Date: 23.01.2011
From: sandra s
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Subject: psoriatic arthritis sufferers
hi i have had pa for about 12months,is it normal for joints to be boiling hot all the same and even worse at night also one of my toe nails has gone black,also can it effect your heels i get alot of pain in heels and under my foot,many thanks
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Date: 23.01.2011
From: x kerry x
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Subject: Re: psoriatic arthritis sufferers
my joints burn up too, the skin over the joints on my fingers and wrists go red and blotchy and they itch and tingle, sometimes i get tiny itchy blisters on the palms of my hands too. Ive heard cold can ease this but i find it just makes my joints ache deep inside. I also get pain in my heals, the tendon that runs down the back of my ankle and under my heal gets really sensitive, it hurts when i stand up, and also when i lie with my legs flat in bed. I get a kind of dull ache in my heals if that makes sense xx
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Date: 23.01.2011
From: Daniel
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Subject: Re: psoriatic arthritis sufferers
i dont have pa its a spondyloarthritis so they tell me, although i also suffer in a very similar way, especially and more recently the pain in the heels, tendon and in to the calf muscle. it seems to worsen towards the evening. id describe the rash as tiny little pimples/blisters on the joint which is under attack. i also find when im under alot of stress or anxious for some reason the symptoms intensify. hope this helps :)
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Date: 23.01.2011
From: sandra s
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Subject: Re: psoriatic arthritis sufferers
thanks kerry and daniel, i know what you mean by the pain in your heels when you lie flat in bed and that dull ache keeps me awake, what meds are you one and how long have you had this xx
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Date: 23.01.2011
From: x kerry x
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Subject: Re: psoriatic arthritis sufferers
i was only diagnosed before xmas but ive had pains for over a year. Im starting on methotrexate tomorrow, i was on sulfasalazine but had a bad reaction to it last week and ended up in hospital. How about you? I find a hot water bottle is my saving grace, it really takes away the aches in my heels if i put it under them when in bed. I seem to move it around constantly though, from heal to hip to shoulder to knee, lol, as soon as i get one bit to stop hurting...another one starts!
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Date: 23.01.2011
From: Daniel
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Subject: Re: psoriatic arthritis sufferers
ive had this 8ish months now and been on sulfasalazine for 6 which i didnt find the least bit helpful and now about to commence mtx asap, well ive had the tablets since before xmas but with all the inevitable festivities i thought it best start after xmas beers. i'll have to try the water bottle as its a rite pain in the arse tryin to get comfy in bed.
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Date: 23.01.2011
From: sandra s
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Subject: Re: psoriatic arthritis sufferers
hi i am also due to start mtx i have got the tablets also but a bit unsure when to start yet the thought of them scare me a bit.thanks kerry i will try the hot water bottle at the mo i have a cushion off the sofa under my heels then between my knees all over like you kerry,hope you both get on well with mtx plz let me know,im going to talk to my gp on tues and make my mind up about it im driving my family mad i think!
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Date: 23.01.2011
From: x kerry x
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Subject: Re: psoriatic arthritis sufferers
haha, same here! I just want someone to either tell me i should or tell me i shouldnt take them! The thought of them terrifys me, but my arthritis gets worse every day and that terrifys me more! Im really scared after my bad experience with the sulfasalazine that it will make me really poorley, but i suppose im guna be really poorley without the mtx too so i might aswell give it a shot! X
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Date: 23.01.2011
From: Daniel
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Subject: Re: psoriatic arthritis sufferers
to be honest im the same, shall i shouldn't i take it, looking for some alternative less harmful miricle compound,eating anti inflammatory diet ect. i think thats really the real reason ive had these tablets for over a month and not taken one. only now am i starting to accept the fact that ive got to live with this chronic disease for the rest of my life, no matter what i do. so i guess its abit of a double edged sword. i started a topic on here mtx pros and cons and the overwhelming majority of responses were praising this drug. id rather risk a few sides and not end up hunched over in ten years......fingers crossed we'll be cool and really benefit even if u do feel crap.
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Date: 24.01.2011
From: Tom H
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Subject: Re: psoriatic arthritis sufferers
How do you know you'll feel crap before you've started taking them? Some amazing negativity on here!
I felt much worse on the Sulpha than the MTX. so much more convenient taking small pills once a week than loads a day as well
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Date: 24.01.2011
From: sandra s
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Subject: Re: psoriatic arthritis sufferers
hi kerry, did you take you first mtx today if so how r u feeling,ok i hope plz let me know how u get on with them sandra x
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Date: 24.01.2011
From: x kerry x
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Subject: Re: psoriatic arthritis sufferers
i got them but havnt started them yet. Going to see the drug nurse to be told how to take them. I wasnt saying i knew i was guna feel bad after them, but there is over-whelming evidence that alot of people do feel crap from mtx, so i was merely pointing out that there is guna be a chance that ill feel crap too. The sulfa made me unbeleivabley ill, put me in hospital on a drip and heart moniter...and the doctors said there was a very small chance of that happening...but it did. Thats what worries me, they may be small risks but they are still risks x
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Date: 31.01.2011
From: Jeanette
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Subject: Re: psoriatic arthritis sufferers
Hi all, I have PA and was diagnosed a few months ago. I have suffered with the pains and rash for years now. I have underactive thyroid and also suffer severe obstructive sleep apnoea. I believe they are all linked somehow but thats only my thoughts. I started Methotrexate about 4 months ago now and I was scared to at first... I take my MTX on Saturday mornings, that way if it has any side effects they have the weekend to settle. I have found the best way to take it is after breakfast - stay standing up (thats important) for a while afterwards it helps the tablets go down. Drink plenty of water that day and every day too. I then take my folic acid on a Monday morning after breakfast. It settles any side effects then for the week ahead. This may not work for everyone but it does for me. MTX is a serious drug but it has definately helped me - I can move better not so stiff in the mornings. Hope this helps anyone worried about taking their tablets.
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Date: 29.10.2012
From: Susan
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Subject: Re: psoriatic arthritis sufferers
Hi everyone, I'm new to the forum . Just found out in sept that I have psoriatic arthritis. I'm currently taking Sulfasalazine , only been on them for 7 weeks. It's probably to soon to expect them to work but really fed up now. Is there any hope of being pain free with PA . Seems to be everywhere from my feet to my neck. I try to explain to my family is its like having flu like pains constantly. I'm driving my hubby mad I think.
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Date: 30.10.2012
From: Lynnr
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Subject: Re: psoriatic arthritis sufferers
Hi susan sorry to hear about ur diagnosis I too have pa and fibro and for the first two years after diagnosis I was asking the very same question it took me a long time and over 10 meds to get to the point I am at just now and although I might not be as sore as I was last year at this time I am by far pain free, for pain I take paracetamol, tramadol maxitram and gabapentin and I take amytriptline for bed time it all does take time and hopefully you will find a drug suited to you sooner than me, take care
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Date: 25.11.2012
From: andy tait
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Subject: Re: psoriatic arthritis sufferers
if you get chance to get onto Humira take it! changed my life. now have some energy and pain levels i can cope with
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Date: 25.11.2012
From: Lynn
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Subject: Re: psoriatic arthritis sufferers
I have been on enbrel and humira enbrel did nothing except gave me constant infections humira did help the joints but going though the same infections and dropped blood counts so it not looking likely ill get back on it.
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Date: 09.04.2013
From: Jan Massey
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Subject: Re: psoriatic arthritis sufferers
For anyone wanting to try something natural I'd like to recommend a natural product I get from the USA. My husband developed this condition about 3 yrs ago. His toes were so bad he could barely walk and went down the stairs on his bum! He took these tablets and within 2 weeks he was almost 100% better. If he stops taking them it comes back. I've searched for an alternative to save buying from abroad but found nothing similar - if anyone knows different please let me know! If you want to try these tablets www.amazingarthritisrelief.com - hope it helps.
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Date: 09.04.2013
From: Mary Brew
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Subject: Re: psoriatic arthritis sufferers
I have pa bad in neck and shoulders. Get awful headaches. Tried mthxate, sulpha sine and something beginning will L. None worked for me, bad side effects. What I want to know is whether anyone also gets costadchondritis in-between ribs back and sides? Some days I can't even stand fir very long and shake in pain. Only relief is going to bed! What a life! Rhumi is looking at tnfs, waiting to hear back, but where I live they don't like giving to you as so expensive. At my wits end in pain. Great to have this site where at last i have people in the same boat and although suffering, are so strong. Inspirational to me as even though I have a wonderful husband, you can feel very alone with this disease.
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Date: 10.04.2013
From: Deborah
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Subject: Re: psoriatic arthritis sufferers
Hi Mary brew,
I have Pa and have had the same thing in my rib's but have not had it since starting the bio- logic's.
It was my second and third rib thought it was my breast and was dreading going to the doc in case of other nasties but it was my rib's.
Yes you are right what a life having to go to bed all the time but you are not alone and occasionally we can have a good day.
I have a little I-pad which is good for when your in bed not well because it keep's you entertained and in touch with the outside world although use it all the time now.
It was my son who made get it.
Hope Mary you get sorted soon hug's Deborah x
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Date: 11.04.2013
From: mary brew
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Subject: Re: psoriatic arthritis sufferers
Many thanks Deborah, how are you on biologics? Has it made a big difference? Still work 2 mornings a week but in so much agony after sitting at a computer I dread going yet look forward to actually getting out and being involved in world. Not sure how much longer I can continue with it though. Know I will be in bed for afternoon afterwards! I will chase rhumi next week.
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Date: 11.04.2013
From: Deborah
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Subject: Re: psoriatic arthritis sufferers
Hi Mary,
Yes I know what you mean about being involved I have been retired due to my illness aged 33 and I think that is the hardest part to accept the fact that you can no longer do the thing's your friend's can do but what can we do.
The brain want's but the body does not want to follow.
I have been very well on the bio-logic but the doc reduced my mtx down a month or so back and had to reduce my anti inflamatory due to high blood pressure and since then I have had two flare-up's so they are going to put me back up to 25mg of mtx and try me on steroid's so see how I go.
Hope the rhumy can sort you out a bit good luck Deborah x
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