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Date: 16.09.2010
From: Doreen

Subject: methotreate

Sorry about last message Im new to this, and wrote a reply to Kirstine from Aug letters.
How did Methotreate affect anyone. I have a choice of two medications and been advised this is the better one Thanks.
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Date: 16.09.2010
From: Sally

Subject: Re: methotreate

Hi Doreen, Unfortunately I have had to come off it because it didn't agree with me but lots of people seem fine on it.
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Date: 16.09.2010
From: Jill

Subject: Re: methotreate

Hi ive been on methtrexate over 3 years now, 2 months ago, I began it iNjections form, as it affected my tummy, due to a problem....NO SIDE AFFECTS at all via Injections.....in the begining, U will feel different on it, makes us tired, and we kinda feel a bit off it each day, u know, bit unwell, tried etc, but it does get better, doesnt kick in till 8/12 weeks, so beat with it.....unless ya vomiting daily, stick with it....think most ppl get on well with it.....the alternative is having joints that degenerate fast! these meds help dampen down the problems.....ask if U can mb try Injections if y dont copw with tablets...good luck Jill
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Date: 17.09.2010
From: Angela

Subject: Re: methotreate

I have RA and have been on MTX for well over a year. I have had no side effects at all.
I am on 6 tablets every Monday and 1 folic acid on wednesday.
Hope this helps
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Date: 19.09.2010
From: Tom H

Subject: Re: methotreate

I start next week on MTX, so glad to read your messsage Angela!!!
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Date: 22.09.2010
From: Karen

Subject: Re: methotreate

Hi

I start my mtx on friday as had a reaction to sulfasalazine

Just wanted to wish you all the best!

Karen x
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Date: 23.09.2010
From: Marilyn

Subject: Re: methotreate

Hi all, I have been on MTX for almost 3 months ( 6 tablets every monday and Folic Acid on Friday. It does make me feel tired but generally no side effects yet. In fact at the moment I am feeling well.
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Date: 31.10.2010
From: kev

Subject: Re: methotreate

been on it 3 months the differance is great so dont worry
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Date: 03.11.2010
From: davina

Subject: Re: methotreate

Hi i have been on mtx for 5 wks and have had really bad dirroeh 4 or 5 days after lasting about 2days and has had belly ache. is this what people mean when they say it affects them too.

sorry if too much info. x
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Date: 03.04.2011
From: Bre

Subject: Re: methotreate

Hi all
Im gonna try to take the med tomorrow Im scared because of all the side affects sometimes I get extremely panicked when taking meds my heart races. I have athritis n discoid lup on hands n feet, head, both arms n Is in a flair, I won't lie I wish I could be in the hospital for the first dose Im really afraid, Im also a smoker don't know if I can quit right now pls advise please!!!!!!!!
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Date: 03.04.2011
From: Paula

Subject: Re: methotreate

Hi Bre

I had MTX added to my drugs last May and I haven't had any side effects at all. Currently taking 20mg once a week. I was frightened to take it, but did alot of research on the internet about it and found a site RA Warrior that helped me make the decision. If you google it and find the tab across the top of the homepage about MTX you can read up on it.

Just want to add about smoking. It won't help with RA if you do smoke, read something somewhere about it but just want to add have you had a chest xray. I had one when I was first diagnose because I use to smoke, (30 odd years ago) and I am sure that you have to have one anyway if you are going to start MTX.
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Date: 05.04.2011
From: Bre

Subject: Re: methotreate

Thanks for your concern and info, Can I stop at any time? Just nervous about this drug I have a tb test tomorrow because the doctor is considering embral injections, I guess the big concern is I don't want to trade for a worse condition, u know liver, kidney, or lung problems I have suffered so much I have 3 hop replacements, curved spine, little to no movement in my neck, shoulder surgery I just want to stop waking up every morning of my life with all this I just want a break not complaining just a little tired. Again thank u for taking the time to share your experience I hope we can keep the dialog going.
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Date: 05.04.2011
From: Gaynor

Subject: Re: methotreate

Hey Bre ---good luck for your test tomorrow. I hope you feel a bit better this evening. I have to confess .. your typo made me smile (HOP replacement). Sounds like what the Easter bunny has periodically. LOL. Keep your chin up. I think we all have so much more strength than we ever thought we were capable of huh? Do something nice for yourself and celebrate the fact that you are an amazing person. With all that you have been through --- you are still here and still moving forward with your life. Big hugs to ya.
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Date: 06.04.2011
From: Bre

Subject: Re: methotreate

Hi Gaynor
thank you so much, you made me chuckle. I'm gonna do my best, your encouragement means a lot I will keep in touch and pray for you and all things that are special to you, will update you soon thanks again!!!!!!
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Date: 06.04.2011
From: Bre

Subject: Re: methotreate

Hi Paula,
Thanks again, I feel the more information I have the better off I am, thank you for being real it means a lot to me. Are you doing well? I certainly hope and pray you are. Pls keep me up dated and I will do the same, thanks soo much!!!!! Oh! Tb test on tomorrow.
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Date: 06.04.2011
From: Paula

Subject: Re: methotreate

Hello Bre

Have you had a look on the RA Warrior site yet? Like I have said, reading what was on there helped me make the decision to take it.

I have read somewhere (can't remember if it is 90 or 95%) but it's one or the other, of people who have got RA have at sometime been on MTX. It is what they call the anchor drug for RA. They normally put people on it at first and then add other drugs to it. Some consultants put people on three drugs at first, MTX being one of them. I do know that if you are to progress on to anti tnf's you have to of failed on two DMARD's, one of them being MTX.

I don't know about coming off of it, if you can just stop taking it. I do know that it stays in your system for at least three months when you do stop. I have read of people having to stop it due to blood test results, so I would think that you could just stop taking it but if you have a specialist nurse they would beable to tell you. If you haven't ask at your pharmacy.

As for me, well I am not too good at the moment, not in lots of pain but I do think that things are getting worse, but I am always being told by my consultant that my bloods are alright and the disease is undercontrol. Would really like to know what undercontrol really means. Does it mean not being able to bend your fingers, waking up in the middle of the night it pain and having to take pain killers? Not being able to lift saucepans etc up? Hardly being able to hold a cup in the morning? All this has happened whilst I've been told 'It's undercontrol'. Sorry I am being Moaning Minnie here.

Hope TB test goes well.

Paula
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Date: 09.04.2011
From: Sue Gibson

Subject: Re: methotraxate

Dear all

This is the first time on this site, my Occ therapist gave me the information yesterday. Its so nice to hear that others are going through the same as me. Well, I don't mean nice its just my husband, parents, friends don't suffer from RA and I feel like no one really understands how it affects every day life.

I've been taking MTX for four months now. I was diagnoised with Pallendromic Arthritis to start with following a car accident in 2009 and last Nov was told it had progressed to RA.

I can't think of a joint that isn't affected but it has well and truly settled in my feet and tends to bounce in and out of the other joints.

Does anyone know where I can buy a comfortable pair of trendy shoes?? I've searched the internet and can only find shoes that are quite old fashioned and really expensive. I've just bought some Riekers, 52 later and they have made my feet really sore. I'm 41 and am not ready for shoes my mum wears just yet!!!

I'm still suffering from the side effects of the MTX which for me have been mouth and eye ulcers, extreme tiredness, thrush every time I take the drug, I take 20mg once a week, sickness, headaches, shivers and feeling really cold, low blood presure, bad sinus's, sore throat and finally dry hands.

I keep a diary of my symptoms and I type it out and hand it to my consultant on each visit. I want him to get a picture of how I really am as I tend to forget half of it and leave the appointment and kick myself.

I had my blood presure taken yesterday and my pressure is really low. My nurse said that people on this drug usually suffer from anemia.

I've changed my diet and am trying to go gluten free, being a veggie makes it a little more difficult though.

Anyway enough of me, does anyone have any idea's on the shoe front???? Remember, padded, low and trendy, and under 52 to keep husband quiet!!!!

Thanks

Sue
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Date: 11.04.2011
From: D.C.

Subject: Re: methotreate

Sue, I ordered myself a pair of clogs for my feet since they were swelling due to the psoriatic arthritis and bending the knees to tie laces was becomming too much of a problem. They aren't trendy as in fashion-forward, but they are comfy on my feet and I'm not too concerned with being trendy. The ones I ordered were the Sonja model from Sanita, ordered from www.worldofclogs.com (located in the UK but ship world-wide). These are a soft leather clog with a padded lip around the instep and a rubber base to help absorb the shocks on the knees.
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Date: 14.04.2011
From: Bre

Subject: Re: methotreate

Hi Paula,
I haven't had a chance to look at the web-site yet been busy trying to finish taxes before dead-line finally got it done, thank god. How r u feeling I've been praying for you and everyone, i just believe we will all get better I believe pain means *push* and we can't give up although it's very very tough, am I tired yes, but the words and encouragement of all of you all makes a difference, cause people who haven't gone through what we go through will never know this struggle, waking up in pain and going to sleep in pain. We try to find moments when the pain is not as bad and be thankful for it. Keep your heads up!!!!! And please be encouraged all.
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