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Date: 14.04.2011
From: Louise

Subject: CIMIZIA

I just started my first set of jabs, and wonder if anyone been on this one... I read, your chances are greater on having heart failure and cancer.. now I am concern, after I have started this new treatment, also after my first does, I can feel the difference..
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Date: 14.04.2011
From: jon

Subject: Re: CIMIZIA

Hey. When I started enbrel I got anxious reading about the nasty side effects. Arrange an appointment with your specialist NOW and jot down all the questions and concerns you have. It's was very beneficial for me and really put my mind at rest. Trust me on this one... book the appointment. If you don't you'll keep on worrying 24/7. Hope the drug works well for you. Keep us updated on your progress.
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Date: 14.04.2011
From: kazzie

Subject: Re: CIMIZIA

hi louise i paniced when i went on it first but i looked at it that i couldnt walk so really didnt have a choice and i looked at it as am mointered pretty close so hopefully would catch anything early if got anything else .thats how i get through it .hope your ok
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Date: 15.04.2011
From: cookie

Subject: Re: CIMIZIA

I talked to my rhemy nurse about the cancer bit last week here is what she said.anti tnfs dont give you cancer but if you have domant or rouge cells that your imune system would normally kill they dont have that capability as they are supressed same goes for dormant tb. Apparently there is a know link between cancer and ra anyway i have never heard if this not sure if anyone can enlighten anymore. The increased risk of developing ca in ra patients on anti tnfs is 1 percent highter than in ra patients on more traditional treatments but the figures are very low. My rheumy dep is a huge one in a large trust and they have had 1 patient in the last year who has developed ca and they are not sure its linked or just a natural occurance. Whilst this is scary stuff you have to balance it with quality of life i think. Just my opinion but i will be opting for anti tnfs xx
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Date: 21.04.2011
From: Curtis

Subject: Re: CIMIZIA

Hi everyone! didn't wanna start a new post about cimzia so iv jumped on this 1 hope you dont mind Louise,

I started the double injection of cimzia 2 week ago and have got my next lot tomorrow, the last couple of days iv been having small heart palpitations wen iv been nodding off in bed, has this happened to anyone else? Don't know if its a side affect of the cimzia or what? Also after i injected the sites were i injected were left very lumpy for about 1-2 days after, im hoping I am just being paranoid as I don't know anyone else who is on cimzia and don't have anyone to compare my experiences with


Thanks for listening to me wine on like an old woman
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Date: 26.04.2011
From: Gaynor

Subject: Re: CIMIZIA

Hey Curtis. I don't know about Cimizia, but I do know that prolonged pain can give you heart palpitation type feelings. It's linked to panic attacks. Do you have trouble getting your body to relax when you lay down to go to sleep because of pain levels. That might be it. Just a thought.
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Date: 28.04.2011
From: cookie

Subject: Re: CIMIZIA

Wooohooo got the go ahead to start this. In 2-3 weeks cant wait have been in limbo for over 6 months heres hoping x
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Date: 30.04.2011
From: Curtis

Subject: Re: CIMIZIA

Thanks for the reply gaynor never even considered that, iv also thought in the last few days it could maybe be some of the other medication I've been put on ( I've also found out I've got epilepsy not to long ago and have been put on numerous tablets to control that aswell), it's just very unsettling when it happens it's like I'm forgeting to breath or something it's hard to put into words, but at the sametime iv had 2 double injections of cimzia now and I'm sure I can feel some benefit from it, my feet and toes are the worst effected and they have started to feel alot better since I've gone on cimzia although I find it a much nastier injection than the methatrexate (I'm also on 25mg of. That once a week aswell) as the cimzia seems to be more like gel than liquid an seems to take longer to inject, I find doin the cimzia in my thighs rather than in my stomach to be bit less hassle, @ cookie I'd definatley at least give the cimzia a try an see how you go as I said I'm sure I'm starting to feel some benefits even if I think I may be havein a few side affects, to me a few side affects are nothing compared to not be able to walk properly at 28 years old lol, good luck with it anyway and I hope it works for you
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Date: 30.04.2011
From: cookie

Subject: Re: CIMIZIA

Oh thank curtis i will see how it goes. I was the same age as you are now when mine started so i understand how awful it is to be effected when you should be having the time of your life hope you start to see more improvments soon xx
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Date: 30.04.2011
From: Curtis

Subject: Re: CIMIZIA

Thanx cookie, it's nice to talk to people who understand how it feels to get this crappy disease when your young, well youngish lol, mine started all of a sudden very aggressively last year and before I knew it I could barely walk with the pain, it was really depressing because none of my family have it, the doc said I was just very unlucky which didn't help as I'd say it's alot worse than just bein unlucky, It was that painful I thought I would end up quitting work and I would never be able to kick a ball about with my 2 year old son, then they tried me on every medication under sun until I've finally been put on this cocktail I'm on now and I'm starting to see some improvements, fingers crossed things are looking up, @ cookie how long have you suffered with arthritis and what's your main fear on takein cimzia is it actually injecting yourself or the scary side affects you hear about?
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Date: 30.04.2011
From: bsk

Subject: Re: CIMIZIA

I've been in cimzia for about 3 months now. Felt great when taking the loading dose but arthritis not so good on the normal one. Nurse said it can take up to 6 months to work properly. I've given up worrying about the side effects because I couldn't manage without the drugs and think my life expectancy was going to go down pretty fast without treatment.
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Date: 30.04.2011
From: cookie

Subject: Re: CIMIZIA

Hi curtis the injecting bit doesnt bother me im a nurse so am pretty comfortable wit that. I think what worried me more was the increased risk of cancer but its a v small risk compared to ra sufferers on non anti tnfs about 1% i was quoted. I have had ra for 17 years as i said i was 27 when it started and it hit hard i was virtually imobile within 4 weeks.it eased off slightly over the years and i have been lucky in that things have mostly ticked along with the odd exacebation. until i had a major flare up in november hence why im now going onto the anti tnfs. I think the early years were so scary like you i was young and thought why me etc i decided that i wouldnt let this desease define me as a person i didnt want people to say " oh you know cooie with the ra" its just my way of dealing with it. I work full time and some days i struggle but you only get one life so i intend to live it despite the ra rather than let the ra rule it
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Date: 01.05.2011
From: Curtis

Subject: Re: CIMIZIA

Good on you cookie that's exactly how I feel, I was told off my rheumy that the chances off cancer are very low but it's all the stuff I've read on the net that's scary, iv been off work for 6 week now with a major flare up and if it wasn't for the cimzia I think id still be off alot longer but as things are I'm hopeing to get back in work next week, I was a postman till I got this crappy disease lol, @bsk I know what you mean i don't really give side effects of drugs a second thought anymore if my rheumy says they will do me good I'll give anything a go, I really hope this cimzia doesn't stop working after the Initial couple of double doses
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Date: 01.05.2011
From: Amelia

Subject: Re: CIMIZIA

Hi all ive been on CIMIZIA for nearly a year now, was one of the first to trial the drug and i can honestly say it's the best thing i have ever been on. I have tried many other meds and had alot of side effects off other meds but i think everyone is different and to be honest i don't really read up on them as i couldn't cope without them.
I take CIMIZIA with my Methtrexate injections. My RA is in remission now and has been for the last 7 months. When i first inject i get like a lump but i take an anti-histamine (excuse Spelling) half hour before and it dosent seem as bad at the injection sight. Good luck to all those who are on it or are going to be on it
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Date: 01.05.2011
From: paul

Subject: Re: CIMIZIA

i'm on cimizia for almost 1 year and thank god i am.
I am sure my arthritis is fading away and i've stopped taking painkillers, leuflunomide and all the other drugs i did take. I just take the cimizia injection.
All i can say is keep at it, the injections are ok and i find it best to inject 30 mins after taking the dose out of the fridge.
I do get a lump where i inject and as i have a slight tan my skin tone where i inject is white... very strange.
All the best
Paul
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Date: 01.05.2011
From: cookie

Subject: Re: CIMIZIA

thanks guys am feeling optomistic about starting it its been a long year !!!! good to hear positive feedback x
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Date: 02.05.2011
From: Curtis

Subject: Re: CIMIZIA

Fingers crossed cookie hope the cimzia works for you! Hope to see a post in a few weeks or months saying you are pain free, GOOD LUCK
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Date: 02.05.2011
From: cookie

Subject: Re: CIMIZIA

ah thanks hon x
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