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Date: 26.09.2011
From: sandy

Subject: hello - I'm new here

Hi
I've only ever written one post on here - I'm pretty new to using a home computer - I only had the internet installed at home about 6 months ago cos I was feeling really isolated with RA and thought it would be nice to chat with other people who really understand what its like to live with - I feel like such an idiot at times when people ask why I'm limping today when I wasn't yesterday or why cant you cut your own food up etc....
Does anyone else out there feel humiliated by this condition ?? I sometimes feel like such a fraud as I'm sure people think Oh whats wrong with her today !!
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Date: 27.09.2011
From: Dilizjo

Subject: Re: hello - I'm new here

Hi Sandy and welcome, I am sure you will find lots of empathy on here.
I know where you are coming from when you say you feel like a fraud, when people ask you those stupid questions and when you tell them it is RA they hear the word arthritis and think why she making such a big thing of it, that can easily be coped with....
Tell them to Google RA and then they will understand the severity of your condition.
I feel isolated at times and stuck in the house, I am angry that when my Grand children come I can't do the things I was able to a few years back, but then I think about the youngsters on here with young children who are suffering the same as me and am thankfull for the time I had pain free bringing my children up, so really things aren't that bad
I am really lucky in the respect that my family are fully supportive especially my youngest son... I have my own personal chef:) he won't let me cook after I scalded myself, God bless him...
You have come to the best place here everyone knows how it feels and they are really good at giving avice, supporting you, having a good rant on bad days...(something we all do) and raising a smile. As I have said many times this is the best medicine there is.
Keep coming back and take care xx
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Date: 27.09.2011
From: sandy

Subject: Re: hello - I'm new here

Hi Dilizjo
thanks for the reply - I'm sorry for moaning - just feeling sorry for myself yesterday !!
i think your right - people really dont understand - arthritis is such a common thing and people just think its just a few aches and pains (I wish thats all it was !)I have the same thing as you with my grandchildren - when my youngest comes to me with her arms up (shes 20mths old)I feel awful when I cant pick her up.
I was diagnosed with RA when I was 39 - Im 49 now
but as you say I'm lucky - my family do try to understand and help - but i think its me i dont like losing my independance !! still i'm starting on a new drug soon (etenercept)so hopefully fingers crossed that will be the wonder cure I'm looking for !! any way thanks again - I'll try to be more cheerful in future !!
sandy
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Date: 27.09.2011
From: Dilizjo

Subject: Re: hello - I'm new here

Hey Sandy never be sorry for feeling the way you do, we all feel that way and at the moment I'm quite a moanalot as well, we are all here to support you to the best of our ability,
Take care and keep smiling:) xx
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Date: 27.09.2011
From: sandy

Subject: Re: hello - I'm new here

hi Dilizjo
thanks again - just talking to you has cheered me up - so i think I will keep coming to the forum.
take care
sandy xx
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Date: 27.09.2011
From: Dilizjo

Subject: Re: hello - I'm new here

Glad to hear that Sandy and I look forward to seeing you here:)

Keep smiling:) Take care xx
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Date: 27.09.2011
From: marlene

Subject: Re: hello - I'm new here

Just want to say a big welcome Sandy. Nice to hear from you, moan all you want we are one happy family and all need cheering up at times.You take Care
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Date: 27.09.2011
From: willis

Subject: Re: hello - I'm new here

Hi Sandy and welcome to the forum. I am still relatively new to here too and felt terrible about putting things on about how bad and down and depressed I was - but - the guys are brilliant at keeping me going. I'm on a high at the moment as consultant gave me a nice big steroid jab a few weeks ago and i'm mobile again and it's a new lease of life - for a while :) we're all here to help each other and i'm so glad I found the forum as don't know were i'd be without it. keep your chin up xxxx
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Date: 27.09.2011
From: Sandy

Subject: Re: hello - I'm new here

hi Marlene and Willis
Thank you both for the replies - everyone here seems so friendly - it really does make me feel better to hear from others with the same problems.I think one of the hidden symptems of arthritis is feeling isolated - so its great to know that you can come on here and have a chat and read some of the other comments that make you smile.thanks again Sandy xx
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Date: 27.09.2011
From: davina

Subject: Re: hello - I'm new here

hi sandy, welcome to this great place, i have found lovely people and they are very helpful. listen to everything also so please have a moan all you want.

i understand the comments when i take my son to nursery of playgroup i use a crutch normally everyday but sometimes on my good days i try and do without because its so much easier to look after a 2 year old without it and i think people look at me and say fraud.
i do also feel humiliated at times when i can't pick my son up after his fallen or as you said cut food or picking up objects that are on the floor ect...

i just wanted to say hello and hope you find help and comfort like i have. xx
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Date: 27.09.2011
From: Sandy

Subject: Re: hello - I'm new here

Hi Davina
Thanks for the reply - now I really do feel guilty for moaning - if you can manage to look after a 2yr old and still keep smiling - I've got nothing to moan about!! the people on this forum seem lovely - I'm so glad I plucked up the courage to come on it - I've been reading it for a while but I was always a bit nervous about joining in - I'm so glad I did now - I tend not to talk about the RA with anyone cos I'm sure they dont want to hear me whinging constantly !!while I'm on I wonder if any of you can tell me if you've tried Etenercept - as I said before I'm starting on it soon as the other new drugs dont work for me (adalimabab attacked my nervous system and stopped me being able to walk and rituximab was brilliant for a while but has stopped working for me now)I'm just hoping somebody is gonna tell me that its wonderful - no side effects and works brilliantly (well a girl can dream!!)thanks again.Sandy xx
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Date: 29.09.2011
From: Dilizjo

Subject: Re: hello - I'm new here

It does us all good to dream Sandy:)
I'm really glad you plucked up the courage as you said just hope we can support:)
Keep smiling and take care xx
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Date: 30.09.2011
From: mads

Subject: Re: hello - I'm new here

I read your post Sandy and i felt like i could have written it a few months back - I feel like an old woman with bent back trying to walk and i do get embarrassed because my weight has shot up and quite a few people have said that i could walk better if i lost the weight (have put on 4 stone in 18 months - now 14 stone) as if i haven't tried or that the weight is causing my problems. Anyway, after a few months of major flare i am now going on oral steroids and a new dmard so happy. Was feeling quite desperate. Sandy this is a great place for a good moan, you are with fellow sufferers who know what you are going through and you don't feel you have to constantly apologise for having RA.
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Date: 30.09.2011
From: Sandy

Subject: Re: hello - I'm new here

Hi Mads
thank you.
I'm glad that your feeling happier with getting some new meds.I've got the opposite problem to you - I've gone from a size 12 to a size 8 (it's just a shame that my skin stayed at a size 12 - it really doesn't help with the wrinkles lol) for the last few days I've pretty much been living on soup and coffee cos it's in my jaw at the moment and I cant open my mouth very well to eat - oh well,theres a bright side to everything - it means my husband gets some peace and quiet and I've got a really good excuse to stuff myself with cakes and chocolate when it wears off!! thanks again,take care
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