Date: 07.09.2011
From: Lydia
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Subject: been to see consultant
Hi went to see the consultant i have RA for 10yrs been on sulfasalazine but it is no longer working, he said i have to see the Rummy nurse and he wants me to go on MTX and to stop the other medication i am very worried about this i googled it and the side affects have frightened me have been in flare up for months now my esr was 50? he was going to give me a steroid injection in the bum but i had a reaction to one i had in my knee about 5 yrs ago so he said not to have it not worth the risk don't know what to think about it all help !
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Date: 07.09.2011
From: lynnr
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Subject: Re: been to see consultant
i have just been taken of mxt for the side effect had recurring sore throat on it then i started to get nose bleeds i felf awful most of the time migraines nausea tirdness but it was something i needed to try i was also taken off sulphsalazine because of side effects as well i know everyone is different and you never know mxt might just be the meds for you i know the side effects are scary but regular bloods will help keep your mind at ease. I hope you find something that helps you soon x
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Date: 07.09.2011
From: kirst
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Subject: Re: been to see consultant
Ive also come off MTX for side effects but had managed a year and a half before i had to stop. I was on 20mg. and my main side effect was sickness and disturbances to my menstration.
Please dont get cought up in what ifs with regards to side effecs because i know of lots of people who never get a single side effect. They will start you on a small dose to begin with then build it up. If you are will not convinced speak to the rummy nurse about your conserns. sorry i cant more advice x
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Date: 07.09.2011
From: mads
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Subject: Re: been to see consultant
hi Lydia
i agree with the other two - those who are on metx and don't suffer from side effects usually get a good response. And the other thing to remember is that if there is the slightest indication that something is amiss they do take you off immediately. Hope you get sorted.
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Date: 08.09.2011
From: ramps
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Subject: Re: been to see consultant
Hi Lydia,
Mxt didn't agree with me but doesn't agree with everyone. I tried it tho, and its true what kirst said about ifs and buts, read all the side effects of any meds like asprin, parcetamol and other daily consumed meds and they all have some possible side effects.
If it doesn't agree with you then your consultant should take you off it and try something else.
Hopefully you will get there, and the sooner you get the pain under control, the better.
Let us know how you get on.
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Date: 08.09.2011
From: lydia
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Subject: Re: been to see consultant
Thanks for the reply's everyone the Rummy Nurse said i won't be seeing her until end October as she has a backlog ! not taking the sulfas now it's been 2 days and my hands & knees are worse already
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Date: 08.09.2011
From: ramps
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Subject: Re: been to see consultant
Would suggest you go back to Rummy nurse if worse already, she may have backlog but you are in pain, and pain means damage could be occurring, so whats more important? Can you not keep taking sulfas til you at least see her?
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Date: 09.09.2011
From: Lydia
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Subject: Re: been to see consultant
I don't know if i can still take them i have thought about doing that , i think i will phone and leave a message on Monday and explain i can't cope without something i appreciate all your reply's thanks x
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