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Date: 14.01.2011
From: sandra

Subject: methotrexate help plz

hi im new to the forum ive got PA just starting on mtx but got to have a chest x-ray and 2weekly blood tests also i have to go for a lung function test is this the same for every one.i have been getting alot of pain in my heels,toes,knees and shoulders thank tou for any help in advance
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Date: 14.01.2011
From: davina

Subject: Re: methotrexate help plz

hi sandra yes this is normal i have ra and been on mtx for 4 months but still in pain and don't think its the right med for me.
i had to have an xray before taking mtx and i have 2 weekly bloods.

i havn't needed a lung function test but different rheumy do different things as all doctors.

hope this puts ur mind at ease. xx
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Date: 15.01.2011
From: sandra

Subject: Re: methotrexate help plz

hi davina,thanks for the reply yes nice to know that its routine checks,sorry to hear it not working yey for you,maybe it takes longer to work,do you get any side efects,im dreading taking it really sandra xx
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Date: 15.01.2011
From: sandra lowe

Subject: Re: methotrexate help plz

hi sandra,the blood tests is to make sure your liver is functioning ok and your chest exray is to make sure that is normal as you are more prone to infections while on meds for arthritis. Alot of people get on great with methotrexate, i took it but now on enbrel.we have same name.xx
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Date: 15.01.2011
From: sandra

Subject: Re: methotrexate help plz

hi sandra so we do (have the same name),what sort of arthritis do you suffer with and is enbrel working for you
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Date: 15.01.2011
From: Curtis

Subject: Re: methotrexate help plz

Hi Sandra are you on the tablets or injection form? I started on the tablets but was being really Ill each time I took them, iv now been on the injections for 4 month and I've gone from 7mg gradually up to 25mg, I must say it's really improving my arthritis, but as somebody else said it doesn't work for everyone,


The 2 week blood tests and X-rays are pretty standard I think,
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Date: 15.01.2011
From: Dalton

Subject: Re: methotrexate help plz

Hi Sandra, I have RA and have been taking methotrexate aswell as a concoction of other medication for over 12 months now. It works well for me most of the time so hang in there as it does take about 3 - 4 months to work. I havent had any major problems or side effects so dont worry too much. I just tend to get a bad headache on the day I take it and feel a bit sickly but otherwise Im fine on it. I also have regular blood tests and its just become a way of life now. I havent found any side effects like hair thinning or anything but as I say you have to give it about 3 months to work. I take 20mg once a week.
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Date: 15.01.2011
From: sandra

Subject: Re: methotrexate help plz

hi curtis im going to be on the tablets once i get a call from the nurse to start she waiting for xray results,i will be taking 7.5mg to start thank you for the info
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Date: 15.01.2011
From: sandra

Subject: Re: methotrexate help plz

hi dalton, thanks for the help good to see it works well for you and with no side efects makes me feel more confidnt in taking it
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Date: 15.01.2011
From: Curtis

Subject: Re: methotrexate help plz

Glad to help Sandra, everyone reacts different to medication when I had the tablet form even at 7mg I was Ill for a day and threw up yet a friend of mine has 20mg in tablet form and feels fine, I find the injections very good once you've got past the whole injecting yourself thing, I have never had any side effects of the injections either
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Date: 15.01.2011
From: davina

Subject: Re: methotrexate help plz

hi sandra yes i'm always feeling ill, get sickness and bad belly within 2 days of taking it and i hate it.

oh well i started on 7.5 mg but now on 25mg, i might ask for the injection form as i feel rubbish most of the time.
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Date: 15.01.2011
From: Curtis

Subject: Re: methotrexate help plz

@davina, if I were you I'd get on the injection asap, I have no side effects what so ever off 25mg injection, I found it a bit weird injecting myself at 1st but I soon got over it after a few goes
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Date: 22.01.2011
From: sandra lowe

Subject: frind on mtx

hi sandra when i was on mtx i could only take 10mg and i was feeling sick nearly all week, so they put me on 20mg of injection and i was so ill vomiting so thats why they put me on enbrel and it has been great, but have a friend on mtx and havnt had any sickness.what painkillers are you on?
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Date: 22.01.2011
From: sandra s

Subject: Re: methotrexate help plz

hi sandra l, i am on bu trans 10mg pain patch weekly and i take celebrex and co codamol,i still haven,t decided wether to start on mtx or not yet going to talk to my gp on tues undure of all side effects still im driving my husband mad lol one minute im giving them a try the next im not, i have also been taking hydroxychoroquine for 12 months dont think the do very much tho,my joints are boiling hot all the time dnt know if this normal and my toe nail on swollen toe gone black,falling to bits really

what sort of arthritis do you suffer with and have you had it a long time x
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Date: 22.01.2011
From: sandra lowe

Subject: Re: methotrexate help plz

well dont be put off by the sickness, they were controlling the arthritis just it was wearing me down and that was trying them for about four years, some weeks were worse than others.I have RA and had it 33yrs and had 3 children as well hope it goes well at gp xx
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Date: 22.01.2011
From: sandra s

Subject: Re: methotrexate help plz

sandra, what do you take for your pain relief?
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Date: 24.01.2011
From: sandra lowe

Subject: Re: methotrexate help plz

i was on difene but they were giving me a sick stomach so was given arcoxia, but was on internet looking them up and no wonder i was feeling dizzy and not quite with it, just cant find anything that doesnt make me drowsy or upset my stomach, did you say you were on a patch how do you find them?
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Date: 25.01.2011
From: sandra

Subject: Re: methotrexate help plz

hi sandra lowe,yes im on but-trans patches they have morphine in i think ,they made me a bit woosey and sickly at first but now im fine on them,there good cos they last a week,so your not running out of pain relief after 4 hours im only on a low dose of 10mg but they have bigger ones,maybe worth a try for you ?
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Date: 15.02.2011
From: George Ashford

Subject: Re: methotrexate help plz

Hi Sandra (Lowe),

I work for a market research company that specialises in the medical device field. We are looking for RA sufferers that inject Enbrel and either live in the London area or are willing and able to travel to London to take part in an interview. The interview will relate to a new device to help RA sufferers administer their drugs. We will pay 200 to cover expenses and the interview would last approx 90 minutes.

Would you be interested? Please do get in touch if you would like to know more - george.ashford@creativemedicalresearch.com

Best regards,
George
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Date: 22.02.2011
From: sandra s

Subject: Re: methotrexate help plz

hi ive been taking mt for 6 weeks now but im finding the side effects to much for me that im thinking of stopping taking them,i feel really sick,dizzy,headache and very tired for the first 3 days after taking them,i think this out ways the benefits having 3 ays every week sort of wiped out any advice plz thanks sandra s
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Date: 22.02.2011
From: Nicola

Subject: Re: methotrexate help plz

Hi, I'm on my 5th week of mtx. I take it on a Monday night and feel really tired and headachy for a few days and think I start to feel better after I take folic acid on a Thursday. I started on 7.5 of mtx and am now on 12.5, gradually building up to 15. I felt rubbish for the 1st week but I make sure I drink loads of water and I take it at night as I heard it can be better (sleep through side effects). I don't feel like it's working yet but I don't feel nearly as ill as I thought I would. I see my rheumy next week so hopefully my bloods will be ok.
Do you have a specialist nurse you can call for advice? My gp has been really helpful and I've phoned my rheumatologist aswell in the past if I needed advice, maybe there's something else that might make you feel better.
I hope you're feeling better!
Nic
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Date: 23.02.2011
From: rissa

Subject: Re: methotrexate help plz

Hi Sandra, my friend used to have an arthritis, she only took a tablet named "Procosa" a product of USANA, and it really works fine for him.
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Date: 23.02.2011
From: sansra s

Subject: Re: methotrexate help plz

hi thanks for the advice i have phoned my nurse this morning for advice i am waiting for a call back,i will mention procasa to her not heard of that before, see what time i get a call back sometimes its the next day
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