Date: 23.12.2010
From: Amy
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Subject: Grrr!!
Just back from seeing my rhuemy and he seems to think because I don't have any inflammation today (which I believe I do!) He's telling me to stop my meds and get an ultrasound on some of my joints and then see where we can go from there! Also mentioned my recent application of DLA and he doesn't think I'll get it. I'm sorry but he only sees me every 6 months and because I'm having an "ok" day I will more than likely be refused DLA and now on no tablets until after this ultrasound? I told him over and over I'm in a lot of pain and I feel a lot WORSE than I have done and it didn't seem to sink in! Soooo annoyed! Grrr, rant over!
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Date: 24.12.2010
From: dolly
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Subject: Re: Grrr!!
hi amy. sorry to hear bout ur rheummy being no help. i've had ra over 40 yrs and here's what i would do. on the next time i had a severe "flare up" where i could barely move, walk, or anything, i would go 2 the emergency room and at that time get the ER doc to send a copy of his report to the rheummy. that would show the rheummy that u do have horrible days and u want something [meds] that r goin 2 help u. if that doesn't work i would ask my gp 4 a different rheummy. your gp should still b able 2 prescribe u something 4 pain and inflammation, those 2 meds don't necessarily b prescribed from a rheummy. i wish u all the best. keep in touch, dolly
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