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Date: 21.03.2011
From: davina

Subject: down and hair thining.

hi everyone, hope you all had a good weekend.

just thought i would share how down in the dumps i am, i had a steroid infusion 1 1/2 weeks ago and its like i never had it, so much pain again and hate it. i feel i can't even look after myself and my son needs to be stimulated, i take im to groups but it takes a lot out of me. i feel so depressed and useless, never thought i could be so low.

also my hair at the top of my fringe is thining and started to look like its going, i'm so upset cause other people have noticed it and well my hair is a big thing. (properly every woman is the same)

sorry to be a downer on your monday morning but no one else understands and i hope someone out there does.

thanks
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Date: 21.03.2011
From: emma

Subject: Re: down and hair thining.

hi davina, sorry to hear that your going through the mill at the moment have you had any luck with your knees getting better.i do feel the same at the moment a bit depressed with it all,i did tell rheumy that i was not comfortable going on injections and my left leg from knee down is still not right.hope you feel better soon emma x
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Date: 21.03.2011
From: davina

Subject: Re: down and hair thining.

hi emma thanks for the message.
my knees are so bad nothing helps at the mo and no-one helps me with it. i am sorry you are going through it to. the steroid infusion helped for about 1 week and my rheumy said it should have helps for 5 weeks or more. i wish
what injection you going on to?
davina
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Date: 22.03.2011
From: emma

Subject: Re: down and hair thining.

hi davina,i told the rheumy i dont want to go on injections which he was going to put me on humira. do you find at the moment with milder weather you feel worse,my fingers and hands are really puffy if it is due to weather i would hate to think what i will look like by summer a blueberry,i will need de juicing lol.emma x
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Date: 22.03.2011
From: Gaynor

Subject: Re: down and hair thining.

Sorry to hear about your hair hon. You know, I have a great big BUSH of hair. It doesn't grow long ... it grows OUT SIDEWAYS!!! I've always considered it a curse. But .. since my hair started coming out in handfuls, I've been so grateful. It's embarassing though when I'm sitting in a meeting at work and I look down and find a clump of hair on my boobs. Not my most sexy look ever! Blouse courtesy of George .... faux fur courtesy of R.A. Oh well ... thank God for a sense of humour.
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Date: 23.03.2011
From: cookie

Subject: Re: down and hair thining.

Oh gaynor you have made me laugh and as a fellow sufferer im laughing with not at you. ! My hair thined at the front on mtx and leflulomide i also had a few other problems on them but for me this was a step too far i might be fat and crippled by ra but am not going to be bauld too! !!i came off them and am waiting for assesment fot anti tnfs x
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Date: 23.03.2011
From: davina

Subject: Re: down and hair thining.

lol gaynor i'm with cookie laughing with you, that has brightened my day.
cookie what anti-tnf have you choosen?
emma i have found that my ra is worse, what is happening its suppose to get better with the warm weather? why did you decide not to go onto injections?

i am at my wits end, anything will be good at the mo. thanks everyone
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Date: 25.03.2011
From: cookie

Subject: Re: down and hair thining.

Hi davina sorry for delay in replying i have my assesment next week so nowhere near geting my anti tnfs yet 11weeks wait for my first assesment on minimum meds not nice....
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Date: 25.03.2011
From: davina

Subject: Re: down and hair thining.

i'm sorry, lots of people are in the same boat.
but it doesn't make your pain any less important.
i just wish it was quicker to get anti-tnf, i know there is a strict criteria but its so long
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Date: 25.03.2011
From: emma

Subject: Re: down and hair thining.

hi davina sorry i have not got back had appointment with plactic surgeon about my thumb as its strapped up because the joint comes out as my tendon has come loose due to ra but does not want to do surgery as i will lose more mobility,i think i scared myself with reading that there is a slight chance of causing cancer and all my family have died from that,rheumy has decresed my pred down to 2.5mg evey other day.how are you doing coping with yours? take care emma x
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Date: 25.03.2011
From: davina

Subject: Re: down and hair thining.

hi emma i hope the appointment went ok and there is other help for you other than the operation.
i am sorry about your family history, it doesn;t mean you will get it but i understand how it would make you fell, i am going for embrel and i am worried about the risk of cancer but i need so help.
has your rhumy said you can use something else of not?
i am still on 7.5 pred but i can't drop below that cause my pain is just to much
i hope something will help soon. take care. x
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