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Date: 29.10.2010
From: karen

Subject: Starting my mtx tonight

Wish me luck!

Also have been given ventolin as my chest has been tight the last couple of days, no infection but now Im worrying, its all suddenly sunk in that Im not well & all sorts is going through my mind!

The denial has definitely gone!
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Date: 29.10.2010
From: athena

Subject: Re: Starting my mtx tonight

good luck karen with the mtx tonight, let us know how you are tomorrow x
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Date: 30.10.2010
From: karen

Subject: Re: Starting my mtx tonight

Thank you, all is well as the mo x
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Date: 31.10.2010
From: kev

Subject: Re: Starting my mtx tonight

karen ive been on 15 mgs per week for 3 months its ok not had to many probs exept for the fact that all the swelling has gone and im back to my normal self god the differance is unbelievable stick with it and good luck...
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Date: 31.10.2010
From: paul

Subject: Re: Starting my mtx tonight

make sure you take folic acid tablets and have regular blood tests. Good luck with MTX.

Rgds

Paul
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Date: 31.10.2010
From: Laura

Subject: Re: Starting my mtx tonight

Good luck Karen, I started on it 2 months ago and I'm feeling a lot better so I hope it works for u too :)
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Date: 31.10.2010
From: karen

Subject: Re: Starting my mtx tonight

Thank you all!

Took my folic acid the day after & having bloods done every 2 weeks.

Had my one beer with my sunday roast, missing the wine! lol
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Date: 01.11.2010
From: Sandie

Subject: Re: Starting my mtx tonight

Hi Karen, I started MTX 4 weeks ago and I was fearing the worst. So far the problems have been few, mainly just bloatedness (which goes) but it's early days. I have had 2 bouts of feeling a little sick but they passed quickly and it might not even be related to MTX. Good luck, hope all continues to go fine and keep us posted. xx
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Date: 01.11.2010
From: Marilyn

Subject: Re: Starting my mtx tonight

Hi Karen, I started mtx 3 months ago, the nurse increased mine to 20mg as the lower dose wasn't working, still waiting for these to work just a little better but have only been on the 20mg 2 weeks. Good luck
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Date: 01.11.2010
From: karen

Subject: Re: Starting my mtx tonight

Hi Sandie & Marilyn

Glad to hear all is going well, I was also fearing the worst, I know its only been 4 days but all I seem to have got is an ulcer at the mo.

Good luck to you both, keep in touch x
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Date: 03.11.2010
From: Scaryfeet

Subject: Re: Starting my mtx tonight

Hi Karen

I've enjoyed a glass or 2 of red wine most nights in the 2 yrs I've been on mtx - my Rheumy is well aware of this and, as my liver function is coming back fine and is monitored monthly via my bloods she see's no reason to stop. You all may be interested in the article below that has found a positive link between red wine and RA!!

http://www.metro.co.uk/news/836337-good-news-alcohol-can-lessen-severity-of-arthritis

Obviously you need to speak to your own Rheumy about this as I appreciate we are all different and I am not medically qualified to tell you what you can and can't do...........

Cheers!!
xxx
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Date: 03.11.2010
From: Tom H

Subject: Re: Starting my mtx tonight

I've taken 2 doses of MTX so far (10mg) and not had any particular problems, apart from a rash last fri which cleared, also had a nose bleed monday morning, bit weird but it cleared up as well.

My knee has swollen AGAIN after my steroid injection (5th this year), the rheumys are baffled so have been put on 20mg of Prednisolone for 4 weeks, anyone been on this?

Ta
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Date: 04.11.2010
From: karen

Subject: Re: Starting my mtx tonight

Hi everyone

Well Ive decided to just have the odd beer in the week, at the weekend, if I want to share a bottle of wine then I will, as Im having fortnightly bloods, Ill see if I need to stop!

Tom, glad to hear you havent been getting any serious side effects with the mtx, hope you get your knee sorted soon.

Im lucky as Ive felt good for a few weeks now, even declined my steroid jab as felt I didnt need it, although my fingers have really been hurting the last couple of days, doesnt help I wake up & they are bent & I have to straighten them, seeing consultant weds so will mention then!

Karen x
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Date: 04.11.2010
From: Dalton

Subject: Re: Starting my mtx tonight

Hi

Ive been on methotrexate 20mg a week plus 4 sulphasalazine a day every day for about 10 months now and it really is worth hanging in there as it does take a little while to get used to them but definitely bear with it as it makes a massive difference especially is you take sulphasalazine aswell like I do. I also take folic acid 6 days a week 5mg as apparently this reduces the side effects of methotrexate. I also take amitriptyline (daily) and Tramadol.
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Date: 06.11.2010
From: karen

Subject: Re: Starting my mtx tonight

Scaryfeet, Ill think of you when I have my 2 glasses tonight then he he
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Date: 07.11.2010
From: Doreen

Subject: Re: Starting my mtx tonight

Thanks everyone
Im due to start mtx soon and your comments have helped ease my worry. Im Hypoglycmic,been tested twice for diabeties it was clear. I hope mtx does not make me worse as at the moment Im lucky to go walking for about 20-30 min then I take a hypo and am exhausted and have to go to bed.
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Date: 10.11.2010
From: Tom H

Subject: Re: Starting my mtx tonight

HI, just an update

I'm upto 15mg of MTX now and also top dose of 50mg of Prednisolone due to fact that knee only just responding but not enough for rheumy to be happy, damn knee. Little bit sicky day after taking MTX but not too bad. Onwards and Upwards!

Tom
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Date: 11.11.2010
From: ScaryFeet

Subject: Re: Starting my mtx tonight

Hi Karen
Hope you enjoyed your 2 glasses! Don't you think they taste better now they are 'the forbidden fruit'!!!!

Careful though - too much and you have the hangover from hell..........

xxx
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Date: 11.11.2010
From: karen

Subject: Re: Starting my mtx tonight

Hi Scaryfeet

I did enjoy them yes & I must say it made me a little tipsy so Im a cheap date now!

Had a little sneaky lager last night as I had a stressful day so no more till saturday now.

How are you? x
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Date: 12.11.2010
From: ScaryFeet

Subject: Re: Starting my mtx tonight

Hi Karen
Thought I'd let you know that I polished off 2 bottles of cava with a friend last night!! I have an elephant on my head and a camel has pooed in my mouth but boy I feel good for saying 'sod it' and having a bit of a life for a change!! Getting my bloods done regularly and liver etc is healthy!!

When I told my Rheumy I haven't stopped drinking, just moderated it a bit she laughed and said one of the only up sides of RA etc is you know you won't die of sclerosis of the liver as, unlike others we have our bloods checked all the time!!!

Chin, Chin!!
Lisa
xx
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Date: 12.11.2010
From: ScaryFeet

Subject: Re: Starting my mtx tonight

Sorry, forgot to ask how you were getting on???
xx
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Date: 12.11.2010
From: karen

Subject: Re: Starting my mtx tonight

Scary feet, your description of the hangover is brilliant though hope you are feeling better now!

Very true what your rheumy said, my liver is well looked after so going to enjoy a take away & drinkie poos with my family tom.

Im well, 3rd dose of mtx tonight so will see.

You didnt answer my question as to how you were?

x
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