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Date: 03.04.2011
From: Gaynor

Subject: The fear factor

Y'know ... I've just been re-reading some posts on here and I'm feeling royally fed up. One thing that jumps out at me over and over again is "fear". Fear of applying for DLA, fear of employers, fear of doctors etc etc. People with RA have enought to contend with without having to feel this constant worry all the time. I really do think that it's time we start to stand up for our rights. The Disability Discrimination Act means that we don't have to put up with being treated like a second class citizen anymore. I know it can be hard to fight sometimes when pain is overwhelming. But I think I feel a decision brewing in my soul. I don't think I want to be "typically British" anymore and just take whatever decision "they" decide to throw at me. I think I want to start questioning things and arguing my point and make my local MP aware of the shocking treatment people with variable conditions seem to be given by the powers that be. Who is with me?! (lol ... glad I got that off my chest)
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Date: 03.04.2011
From: marlene

Subject: Re: The fear factor

You are so right. I am blessed with a great hubby and great kids, be it that they are all grown and married. i have posted my dla forms again and am so worried now they may take away the little bit i was given. When i read on here how they stop peoples money at the drop of a hat i could cry.Not every one is fortunate enough to have the support i have so i can only imagine how frustrated and lonely they must feel.Having the Dla and my physio lady(loosely) on my back gives me nothing but aggravation and a constant worry. My physio snapped when i told her the phsio was causing me days of extra pain.She said you seem like you dont want to try anything!!! I do but not things that just cause me days of extra pain, I sometimes feel like closing my door and shuting them all out.Im waiting for my bone scan results and yes i am a little worried. Now i have the worry of waiting for reply from DLA. Oh well I think i got that off of my chest as well. LOL
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Date: 04.04.2011
From: cookie

Subject: Re: The fear factor

Im with you......if only i could get outta this chair lol. Seriously your right sadly until people who have these diseases are in a position of being able to do things about it im not sure much will change.......i'll vote 4 u tho ;)
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Date: 04.04.2011
From: Gaynor

Subject: Re: The fear factor

LOL .. thanks guys. It just saddens me. Especially this DLA thing. Marlene, I really feel for you on that one. It's not right the way decisions are being made. Maybe we should create the "RA" political party.
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Date: 04.04.2011
From: marlene

Subject: Re: The fear factor

Ive been feeling a bit rough to-day, i came on to look at whats been happening in the world and it always makes me feel lifted to get a post. Its refreshing that we can all chat like real friends, yet we have never meet.Well i hope you all sleep well. Keep smiling x
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