you know that i went this morning to rheumy, i have to increase meth. to 25mg and also got chest xray. i have to go back next month and if bloods and xray ok then i think i have to get tnf, they gave me a leaflet on Etanercept to read, so hoping xray ok as they called me in for a second one as the first wasn't clear they said. Do you know anything about etanercept (Enbrel) x
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Date: 03.11.2011
From: marlene

Subject: Re: Feeling fed up with Meth and no improvement!!!!!

Hi Dilizo,how are you have you been to rhumy team yet? I noticed you haven't been on much I was off forum for a few days, after a little calamity and I also am off to GP in the morning.You Take Care now sending hugs XX
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Date: 05.11.2011
From: Dilizjo

Subject: Re: Feeling fed up with Meth and no improvement!!!!!

Hiya Marlene:) I am seeing the rhumy nurse this week so hopefully we will get things sorted out:)
but have the best medication in my house at the min so feeling a lot better, have had a rough couple of weeks both the RA and ESA but have finally managed to win Sam's appeal for him without going to tribunal so that stress has gone now. Hope your GP appt went well:)
take care xx
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Date: 05.11.2011
From: marlene

Subject: Re: Feeling fed up with Meth and no improvement!!!!!

Ohh so pleased you and Sam have sorted the appeal without the stress of a tribunal. Gp put me on a strong anti-biotic and steroids for a week to try to sort inflammation out. I was a bit steroids I have OA he said yes i know but look at all this swelling you need to calm it all down. If my back doesn't calm down to my gps satisfaction he is going to send me back for a ct scan just to check for damage. I'm a little worried but what is the point it could be months before i am seen. I hope you get good results at your rhumy app. I know your best medication is without a doubt your grankids. Seeing all of mine later to-day mums birthday so we are all going to a firework display, sadly my daughter is doing a late shift at work won't be there.My sons birthday tommorrow so celebrating all week-end. Good old pain meds LOL. Hope you have a fantastic week-end with your little family as you say best tonic going. Love to you all Take Care XX
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Date: 10.11.2011
From: Dilizjo

Subject: Re: Feeling fed up with Meth and no improvement!!!!!

Hiya:)
went to Rheummy nurse yesterday and have had my Meth increased to see if that helps..... we will wait and see, was also told that I have a lot of OA which didn't surprise me and that the RA has been very active and to finish the visit had a steroid injection, which I was a bit dubious about as I'm already on them via an inhaler for my COPD and in the cream for this silly skin rash that keeps appearing on my hands.. Ahhh well if I 'm going to do something I can't do it in halves have to go the whole hog.
Hope you had a great time with the fireworks we did it was great to have the whole family here:) still have the 2 babies with us till Saturday and am enjoying every minute of it:)
I really hope your back has calmed down now and you're feeling better:)
take care xx
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Date: 10.11.2011
From: bsk

Subject: Re: Feeling fed up with Meth and no improvement!!!!!

Hi Dilizjo, hope the steroid injection helps, I always find they do and was told that the steroids in an inhaler are very small and don't go into your system. (yes, I'm on those too lol!) so you can have both no problem.
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Date: 10.11.2011
From: marlene

Subject: Re: Feeling fed up with Meth and no improvement!!!!!

Hello there, glad you seen rhumy team and hope the injection works for you. I know what you are saying about steroids, when my gp gave them to me last week i wasn't at all sure as I didn't realise they gave them to people with oa. I must say the swelling has mostly gone now. Glad you had a good firework week-end, mine was great also. The youngest grandaughter 14months was just amazed by it all we thought it would scare her but not at all. You keep enjoying those babies. The back has come pretty good as well so fingers crossed no long term damage. Take Care X
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