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Date: 28.03.2011
From: kylee

Subject: did i make a right choice asking for dla to be reviewed

hi all i am dreading my letter bk from dla as i have read so many posts of people reporting change in curcumstances and they have had everything taken away from them even though they have got worse. i am alreaady on top rate mobility bottom disabilty have been on this rate for 4yrs. over the last few months my condition and symptoms have changed and got worse making me need more care from my husband. he has had to drop hours at work to 8hours to care for me and look fter my 3 yr old daughter as im unable to see to her need as i cant even tend to my own needs i think the questions are daft when they ask questions like how long does it take you to go to the toilet each time and how often a day do you go. how the hell should i no i dnt time it or keep count all i no is the pain is chronic trying to move 1 place to another and the time length feels like a lifetime. it ws my speacialist that pushed me to have claim relooked at as he said i need personal care he said he will support me 100% with the claim but i cant help worry i no how the dla can be
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Date: 28.03.2011
From: Gaynor

Subject: Re: did i make a right choice asking for dla to be reviewed

Hi Kylee - you absolutely did the right thing hon. If you need the support you shouldn't have to feel bad about requesting a change in your rate of care. If they give you grief, just make sure you get a letter from your specialist and appeal (and keep appealing if you have to).
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Date: 31.03.2011
From: kazzie

Subject: Re: did i make a right choice asking for dla to be reviewed

hi i just got my dla form to fill in and i dont understand how to answer them questions how long it takes for me to get outta of bed ect sometimes when am bad i need my partner here all the time even ona good day if i walk to the shop i cant walk the next day ,so how do i answer theses as am on enbrel now so its helping a bit am all confused now
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Date: 31.03.2011
From: davina

Subject: Re: did i make a right choice asking for dla to be reviewed

get help with the form fro the citizan advice because they have done forms like this for years and for me i got the claim 2nd time. 1st i did it on my own.
how long you been on enbrel, has it helped?
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Date: 31.03.2011
From: kazzie

Subject: Re: did i make a right choice asking for dla to be reviewed

hi davina yes it has helped were i can manage to walk a bit and not in so much of pain but still cant get back to me still shoulders joints and elbow and hands and jaw and feet ect are sore but it is def helpin as before i couldnt even walk or move .although am on loads of pain killers .am goin take form in to my rhumy to sign it is extra worry we dont need .been on it bout 8 weeks but worked for first two weeks then had a flare up for 3 weeks but is now settling again are you on meds and what for
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