Date: 07.02.2011
From: davina
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Subject: flare and advice
hi everyone sorry to wine, but having a major flare, thought when i started taking methotrexate it would kick in and stop the pains
as i have heard lots of good things even tho the side effects, but been on it for 5 months and nothing got rheumy 2morrow and just wondering if anyone as any idea what i could ask to try next i am also on plaquenil since november and prednisolone since july 2010 please help lol
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Date: 07.02.2011
From: Emma
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Subject: Re: flare and advice
Hi davina,been to my rheumy arthritis still active on the same Meds as you want to put me on injections,was going to try for baby but cannot do that as ra not under control so I will have to settle for puppy instead lol. Hope all goes well. Emma x
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Date: 07.02.2011
From: davina
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Subject: Re: flare and advice
lol i have the same problem as you, how long u been on them?
i also want a baby but indecisive about taking other meds or staying on them till it is under control but also i have to be off meth for 6 months before trying to conceive, so should i stop them now and deal with it?
OR get better then come off the meds and get worse while waiting to conceive, such a hard decision, hopefully my rheumy can help me with it. i hope you get your relieve too soon.
thanks Emma
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Date: 07.02.2011
From: emma
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Subject: Re: flare and advice
was diagnosed in sept 2009 admitted to hospital feb 14th 2010 then was put on steroids but as soon as they were reducing me off them i started to flare so october 2010 put on mthx plus plaquinel but still active im 38 so time is ticking by for me and a baby, i know how you feel dont now what to do for the best. i did say to my rheumy about having a baby but his reply was i have to put you on injections as i have not got it under control. i hope you feel better soon emma x
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Date: 07.02.2011
From: cookie
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Subject: Re: flare and advice
Good thing about being preggie ladies is that your ra usually goes into remission did for me x2 heaven no meds for 9 months x
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Date: 07.02.2011
From: davina
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Subject: Re: flare and advice
hi cookie was you on any meds before you got pregers or did u stop all meds?
my RA started promptly after i had my son june 2009 and not stopped since. Emma its your choice if you want a baby sooo much you need to be firm and tell him that when you come off methotrexate your properly going to flare
anyway so you can decide to just try something else or just go on to prednisolone steroid until you are preggers. good luck/ take care xx
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Date: 07.02.2011
From: cookie
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Subject: Re: flare and advice
Hi davina was on. Sulphersalazine and anti inflamatories prior to. Both my girls ok 4 3 months after then came back with avengance both times i have heard of ladies who have had ra prior to being preggie but have gone into remission following no such luck for me. I did make sure as soon as i found out i was expection that i went onto prescribed folic acid at a higher dose than the ones you can buy over the counter as sulphersalazine lowers your folic acid
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Date: 08.02.2011
From: davina
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Subject: Re: flare and advice
hi cookie seamed like you loved preggie then, lol
thanks for the advice about folic acid it really helps.
t/c
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Date: 08.02.2011
From: emma
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Subject: Re: flare and advice
hi cookie,thanks for the advice i think i will have it out with my ra doctor, i know my husband is worried about my health and if i flare before i get pregnant and how bad i will be after.im glad that you come through it.emma x
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Date: 08.02.2011
From: emma
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Subject: Re: flare and advice
hi davina how did you get on at the rheumy.hope all went well. emma x
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Date: 08.02.2011
From: davina
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Subject: Re: flare and advice
Hi emma every-things ok i had a steroid injection in my knee which hurt and still is very much
i was given a new drug called salazopyrin en, with the methotrexate and plaquenil. i didn't have my normal rheumy but her assistant who didn't understand what i was asking or what she was doing it seemed. she gave a local injection and then the steriod and tryed to remove some fluid from the top of my knee but the fluid is behind my knee? don't get her.
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Date: 09.02.2011
From: emma
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Subject: Re: flare and advice
hi davina sounds like you had fun(joke).has it made any difference. i had my knee at the back drained last friday had steroid injection but still not right.do you have a bakers cyst as its at the back of the knee.he put me on sulfasalazine to add to my other collection of drugs but i think it might be helping i will see in the next 2 weeks fingers crossed. hope you feel better soon.you know where i am if you want to talk. take care emma x
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Date: 09.02.2011
From: davina
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Subject: Re: flare and advice
hi emma i do have baker cysts and the doctor didn't listen to me when i said about draining from the back and not the front. its done nothing at the mo so we will see if it helps. so are you on the same drugs as me all 3? she said i wouldn't notice any change for 6 weeks, see i said she was useless.
t/c davina
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Date: 09.02.2011
From: emma
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Subject: Re: flare and advice
hi davina yes i have had 2 bakers cysts drained the one last friday has not worked still not right. i am on methx,predisalone,plaquinel,diclaflenic,paracetamols and this new one sulfasalazine i will give it a couple of weeks but im hopefull as the next step is injections which i dont want. have you been on any other drugs than the ones that your taking at the moment.if it starts working i will let you know maybe you could have a word with your rheumy.emma x
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Date: 09.02.2011
From: davina
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Subject: Re: flare and advice
hi emma yes i am on all the same accept i have codeine also when needed. wow i didn't realise injections where next i don't like the sound of that!
i am using crutches due to the cysts i also have soft tissue oedema and a tilt of my knee cap on the right knee so the crutches do help take a bit of pressure off, do you have problems walking also? wow its so great to know someone who is going through the same thing at the same time.t/c davina.x
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Date: 09.02.2011
From: Emma
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Subject: Re: flare and advice
Hi davina, yes I have splints in my shoes as my ankles have collapsed and a joint problem in thumb so waiting for plastic surgeon and knees like you bakers cysts.it is great knowing I'm not on my own and seems we are going through the same thing. The new drug the rheumy has put me on I'm hoping it works if it does hopefully no injections,if it works you will be the first to know lol.Emma x
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Date: 09.02.2011
From: davina
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Subject: Re: flare and advice
hi emma yeah i hope we will both be well this year but i want another child in the next year or bit so i may come off methotrexate in may so i can conceive in nov/dec time. may i ask how old you are? Can i ask when you have had steroid injections before has that joint swelled and been painful 24hrs after? Mine is swollen really bad and very sore. rang doctor and he said it maybe because she didn't drain the cysts? I have decided if i get her again i will ask for some that knows what they are doing. ;-( lol
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Date: 10.02.2011
From: emma
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Subject: Re: flare and advice
hi davina i am 38yrs this year,im going to have it out with my rheumy in march when i see him next about having a baby,when i had my first knee done he said i had to rest it for a couple of days and it was fine no problems but the one i had done last week is still not right still a bit painfull.it sounds like she has not drained it,she is suppose to do the back of the knee,i agree with you i would not have her any more she`s a bit scarey lol.when are you going back dont leave it to long davina you need some relieve from it,how old are you and do you have any kids at the moment?.take care emma x
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Date: 10.02.2011
From: davina
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Subject: Re: flare and advice
hi emma yes i have one son, his 20 months now and i'm 30.having him was what started my RA. my next appointment with the rheumy nurse is May but going to see my gp next week about knees being drained as they are sore and really bad.
well make sure you say to him that having a baby is important to you and at 38 (sorry to sound oldist) you don't have a long time about 5-10 years to have the children you want. (Sorry) well now i have said that i will go, hopefully i haven't upset you. xx t/c davina
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Date: 10.02.2011
From: cookie
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Subject: Re: flare and advice
I started. With my ra at 27 had my first baby at 35 and my second at 40 nearly 41 fell pregnant straight away with both whilst on sulphersalazine and nsai 's but if children are important to you dont let your consultant talk you into putting it off tell him thats your planthat you want meds that will not effect an unborn baby and remember your illness is likely to ease significantly whilst pregnant it may also go into remission following. I have heard that methotrexate can take upto 6 months to clear out of your system anyway good luc
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Date: 10.02.2011
From: emma
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Subject: Re: flare and advice
hi davina no you haven't upset me i have a son who is 15yrs just have to wait and see.i got my ra from having a virus.hope you find relief soon,not good having sore knees with a little one running about you cant exactly rest lol. keep in touch speak soon emma x
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Date: 10.02.2011
From: emma
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Subject: Re: flare and advice
hi cookie,thanks for your comments i will be having a word and see what he says.hope your feeling ok.
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Date: 11.02.2011
From: davina
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Subject: Re: flare and advice
hi emma good that i didn't upset you, wow a 15 yr old must be hard work too.
i know having a little one does get hard but i have got a good partner and friends. hope everything is ok t/c davina
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Date: 11.02.2011
From: emma
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Subject: Re: flare and advice
hi davina, yes he is at the stage of attitude lovely lol. how are you feeling today has some of the swelling or soreness going.its good to know you have a good partner and friends that can help.my husband and son have been good and the rest of my family,but its good to talk to people like yourself who is going through the same thing.hope your feeling better t/c emma x
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Date: 11.02.2011
From: davina
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Subject: Re: flare and advice
hi emma lol at the attitude. yes i am lucky but they can;t really understand the full impact it puts on our bodies. we are lucky to have this forum to find people that can help us.
i am still in pain with my knees that injection as done nothing it seams
o well just another day.xx davina
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