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Date: 01.10.2010
From: kylee

Subject: is my rhummy wrong

hello. please any advise or opinions would be great here we go.
i was told 4yers ago i have sero-negative arthritis i have been on many meds that havent worked i have always been convinced i have lupus even though i have never had the butterfly rash. my rhumy has done 9 lupus as he also thought i had lupus but all were negative. my main symptoms are joint pain and swollen joints full of fluid my eyes drive me mad and itch so much itchyness seems to come from my tear duct i also have pain and inflammation in muscles and tendons my white blood cells will drop very low then recover by them selfs to normal level i have also noticed that when i have a flare in 1 of my joints i tend to have a pain on the right side of my chest under my last rib bone. i dnt have stiffness in the mornings. please tell me are these arthritis symptoms or more like lupus i have spoke to my rhummy regarding my thoughts and he said he also thought it was lupus when i first met him but he said he has tested 9 times and all negative is this possible. is there any other tests that could be done. if any one sufferes with arthritis or lupus and suffers my symptoms please get bk to me as i feel i am in limbo at the miniute and feel as if i need to dig deeper
thanks
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Date: 02.10.2010
From: Louise

Subject: Re: is my rhummy wrong

Symptoms sound very similar to mine and i have never had definitive diagnosis either. What meds have you tried? Also what are your crp and esr levels like?
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Date: 02.10.2010
From: Sally

Subject: Re: is my rhummy wrong

hi Kylee, I've got sero negative too. I also get that rib pain on my right side, just like you. It is hard if they can't work out exactly what type of arthritis you've got. Sorry can't help more but share your frustration.
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Date: 02.10.2010
From: kylee

Subject: Re: is my rhummy wrong

i will have to get bk to you regarding my bloods as i am not sure however when i have a flare that is so bad i have the fluid removed nd have bloods done and my bloods show no inflammation yet myself and my rummy no there is inflamation there as he draws of several seringers of fluid my inflammation score on my bloods always appears normal. i have been on methatrexatr sulpfa hydro, and now i am just waiting for white bloods to rise as they are low at the moment so i can start anti tnf treatment louise what do you suffer from lupus or arthritis.
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