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Date: 20.10.2010
From: katknapp

Subject: Does anyone else managed to work?

Please everyone tell me to stop being nosy!but i just want to know what to do with my own situation,im still off work and just dont know if i can go back to work,How do you all manage to work and cope with this arthritis?and how are your employers?are they understanding,i work for a big electrical company as sales im on my feet the whole time running around serving customers and im not sure i can still do it and if i cant i dont think they will want me back!
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Date: 20.10.2010
From: caroline

Subject: Re: Does anyone else managed to work?

I work part time in a local hospital. but ive only just been diagnosed im really struggling at the min. The girls i work with although are lovely they dont seam to believe me that im in pain. Ive got to the stage of just trying to get through the day with a smile is a bonus.
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Date: 21.10.2010
From: katknapp

Subject: Re: Does anyone else managed to work?

Its hard you try not to go on about how much pain you are in but if you dont no-one believes you,the trouble for me is they are not at all sympathetic where i work,i would tell them i couldnt walk much and they would still make me run up and down stairs after customers,im sort of stuck in limbo not knowing who to ask advice fromx
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Date: 21.10.2010
From: athena

Subject: Re: Does anyone else managed to work?

i work part time also and am struggling,im newly diagnosed and find it hard getting going in the mornings and then having to stand up all morning at work,they dont let me lift anything heavy now but am still expected to give 100% all the time and with take the DMARDS and trying to get my head round everything is hard let alone being in pain all the time,i need to find full time work next year when my son leaves college but as things are now i dont know how i will cope with it,its all such a worry x
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Date: 21.10.2010
From: katknapp

Subject: Re: Does anyone else managed to work?

its the same for me athene,i wont lift anything heavy but im still expected to stand all day and give 100% which i cant do anymore,im taking painkillers,steroids and dmards,i have tried talking to my manager but they have said theres no new role for me its sales or nothing,its so stressfulx
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Date: 21.10.2010
From: athena

Subject: Re: Does anyone else managed to work?

i know what you mean katknapp, what can we do as we have to earn money,as if we havent got enough to deal with having RA without the added stress,we do have stools at work but everytime i sit down to work even for a minute my boss find me something else to do,i feel like i dont get any support,i dont mind working hard and dont expect their sympathy but a little compassion on extra bad days would be nice sometimes x
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Date: 22.10.2010
From: ScaryFeet

Subject: Re: Does anyone else managed to work?

I gave up work in Feb as the stress of trying to cope with the twenty balls I was used to keeping in the air pre-diagnosis was making me even more ill. I thought everything would settle down to normality once I gave up working but in a way its worse. I feel guilty, useless, lazy, lost, oh boy I could go on and on with the list. My husband is an absolute star - in fact he is the only reason I am still here, without him I don't think I would see any point. My consultant is recommending Infliximab infusions now as methatrexate, lefluomide and hydroxacloraquinine (excuse spellings)aren't doing the trick and to make matters worse my hairs is falling out. So back to your question - manage to work? God, I just about manage to stay sane. x
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Date: 22.10.2010
From: valh:-)

Subject: Re: Does anyone else managed to work?

hi i work 20 hours a week and have great family that help out when am bad so can sit with feet up if need be when get in my feet give me most problems as am on them for 4 hour lol and hands from handleing money but gives me a reason to get up in a morning. hi jill long time no post lol
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Date: 22.10.2010
From: KayJay

Subject: Re: Does anyone else managed to work?

ScaryFeet = You are soooo lucky really = you have a partner that cares. Hold on to him there's not that many good ones around like that ;0) I do hope the new meds will make you feel better and you will be able to enjoy life together.
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Date: 03.11.2010
From: suze

Subject: Re: Does anyone else managed to work?

i work full time and stand on my feet for 12 hrs per day. every day is a struggle but i cant afford to go on the sick as im a single parent and have no 1 to help xx iv also had rhuematoid nodules removed from my feet which are returning xx
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Date: 04.11.2010
From: ScaryFeet

Subject: Re: Does anyone else managed to work?

Thanks KayJay

I can't believe how lucky I am either and I wouldn't swop him for the world. When I met him through work I decided there and then I would marry him! It took 12 months for him to realise I actually fancied him (low self esteem or what!) then we went on our first date to Madrid for a weekend and have been together ever since (8 years).

When we got together I was a bit of a babe, sex,drugs n rock & roll sort of thing, full of life and up for any adventure going and now.....well I have RA..........but what I haven't lost and will never loose is my sense of humour and no matter how bad I am feeling we can still have a giggle about something - even if its about the RA itself!!!

But your message really reminded me how important it is to let him know how special he is so Thank-you

Big hugs
xxx
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