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Date: 24.03.2011
From: marlene

Subject: why are DLA so hard to deal with

I filled forms in for mobility allowance. On my worst days i travel in a mini cab living in London the transport system is busy and escalaters often are out. I am not able to deal with being knocked and pushed around (i know people are in a hurry and im so bloody slow) My husband is the only wage earner and he works hard 12hour shifts no way am i asking him to do overtime. I thought if a was given a mobility allowance to help with the never ending cost of cabs life would be a little easier. Anyway filled all forms in a they gave me the lowest care componant. What happened to mobility i applied for???? I am hoping the guy i have an appointment with on the 7th april can show me where i went wrong. Every one i talk to tells me did you know this one and that one gets mobility. I dont understand how the system works. I have always worked up until 5years ago im 60 now. I worked to help with the cost of my three kids, they were my responsibilty. LOL maybe because i have never worked the system this is why i dont have a clue. Sorry to moan so much. When i read on this site how so many of you have to fight for help you deserve it makes me fuming. I have support from my family and some days i still feel pretty much alone and sorry for my self is this normal????? Thanks for letting me let off steam. XX
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Date: 24.03.2011
From: davina

Subject: Re: why are DLA so hard to deal with

hi marlene the only way to answer your question is to say that they don't understand arthritis and how it affects us.
do you use walking aid? how far can you walk without pain? these are the questions they want to know about for mobility, for me before using crutches i could walk about 10 meters before i had pain and had to stop and they turned me down, so i asked for them to look at it again and then they gave me it.

good luck and depending on what you said it means you can also ask for them to look at it before going to trial.
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Date: 24.03.2011
From: kazzie

Subject: Re: why are DLA so hard to deal with

hi i was just wondering what happens when you are getting dla as i got it at my worse but i have been on enbrel and mxt injections now and i have a good few days this week i dont mean were i can run but were i can potter about and am worried as will they take off me now that meds are started to work ,although with out theses i cant even walk ,am stressing now as what happens ,has anyone been like this
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Date: 24.03.2011
From: marlene

Subject: Re: why are DLA so hard to deal with

Thanks for reply Davina. Before i found this site i wasnt sure about anything. I feel i can ask about anything without people looking at me like im stupid i might have oa and other health issues but my brain is still pretty good( i think )I will say goodnight to all as it is 10-30pm and i am in need of a good nights sleep heres hoping. Keep smiling.
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Date: 24.03.2011
From: Gaynor

Subject: Re: why are DLA so hard to deal with

Hey Kazzie. The thing to remember with mobility is that even on your good days you are probably not going to be the same as a fully mobile person. My situation is variable - but I put that I can walk 0 metres. Even though you may be doing better on your meds - you still have a disability.
Another thought: maybe we should become more like the Americans. Let them turn us down .. and then because we don't have appropriate care or mobility support something happens (e.g., we fall) ... then sue the buggers as being responsible for causing our accident. Hmmm ... maybe they wouldn't be so quick to turn people down if we all did that!! POWER TO DA PEOPLE!!!!
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Date: 24.03.2011
From: Marlene

Subject: Re: why are DLA so hard to deal with

Gaynor i was going to bed just read your post and im LOL. You could have a point there maybe we should have a national falling down day!!!!!!!Woooopppsss.
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Date: 25.03.2011
From: Gaynor

Subject: National falling down day

Ha haaaaaa Marlene. You just made my day. Too funny. Ring a ring a R.A, national falling down day, aching, aching, we allll fallll DOWN!!! Good plan there M.
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Date: 25.03.2011
From: marlene

Subject: Re: why are DLA so hard to deal with

HEE HEE at least our friend arthur can make us laugh sometimes. Soooo glad we can still have sense of humour.Keep smling! (even thou sometimes its hard)
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Date: 28.03.2011
From: denise moore

Subject: Re: why are DLA so hard to deal with

IVE HAD DLA FOR 16 YRS NOW AND SOMEONE HAS TOLD THEM THAT IM JUST PRETENDING TO BE BAD.THEY ARE STOPPING MY MONEY AND TAKING MY CAR OFF ME BECAUSE THEY SAY I CAN WALK MORE THAN I DID WHEN I FIRST TOOK BAD (ALTHOUGH IM ON TRAMADOL AND ORAMORPH FOR THE PAIN AND OTHER MEDS ) I WOULD NOT BE ABLE TO WALK IF IT WASNT FOR MEDS.I HAVE SEVERE NEUROMENINGEAL IRRITATION FROM SPINE PROBLEMS AND RADICULOPATHY LIMITATIONS OF DAY TO DAY ACTIVITIES BECAUSE OF PAIN IN RIGHT ARM AND LEG.I HAVE ARTHRITIS IN MY FINGERS WHICH ARE VERY PAINFULL .WHEN I GOT MY INTERVIEW THEY TOLD ME THEY WERE NOT BOTHERED BY THE PAIN, AS LONG AS I CAN GET FROM A TO B, I DONT NEED THE CAR.I DONT KNOW WHAT TO DO NEXT.
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Date: 30.03.2011
From: Gaynor

Subject: Re: why are DLA so hard to deal with

I think I would seek legal advice on this one, to be honest. The person who told them that might have been trying to be malicious. Get a letter from your GP or rheumy or whichever medical person knows you best and appeal. I think that is awful. I am seriously starting to think there is a DLA attack going on. The number of people I am having to help in my job with DLA appeals etc is just staggering.
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Date: 30.03.2011
From: marlene

Subject: Re: why are DLA so hard to deal with

good luck Denise. I am fighting for mobility at the moment. They really need to walk in our shoes for one day. I wouldnt wish it on anyone!!!! But we need a break from all this constant worry. Being in pain every day is bad enough.Bless you, take care im routing for you.
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Date: 30.03.2011
From: denise

Subject: Re: why are DLA so hard to deal with

Thanx gaynor and marlene ive been to the doctors today and they are writing me a letter.the doctor says she will help me as knows me the best, with me being worst today ive had to go on more tablets ( gabapentin )and some piroxicam cream hopefully that will help me.im going to put an appeal in i see the welfare rights person next wed hopefully i will get some help, for to take them to the tribunal.im glad to hear from you its nice to have somebody to who has problems with them you know how i feel i will let you know how i get on.
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Date: 30.03.2011
From: marlene

Subject: Re: why are DLA so hard to deal with

i had a phone call from welfare rights to-day. I found her hard to follow. I have an appointment with her on the 7th april. She was telling me everything is changing in 2012 something called PIP. Has anyone heard of this (something else i have to research) anyway i am sure she was trying to advise me not to fight for mobility and a higher rate of care. She kept saying as you know the goverment are making cuts you know. You might lose what you already have. I said where does that leave people like me, her reply was take it up with the goverment. I thought she was supposed to be on my side. Well i am up for a challenge on the 7th. Going for a full body bone scan to-morrow like i need someone like her putting me on a bigger downer. She also said they are stopping mobility altogether!! Does anyone out there know what this is all about. I am totally at a loss as to what to do.
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Date: 31.03.2011
From: Gaynor

Subject: Re: why are DLA so hard to deal with

Hi Marlene. I've just sat and read the white paper and numerous of the consultation docs. Go to CAB and ask them to help you fill out your appeal form. Get yourself onto the highest rates possible now, before the changes begin to be implemented in 2013. The gov white paper indicates that they will continue to work with motability for those in receipt of higher level mobility. Don't live in fear hon. Fight the battle when it happens - not now. My hope is that within a few years elections will recur - and I sincerely doubt that anyone in their right mind will vote this rediculous government in again.
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Date: 31.03.2011
From: marlene

Subject: Re: why are DLA so hard to deal with

Hi gaynor, The info i got was from a referral from the CAB in my area they send you to welfare rights office as CAB dont deal with the forms. I have found a phone number for DLA and before i fill forms in again i am going to talk to the help team. Then a phone call to my consultant to find out results of total bone scan i had to-day. Then watch this space no way am i going to give up. I had the injection in the top of my foot ouch! Just another pain! I am under the influence of tramadol trying to numb the pains after being laid in a position that just kills my back. Hey ho thats life. At least hopefully i should get a result of what is going on with all the new joint pains.Anyway back to DLA if i just get the mobility to help with the cost of travel to hospital. It costs a fortune when you have a friend like arthur living off your back (LOL).
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Date: 01.04.2011
From: Gaynr

Subject: Re: why are DLA so hard to deal with

Good for you, m'dear. Ugh ... Tramadol. I don't react well to Tramadol. It gives me an instant migraine. Glad it works for you though.
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Date: 01.04.2011
From: marlene

Subject: Re: why are DLA so hard to deal with

I just phoned DLA spoke to a really nice guy, very helpful. Now im going to fill out forms. I hope this time they might take into account all my problems not just my shoulder. Never mind all the cut backs. When i finished work it was to look after my mum, saved them a good few shillings i know. Bless her last year she fell and broke her hip. She had a full hip replacement. I had to battle with them not to send her home to me until she was able to look after herself.It wasnt until i showed a nurse my 6" scar from my back op that all the stops were pulled out to send her to a rehabiltitation centre just a few miles away. I must say they were brilliant. She also had 6wks after care at home for showers and dressing. Sice leaving work i had a pacemaker fitted after passing out twice the second time i smashed my face breaking 4 teeth and stitches inside mouth. I looked like id had a fight with mike tyson. once i got over all that i had my back surgery which cured my siatica but caused other problems. I was told we cant fix everything. I do realise this but it doesnt stop me from hurting and feeling very low at times. Thank god for a good hubby and kids. Id be lost without them. Well here goes forms here i come. By the way i know what you mean about the migraines.
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Date: 01.04.2011
From: Gaynor

Subject: Re: why are DLA so hard to deal with

Amen on the good partner and kids front. What would we do without them. My partner is disabled too - which is very helpful. We understand each other's difficulties completely. It's like the blind leading the blind some days. Off we go with our respective walking aids. We joke around about having walker races before we are too much older. It does make a big difference to have people around you who love you - even the bits that don't work right. Marlene I am cringing with you about your fall - that sounds absolutely horrid. You poor thing. Ouch!!!
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Date: 01.04.2011
From: marlene

Subject: Re: why are DLA so hard to deal with

My husband has bad knees and the other day we passed a mobility shop, mobility scooters all in a row . He said we will have one each when i get the money but his is going to be super duper go faster. So i will still be left behind LOL.The fall was pretty rough but the dentist bill 436 for a plate with 3 false teeth was more than rough. For a decent set of nashers i had to go private. This is all part of the reasons i am not going to get pushed aside by DLA. I filled forms out to-day and posted them. Im on a mission by the end of the form my writing was like my 9 year grandsons. My hands were killing me, which made me even more determined. I made a little reminder note that i am also requesting Mobility. Good on you and your partner. Its refreshing to hear people have support. I feel sad when i read about the ones who have to cope alone. I count my blessings for the support i have.
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Date: 02.04.2011
From: kazzie

Subject: Re: why are DLA so hard to deal with

am really worring bout sendin inmy form now as ona good day i can walk say mabe round asda well ponder .but ona bad day cant even walk up and down stairs and with out all the medication am on wouldnt be able to walk at all .we really dont need all this stress as my car i get really keeps me sane even though i dont drive at mo my partner does to gey me to hospital all time .am goin in on monday to see rhumy doc so will see if she will fill back bit in .
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