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Date: 12.09.2011
From: kylee

Subject: nerve pain maybe??????

hi all hope all are well
i have been to my gp today with what id say is nerve pain my gp doesnt have a clue with what it is so has written to my rhummy for him to see me. i woundered if any1 had my symptoms
i was treated for nerve pains in my hands yr ago with 75mg amitriptyline and 20mg fluoxitine i still take these tablets any way 2 weeks ago i started with what felt like presure on the top of my head it felt with fast head movements my bain was sloshing round then my eye sight began to blure then 3 days after that eyes went back to normal a week ago i started getting electric shock type pains throughout my body just random shocks in different parts of the body i get these roughly every ten seconds the worst is when it gets my sholder or head. i wole in the night last night almost choking as it felt like i had fishing line dangling dwn my throat but obviously i dint lol and now i still have electric pains but my muscles ach all over i havnt got an infection or cold so its not that temputure normal my blood pressure for the last 2 weeks has been roughly 70\58 this is low for me today it was 110\90 my feet keep going numb i have got circulation patchs going from ankle to knee i was standing talking yesterday when i realized my left leg went completly numb i could move it it was like pins and needles from foot to knee and i had to wait till the sensation went bk to normal as im sure if i had tried to walk my leg would of fell off lol
if any1 could shed some light it would be great i have zeronegative inflammatory polyarthrtis
look forward to your replies
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Date: 14.09.2011
From: davina

Subject: Re: nerve pain maybe??????

hi kylee sorry i can't give you any advice regarding the circulation problems but hope you are well today. can i ask what meds your on for your PA cause anti-tnf's can cause problems with nerve and sensation problems which is not good. if you are on any off these i would contact your rheumy/nurse asap to get advice. don't want to worry you sorry. also your blood presure does look low to me, i'm not medically trained so i could be wrong but just to be safe.
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Date: 14.09.2011
From: kylee

Subject: Re: nerve pain maybe??????

hi davina yes im on entanercept injections once a week 50mg and celcoxib for pain relief and other pain relief drugs. my gp said they were going to send a letter to my rhummy to get an appointment hope im not waiting to long as last night when i went to bed my legs were so painful not in the joints but up the front and in the calfs guessing it was conected to poor circulation but it was awful
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Date: 14.09.2011
From: davina

Subject: Re: nerve pain maybe??????

really! please ring your rheumy 2morrow
i think you really need so advice that is from someone that can help lots more than your gp or go to your gp and tell them your not leaving til they call your rheumy for an appointment. take care let me know what happens, xx
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Date: 16.09.2011
From: davina

Subject: Re: nerve pain maybe??????

hi kylee hope you are ok. xx
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Date: 16.09.2011
From: marlene

Subject: Re: nerve pain maybe??????

Hi Kylee, just read your post hope you are feeling a little better, well lots better. Hope you got some answers from your rhumy team. Take Care big hugs coming your way X
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