Arthritis Forum
Home.

News.

Personal Stories. Links. Message Board.  
Arthritis Forum  
Add your comments to this topic Start a new topic
Date: 25.08.2011
From: kirst

Subject: Not happy with my rhumatology team...

I went to physio yesterday to be asked if i realised i have an automatic open referal to physio therapy when i need it and apparently ive got the same for the occupatioinal therapist!!!
All this time ive been faffing on with DLA and ESA appeals process and the whole thing may be helped had i had an OT involved from the start!

Not a happy bunny! Just wondering if anyone has any idea what else may be available to me which ive not been told about?

Cant belive that ive never been told. All the times i said to my rummy about problems like getting into and out of the bath, off the loo ect and i could have had halp. As it is i had the sence to contact the council and spoke to their OT in order to be rehoused so i now have a wet room shower, grab rails ect but if i hadnt sont that myself id still be stuch having my husband helping me with personal care even more than he does now. ggggrrrrr! Rant over
reply | back to forum

Date: 25.08.2011
From: bsk

Subject: Re: Not happy with my rhumatology team...

In my borough in London you have to self refer, which I think is abysmal as I didn't realise I could get help when I was struggling to get on and off the loo and in and out of bed or a chair. I was seeing gps, physio specialist and various other people at the time and not one of them was able to trigger any help for me. I've make a verbal complaint to the head of social services at the council as I think it hard to make the decision that you are bad enough for help. Also, you have no idea what is out there. I'm quite angry I was left to my own devices for so long.

However, after diagnosis and contact with the OT in the community, I found them excellent. They arranged hand grabs, kitchen aids, an electronic gate etc. And they helped secure a blue badge for me.

However, I have no access to physio and I wonder whether I should.
reply | back to forum

Date: 25.08.2011
From: kirst

Subject: Re: Not happy with my rhumatology team...

It really is poor that people are not being told the full extent of what services are available... makes me wonder if they are trying to save money by not telling us.
i have to say i feel let down but ive not been let down as badly as you seem to have been. Makes me mad!
reply | back to forum

Date: 25.08.2011
From: bsk

Subject: Re: Not happy with my rhumatology team...

part of the problem is that you keep hoping you will get better so are reluctant to ask for help, at least that was my experience
reply | back to forum

Date: 26.08.2011
From: marlene

Subject: Re: Not happy with my rhumatology team...

It is difficult to know what you are entitled to. I have my mum living with me when she had a hip replacement, they were trying to send her home to me five days later, i am not kidding i had to show a nurse and ward sister my 7" scar on my back before they listened to the fact i was unable to lift her or give her support in any way. Within two hours she was found a rehab place in my local hospital on-suite room.She received first class physio and brilliant nursing care. When she was discharged four weeks later she had a daily carer to help with her daily shower and to walk her around the block every day.But why should I of had to show my back surgery scar to anyone to make them listen.The help is there to be had i just think they dont want too many people knowing it LOL although its not funny in the slightest. Sometimes we are desperate for help and we just hit a brick wall, after all we dont all have scars to prove we or our loved ones need help. Well thats my two pennys worth. Take Care all and dont let them get to you. X
reply | back to forum

 

Add your comments to this topic
Subject:
Please type your comment here:

Your name:
email:

2+10=
(This sum is to help prevent automatic spamming through this page - thank-you)


top

Site design: T - Creative Home | News | Personal Stories | Links | Message Board