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Date: 07.10.2010
From: Lynn B

Subject: New Drug psoriatic arthritis

Hi guys, I would just like to let you know I started a drug trial today for the psoriasis, and psoriatic Arthritis. The trial will last for 2yrs It is an injection once every 4 weeks, for 12 weeks, and then once every 12 weeks for up to 2yrs. It has had brilliant results in Canada, and Europe. From what I have been told It can stop the disease in its tracks.
I had my first injection today!!! So fingers crossed please and wish me luck, I will keep you all informed on how I get on. Take Care. x
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Date: 07.10.2010
From: Sally

Subject: Re: New Drug psoriatic arthritis

hi Lynn, lucky you! I hope it goes well hun! Do you mind if I ask about the psoriasis part of the arthritis? I'm getting dry and flakey skin in my eyebrows and other parts of my face. Thought it was a dermatitis but it disappeared on Methotrexate which I have stopped for 2 months now. Does that sound like psoriasis to you? I am sero-ve and it would help to have a positive diagnosis of some sort as it helps with choice of drug treatment I gather.
thanks hun xx
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Date: 07.10.2010
From: Lynn B

Subject: Re: New Drug psoriatic arthritis

Hi Sally, how you doing? I have had psoriasis since I was thirteen months old, so I have had it for 53yrs. Yes I also have it in my eyebrows dry and flakey, and most of my body.
I have been on mtx for just on 11 months now, and I noticed after 3 months my Poriasis started to clear up, I had to stop mtx because of a bad throat infection and it started to come back, but since I have been back on the mtx it is clearing again. Maybe you should see your doctor again and ask him. It cant hurt to ask sally at least you will know one way or the other.T.C.xx
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Date: 08.10.2010
From: Tom H

Subject: Re: New Drug psoriatic arthritis

Lynn, that drug sounds v exciting, are you allowed to tell us what it's called?

Cheers
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Date: 08.10.2010
From: Lynn B

Subject: Re: New Drug psoriatic arthritis

Hi Tom, I dont see why not no one has told me any different, the name of the drug is Ustekinumab, or the other name is Stelera... You can google it. I realy, realy, hope it does what they say.. anyway Tom I will keep you up to date with my progress if you want me to. T.C.
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Date: 09.10.2010
From: Lynn B

Subject: Re: New Drug psoriatic arthritis

I also forgot to add, I still have to take the methotrexate as well, dont know why.. T.c.
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Date: 14.10.2010
From: Tom H

Subject: Re: New Drug psoriatic arthritis

Hi Lynn thx for the info, very interested to hear how you are getting on as are others I'm sure. Good luck and I hope his has the "miracle effect" !!!
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Date: 02.04.2011
From: Jonny

Subject: Re: New Drug psoriatic arthritis

Hey Lynn - so we're a good few month on. How are you getting on, on the new drug?
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Date: 03.04.2011
From: Lynn B

Subject: Re: New Drug psoriatic arthritis

Hi all just to keep you updated, I am know 7 months into this drug trial, and well I do not have one patch of psoriasis, !the first time for 53yrs! My hands are so much better there is hardly any swelling or pain! Feet only hurt if I have done to much walking ( more than a mile) ha ha havent been able to do that for 3yrs I feel so much better, my joints still do get stiff tendons are a little sore If I am realy honest I have to say there is a 50% inprovement in my condition. I also have much more energy and I have cut my pain meds down to a third still have trouble sleeping but at least its not cos of pain!! Take Care everybody will let you know how I get on in the future still got 15 months left of the trial. xx
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Date: 03.04.2011
From: Tom H

Subject: Re: New Drug psoriatic arthritis

Sounds pretty good so far Lynn. Good luck with the rest of the trial. Tom
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