Date: 08.06.2011
From: Shiffy
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Subject: RA AND BIOLOGICS - SUCCESS OR FAILURE
Hi. I dont post much on this Forum but read mostly and on how people respond to current treatments. I have had RA for nearly 15 yrs Started on MTX DONT KNOW HOW IT HELPS but after my injection I feel a very bad flare expecially in my hands. I was wondering if anyone has tried the new biologics treatment i.e Rituximab with any relief Thanks
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Date: 08.06.2011
From: Panther
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Subject: Re: RA AND BIOLOGICS - SUCCESS OR FAILURE
Hello Shiffy Its not meant to be a cure for the RA patient. In fact till date i don't find any research for curing these diseases. The governments have also left the people at the mercy of these health care business establishments. I strongly believe that when nature and science will come together, then only the people will get relief. But who will bring them together? definitely the govt. has to do this, but then are they really interested in doing this? They don't suffer from this pain, so they don't care much about looking for a cure. But they have invested heavily in these pharma companies, so they also....... There needs to be another revolution for the health care sector so that all the government policies are meant for the health of the public and not for the financial health of the pharma companies.
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Date: 08.06.2011
From: bsk
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Subject: Re: RA AND BIOLOGICS - SUCCESS OR FAILURE
Hi Shiffy, I am doing quite well on Cimzia. I still have pain but am much more mobile than I used to be.
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Date: 08.06.2011
From: Shiffy
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Subject: Re: RA AND BIOLOGICS - SUCCESS OR FAILURE
I'm SORRY TO HEAR your still in pain BSK with this condition regardless of your treatment. PANTHER - I wish something more could be done for this disease rather than just giving us one drug after the other.. If the Governments Got more involved in helping find the cause of all diseases in great deal, then Im sure we would have more Hope than currently.
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Date: 08.06.2011
From: davina
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Subject: Re: RA AND BIOLOGICS - SUCCESS OR FAILURE
hi shiffy i am on enbrel and finding the beginning of the week after the injection for 3 days i am in a little pain about 80% better then for the rest of the week i am back to lots of pain about 20% relieve but other people have found great relieve with anti-tnf's. its a very tight criterea you have to be on methotrexate for at least 6 months i think (was the case for me) and try at least one other e.g plaquenil and sulfa hope this helps
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Date: 08.06.2011
From: cookie
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Subject: Re: RA AND BIOLOGICS - SUCCESS OR FAILURE
Hi shiffy ive just started cimzia and am already starting to see a big difference after 2 treatments. Early days but swollen knees have subsided and stiffness much decreased am also feeling less exhausted even though im back at work fulltime
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Date: 11.06.2011
From: lisa
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Subject: Re: RA AND BIOLOGICS - SUCCESS OR FAILURE
Hi Shiffy,
I have just started on Cimizia 4 weeks ago so still early days yet!!
I have noticed less pain and stiffness in my hands and ankles.
I am trying to stay positive as l have failed other Dmards so this was the next step for me.
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Date: 12.06.2011
From: cookie
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Subject: Re: RA AND BIOLOGICS - SUCCESS OR FAILURE
I seem ok on the cimzia but i find 3-4 days before my next dose is due my knee comes up like a balloon any one else find their symptoms manifest again like this? ta xx
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Date: 13.06.2011
From: davina
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Subject: Re: RA AND BIOLOGICS - SUCCESS OR FAILURE
hi cookie yes it doesn't seam to last long enought, how long have you been on cimzia?
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Date: 14.06.2011
From: cookie
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Subject: Re: RA AND BIOLOGICS - SUCCESS OR FAILURE
hi hon, early days am due my 3rd loading dose on wednesday, i feel so well on it for the first week and a bit but then horrendous until my next dose is due, i could literally see my knee swelling up in front of my eyes on saturday, been to the docs today whos given me some steroids to play with until things settle xx
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Date: 27.06.2011
From: Jo
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Subject: Re: RA AND BIOLOGICS - SUCCESS OR FAILURE
Hi. I have Rituximab infusions every six months. I'm feeling really well at the moment. In fact I got so used to feeling fatigued all the time I didnt realise how fatigued I was!! I did 'Race for Life' last weekend - 5k in 58 minutes .... really emotional!! I dont think it is just the Rituximab as I have been having them once a year for the past 4 years. I'm also on 3mg of prednisolone and 25mg of Lefluonomide a day. I do have damaged wrists and shoulders but they only hurt if I accidentally bang them. I am due a shoulder operation if it deteriorates any further but I'm trying to delay this. Biologics have worked for me (doesnt work overnight) but we are all individuals and I think there are a lot of other factors that need to be considered as well, ie stress levels, weather etc. Good luck x
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Date: 27.06.2011
From: Paul
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Subject: Re: RA AND BIOLOGICS - SUCCESS OR FAILURE
been on Cimzia for 1 year, i feel like my arthritis has gone. Of course if i work an 18 hour day which seems to happen a lot lately i might get a flare up in my finger or shoulder but paracetamol sorts this out.
I could not be happier and to think 4 years ago i was stuck upstairs unable to do anything. I even cycled from London to Brighton the other weekend :)
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