Subject: Re: medication for RA
Hello Poppy I can't help with getting DLA but from what I have read you now have to be a deaths door before you get it, probably because it's been so abused in the past. When I was first diagnosed with RA two people who knew alot about benefits, told me it was the easy benefit to get, all you had to do was fill in a form, sadly that is not what happens in most a cases now. I am a member of a Facebook group for RA and someone's asked about Margaret Hill treatment, sadly all of the replies are the same, it doesn't work and cost them alot of money. You will find lots of things claiming to cure RA, I've just seen on another forum Chinese Plasters......you can be cured just by putting a plaster on.....I think not. If all of these wonder cures work I'm sure that by now the NHS would be using these and not spending lots of money on us with drugs, specialist nurses, pysios, OT's, orthotics, blood monitoring etc etc. About sulphazine, I've been on it for nearly three years now and I have had no side effects at all, not even the most common one.......orange wee!!!! Everyone is different and we tolerate drugs different, I had MTX added May this year and again no side effects at all. I have been told that full blown RA is far worse than any side effects from drugs. I am surprised that your consultant's not put you on any DMARD's yet, RA is a progressive illness and it needs something to slow it down. Paracetamol's are only treating the symptoms i.e. pain and not the cause. At the end of the day it is up to you what you do and they will not force you to take any drug that you don't want to. Have you thought of ringing one of the helplines? NRAS have one and Arthritis Care do as well. Just google them and find the number, they are free phone ones. Good Luck with what ever you decided to do.
|