Date: 10.09.2010
From: davina
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Subject: reducing steroids and in pain.
Hi hope every1 is feeling ok.
i've been on prednisolone for about 3 months and been reducing the dose from 20 to 10 mgs. i should be reducing down to 5 but i have stopped at 10 mgs daily because i'm in so much pain. i am swelling up everywhere and got new symptoms of muscle ache. i also have a pain in my back just below my shoulder blade when i breath in, not sure if its my lungs or muscle to.
i will be seeing my rheumy on the 21st sep and hoping they can give me other medication but because i want to have a baby in the next year not sure what they can give me. just wondering if anyone else has had this with reducing there meds and does anyone know what meds i could be put on that won't harm a baby when i'm ready to conceive. thanks in advance.
davina
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Date: 11.09.2010
From: Abbie
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Subject: Re: reducing steroids and in pain.
Hi Davina! so sorry to hear you are struggling! I too have had problems reducing pred. I was on 30mg for 3months and was dropping by 5mg but after was in a bad way. I was then put back on 20mg for 1month, then down to 15mg for 2wks then 10mg for 2wks then 9mg 1wk, 8mg 1wk. 7mg 1wk, 6mg 1wk and so on. This was better. Unfortunately steroids aren't the answer you really need something else. I also got muscle pain on reduction. Go well XXX
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Date: 15.09.2010
From: davina
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Subject: Re: reducing steroids and in pain.
hi abbie thanks for the info, maybe i'll try and get my rheumy to let me reduce the same way, as i can't deal with droping so quickly and from the dose. hope you are well
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Date: 15.09.2010
From: Sally
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Subject: Re: reducing steroids and in pain.
hi Davina, I agree with everything Abbie says. I'm on long term steroids too and it isn't great to be on them all this time. I think you should see your GP about the pain when you breathe in. That does not sound right to me :)
xx
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Date: 16.09.2010
From: Talloulah
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Subject: Re: reducing steroids and in pain.
ive been on high dose steroids for about 6 weeks now, and i cant get passed 25mg which is a new thing for me. past couple of days im having a major flare up involving 7 joints so back on the 40mg! unfortunately i have a pre-employment medical today so i doubt they'll give me the job as im hobbling :-( My condition is very mismanaged and my consultant wont see me (he's the only one who can change my meds), instead he rang my GP and told him i dont take my drugs! Lies!
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Date: 16.09.2010
From: Sally
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Subject: Re: reducing steroids and in pain.
If your consultant is that bad I would complain to PALS department at the hospital.
take care
xx
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Date: 16.09.2010
From: Marianne
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Subject: Re: reducing steroids and in pain.
I also am reducing my prednisone and am in agony.I was put on enbrel but it hasen't kicked in yet.All of the R.A. drugs are pretty strong .Your Dr. should know.r
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Date: 16.09.2010
From: davina
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Subject: Re: reducing steroids and in pain.
hi thanks everyone. i too am having a flare talloulah and in major pain with it, it is involving 7 joints for me too but my muscle pain has worsen and my right leg is extreamly painful and swolen from knee to foot, has this ever happened to anyone? i sound like a old wonman at 29! but its new to me this bad flare and i hate it. i'm sorry to be a moaner, i'm sure there are worse people than me.
take care and be pain free!
davina.x
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Date: 16.09.2010
From: Talloulah
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Subject: Re: reducing steroids and in pain.
Hi Davina - I don't think you're moaning at all, I'm 31 and feel so old. What condition do you have? I have Ankylosing Spondilitis, I get severe muscle pain at the top of my thighs when I try to walk when I'm reducing my steriods x
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Date: 16.09.2010
From: davina
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Subject: Re: reducing steroids and in pain.
I believe its rheumatiod arthritis which a rheumy as also said but now with the muscle pain getting worse i'm not sure. lol well i got a rheumy appointment on the 21st so hopefully she will help. i'm so glad i'm not the only young person to have this and that i found this site.
xx
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Date: 17.09.2010
From: katknapp
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Subject: Re: reducing steroids and in pain.
Hi Davina,Talloulah im reducing my steroids and am also in pain i also feel very shaky today not sure if thats part of it?and my legs gave way while out i ended up on the floor so embarrassing!im 42 by the way,the consultant has told me im too young to have arthritis but thats what i have ...note to body you are to young!!
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Date: 18.09.2010
From: Talloulah
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Subject: Re: reducing steroids and in pain.
too young! i was 12 when i was diagnosed. i was also admitted to hospital this morning. i couldnt walk this morning, and still had 7 swollen joints. so had IV steroids today, not noticed any change yet but they said it would take 2 days. my consultant still refused to see me, but he did turn up, and we had a row in the ward. but at least he's changing my meds now :-)
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