Date: 19.08.2010
From: Athena
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Subject: hi im new to the forum
hi, have been reading the forum for the last week or so and you all sound lovely so thought id write,have been having hip pains for the last 3yrs or so,got told by drs it was endometriosis but have the menopause at 30 so didnt think it was,could barely walk for weeks on end,for the last couple of months the pain has spread to numerous other joints but especially my toes,have had psorosis on and off for years but only mildly,i went to a new dr who thinks i may have psoriatic arthritis,received a rheumy appointment today for september which is meant to be a fast tracked appointment lol, not sure how i feel or even believe it can be something like that,i had nodules on my wrists and one swollen red finger but can really tell if anything else is swollen,am waiting for results of blood tests which i should get next tuesday,i also have hypothyrodism and my feet hurt before i started on thyroxine but it went as soon as treatment started,arthritis and psorosis runs in the family,sorry to go on about myself and would love to hear from others and hear their story,thank you Athena x
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Date: 20.08.2010
From: Lynn B
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Subject: Re: hi im new to the forum
Hi Athena and welcome to the forum, there are such a lot of fab guys on here. I have had endrometriosis and had to have a hystarectomy (soz cant spell that)I have PA and it started in my feet I could not walk for the pain, even when i was resting the pain in my feet was horrific (I used to cry) You need to wait and see rheummy get started on some proper pain relieve while you are waiting for a diagnosis.Please let us know how you get on take care.x
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Date: 20.08.2010
From: Athena
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Subject: Re: hi im new to the forum
hi lynn,thank you for replying to me,its great to meet you,how long have you had PA? is it normal for the pain to be in different joints daily aswell as the same ones? mine seems to be spreading,its in my right thumb today but not that painful, what meds are you on and do they help? im only taking ibuprofen which does dull the pain and helps the stiffness but my feet feel like ive been standing up for days on end without resting them,is that what yours is like? ive been reading a lot of topics on here and it seems people have to wait ages to see a rheumy so a 5wk wait isnt so long really,ive been to drs a few times over the last 3yrs cos my hips have been so painful,that moves around too tho sometimes its in my groin and then the top of my legs,that is the worst pain and my son has to help me upstairs when its like that, im only 40 but feel 90,anyway better go or will be writing all day lol, take care and speak soon x
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Date: 20.08.2010
From: Lynn B
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Subject: Re: hi im new to the forum
Hi Athena I have had PA for years, wich used to come and go, got sent to a podiatrist(think thats how you spell it) was told I had flat feet, and have had insoles made for ten years, different types. I eventualy got diagnosed last year although I have had psoriasis since i was 13months old am know 54.
You can wake up every morning with it in different joints some days like today I feel like I am walking on hot sharp pebbles feet are hot and throbbing, its in my hands fingers (sausage fingers and toes, ankles, knees, right hip bottom of back and left shoulder, and its just starting in my jaw. I cant take anti inflams because of other meds, I am on 15mgs of methotrexate a week
codeine phosphate and parasetamol , Mtxt isnt working for me so am going on a new drug in 3 to 4 weeks time will let you know what it is and how i feel. Your son sounds like a good lad, sorry to ramble so much. take care. x
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Date: 21.08.2010
From: Jill
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Subject: Re: hi im new to the forum
((((hugs LYNN)))) xxx
Btw Athena, Thyroid can be part and parcel of Arthrits....Ive had Most of my Thyroid removed(little bit left) had that done in 1995ish, also had ACROMEGALY(gone now) specialist said Thyroid and Arthrits and carpal tunnel are all markers for the Dreaded Artha
tc Jillx
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Date: 22.08.2010
From: Athena
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Subject: Re: hi im new to the forum
hi lynn,thank you for your reply and you didnt ramble at all,hope you have had a good weekend, are you in constant pain or do you get times when it leaves you alone for a while? hope you dont mind me asking you question, the pain i get in my hips is different then in my feet, my feet ache so much and feel hot and it feels like im walking with no skin on them if that makes sense,,every little stone i step on is so painful,has the MXT helped you at all? i work in a dispensery and fill out prescriptions for it but we arent even allowed to touch it, id be scared to take it i think,also do you get a lot of clicking in your affected joints? i do and when i press it with my hands i can move something about,not sure what that is tho,anyway i think im rambling now,speak soon i hope,tc x hi jill,thank you i didnt know thyroid and arthritis go together even tho i knew they are both auto immune dieseases, sorry but what is acromegaly? do you take thyroxine,mine was underactive for years before they found it,i also get carpal tunnel i think, but my little fingers and ring fingers and down that side of both hands go numb every night and when im driving,is that what is is? even tho that too went when i first started on thyroxine but had come back with a vengence the last year or so,ive also got a very painful ganglion on my wrist which has come up within the last 6wks,it drives me mad,anyway sorry to go on,hope you are having a good weekend and hope to speak soon tc x
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Date: 23.08.2010
From: jill
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Subject: Re: hi im new to the forum
Hi Athena sounds like carpal tunnel to me, they can do a test to double check.... Acromegaly is a Pituitary gland tumour......runs in our family, and so does Thyroid....I am Not on Thyroxine, as I had a growth on my thyroid, and had most removed, have bloods done every 6 months, and the little bit of thyroid I have is coping well...so no need for thyroxine...yet! go see your doc, as Carpal tunnel tend to get worse at night, nd when driving.....tc Jill x
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Date: 24.08.2010
From: athena
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Subject: Re: hi im new to the forum
hi jill, thank you,i will go and see the dr about it,i meant to mention it when i went about my joints but forgot when i was in there,i dont get any pain with it just the numbness and equally in both hands, ive been reading a lot of the topics and it seems a lot of people arent getting referred very quickly or easily to see a rheumy by their gp's, ive been very lucky cos only had to see him once and hes referred me straight away and fast tracked me but i feel im not in as much pain as a lot of people on here,.the mornings are bad but after a couple of hours i do loosen up a bit,sorry to hear you had a pituitary gland tumour,are you ok now? i know it controls the thyroid so do the 2 go hand in hand,ive also got gallstones,is that any connection? luckily havent had an attack for a few months now tho, hope your have a good day tc x
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Date: 24.08.2010
From: Athena
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Subject: Re: hi im new to the forum
got blood test results today and my RF is 51 which the dr said is possitive, is that high cos thought it wasnt meant to go over 20, he didnt mention any of the other things they tested for being high or possitive, hope someone can help me,thanks Athena x
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Date: 25.08.2010
From: Abbie
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Subject: Re: hi im new to the forum
Hi Anthea! I've had PA for five years but was Only diagnosed a yr ago. It's very normal with it to have different joint pain each day. You can also got PA before your psoriasis shows itself. Do you have sausage toes and/or fingers? Medication wise i'm on mtx shots, prednisolone, depot steroid shots and morphine for the pain. 3wks ago I started on Ciclosporin but was taken off it at the weekend because I couldn't cope with the side effects so am now waiting to start the anti TNF Infliximab/Remicade as i'm relying too much on steroids and morphine which isn't good. I too have underactive thyroid. Interesting to read above as my CRP and ESR Have recently gone quite high and I too have had to increase my thyroxine because my thyroid function has dipped. Anyway, welcome to the forum, Go well X
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Date: 25.08.2010
From: Athena
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Subject: Re: hi im new to the forum
hi abbie,thank you for your reply,are the side effects really bad with a lot of the meds they give you? that scares me to be honest, i havent noticed that much swelling,one finger swells but not a great deal but my feet feel swollen,they are really playing me up at the moment, the dr thinks i have RA now not PA but wont know until i see the rheumy next month, have you had much effects with the meds you have been on? and is there less side effects with the anti TNF ? do you think thyroid and arthritis are connected ?sorry im asking so many questions :) i hate the mornings cos it feels like ive been beaten up every morning im so stiff and in pain and it takes hours for it too ease off,the pain never goes tho but keep hoping i will wake up one morning pain free,anyway tc and hope to speak soon x
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Date: 27.08.2010
From: Jill
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Subject: Re: hi im new to the forum
Hi again Athena ¦Had my Gall Bladder out cos I had 6 stones, pain was terrible, dont want to scare u, but if u get the pain again, U must have that looked into by scan, as the stones can move, and get stuck in the ducts, and the pancreas, and ya dont want that....when was u last seen about the gall stones? had mine removed via keyhole, uncomfy for a few weeks, but I also ahve Gastritis(inflamed stomach Lining) that is horrendous pain, like labour pains....on meds for that, but dont seem to be working so good..... re the thyroid and artha..I was told that it is connected.....re acromegaly, runs in family, but mine stopped b4 it got too bad, hands grew and my feet r now size 9 lolol....there is no ryme or reason Y it begins, and Y it stops....stress can cause it to happen, a huge Trauma, which I did have infact, Masssive Trauma, think thats y i kicked off....keep in touch, let us all know how u get on ok xxxx
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Date: 28.08.2010
From: Athena
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Subject: Re: hi im new to the forum
hi jill, how are you today? was hoping for a lie in 2day but been awake for hours with wrist pain,its the worse its ever been :( if it isnt one joint its another, i had a scan on my gallbladder last year and have got loads of small stones in there, the attacks are horrendous,up all night in absolute agony with severe vomiting,i think i must of passed some stones tho cos have been ok for a good 6months or more now,the last really bad attack was christmas eve,the dr wanted me to have it taken out but i said id wait a bit,has having your gallbladder removed helped your gastritis? or is that a seperate thing,that doesnt sound nice at all. i agree with you about stress triggering things,ive had a lot of stress in my life and think it comes out in other ways,sorry to hear you have had a huge trauma, have you got lots of supportive people around you? i havent really, maybe they just dont understand and im not looking for sympathy from them but just want to talk to them about how im feeling,ive been told not to worry about the pain im in ! anyway hope to hear from you soon tc x
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